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HollyRod Foundation Giving Away Free iPads to Children With Autism

/in /by David A. Kennedy

Many people with iPads love all the fantastic things you can do with them. The folks at the HollyRod Foundation think children with autism should be no different.

The foundation, started by Holly Robinson Peete and Rodney Peete thirteen years ago to give a voice and a hand to those striving for quality of life when theirs has been diminished due to disease or disorders, is giving away free iPads to children with autism.

This giveaway isn’t just about handing out the latest and greatest gadget, but helping children with autism communicate with the world around them in a richer, more fulfilling way.

To find out more about the giveaway, and to download an application, visit the foundation’s webite. Don’t forget to spread the word about this to parents, self-advocates and anyone else who might be interested.

Here are the eligibility requirements:

  • The individual you are applying for must have a diagnosis on the autism spectrum (as identified in diagnosis report).
  • Reside in the United States of America .
  • Be non-verbal or minimally verbal (as identified in speech pathology report).
  • Be in financial need: Gross income not to exceed $35,000 single income family or $50,000 two-income family (as identified by documentation).
  • Have access to a computer and an iTunes account (some programs must be downloaded on a computer and transferred to the iPad due to size).
  • A professional on your team (i.e., speech pathologist, doctor, teacher) must be willing to take responsibility of the gift card that downloads the applications.
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Have You Experienced Disability-Based Discrimination at a QuikTrip Facility?

/in /by Kristen Bossi

Do you know anyone that may have experienced disability-based discrimination at a QuikTrip facility and wants to file a claim?

In early July, the U.S. Department of Justice filed a lawsuit against QuikTrip Corporation under Title III of the Americans with Disabilities Act (ADA), alleging that the company had discriminated against individuals with disabilities at QuikTrip gas stations, convenience stores, truck stops, and travel centers. The company owns and operates more than 550 such facilities throughout the Southeastern, Southwestern, Midwestern, and Southern regions of the United States.

A Consent Decree with the lawsuit, United States v. QuikTrip Corporation, was approved by the U.S. District Court for the District of Nebraska Court on July 19, 2010 establishing a $1.5 million fund to compensate individuals who experienced discrimination at QuikTrip.

Help spread the word about the fund’s existence to anyone who may have experienced disability-based discrimination at a QuikTrip facility and wants to file a claim. The time period for filing a claim is approximately 180 days from July 19, 2010.

Payment eligibility and the amount of any payment will be made by the U.S. Department of Justice after all claims have been received.

Please visit this link for more information.

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When the White House Calls…

/in /by The Arc

The White House imageWhitehouse.gov asked us to give you a heads up on a series of teleconference you might find interesting or useful. When the White House calls…we answer – so here’s your heads up.

Starting this Friday, December 3, the White House will begin hosting monthly teleconferences with updates on various disability issues. Also, these calls will be an opportunity for the Obama Administration to introduce people who work on disability policy in the federal government. We’d love to get comments from any of you who join in on the calls to find out what the hot button topics are and if they address concerns that are important to you.

Just for fun, you might also check out whitehouse.gov to see what’s going on. There is a treasure trove of information about the administration, our government and current issues ranging from civil rights to education to healthcare. You can tune into presidential addresses and even follow the Presidential blog, which recently posted an informative analysis on Medicare from the Wall Street Journal.

Call Information

Dial into the teleconference Friday, December 3 at 11:00 a.m. Eastern

(800) 230-1092

Title: Disability Call (use instead of code)

For live captioning, at time of call, log this website.

Image by Davidlat.
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Eliza’s Story: “I Am Not a Disability”

/in /by David A. Kennedy

Every student wants to learn. Every artist wants to create. Every person wants an opportunity to be the best they can be. The administration at Southern Oregon University has denied Eliza Schaaf all three.

Eliza graduated high school this year, loves expressing her creativity and decided to take that to the next level in college by enrolling in an art course called Introduction to Ceramics.

“I have always loved learning and I like working with clay,” Eliza says. “I just wanted to take a course and learn the basics of pottery with other college students my age.”

However, university officials have shut her down. Just seven classes short of completing the requirements for the entire course, Eliza was removed from class. University administrators told Eliza, “At this time, Southern Oregon University does not offer a program specifically designed to provide specialized learning opportunities for students with intellectual disabilities. We have determined that even with the support of the accommodation(s) available at the post-secondary level, you are currently not otherwise qualified to meet the academic standards necessary to participate in this course.”

Eliza has Down syndrome and had attended previous classes with the help of a personal assistant. Eliza’s art projects were progressing nicely, and now all she wants to do is finish them.

In her words: “I have never thought of myself as being disabled. I am not a disability. I am a person who loves to learn.”

You’re totally missing the point. That’s what The Arc would like to say to the administration at Southern Oregon University.

It’s not just about what she might reasonably be expected to learn. It’s not just about how much she “gets” out of what’s going on. It’s not just about academic progress. It’s about allowing her to participate in the college experience to the best of her ability, alongside classmates who support her.

What Can You Do?

  • Spread the word via social media.
  • Tweet about it using the hash tag: #4eliza
  • Make a donation to The Arc so that we can help Eliza and cases like hers, directly.
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Did You Miss Convention? Here’s a Wrap-up

/in /by David A. Kennedy

There are plenty of recent posts about the 2010 National Convention in Orlando on the blog, but if you missed any of the action, check out our Convention 2010 Wrap-up page. It has recaps of all of the major happenings at convention, plus a link to our Flickr gallery that includes tons of photos.

Thanks to everyone who made it to Orlando, and we hope to see you next year in Denver.

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Branding: What’s the Big Deal?

/in /by Shelly DeButts

The Arc’s CEO, Peter Berns, was recently quoted in an excellent article about branding nonprofit organizations. The article offers nonprofits a new perspective on branding, taking it out of the realm of sales and marketing, and putting it squarely in the realm of relationship-building. It points out that a brand encompasses every aspect of an organization and therefore does not belong exclusively to the marketing team, but should be understood and promoted by everyone.

Branding is generally thought of in terms of selling and product or service-and therefore sometimes dismissed by nonprofit organizations who believe they’re not in the sales business. But a big part of selling a product is building some sort of relationship with the consumer, much the same way we build relationships with our constituents, both the people we serve and those who support us.

That is why branding is such a big deal in the nonprofit arena, and why The Arc is undertaking a huge initiative in 2011 to introduce a new brand identity to the world. Branding doesn’t end with a new logo, or new colors or a slick brochure or ad. Branding is carried on every day, by every staff member, volunteer and advocate every time they tell someone about The Arc, organize a workshop, host an event, and even just answer the phone. Read this article and start thinking about how you define and support our brand and what a difference that can make.

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Families Fight to Care For Children With Disabilities at Home

/in /by The Arc

Check out this NPR story reported by Joe Shapiro about families fighting to care for their kids with disabilities at home. It’s a window into families caring for someone with disabilities and getting long-term health care. The story highlights The Arc’s position that people in the Medicaid program should have care at home and in the community, not in an institution or nursing home.

You’ll meet Olivia Welter, 20, of Illinois, who like countless thousands, is cared for at home and requires intensive 24-hour care. She gets life-saving medical care through a program provided by Illinois’ Medicaid program. But since it’s a program for children, she will no longer be eligible for that care when she reaches 21.

It’s expensive to care for Olivia at home – nurses cost about $220,000 a year – less than half the cost of what the state counts as the alternative — having her live in a hospital. Olivia’s parents, Tamara and John Welter, are grateful for what Illinois has done in the past but they figure they’ve saved the state millions of dollars by keeping her at home.

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Convention Day Two: Honors, New Projects, and Reflecting on the Past and Future

/in /by David A. Kennedy

The second and final day of The Arc’s 2010 National Convention wrapped up yesterday, and the highlights flowed all day. In fact, there were so many highlights, we’re putting them into a list! Here are the top five moments from day two at The Arc’s 2010 National Convention:

Paul Marchand Closing Banquet image

1. Paul Marchand, the longtime Director of the Disability Policy Collaboration, was honored for his three-decade-long career in the disability community. The Arc sent Paul off in style with a closing banquet that was attended by many of his colleagues, friends, and family. You can view a photo montage of Paul’s career here. Paul presented The Arc with a gift, the pen used by President Barack Obama to sign Rosa’s Law, framed and ready to hang in The Arc’s national office as a symbol of progress and inspiration.

2. Marty Ford, the current Acting Director of the Disability Policy Collaboration, received The Arc’s President’s Award for her work with The Arc’s public policy efforts.

3. Margaret-Lee Thompson received the Advocacy Matters! award, which was established in honor of the late Lorraine Sheehan. Margaret was chosen to receive the Advocacy Matters! Award because she exemplifies the spirit of Lorraine, who spent her life advocating for the rights of people with intellectual and developmental disabilities.

4. Ann Cameron Caldwell provided an overview on the exciting new Autism Now project, stemming from a $1.87 million grant awarded to The Arc by the Administration on Developmental Disabilities in September.

5. Sharon Lewis, Commissioner of the ADD and Kathy Greenlee, Assistant Secretary for the Administration on Aging, spoke at plenary sessions. Plus, Melody Musgrove, Director of the Office of Special Education, also took the podium at a plenary session.

For more photos of yesterday’s activities, see our Facebook page and our Flickr profile. And remember, you can get breaking updates from our Twitter profile, and follow the conversation via our hash tag: #thearc10.

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A Glee-ful Start to Convention 2010

/in /by David A. Kennedy
Image and Inclusion Award 2010

Actresses Robin Trocki and Lauren Potter, from the hit show Glee, received The Arc’s Inclusion & Image Award in recognition of their achievements in television for breaking down barriers, increasing awareness, and challenging stereotypes.

Yesterday turned into one of the most memorable days in The Arc’s history. The Arc’s celebrated its 60th year with an opening day at its National Convention. The day included a sneak peek of our new brand and logo, to be revealed to the public in March, and a visit by Actresses Lauren Potter and Robin Trocki from the hit show Glee.

The stars received The Arc’s Inclusion & Image Award in recognition of their achievements in television for breaking down barriers, increasing awareness, and challenging stereotypes. The actresses answered questions from the audience, signed autographs for people, and posed for pictures with fans. Both women said they love acting and being on the TV show Glee.

But all fun aside, both actresses and their family members, emphasized the importance of people with intellectual and developmental disabilities embracing a life full of determination, advocating for themselves all along the way. Their example is an inspiration to many.

For more photos of yesterday’s activities, see our Facebook page and our Flickr profile. And remember, you can get breaking updates from our Twitter profile, and follow the conversation via our hash tag: #thearc10.

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Four Ways to Follow the 2010 National Convention

/in /by David A. Kennedy

The Arc's 2010 Convention image

Whether you’re attending this year’s convention or not, there’s plenty going on that you’ll want to keep up with. Following all the happenings is easier than ever, thanks to the web and social media.

  • Follow this blog. It seems like a no-brainer, but we just launched, so help us spread the word. We’ll fill this spot with all the news and information coming out of convention. You can find the latest headlines from the blog right on our home page, in the bottom left-hand corner.
  • Like us on Facebook and follow us on Twitter. Each day, we’ll be posting real-time updates on our social media profiles as well, in addition to meatier updates here. On Twitter, you can use the hash tag, #thearc10 to follow the conversation centered around the convention. If you’re at convention, and tweeting, feel free to jump into discussion.
  • Visit our Flickr page. Flickr, a place to share photos, will be the first place we post photos each day from convention events. Also, if you’re taking and posting photos there, we invite you to post them to our group page.
  • Use the Convention website. Our convention website is still the best place to go for all the convention particulars, like the schedule, list of sponsors, and exhibitors and more.