A woman in a motorized chair plays with a small dog on a grassy field in front of a community of houses

Moving to a New State With Medicaid, SSI, and Disability Services: A 2026 Checklist

/in , /by The Arc

Updated: April 3, 2026

Moving is hard. Moving when you rely on Medicaid, Supplemental Security Income (SSI), or disability services can feel risky. One paperwork delay can mean a gap in care, equipment, medication, or supports that keep daily life stable.

This guide is a plain-language checklist to help you plan a move across state lines while protecting benefits and services as much as possible.

Start Here

The most important thing to know: many programs do not “transfer” when you cross state lines. You often have to close, reapply, or re-qualify. This is especially true for:

  • Medicaid and Medicaid home and community-based services (HCBS)
  • Supplemental Nutrition Assistance Program (SNAP), also known as food benefits
  • State disability services and waivers

Some benefits are federal and continue, but details can still change:

  • SSI continues, but your state supplement may change because states set different supplements
  • Social Security Disability Insurance (SSDI) continues and is not state-based, but you still need to update your address with Social Security

A Moving Timeline That Protects you

60 to 90 days before you move

  • Call your new state’s Medicaid office and ask what programs you need to apply for (Medicaid, waiver services, long-term services and supports).
  • Ask the new state if HCBS services have a waiting list and what the intake steps are. States can limit waiver slots and maintain waiting lists.
  • If you receive SSI, plan how you will report your move and any change in living arrangement.
  • If your child has an IEP, request a complete school records packet now.
  • If you have Section 8, contact your public housing authority to ask about portability rules.

30 days before you move

  • Start a “move binder” (paper or digital) with:
  • Award letters and notices (SSI, SSDI, Medicaid)
  • Proof of identity
  • Current address and new address documents
  • Current prescriptions and pharmacy info
  • Provider list and equipment list
  • IEP/504 plan, evaluations, and school contact list
  • Guardianship orders or decision-making documents

Week of the move

  • Confirm you have at least 30 days of medication and backup plans for supplies.
  • Make sure Social Security has the right phone number and you know how to report the address change for SSI.

First week after you arrive

  • Apply for Medicaid in the new state as soon as you have proof of residence.
  • Call Social Security to report your new address if you receive SSI.
  • Contact the new school district special education office in writing and request “comparable services” right away.

Social Security Benefits When You Move

Will SSI or SSDI stop if I move to another state? Usually, no, but you must report your new address.

Supplemental Security Income (SSI)
SSI requires you to report address changes and living arrangement changes. Social Security also states that people who receive SSI generally cannot update their address online and should call or contact their local office. Important: SSI amounts can change when you move because some states add a state supplement and some do not.

Social Security Disability Insurance (SSDI)
SSDI is federal. It is not set by your state. But you still need to update your address. Social Security explains that people receiving Social Security disability benefits can update their mailing address online through a my Social Security account.

Medicaid Waivers When You Move

Does Medicaid transfer to another state?
No. Medicaid is administered by states. When you move, you generally need to end coverage in your old state and apply in your new state.

Good news: states cannot make you “wait” months just because you are new.
Federal rules require states to cover eligible residents and outline residency standards. You generally become a resident based on where you live and intend to remain, and states may not impose a durational residency requirement in key Medicaid-related eligibility rules.

Can Medicaid cover bills during a gap?
Federal regulation generally requires states to allow Medicaid eligibility effective up to three months before the month of application if the person would have been eligible and received covered services during that period. Some states have approved demonstrations that change how retroactive eligibility works, so it is important to ask your new state directly.

What happens to HCBS waivers when you move?
This is where families get hit hardest. Many HCBS services are provided through waivers that can have caps and waiting lists. Moving often means:

  • Reapplying for waiver services in the new state
  • Completing new assessments
  • Potentially joining a waiting list

A 2024 analysis noted that CMS will require states to publicly report HCBS waiver waiting list numbers and average wait times beginning in July 2027, highlighting how serious unmet need can be.

Plain-language reality: Do not assume you can line up the same home and community supports on the day you arrive. Build a backup plan.

Health Insurance When You Move

I have Marketplace insurance. What happens if I move?
Moving can qualify you for a Special Enrollment Period. HealthCare.gov explains that a move to a new ZIP code or county may qualify, and you may need to show proof of the move and that you had qualifying coverage for at least one day in the 60 days before your move.

What about Medicare?
Medicare is federal and does not stop when you move, but plan networks can change. If you have a Medicare Advantage plan or Part D plan, you should check whether your plan works in your new area.

Special Education Services When You Move

If my child has an IEP, does the new school have to follow it?
IDEA requires the new school district to provide comparable services to what is in the current IEP while they decide whether to adopt the IEP or develop a new one.

Best move: request copies of evaluations and the current IEP before you move, then provide them to the new district immediately.

Decision-Making Supports and Guardianship

Will guardianship or other legal authority automatically carry over?
Not always. Guardianship is state law, and transfers can be complicated.

A major tool that helps is the Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (UAGPPJA), which creates clearer rules for transfer and recognition across states. The Special Needs Alliance reported that 47 states, Puerto Rico, and Washington, DC have enacted UAGPPJA.

Practical guidance: talk to an attorney in both states, especially if there is an existing court order.

SNAP (Food Benefits) When You Move

Can I keep SNAP when I move to a new state?
SNAP is federally funded but run by states. You usually cannot have an active SNAP case in two states at once.

One practical approach is:

  • Close your case in the old state
  • Get a termination letter
  • Apply in the new state as soon as you arrive

The National Council on Aging outlines these steps plainly.

SNAP processing timeliness rules also matter. USDA notes states must generally provide benefits within 30 days for eligible households and within 7 days for people eligible for expedited service.

Housing Assistance When You Move

Can I move with a Section 8 voucher?
Often yes, through “portability.”

HUD explains portability as the process of moving your Housing Choice Voucher subsidy to a new jurisdiction, with rules that can include a one-year requirement in the initial jurisdiction in some cases.

Special Needs Trusts & ABLE Accounts

Do special needs trusts need to be updated when you move?
Often, yes. State rules and Medicaid interactions can vary. Have the trust reviewed by an attorney in the new state soon after the move.

What happens to an ABLE account if I move?
Moving does not cancel your ABLE account, but plan choices and rules vary.

ABLE eligibility expanded as of 1/1/2026 and an eligible person may have only one ABLE account. You may be able to roll over funds into another state ABLE plan once every 12 months.

A Closing Note

This is a lot. And it’s unfair that families have to become experts just to keep services stable.

But planning early can prevent the worst gaps. Build a paper trail, ask direct questions, and do not assume systems will coordinate without you.

If you want local help, contact your nearest chapter of The Arc. They often know the agencies, the workarounds, and the realistic timelines.

A disabled woman in a wheelchair sitting at a table smiling while talking to coworkers

How and Why to Celebrate National Disability Employment Awareness Month

/in /by Jackie Dilworth

A disabled woman in a wheelchair sitting at a table smiling while talking to coworkersEach October, National Disability Employment Awareness Month (NDEAM) is a chance to highlight a truth that should guide us year-round: people with disabilities belong in every workplace.

At The Arc, we see every day how hard people fight for that simple truth. People with disabilities, including those with intellectual and developmental disabilities (IDD) such as autism, Down syndrome, and cerebral palsy, are too often shut out of jobs, despite bringing talent, dedication, and fresh perspectives. Only about 37% of working-age people with disabilities are employed, compared with 75% of people without disabilities. Many people with disabilities are excluded before they even get a chance. For people with IDD, the barriers are often even steeper, with employment rates lagging behind the broader disability community because of bias, limited access to training, and lack of employer support.

We know the difference it makes when employers get it right. Across The Arc’s network, we see companies that build inclusive practices not only welcoming talented employees but also improving retention, morale, and innovation across their teams. Research backs this up: companies that prioritize disability inclusion outperform their peers financially.

How to Celebrate NDEAM in October (and Beyond)

NDEAM is not just about recognition. It’s about action. Here are some practical steps that can help move us toward lasting inclusion.

1. Learn About the Value of Disability Inclusion

Here’s some of the evidence showing how inclusive workplaces thrive.

Accommodations and workplace supports designed for employees with disabilities benefit everyone. Flexible schedules, remote work options, clear communication practices, and accessible technology improve productivity and morale across the board. Inclusion creates workplaces where all employees can do their best work.

2. Share Employment Stories

Nothing shifts attitudes faster than real stories. We’ve seen how a single story about an employee thriving in their role can change the way a whole company thinks about disability. That’s why sharing matters. If you know someone with a disability who works, invite them to share their experience. If you’re an employer, highlight the contributions of employees with disabilities in your newsletter or on social media using #NDEAM. Encourage your local media to feature these stories to broaden public understanding.

For inspiration, explore The Arc’s archive of disability employment success stories. These real-world examples show how people with IDD are thriving at work and how employers benefit from inclusive hiring.

3. Review Your Company’s Hiring Practices

Inclusive workplaces don’t happen by accident. They are built with intention. Ask yourself:

  • Do our recruiting and onboarding practices welcome candidates with disabilities?
  • Are our policies aligned with the Americans with Disabilities Act (ADA)?
  • Do HR staff, managers, and anyone who participates in interviews receive training on implicit bias and disability inclusion?

Here are some practical steps to make hiring more inclusive:

  • Make your application system accessible (i.e., screen-reader friendly forms, alt text, clear language).
  • Review job descriptions to remove unnecessary requirements and focus on core skills only.
  • Post job openings with disability organizations and job boards that reach candidates with disabilities.
  • Offer multiple interview formats and clearly state that accommodations are available.
  • Participate in Disability Mentoring Day (the third Wednesday in October) as a way to connect with potential candidates and build better practices.

Not sure where to start? The Arc’s Starter Guide to Creating an Inclusive Workplace lays out 7 practical, achievable actions your company can take.

4. Invest in Long-Term Change

Real inclusion requires more than awareness—it requires resources. Consider:

  • Partnering with local organizations that support people with disabilities or disability employment.
  • Funding workforce development programs for people with IDD.
  • Advocating for policies that expand access to competitive, integrated employment.

And remember, change at scale happens through sustained investment. By supporting The Arc, you help advance policy reforms, resources, and programs that open doors to employment for people with IDD.

This Year’s Theme & What’s New

Each year, the U.S. Department of Labor’s Office of Disability Employment Policy sets a theme for National Disability Employment Awareness Month. This year’s theme is “Celebrating Value and Talent.” It’s a reminder of the value and talent people with disabilities bring to our workplaces and economy.

Across the country, many companies are rolling back diversity initiatives. But here’s the risk: treating disability inclusion as a political issue rather than a business imperative misses the point.

Hiring people with disabilities isn’t about checking a DEI box. It’s about building stronger teams, increasing retention, and better reflecting your customers and communities. Companies like Microsoft and SAP have shown that employees with disabilities are among the most creative and valuable assets to their organizations.

The bottom line is inclusion pays off. When businesses shy away from disability hiring, they’re leaving talent, innovation, and profit on the table.

Why NDEAM Matters

The disability community has waited too long for true equity in employment. For people with intellectual and developmental disabilities, the barriers are often even higher. NDEAM can’t just be a hashtag once a year. It has to be the spark for bigger change: updating hiring practices, removing barriers, and reshaping workplaces so that everyone has the chance to thrive. That’s the work The Arc has led for more than 75 years, and it’s the work ahead for all of us.

A Hispanic young man with disabilities sits with a teacher at a desk. He is looking at a laptop.

Comcast Grants $1M to Transform The Arc’s Data, Tech Training, and Spanish Education Resources

/in , /by The Arc

Washington, DC – The Arc of the United States and Comcast NBCUniversal announced a major expansion of their long-standing partnership that will break down barriers and create more equity and opportunity for people with intellectual and developmental disabilities (IDD). Comcast is providing a $1 million grant over two years to The Arc to modernize its data infrastructure, deepen the impact of its digital literacy programs, and give Spanish-speaking families access to special education advocacy. This funding is a part of Project UP, Comcast’s $1 billion commitment to advance digital equity and help create a future of unlimited possibilities.

Robust data is the foundation for driving meaningful change. This investment will revolutionize how The Arc collects and analyzes information across its network of nearly 600 chapters nationwide. The new centralized data system will track vital services its chapters provide, capture the scope of The Arc’s collective impact, and reveal insights to better advocate for and support the IDD community. The benefits of this new technology will reach every stakeholder: the national office will better support its chapters, chapters will learn best practices from each other and better meet their community’s needs, and people with disabilities and their families will have a stronger federation to rely on.

“In our pursuit of a fully inclusive society, data is power,” said Katy Neas, CEO of The Arc of the United States. “This grant allows us to wield our collective strength across our nearly 600 chapters to more strategically uplift millions of people with disabilities across America, making our human impact even greater.”

Comcast has also supported The Arc’s efforts to ensure resources are accessible to Hispanic communities. Through funding in 2023, The Arc@School Special Education Advocacy Curriculum was translated into Spanish and launched in early 2024. As part of the new grant, The Arc will conduct targeted outreach to Hispanic communities through Spanish-language webinars, collaboration with Spanish-speaking Special Education Advocates, and local program access to help this underserved population become strong special education advocates. The funding will specifically provide subgrants to five chapters of The Arc—located in Arizona, Colorado, Florida, Texas, and Virginia—that will give 150 Spanish-speaking families free access to the program and host focus groups to learn and better ensure their children receive a quality public school education.

“For too long, students with disabilities have faced a whole host of barriers that have denied them the free, appropriate public education they are entitled to,” Katy Neas said. “It is essential that parents and school personnel alike fully understand their rights and responsibilities so that students get the education they need consistent with federal law. Our partnership with Comcast to get The Arc@School in the hands of more families and educators is tearing down those barriers in profound ways. With their support, we are empowering students to not only access the education they deserve but to truly thrive.”

In addition, the Comcast grant will support The Arc’s Tech Coaching Centers, which provide customized digital skills training to people with IDD. The Arc will broaden its training to include caregivers and family members, which will better integrate technology skills into all environments of a person’s daily life, and support a total of 10 sites across Colorado, Florida, Illinois, Indiana, Maryland, New Jersey, Oregon, Tennessee, and Texas. Since 2014, Comcast has helped The Arc’s Tech Coaching Centers empower over 2,500 people with IDD through training that advances measured outcomes in employment, health, independent living, education, and interpersonal connections.

“Whether it’s having a reliable job, managing your health, learning lifelong skills, or being socially connected—technology is the bridge to opportunities and independence,” said Dalila Wilson-Scott, EVP and Chief Diversity Officer of Comcast Corporation and President of Comcast NBCUniversal Foundation. “We’re proud to partner with The Arc to meaningfully advance digital access and equity for people with disabilities.”

 

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About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

 

About Comcast Corporation: Comcast Corporation (Nasdaq: CMCSA) is a global media and technology company. From the connectivity and platforms we provide, to the content and experiences we create, our businesses reach hundreds of millions of customers, viewers, and guests worldwide. We deliver world-class broadband, wireless, and video through Xfinity, Comcast Business, and Sky; produce, distribute, and stream leading entertainment, sports, and news through brands including NBC, Telemundo, Universal, Peacock, and Sky; and bring incredible theme parks and attractions to life through Universal Destinations & Experiences. Visit www.comcastcorporation.com for more information.

 

Media Contacts:

Jackie Dilworth

dilworth@thearc.org

 

Kim Atterbury

k.kim_atterbury@comcast.com

A person with disabilities using a wheelchair is with a thre other people. They are on a sidewalk in a city.

The Arc and United Health Foundation Launch $2.5M Partnership to Tackle Mental Health Crisis for People With Disabilities

/in , /by The Arc

The partnership will provide $100,000 to 10 communities to expand mental health support for people with intellectual and developmental disabilities

MINNEAPOLIS, MN, and WASHINGTON, DC – The United Health Foundation, the philanthropic foundation of UnitedHealth Group (NYSE: UNH), has awarded The Arc of the United States a three-year, $2.5 million grant to improve mental health care for people with intellectual and developmental disabilities (IDD). Up to 40% of people with IDD have co-occurring mental health conditions, and this critical funding will help address their unmet mental health needs.

Currently, only 1 in 10 children and adolescents with IDD and mental health disorders receive specialized services. Additionally, people with disabilities report 3 times more suicidal ideation compared to those without disabilities, and adults with disabilities are 3.5 times more likely to experience frequent mental distress. These statistics highlight the need for training and awareness to ensure providers and caregivers are equipped to support the mental health needs of people with disabilities.

“People with intellectual and developmental disabilities face barriers from the moment they are born, which can have a direct impact on their mental health,” said Katy Neas, CEO of The Arc of the United States. “But too often, their mental health needs are going unmet due to stigma, lack of training, and biases. This generous investment by the United Health Foundation gives us a path to tackle this mental health crisis head-on by providing critical training to all who interact with our community—medical professionals, caregivers, first responders, educators, families, and more. Let’s work together to improve coordination of care, raise awareness, and ensure everyone’s mental health needs are supported.”

The partnership will deploy $100,000 in direct grants to 10 chapters of The Arc nationwide to build comprehensive local solutions tailored to people with IDD. This includes expanding access to quality mental health care services, improving coordination between disability and health systems, training over 2,000 providers and caregivers to recognize mental health needs in people with IDD, and launching public awareness campaigns to counteract stigma and misconceptions.

The 10 chapters receiving grants are: The Arc of Arizona, The Arc of Loudoun (VA), The Arc of Macomb County (MI), The Arc of Mississippi, The Arc of Oklahoma, The Arc Oregon, The Arc Prince George’s County (MD), The Arc Rhode Island, St. Louis Arc (MO) and Sertoma Star Services (IL).

“When we root ourselves in empathy and build alongside those with lived experiences, pretty powerful things begin to take shape,” said Dan Schumacher, executive vice president, UnitedHealth Group, who also serves on the Board of Directors of the United Health Foundation and as the executive sponsor of UnitedHealth Group’s disability inclusion employee resource group. “The United Health Foundation is committed to building strong partnerships and providing resources to address the needs of our communities. Together with The Arc, we’re excited to see the impact this work has on providers, caregivers and the people they serve.”

A key component of the grant is partnering with the National Council for Mental Wellbeing to adapt its evidence-based Mental Health First Aid program with information on IDD. The training teaches how to identify and respond to signs of mental illness and substance disorders. As the Council notes, “Most of us would know how to help someone having a heart attack, but too few know how to respond if someone was having a panic attack or showing signs of substance abuse. Mental Health First Aid takes the fear out of starting these conversations.”

Over three years, the United Health Foundation grant will help train caregivers, health care professionals, first responders, educators, and family members to recognize the mental health needs of people with IDD and decrease the number of mental health crisis incidents experienced by this population. The partnership will also provide mental health resources directly to people with IDD through the participating chapters to help them recognize and communicate their own needs. This is vital for individuals, and also families as research shows the mental well-being of parents of children with IDD is strongly influenced by the severity of their child’s co-occurring mental health conditions.

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About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more.

About the United Health Foundation: Through collaboration with community partners, grants, and outreach efforts, the United Health Foundation works to improve the health system, build a diverse and dynamic health workforce, and enhance the well-being of local communities. The United Health Foundation was established by UnitedHealth Group (NYSE: UNH) in 1999 as a not-for-profit, private foundation dedicated to improving health and health care. To date, the United Health Foundation has committed nearly $800 million to programs and communities around the world, including a $100 million commitment to help diversify the health workforce. To learn more, visit UnitedHealthFoundation.org.

Media Contacts:
Tony Marusic
UnitedHealth Group
312-363-7714
tony_marusic@uhc.com

Jackie Dilworth
The Arc of the United States
202-617-3271
dilworth@thearc.org

A photo of Ryan Gainer standing outside. He is wearing a blue polo shirt and smiling.

The Arc’s Statement on the Killing of Ryan Gainer

/in , /by The Arc

A photo of Ryan Gainer standing outside. He is wearing a blue polo shirt and smiling.The killing of Ryan Gainer, a Black autistic teen, is a devastating injustice. Too many people with disabilities, especially those from marginalized communities, cannot access the crisis intervention services they need. In the face of Ryan’s mental health crisis, his family called 911 for help. Instead of receiving the care he needed from a competent professional, he was killed. Because of the tragedy of Ryan’s death and the death of others before him, The Arc’s National Center on Criminal Justice & Disability is working to reform our public safety practices across the country. This center offers comprehensive training to improve crisis response for people like Ryan. Our hearts go out to the Gainer family and all those who loved Ryan. We pledge to continue to keep working for a just, equitable world for all people with disabilities.

Kris, a man with cerebral palsy, is smiling. He's holding a number 1 up with his hand.

Comcast and The Arc Collaborate to Improve Digital Skills and Make Life-Changing Impact for People With Disabilities

/in , , /by The Arc

Digital access and skills are a critical component of modern life. In 2023, The Arc and Comcast teamed up to help people with intellectual and developmental disabilities (IDD) leverage technology to open the door to new experiences in their communities.

The Arc and Comcast have a long-standing partnership to do this work. The Arc’s national network of nearly 600 chapters provides vital resources and services to individuals with IDD and their families to promote greater independence and opportunity in the community—and through this partnership, since 2017, more than 3,000 clients have received basic digital skills training.

The program continues to expand what’s possible for people with IDD in their professional and personal lives—giving them the tools to chart their own course, just like we all want to do.

Meet Kris, a 59-year-old man with cerebral palsy.

Kris, a man with cerebral palsy, is smiling. He's holding a number 1 up with his hand.Kris lives with his sister’s family in his hometown of Greely, Colorado, and has been successfully employed for 40 years, currently working full time at the busiest grocery store in town. He is an avid sports fan—Go Bears!—has a busy social life, and because of his gregarious personality he is a bit of a local celebrity, traveling around town on his e-bike. Kris has become very active in civic service—involved with the Chamber of Commerce, volunteering at local nonprofits, and serving in leadership roles at both The Arc of Weld County and on The Arc’s National Council of Self-Advocates.

To be effective in his new roles, Kris had to better leverage modern technology and communication platforms. He was comfortable with the basic use of his cell phone and his laptop, and The Arc of Weld County provided tech coaching to give him the confidence with the more advanced technology he needed to be successful. Kris learned how to navigate complex websites with multiple drop-down navigation structures and use passwords to access secure portals. His tech coaches showed him how to sync his calendars and email on both devices to stay on top of his busy schedule. He has even mastered accessing virtual meetings. After a long day, his eyes get tired and email can become stressful, so Kris taught himself how to use the read aloud feature to make it easier.

Kris continues to get weekly tech coaching sessions to keep advancing his skills. He is learning to use folders to organize his documents, better managing calendar invites, learning tactics to ensure he is responsive, and understanding how to identify and handle junk or malicious email. Like many of us, passwords and computer updates can still “throw him for a loop” from time to time, but he stays patient, and as he says, “It feels good when you figure something out.”

By advancing his technology skills, Kris has been able to pursue work that he feels is incredibly important. He shares his lived experience as a person with IDD while counseling disability organizations at the local, state, and national level on how to better support people with disabilities. “I know what it feels like to feel like you are not heard. I want to help people be heard.”

Meet Roselyn, a 60-year-old woman with Down syndrome.

Roselyn, a woman with Down syndrome, is standing in front of a house and smiling. She's wearing a colorful blouse and jeans. Her hands are on her hips.Roselyn has lived with her mother and received support from The Arc of Greater Indianapolis since 1981. During the week, Roselyn works at Corteva Agriscience through The Arc of Greater Indianapolis’ employment services. She works as part of a team that assists scientists in preparing seedling trays for growing new plants, hosing down trays when experiments are complete, and keeping the greenhouse labs clean. Roselyn is very proud of her work and the independence she has from earning a paycheck. She recently bought a kitchen table set and used her tax check to buy a new washer and dryer.

However, when her mom had to be moved into a nursing home quite abruptly, Roselyn needed an emergency placement. The Arc of Greater Indianapolis helped move her into a new living environment with staff support. Roselyn enjoys the financial independence that comes with working—for example, she has a standing hair appointment every two weeks for some pampering at the salon. With more activities in the community, Roselyn started wanting to enjoy some alone time without staff having to be with her. This was going to require some tech coaching to do so safely.

Roselyn had used cell phones over the years, but she never really explored the features they offered and would either lose or break them. If she wanted to call family, staff would have to help her. Staff at The Arc of Greater Indianapolis worked with Roselyn regularly for a couple of months as part of these tech coaching sessions. They helped her learn how to call and text family, friends, and staff and how to contact help if she ever feels unsafe. She has learned how to access the internet and use apps like Voice to Text to look things up and connect with friends. Now, she gets time to herself each day. Roselyn gets home from work around 1:30, but her staff don’t arrive until 3:30. She either calls or texts them, though, to let them know that she made it home safely. Then she spends some time searching for videos on dogs and cats (she loves showing these to her staff later) as well as watching her favorite shows online (she especially loves Night Court and Law & Order). If the weather is bad on Sundays, Roselyn even watches church online. When she’s not working or using her phone, she likes doing 5,000-piece puzzles, going shopping, and seeing her Colts or Pacers play.

Through tech coaching, Roselyn has achieved a newfound sense of independence. You never fully appreciate how nice it sometimes is to be alone if you’ve never been able to experience it. Roselyn loves her work, friends, family, and the staff who work with her. However, sometimes it’s wonderful to just spend some time alone.

“When we provide access to digital skills training, we create opportunities and pathways to independence that can be life-changing, especially for those living with disabilities,” said Dalila Wilson-Scott, Executive Vice President and Chief Diversity Officer of Comcast Corporation. “Partnerships, like the one we’re proud to share with The Arc, are at the heart of what drives us each day at Comcast because of the many lives we’re able to help impact. We’re so very honored to continue to grow our work together and help enrich even more lives.”

Comcast’s partnership with The Arc is part of Project UP, the company’s comprehensive initiative to address digital inequities and help build a future of unlimited possibilities. Backed by a $1 billion commitment to reach tens of millions of people, Project UP is focused on connecting people to the Internet, advancing economic mobility, and opening doors for the next generation of innovators, entrepreneurs, storytellers, and creators.

Comcast NBC Universal logo

The Arc logo

New Bill Would Advance Equity & Independence for Millions of Americans With Disabilities

/in , , /by The Arc

People with disabilities and older adults want to live in their own homes and communities, and they deserve that right just like everyone else. Today, Sens. Bob Casey (D-PA), Chair of the Senate Aging Committee, Tim Kaine (D-VA), Sherrod Brown (D-OH), and Maggie Hassan (D-NH) along with Rep. Debbie Dingell (D-MI) introduced a critical bill – developed with The Arc and other advocates – that will fundamentally change how these populations live full and inclusive lives. The Arc stands unwaveringly behind the Home and Community-Based Services (HCBS) Access Act and urges Congress to pass this long overdue bill.

HCBS waivers were established under Medicaid in the early 1980s, and millions of people rely on it today for daily activities, such as dressing, bathing, meal preparation, taking medication, employment support, mobility assistance, and more. Yet HCBS has been chronically underfunded for years, resulting in a national shortage of direct care workers, years-long wait lists for access to services, and, ultimately, isolation that strips people with disabilities and older adults of their dignity.

“We know that everyone benefits when people with disabilities are a part of the fabric of their communities, not locked away in institutions or nursing homes,” said David Goldfarb, Director of Long-Term Supports and Services Policy at The Arc of the United States. “Yet this country has treated the independence of people with disabilities as an idea, not a right. One in four U.S. adults live with a disability. These are your neighbors, your relatives, your coworkers, your friends, and they deserve better. We applaud the bill’s sponsors, Senators Casey, Hassan, Brown, and Kaine, and Representative Dingell, for their commitment to helping people with disabilities live with dignity.”

The HCBS Access Act would:

  • Make home and community-based services a mandatory Medicaid benefit and increase funding for these services;
  • Provide grant funding for states to expand their capacity to meet the needs of people who prefer HCBS;
  • Make steps to improve the stability, availability, and quality of direct care providers to help address the decades-long workforce shortage crisis;
  • Provide states with resources so that caregiving workers—who are disproportionately women of color—have stable, quality jobs and a living wage;
  • Provide training and support for family caregivers; and
  • Create better evaluation measures to assess the quality of HCBS being provided.

To meet real-life people who are impacted by the inadequacies of HCBS, watch Susan’s story.

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About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. The Arc has a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

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The Arc Mourns the Loss of Disability Rights Icon Judy Heumann

/in /by The Arc

With heavy hearts, and along with the entire disability community, we mourn the loss of Judy Heumann. Judy was the trailblazer of the disability rights movement. Her contributions as an activist, spokesperson, and federal official on the national and international stages created huge changes for people with all kinds of disabilities, impacting so many aspects of life and society.

“Judy was a long-time member of The Arc Family. Her passion and commitment to the disability community was profound. She was a powerful advocate and mentor to so many. Most recently she was working towards creating the National Museum of Disability History and Culture. I look forward to Judy’s vision becoming a reality. She will be greatly missed and fondly remembered. All of us at The Arc send our condolences to her husband Jorge and her entire family,” said Laura Kennedy, President, The Arc’s Board of Directors.

“Having worked with and alongside Judy for over three decades, I struggle with finding words to express the powerful impact of her years of advocacy, leadership, and groundbreaking achievements. Her legacy will live on for generations to come, partly because she nurtured future leaders of the movement so that the civil rights work would always move forward,” said Julie Ward, Senior Executive Officer for Public Policy.

Learn more about Judy’s leadership and life on her website and in reporting by NPR.

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The Arc Announces Acting CEO Named Amidst Leadership Transition

/in /by The Arc

The Arc’s Board of Directors has named Ruben Rodriguez, the organization’s Chief Operating Officer, as Acting CEO while it undertakes a national search for new leadership.

Rodriguez joined The Arc in 2019, with nearly four decades of experience in operations and finance. He has an undergraduate degree in Accounting from Pace University, an MBA in Finance and Investments from the George Washington University, he is a Certified Professional Coach, and is currently working on a Masters in Disability Studies at City University of New York.

Rodriguez works closely with the organization’s leadership to support the mission, providing day-to-day strategic financial and operational management and planning to meet the organization’s short term and long term objectives. Included in his portfolio is oversight and hands-on leadership of finance, human resources, information technology, risk management, and broad program support. Rodriguez worked hand in hand with the staff and volunteer leadership teams to successfully steer The Arc through the COVID-19 pandemic, managing major changes in how the organization operated day-to-day, coupled with the financial uncertainty in the non-profit sector.

The Arc’s Board of Directors recently announced that its Chief Executive Officer, Peter Berns, would be leaving the organization upon expiration of his contract in February. Since 2008, Berns has been at the helm of The Arc, the world’s largest community-based organization of and for people with IDD and their families. Under his leadership, the organization has charted an ambitious path of growth and modernization as it carries out its mission of “promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes.”

Rodriguez will work alongside an established leadership team while the search for a new CEO is conducted. Meanwhile, the Board of Directors has put together a committee comprised of board members, chapter and disability community leaders, and national office staff and self-advocate representation to conduct a sweeping national search. Soon, they will be selecting a professional search agency to work with them.

 

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Get Ready for Medicaid Renewals in 2023

/in , , /by Pam Katz

As COVID-19 rapidly spread across the U.S. in March 2020, Congress declared a public health emergency and passed legislation that gave states more money for Medicaid if they met certain requirements. One of the main requirements was that people would be able to keep their Medicaid health care during the COVID-19 public health emergency.

As a result of recent legislation, the continuous enrollment requirement will end in early 2023 and states will soon be restarting Medicaid eligibility reviews. For many with disabilities, this means that they may lose critical Medicaid services and supports. Based on estimates, up to 15 million people could lose their current Medicaid coverage.

States may start the renewal process as early as February 1, 2023. Fortunately, there are steps you can take to be ready:

  1. Verify that your contact information is updated. Make sure your state Medicaid agency has your current mailing address, phone number, email, or other contact information so they can easily contact you about your Medicaid coverage.
  2. Check your mail regularly. The state Medicaid agency will mail you a letter about the status of your Medicaid coverage. This letter will also let you know if you need to complete a renewal form to see if you still qualify for Medicaid.
  3. Complete and send in your renewal form (if you get one). Fill out the form and return it to your Medicaid agency to help avoid a gap in your Medicaid.
  4. If your Medicaid coverage has ended, visit HealthCare.gov to find an affordable, comprehensive health plan.

For more information, you can visit Medicaid.gov/renewals.