The Arc partnered with AAIDD, ASA, NACDD, and UCP to create this joint federal public policy agenda for the 116th Congress (2019-2020).
Click here to view a brochure summarizing the joint federal public policy agenda.
The Arc’s position statements address critical issues related to human and civil rights, health care and treatment, and services and programs for children and adults with intellectual and developmental disabilities and their families.
Position statements are used to inform The Arc’s public policy agenda, as well as to provide the national platform of positions of The Arc for use by chapters at all levels of The Arc in its work – national, state, and local. The statements also serve to inform our constituency, stakeholders, media, and the general public on the prevailing organizational view on key issues.
The letter can help people explain how they make decisions, explain how they act when they are upset, worried or confused, explain what doctors can do if they are upset, worried, or confused, and tell doctors when they want help making decisions. The letter CAN be used as a supported decision-making agreement. It CANNOT be used as a power of attorney.
This document is also available in:
Summary of research on improving supports for people with IDD and dementia.
Protection and advocacy organizations, located in each state and territory, help people with disabilities ensure their basic rights, fight abuse, and advocate for equal access and accountability in health care, education, and employment. This link will connect you with a listing of protection and advocacy organization in each state.
The mission of the Alzheimer’s Association is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. The Alzheimer’s Association can connect you to local resources and services available to people with dementia.
This document answers commonly asked questions about dementia, how it impacts people with IDD, and the diagnosis and treatment of dementia. This includes questions around medications, programs for people with IDD and dementia, nutrition and dietary issues, and palliative and end of life care.
This guide helps supporters think of ways that they can help adults with IDD and dementia deal with common challenges that they may face because of dementia, including eating, using the bathroom, walking, and going to bed. This guide was created by Down Syndrome Scotland.
This e-book provides strategies on how to support a person who is living with dementia to work and maintain relationships. It also includes suggestions on how to talk with people with IDD about a dementia diagnosis and how to talk to friends and supporters about this diagnosis.
Down Syndrome Scotland created plain language resources for people with IDD about what dementia is, what dementia is like when you or other people have it, how you can help people who have dementia, and how to ask for help from supporters. This resource was created by adults with IDD for adults with IDD.
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