For years, the service system that people with intellectual and development disabilities (IDD) and their families rely on, Medicaid, has needed an update. People are stuck on waiting lists for home and community-based services, the direct care workforce is underpaid, and too often, unpaid family caregivers are filling in the gaps in service.
People are forced to choose between their own health, the health of their families, and their livelihood. We must invest in our care infrastructure and pass a national paid leave program that guarantees paid leave to all – including family caregivers.
People with disabilities are forced to live in poverty to access modest benefits to live on – and that must change. The benefits of the SSI program must be updated to asset limits, and other program rules lift people with disabilities out of poverty.
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The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.