FINDS Community Report 2023: Family & Individual Needs for Disability Supports

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The Family and Individual Needs for Disability Supports (FINDS) survey provides insights and understanding of the experiences of families supporting a family member with intellectual and developmental disabilities (IDD). It is critical research to inform better policy development.

The FINDS survey was initially conducted by The Arc of the United States in 2010. It was updated in 2017 through a collaboration between the Research and Training Center on Community Living (RTC/CL) at the University of Minnesota and The Arc.

The 2023 report focused on:

  1. What are the challenges families face in meeting the support needs of their family members?
  2. What are the economic implications of caregiving?
  3. How does caregiving affect caregivers, and what supports do they need?

A better understanding of the experiences and needs of caregivers can help policymakers and others support caregivers in this critical role.

The Arc Responds to ED’s Proposed Rule to Remove Parental Consent for Billing Medicaid in Schools

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The Arc submitted a comment on the proposed rule to streamline the parental consent process when billing Medicaid for services received in school. The Arc’s comments emphasized the experience of some families being denied outside services when Medicaid was billed for school services.

Cultivating a Strong Assistive Technology Program

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In this webinar, The Arc of Ohio presented a summary of its popular Assistive Technology Program, including information about the program’s history and impact. Watch the video to learn more about the program and the opportunities it can create for people with intellectual and developmental disabilities in their local communities.

Speaker Bio: 

David Lewis is the Vice President for The Arc of Ohio in Columbus, Ohio. He received his Cisco CCNA Certification from Columbus State Community College and is Microsoft A+ Certified. David has over 25 years of experience in the technology field having spent 15 years as a network administrator and 10 years as a technology specialist for the digital industry. After a long and successful career in the technology field, David decided to follow his passion for helping others.

Emma Kincaid is the Director of the Assistive Technology Program at The Arc of Ohio. She has worked with The Arc since August 2019. Emma has three years of experience in assistive technology at The Arc of Ohio. Emma’s favorite part of her career with The Arc of Ohio is how the assistive technology program gives individuals throughout Ohio the equipment they need in their daily lives. Emma hopes to keep helping more people with disabilities live happy and independent lives.

The Arc Responds to Proposed AbilityOne Policies

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The Arc supports the proposed rule but has recommendations. The recommendations include changes to strengthen worker protections and ensure clarity in eligibility and employment standards.

Promising Programmatic Practices for People With Dual Diagnosis

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Incompass provides residential and day/employment programming for a dually diagnosed, forensically involved population as well as a residential program for individuals diagnosed with Huntington’s Disorder. In this webinar, Chris Snell, MS and Dorian Crawford, PsyD of Incompass Human Services will provide an overview of community-based service promising practices for an emerging, dually diagnosed population.

View session presentation slides here.

Engagement in the Early Intervention Program Planning Process for Parents and Professionals

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Early intervention program planning can be challenging at times for students, parents, teachers, service providers, and administrators—but it doesn’t have to be.

Enter your information below to watch a free video. You will hear from Dr. Rachel Brady about IDEA Part C & B, program planning requirements, and strategies that support more meaningful engagement in early intervention programs. Equity issues and the points of advocacy at the individual and systems levels are also explored through examples, discussion, and a review of available resources.






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Health & Hospital Corporation of Marion County v. Talevski

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Filed: September 22, 2022

Court: U.S. Supreme Court

Overview: Amicus brief explaining the importance of individuals having the ability to sue state and local governments when their civil rights are violated under Medicaid and other public programs.

Excerpt: The linkage between the RA’s and the ADA’s antidiscrimination mandate and Medicaid provisions implementing that mandate is evidence that Congress intended both aspects of its disability-rights scheme to be privately enforceable. That conclusion is bolstered by the fact that Congress, when enacting the ACA, broadened Medicaid’s “entitlement” provisions by expanding the definition of “medical assistance.” Congress did so in direct response to judicial decisions narrowly construing that term in § 1983 suits brought by people with disabilities. Petitioners’ request that this Court abandon its longstanding holding that Spending Clause legislation can give rise to a private right of action under § 1983 would undermine Congress’s scheme for enforcing disability rights. People with disabilities, including children, regularly bring private lawsuits to enforce each of their independent, mutually reinforcing entitlements under the RA, the ADA, and Medicaid. Those lawsuits have vindicated important rights, providing access to life-saving therapies and everyday living support services close to one’s family and community. Absent a private right of action to enforce their Medicaid guarantees, enforcement of Medicaid would be left to the federal government, which may have few enforcement options other than reduction of States’ Medicaid funding. That may exacerbate rather than remedy States’ failure to comply with Medicaid’s requirements.

Case Documents

Amicus Brief

Supreme Court Opinion

Press Releases

Amicus Brief Filed in U.S. Supreme Court Case Emphasizes Harms to People with Disabilities

A Major Win for Disability Rights From SCOTUS

Related Media

Indy Star: Op/Ed: Treatment of patient at Indiana nursing home at center of U.S. Supreme Court case

Indy Star: Marion County agency wants SCOTUS to strip protections for millions of vulnerable Americans

Indy Star: Supreme Court denies Health & Hospital Corp.’s effort to block civil rights lawsuits

Yahoo News: Here’s why Nancy Pelosi, Todd Rokita, Biden administration care about Indiana nursing home

Disability Scoop: Supreme Court Case Could Sharply Limit Disability Rights

Disability Scoop: Supreme Court To Hear Case That Could Have Major Consequences For People With Disabilities

Vox: The nightmarish Supreme Court case that could gut Medicaid, explained

Vox: Medicaid appears likely to survive its latest encounter with the Supreme Court

MarketWatch: Supreme Court weighs 83 million Medicaid enrollees’ access to the courts

BU Today: The Most Consequential Supreme Court Case You Haven’t Heard Of

The 19th: Supreme Court case altering Medicaid is ‘an assault’ on older adults and people with disabilities, advocates warn

The 19th: Disability and aging advocates celebrate Supreme Court’s Talevski decision

Mother Jones: SCOTUS Just Upheld the Civil Rights of Millions of Disabled and Aging People

Wyfi: Supreme Court reinforces that Medicaid beneficiaries can sue states if their rights are violated

Axios: How nursing homes could face more patient lawsuits

 

Exploring Locative Technology: What You Need to Know to Address Wandering

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During this webinar, the International Association of Chiefs of Police (IACP) discusses the pros and cons of using tracking devices in wandering situations, emphasizing some effective alternatives.

The speakers are two parents and police officers, Laurie Reyes and Stefan Bjes, and Board Member, poet, and self-advocate Russell Lehmann.

Micro-Aggressions in the Workplace

/in , , /by Pam Katz

This webinar discusses the need to move beyond our own personal biases, beliefs, values, and perception, by realigning the way we think about and engage with each other. We must first recognize how assumptions influence one’s interactions and decisions and then make a conscientious effort to overcome assumptions. The negative consequences of unconscious biases, intentional or unintentional, can be detrimental to the workplace and affect morale and the overall experience of the individuals we serve. Diversity is needed more than ever to create solutions to business, economic, and social challenges of the 21st century and beyond. One step is understanding the different types of micro-aggressions and their effect on the individuals we serve.

View the presentation slides here.

Education for Students With Disabilities in the Juvenile Justice System

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Students with intellectual and developmental disabilities (IDD) do not lose their right to public education, including all rights to special education, when they are adjudicated delinquent. Once in the juvenile justice system, young people with IDD may be placed in a variety of settings, ranging from home confinement to foster homes to group residential settings and so on, all the way down the continuum to secure detention and solitary confinement. Wherever they are, they have the same rights to access the coursework the state requires for all students, as well as the services and supports provided by their IEP and/or Section 504 plan. In a secure setting, the way in which some services are provided may be altered, but the services cannot be denied.

Speaker Bio: A litigator with more than 26 years of experience in juvenile and education law, Diane Smith Howard’s work at NDRN focuses on conditions for children, youth and adults with disabilities in institutional systems. Specifically, youth in the juvenile justice, child welfare, education, and refugee resettlement systems, and adults with disabilities in the criminal justice and mental health systems.

Diane holds a B.A. with honors from Colby College, Waterville, ME, and a J. D. from Wayne State University Law School, Detroit, MI. Diane’s passion for this work is rooted in a family connection to foster and adopted children with disabilities, and to adults who are at risk of institutionalization due to a lack of community supports.

Download the presentation here.

For further questions, please email school@thearc.org.