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Time to Check Your Health Insurance

/in /by The Arc

2019 Open Enrollment:

November 1, 2018
Open enrollment begins

December 15, 2018
Open enrollment ends

January 1, 2019
Coverage begins

If you’re uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s marketplace or health insurance exchange. During “open enrollment”, private health insurance options can be reviewed and coverage can be purchased. People with low and moderate incomes may be able to get financial help to pay for health insurance coverage. Assistance to pay for premiums and other cost-sharing may be available for individuals and families, depending on which plan is purchased and the families’ income level. If you get health insurance through your employer, Medicaid or Medicare, you are not eligible for this assistance.

You can also sign up for insurance outside of the open enrollment period, if you lose your job, get married, divorced or have a baby. You may enroll in Medicaid or the Children’s Health Insurance Program (CHIP) at any time.

Do all states have the same open enrollment dates?

No. Some states have longer enrollment periods. States with different ones are listed below:

California: Oct. 15, 2018 – Jan. 15, 2019

Colorado: Nov. 1, 2018 – Jan. 15, 2019

DC: Nov. 1, 2018 — Jan. 31, 2019

Massachusetts: Nov. 1, 2018 – Jan. 23, 2019

Minnesota: Nov. 1, 2018 – Jan. 13, 2019

Rhode Island: Nov. 1, 2018 – Dec. 31, 2018

If you have a disability or a health condition, be sure to ask before you select a plan:

  • Are a broad range of health care providers included in the health plan’s provider network?
  • Are there enough medical specialists in the network to meet your needs?
  • Are the medications you need included in the plan’s list of covered drugs? Has the cost sharing changed? Are there other requirements like prior authorization?
  • Is there adequate access to non-clinical, disability-specific services and supports?
  • Does the plan have service limits, such as caps or limits on the number of office visits for therapy services?
  • Are mental health services covered to the same extent that other “physical” health benefits are covered?

I already have health insurance through the Marketplace. Do I need to do something?

It is important to update your income and household information in the Marketplace to make sure you get the assistance that is available to you. 

  • This is also a good time to check your health insurance coverage and see if it still meets your healthcare needs.
  • If a new plan does not cover your providers or services, seek more information about transitioning from your current provider to a new one.
  • You should carefully read all health insurance notices and updates.
  • If your income has increased, updating your information with the Marketplace will help avoid paying penalties.

I and/or my family members are uninsured, can we sign up?

Uninsured individuals can go online, enter information and review insurance options. Information on monthly premiums, deductible costs, doctors, hospitals and which drugs are covered by a plan should be available. Enrollment is limited to individuals who live in the United States, are U.S. citizens, nationals, or non-citizens who are lawfully present, and not currently incarcerated. If you have not signed up for an insurance plan, it is important to note that you may be subject to a fee for not having health care coverage.

Most individuals will be able to get health insurance coverage regardless of pre-existing health conditions or prior denial of coverage. However, due to recent federal changes, the marketplace may sell policies that do not include the protections from the Affordable Care Act (ACA). These ACA protections include covering essential health benefits such as rehabilitation or behavioral health and ensuring that plans do not charge people with preexisting conditions more for coverage. It is more important than ever to thoroughly review what benefits a plan offers and what it costs.

Where can I go to get help?

Purchasing health insurance can be complicated. If you or your family member needs assistance with understanding the options, healthcare.gov can help. Each state has health insurance “navigators” to assist individuals with enrollment in health insurance plans. Individual health plan information should be available in late October 2018 on the website. If you would like more information on specific topics, the National Disability Navigator Resource Collaborative has a comprehensive set of materials available on disability issues and the Affordable Care Act.

Website: www.healthcare.gov
Phone: 1-800-318-2596 (Available 24/7 with access to 150 languages)
TTY: 1-855-889-4325
In-Person Assistance Resources: localhelp.healthcare.gov

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Help Chapters Affected by Natural Disasters

/in /by The Arc

Thank you to everyone that contributed to The Arc’s Disaster Relief Fund. Unfortunately, the need for financial assistance continues in hurricane and flood-ravaged FL and NC. In addition, California wildfires have recently damaged chapters out west.

Thank you for considering a gift to help chapters make building repairs, replace equipment and materials, provide operating support for chapters unable to deliver and be reimbursed for services. 100% of your donation will be distributed to chapters, the people they serve and their families. If you’d like to make a donation to a specific chapter, please visit the chapter’s website or use The Arc’s Find a Chapter webpage.

Donate to the disaster relief fund.

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Get Out the Vote! Social Media Resources

/in /by The Arc

Election day is just 7 days away! Elections can impact so many important issues for people with disabilities – it is critical that everyone makes their opinion count. Use the sample social media posts and graphic below to encourage your networks to get out and vote. Please contact Claire Manning, director of Advocacy and Mobilization with any questions.

Sample Posts:

  • Today is Election day – and every vote matters! Not sure where your polling place is? Visit vote.org
  • Are you ready to vote TODAY? Post a selfie below with your #IVoted sticker!
  • It’s Election day! If you have any problems at the polls call 1-866-OUR- VOTE. Share to spread the word.

Sample Graphic (contact katz@thearc.org for a high-resolution file) 

 

 

 

 

 

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Honoring Leaders We Have Lost

/in /by The Arc

Last year, we started a new tradition of honoring leaders from The Arc who have passed away. While they may no longer be with us, their memory and contribution to our mission will live on.

We are once again planning to share the names of those we have lost from The Arc’s network during our National Convention. Please send the name and chapter affiliation of anyone who should be included to communications@thearc.org by Friday, November 2, 2018.

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Our Hearts Are Heavy: A Statement on the Tree of Life Synagogue Shooting

/in , , /by The Arc

A statement from The Arc of Greater Pittsburgh, known as ACHIEVA, on the shooting at Tree of Life Synagogue this weekend. Two of their clients, Cecil and David Rosenthal were victims of the attack.

On behalf of the Board of Directors and Staff of The Arc, we offer our most heartfelt sympathy to the entire ACHIEVA family on the tragic loss of Cecil and David Rosenthal.

The ACHIEVA family is devastated at the loss of two well-respected members of our community. Two extraordinary men, brothers Cecil and David Rosenthal, were victims of the tragedy at the Tree of Life Synagogue.

Cecil and David had a love for life and for those around them. As long-standing recipients of ACHIEVA’s residential and employment services, they were as much a part of the ACHIEVA family as they were their beloved neighborhood of Squirrel Hill.

They loved life. They loved their community. They spent a lot of time at the Tree of Life, never missing a Saturday. “If they were here they would tell you that is where they were supposed to be,” said Chris Schopf, Vice President, Residential Supports, ACHIEVA.

Chris added, “Cecil’s laugh was infectious. David was so kind and had such a gentle spirit. Together, they looked out for one another. They were inseparable. Most of all, they were kind, good people with a strong faith and respect for everyone around.”

Our collective hearts are heavy with sympathy to the Rosenthal family, and to all who were affected by the tragedy at Tree of Life.

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Impact of the Public Charge Rule Change on People With Disabilities

/in /by The Arc

Written in partnership with:

What is the Public Charge rule?

On October 10, the Department of Homeland Security announced the “public charge” rule. This rule allows the U.S. to keep out people who may become a “public charge.” Someone is called a “public charge” if the government thinks you might depend on government benefits to meet your needs. Someone who is called a “public charge” will be discriminated against if they try to enter the U.S. (get a visa) or get a green card (become a permanent resident).

The proposed rule is unfair, dangerous, and blatantly discriminatory. The rule would exclude people from this country simply because they have a disability.

The U.S. has already had a public charge rule for a long time. The new rule will make things much worse. Under the old rule, someone was only considered a public charge if they used cash benefits, like social security or TANF, or if they lived in an institution. The new rule uses a much bigger list of programs and benefits, and it also looks at other things like someone’s health and income.

The Rule Discourages the Use of Important Programs and Benefits

The new rule will discourage families from using important services for fear of harming their immigration status. People with disabilities and our families often need to use government benefits in order to stay fed, housed, and healthy. Under the new rule, using–or even just applying for–these benefits will count against us. Some of the programs and benefits that will count against us under this new rule are:

  • Medicaid
  • Food stamps, or SNAP
  • Medicare Part D assistance
  • Section 8 housing assistance
  • Children’s Health Insurance Program, or CHIP (they are still deciding whether to include this program)

In addition, the rule will also look at someone’s income. If someone or their family is lowincome, that will count against them.

The Rule is An Attack on Medicaid

The public charge rule is another attack on the basic services people with disabilities receive through Medicaid. The new rule includes the Medicaid-funded services that help people with disabilities stay in our homes, work, go to school, and live in our communities. These services are sometimes called waiver services, personal care services, nursing services, respite, intensive mental health services, and employment supports.

This creates an unfair choice for people with disabilities and our families. Medicaid is the only source for community living supports for people with disabilities. Community services simply aren’t available under private insurance. This rule will force immigrant families to choose between surviving without needed community services or being denied entry into this country just because their family member has a disability and might need services.

The Rule Discriminates Against People with Disabilities

The proposed rule directly discriminates against people with disabilities and chronic health conditions. In addition to benefits, the rule looks at a person’s health to decide if they will become a public charge. If someone has certain medical conditions, that counts against them. If someone doesn’t have a medical condition or a disability, the rule says that is a “positive factor.” This is unfair and discriminatory to people with disabilities and chronic health conditions.

The rule specially calls out people with the “most expensive health conditions,” including:

  • Heart disease
  • Cancer
  • Trauma
  • Mental health conditions

The rule also looks at whether or not a person can obtain private health insurance to pay for the medical costs the government thinks they will have because of their chronic health condition or disability. If someone doesn’t have health insurance, that counts against them. But because many important community services are only available through Medicaid and are not covered by private insurance, many people with disabilities won’t pass this test.

In other words, the proposed rule would exclude people with disabilities simply because they have a disability.

The Rule Isn’t Final Yet

If the new rule is put into practice, it will hurt many immigrants and immigrant families, including people with disabilities. But there is still time. For the next 60 days, the Department of Homeland Security is taking comments on the rule. Anyone can comment on the rule, and the government is required to read and respond to the comments. It is critical that the disability community sends in as many comments as possible explaining why this rule is dangerous and discriminatory and why it should not be put into practice. If we all speak up, we can keep this rule from being implemented.

For more information, please visit https://medicaid.publicrep.org/feature/public-charge/ and https://protectingimmigrantfamilies.org/. These websites include information and resources on how to comment.

For more information on this and other topics, visit

  • www.thearc.org
  • ASAN: autisticadvocacy.org
  • CPR: centerforpublicrep.org
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Tommy Hilfiger, Levy Restaurant Group, Amy & The Orphans and More: The Arc Announces Winners of 2018 Catalyst Awards

/in /by The Arc

On November 9, The Arc will present the prestigious Catalyst Awards to six honorees, all of whom have made extraordinary contributions in the lives of people with intellectual and developmental disabilities (I/DD). This year’s winners hail from a wide swath of our society, including one of the most admired fashion brands in the world, the lead cast and writer behind a hit off-Broadway show, a nationally recognized self-advocate, a non-profit that is paving the way for inclusion of disability in the fashion industry, and one of the nation’s premier special education lawyers, all of whom are changing how society perceives and treats people with disabilities.
“The Catalyst Awards honor those who are not traditionally recognized within the disability community for their diverse and meaningful contributions to our movement. These award winners are unique in their accomplishments, but unified by their tireless pursuit of inclusion. Their work has helped further The Arc’s mission to promote and protect the human rights of people with intellectual and developmental disabilities, and we are thrilled to bring them together to receive this well-earned honor. Our hope is that by shining a spotlight on these change agents we will inspire and educate others,” said Peter Berns, Chief Executive Officer of The Arc.

During the fourth year of this signature event, awards will be presented in six categories. A full list of the accomplishments being honored can be found on The Arc’s Catalyst Awards website.

  • Corporate Advocate of the Year – Tommy Hilfiger revolutionized the fashion industry by launching the Tommy Adaptive Collection in 2017, a line of clothing tailored to the needs of people with disabilities. More than just being the first mainstream fashion brand to design a clothing line specifically for people with disabilities, Tommy Hilfiger has relied upon the advice and feedback from the community to create each design. Modifications such as one-handed zippers, side-seam openings, bungee cord closure systems and magnetic buttons, were incorporated into the design of each piece to maximize comfort and ease of use for people with disabilities. Through its Adaptive Collection, Tommy Hilfiger has become a leader in making the fashion industry more inclusive.
  • Self-Advocate of the Year – James Meadours has been a tireless advocate for individuals with I/DD for decades. Throughout his career, Meadours has used his personal experience to highlight challenges facing individuals with I/DD in our nation. As a survivor of sexual assault, he has been a powerful activist in the #MeToo movement and he has made it his mission to help victims of sexual violence across the nation become survivors. He is a trail blazer, leader, and staunch defender of people with I/DD.
  • Entertainment Industry Excellence – Amy and The Orphans is a critically acclaimed show that is the first and only known Broadway or off-Broadway production to feature actors with I/DD in leading roles. Written by critically-acclaimed playwright Lindsey Ferrentino and Directed by Tony nominee Scott Ellis, Amy and the Orphans, tells a humorous yet truthful story of three siblings – one of whom, Amy, has I/DD – who come together in the wake of their father’s funeral for a road trip. Jamie Brewer (known for her roles in FX’s hit series American Horror Story) and Edward Barbanell, both actors with disabilities, will be honored with the award along with Ferrentino.
  • Legal Advocate of the Year – Jack D. Robinson is receiving the Legal Advocate of the Year Award in recognition of his illustrious career in special education law and his dedication to protecting the legal right to a free appropriate public education (FAPE) for students with disabilities on the state and national levels. Most recently, Robinson represented Endrew F. before the U.S. Supreme Court in the IDEA case, Endrew F. v. Douglas County School District. The Endrew F.decision has been hailed as a landmark decision that transforms the educational rights of students with disabilities and empowers parents fighting for the civil rights of their children with disabilities.
  • Employer of the Year – Levy Restaurant Group has made hiring people with I/DD a priority and has made disability inclusion a key hiring initiative at new locations. One of their most successful job training and placement programs has been at the Barclays Center in Brooklyn, New York, where they have successfully placed over 100 people with I/DD in jobs at their food service locations at the venue. The Levy Restaurant Group has replicated their successful model at several other locations in New York with plans to expand to more locations around the country in the near future.
  • Marketing Influencer of the Year – Runway of Dreams Foundation (RODF) is a non-profit organization that develops, delivers and supports charitable initiatives to broaden the reach of adaptive clothing and promote the differently-abled community in the fashion industry. RODF uses a multifaceted approach in their work, which includes processing adaptive clothing donations, creating employment opportunities with fashion brands, leading adaptive design workshops and providing scholarships to aspiring designers.

Comcast NBCUniversal is The Arc’s National Media Sponsor and lead sponsor of the Catalyst Awards.

“Each of these awards speak to the power of inclusivity, and that’s why we are so grateful to partner with The Arc and recognize these honorees for giving a voice to, and advocating for, people of all abilities,” said Fred Maahs, Senior Director of Strategic Partnerships at Comcast.

All nominations were reviewed by a formal selection committee comprised of members of The Arc’s National Staff, members of The Arc’s Board of Directors, prior Catalyst Award Winners, National Conference of Executives of The Arc members, and Peter Berns, Chief Executive Officer of The Arc, serves as the Chair of the Catalyst Awards Selection Committee. Criteria for selection can be found on The Catalyst Awards Website.

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Make the Most of your Fundraising!

/in /by The Arc

Do you want to get the most from your fundraising and find bigger-dollar donors? Are you striving to be strategic and cost-effective with prospect research, secure higher net worth donors, and grow fundraising results? Then you should utilize a WealthEngine subscription!

WealthEngine is a fundraising tool that has been discounted by nearly 66% because YOU are a chapter of The Arc. This year, we have improved our partnership with WealthEngine, which means you will have more records per subscription, more training, and great customer service at the same low price.

If you are interested in learning about how you can utilize a WealthEngine subscription for your Chapter’s fundraising and prospect research in 2018-2019, please e-mail Francois Rizzetto, Director of Sales at WealthEngine, at frizzetto@wealthengine.com by Monday, October 29th.

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Chapter Benefit Spotlight: Join our Planned Giving Workgroup!

/in /by The Arc

The Arc hosts a planned giving workgroup for chapters that enroll in the Gift Legacy™ or Gift Charity™ programs offered by Crescendo. The Arc’s partnership with Cresendo offers significant services to support a high-level any size planned giving program. In addition, members of the workgroup receive a significant discount. Want to learn more? Contact Laura Rahman Director, Individual Philanthropy (rahman@thearc.org) for group discount and benefit information.

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Award and Grant Opportunity: Win $20,000!

/in /by The Arc

The Atlantic and Allstate are issuing a call for nominations for the 2019 Renewal Awards, which recognizes the social innovation demonstrated by thousands of nonprofits that are finding creative solutions to America’s most pressing problems. Five winners will each receive $20,000 in funding; one of the winners will additionally be presented with the Allstate Youth Empowerment Award. Nominate a nonprofit that delivers innovative programming in your local community (it can be yourself!) by November 30th.