This eight-minute video highlights key findings from focus groups held with medical professionals who were asked about how they address or talk about sexual violence with their patients with intellectual or developmental disabilities.
Filed: February 14, 2022
Court: Supreme Court of Massachusetts
Overview: The brief argues that whether a constitutional right to assisted suicide exists must be addressed from the perspective of people with disabilities, the class of people who will be most adversely impacted if such a right is found. Amici discuss how assisted suicide is part of a long history of discrimination and bias against people with disabilities in medical settings. Amici also discuss how legalized assisted suicide amplifies ableist beliefs about the quality and value of disabled lives and how supposed safeguards are inadequate to protect people with disabilities.
Excerpt: “Legalizing assisted suicide in Massachusetts would add to the…history of discrimination and bias against people with disabilities. It would establish a discriminatory double standard for how health care providers, government authorities, and others treat disabled individuals versus others. Only disabled people would be removed from the protections of generally applicable laws on abuse, neglect, and homicide. And only disabled people would face an offer of assisted suicide, as opposed to an offer of services and supports, in response to suicidal ideations.”
In this video, you will learn what happens to the money in an ABLE or Special Needs Trust account when the person with a disability who has the account dies. We explain the rules that Medicaid has about what happens and what you should know when you set up the account.
This video is also available in Spanish.
What is a pooled special needs trust, and why should you consider one? Watch this video to learn more about how they work. You can access the video slides here.
This video is also available in Spanish.
Understand both special needs trusts and ABLE accounts so you can decide which options are right for your family. You can access the video slides here.
This video is also available in Spanish.
People with disabilities and families can use special needs trusts to save for the future. Watch this video to learn more about how they work. You can access the video slides here.
This video is also available in Spanish.
ABLE accounts are one way for people with disabilities to save money and not lose their public benefits. Learn more about them in this video. You can access the video slides here.
This video is also available in Spanish.
People with intellectual and/or developmental disabilities (IDD) are sexually assaulted seven times more often than people without disabilities. Because of this, medical providers must talk about sexual abuse with their patients and offer support. Unfortunately, many medical providers do not have the tools or training to help them have these important conversations.
Talk About Sexual Violence centers on conversation groups of medical providers and people with disabilities, including survivors of sexual assault. It was important to hear from them about how medical appointments can be more supportive.
Conversation groups were held as live, online video sessions to hear from people with IDD about their appointments with medical providers.
This report contains the result of those focus groups.
Amparo Ceja is a dedicated mother to her young son, Jesus. Jesus has Down syndrome. The Latino family has experienced discrimination and disparities because of their race and Jesus’ disability. Amparo is concerned about the disparities they and other Latino families experience in accessing disability services and supports. The COVID-19 pandemic deepened existing disparities. Amparo is worried about how persistent disparities will impact Jesus’ future after high school and the rest of his life, especially when she becomes too old to care for him. Amparo and other mothers joined forces with The Arc of California to launch a local chapter of The Arc called Madres Unidas Para Una Mendota Con Igualdad of The Arc. Angel Picon, Director of Community Organizing for The Arc of California, was instrumental in the formation of the new chapter and helps guide the mothers in their fearless advocacy to confront disparities and racism. Amparo, Jesus, and Angel shared their stories with The Arc.
En Español
Amparo Ceja es una madre dedicada a su pequeño hijo, Jesús. Jesús tiene síndrome de Down. La familia latina ha experimentado discriminación y desigualdad debido a su raza y la discapacidad de Jesús. Amparo está preocupada por la desigualdad que ellos y otras familias latinas experimentan en el acceso a los servicios y apoyos para personas con discapacidades. La pandemia de COVID-19 profundizó las desigualdades actuales. A Amparo le preocupa cómo las desigualdades persistentes afectarán el futuro de Jesús después de la escuela secundaria y por el resto de su vida, especialmente cuando ella sea demasiado mayor para cuidar de él. Amparo y otras madres unieron fuerzas con The Arc de California para lanzar una división local de The Arc llamado Madres Unidas Para Una Mendota Con Igualdad of Arc. Angel Picon, Director de Organización Comunitaria de The Arc de California, fue fundamental en la formación de ésta nueva division. Angel ayuda a guiar a las madres en su valiente defensa para enfrentar la desigualdad y el racismo. Amparo, Jesús y Angel compartieron sus historias con The Arc.
The COVID-19 pandemic shined a light on the inequities of the healthcare system that exist for people with intellectual and/or developmental disabilities. For many people with IDD and caregivers, receiving care in a hospital setting has always been a challenging experience. We know that training in this area is lacking. Education and experiential learning for healthcare professionals is essential to addressing these challenges.
The Arc Massachusetts, The Arc Oregon, and The Arc’s national office have partnered to develop a web-based, culturally competent training and toolkit for emergency medical personnel. The goal is to support equal access to emergency healthcare for people with IDD by educating healthcare providers working in hospital emergency departments.
Download presentation slides here.
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