Intersections of Disability and Rurality: Elevating Family Voices

In this recorded webinar, you will hear from Jessica Curd about rural caregiving and disability. She talks about how poverty, living in rural areas, caregiving, and having a disability can overlap and create higher risks and vulnerability. She also talks about a study she did with Dr. John Keesler. They listened to families in rural areas with kids with autism and let them share their experiences. Jessica explains how they did the study and what they found. She also talks about ideas from the families for how to help more.

Download the presentation here.

Introduction to The Arc@School Advocacy Curriculum in Spanish

These recorded webinars provide a brief overview of the Spanish version of The Arc@School’s Special Education Advocacy Curriculum. The curriculum provides basic information that parents, educators, and non-attorney advocates need to support students and families in navigating the special education system. Watch the webinar to learn more about the content of the curriculum, how to sign up to receive an account, what to expect after signing up, and more.

IN ENGLISH:

IN SPANISH:

Talk About Sexual Violence: Phase Three Final Report

Transforming Health Care to Address and Prevent Sexual Violence of People With Intellectual and Developmental Disabilities: Final Report 

Health care providers hold vital positions in the growing national movement to address sexual assault. The overarching goals of the multi-year Talk About Sexual Violence (TASV) project were to raise the alarm about this silent epidemic, promote trauma-informed practices in health care, and compel action to prevent sexual trauma suffered in communities across the country.

This comprehensive summary report provides key findings, innovative solutions, and a call to action from survivors with disabilities, health care professionals, and other advocates.

This final report is provided both in a written format and as a video.

Shifting Our View: A Person-Centered Journey

In this webinar, Lori Ropa, Executive Director of The Arc of Jefferson, Clear Creek, and Gilpin Counties, discusses how she embarked on a journey with their advocacy team during COVID to “shift their views” and attempted to understand the thoughts and feelings of the people who came to support them. Lori’s team developed personas and mapped people’s journeys through The Arc through the lens of each persona. They then developed actionable items to make the advocacy experience even more positive for the people coming to their organization for support.

Download presentation here.

FINDS Community Report 2023: Family & Individual Needs for Disability Supports

The Family and Individual Needs for Disability Supports (FINDS) survey provides insights and understanding of the experiences of families supporting a family member with intellectual and developmental disabilities (IDD). It is critical research to inform better policy development.

The FINDS survey was initially conducted by The Arc of the United States in 2010. It was updated in 2017 through a collaboration between the Research and Training Center on Community Living (RTC/CL) at the University of Minnesota and The Arc.

The 2023 report focused on:

  1. What are the challenges families face in meeting the support needs of their family members?
  2. What are the economic implications of caregiving?
  3. How does caregiving affect caregivers, and what supports do they need?

A better understanding of the experiences and needs of caregivers can help policymakers and others support caregivers in this critical role.

Cultivating a Strong Assistive Technology Program

In this webinar, The Arc of Ohio presented a summary of its popular Assistive Technology Program, including information about the program’s history and impact. Watch the video to learn more about the program and the opportunities it can create for people with intellectual and developmental disabilities in their local communities.

Speaker Bio: 

David Lewis is the Vice President for The Arc of Ohio in Columbus, Ohio. He received his Cisco CCNA Certification from Columbus State Community College and is Microsoft A+ Certified. David has over 25 years of experience in the technology field having spent 15 years as a network administrator and 10 years as a technology specialist for the digital industry. After a long and successful career in the technology field, David decided to follow his passion for helping others.

Emma Kincaid is the Director of the Assistive Technology Program at The Arc of Ohio. She has worked with The Arc since August 2019. Emma has three years of experience in assistive technology at The Arc of Ohio. Emma’s favorite part of her career with The Arc of Ohio is how the assistive technology program gives individuals throughout Ohio the equipment they need in their daily lives. Emma hopes to keep helping more people with disabilities live happy and independent lives.

Promising Programmatic Practices for People With Dual Diagnosis

Incompass provides residential and day/employment programming for a dually diagnosed, forensically involved population as well as a residential program for individuals diagnosed with Huntington’s Disorder. In this webinar, Chris Snell, MS and Dorian Crawford, PsyD of Incompass Human Services will provide an overview of community-based service promising practices for an emerging, dually diagnosed population.

View session presentation slides here.

Engagement in the Early Intervention Program Planning Process for Parents and Professionals

Early intervention program planning can be challenging at times for students, parents, teachers, service providers, and administrators—but it doesn’t have to be.

Enter your information below to watch a free video. You will hear from Dr. Rachel Brady about IDEA Part C & B, program planning requirements, and strategies that support more meaningful engagement in early intervention programs. Equity issues and the points of advocacy at the individual and systems levels are also explored through examples, discussion, and a review of available resources.

By completing this form you agree to receive email communications from The Arc and/or our affiliated chapters. You may unsubscribe from these communications at any time. For more information, check out our privacy policy.

Health & Hospital Corporation of Marion County v. Talevski

Filed: September 22, 2022

Court: U.S. Supreme Court

Overview: Amicus brief explaining the importance of individuals having the ability to sue state and local governments when their civil rights are violated under Medicaid and other public programs.

Excerpt: The linkage between the RA’s and the ADA’s antidiscrimination mandate and Medicaid provisions implementing that mandate is evidence that Congress intended both aspects of its disability-rights scheme to be privately enforceable. That conclusion is bolstered by the fact that Congress, when enacting the ACA, broadened Medicaid’s “entitlement” provisions by expanding the definition of “medical assistance.” Congress did so in direct response to judicial decisions narrowly construing that term in § 1983 suits brought by people with disabilities. Petitioners’ request that this Court abandon its longstanding holding that Spending Clause legislation can give rise to a private right of action under § 1983 would undermine Congress’s scheme for enforcing disability rights. People with disabilities, including children, regularly bring private lawsuits to enforce each of their independent, mutually reinforcing entitlements under the RA, the ADA, and Medicaid. Those lawsuits have vindicated important rights, providing access to life-saving therapies and everyday living support services close to one’s family and community. Absent a private right of action to enforce their Medicaid guarantees, enforcement of Medicaid would be left to the federal government, which may have few enforcement options other than reduction of States’ Medicaid funding. That may exacerbate rather than remedy States’ failure to comply with Medicaid’s requirements.

Case Documents

Amicus Brief

Supreme Court Opinion

Press Releases

Amicus Brief Filed in U.S. Supreme Court Case Emphasizes Harms to People with Disabilities

A Major Win for Disability Rights From SCOTUS

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Exploring Locative Technology: What You Need to Know to Address Wandering

During this webinar, the International Association of Chiefs of Police (IACP) discusses the pros and cons of using tracking devices in wandering situations, emphasizing some effective alternatives.

The speakers are two parents and police officers, Laurie Reyes and Stefan Bjes, and Board Member, poet, and self-advocate Russell Lehmann.