The IDD agency, located in each state and territory, offers a variety of programs and services through public funding to people with disabilities who qualify, based on the resources available to support people with IDD in that state. This link will connect you with the name of and contact information for the director of each state IDD agency.
As part of its work on the Family Support Research and Training Center (FSRTC), The Arc provided grants to seven state and local chapters of The Arc to organize coalitions aimed at improving support to all families of people with disabilities and seniors in their states. The coalitions were hosted in Arizona, California, Kentucky, Pennsylvania, Tennessee, Washington, and Wisconsin between 2015 and 2017. These coalitions had the following goals:
As part of its work on the Family Support Research and Training Center (FSRTC), The Arc provided grants to seven state and local chapters of The Arc to organize coalitions aimed at improving support to all families of people with disabilities and seniors in their states. The coalitions were hosted in Arizona, California, Kentucky, Pennsylvania, Tennessee, Washington, and Wisconsin between 2015 and 2017. These coalitions had the following goals:
This brief summarizes the insights from these coalitions.
This report outlines the next steps in researching family support by reviewing the current state of the field and identifying future directions for family support research in various areas, including (1) exploration and discovery of family caregiving experiences, (2) family support interventions, (3) family support policy, programs, and services, and (4) research methods in family support. This report was produced by the Family Support Research and Training Center at the University of Illinois at Chicago.
This brief reviewed parents’ self-reported experiences with long-term services and support for their family member with IDD and found that parents generally reported that they were satisfied with services, but it varied by racial/ethnic background. This brief is based on research conducted by the University of Minnesota, and this brief was produced by the Family Support Research and Training Center (FSRTC).
This brief reviewed parents’ self-reported experiences with long-term services and support for their family member with IDD and found that caregiver health and level of support needs influenced satisfaction with supports. This brief is based on research conducted by the University of Minnesota, and this brief was produced by the Family Support Research and Training Center (FSRTC).
This brief reviewed the experience of sibling caregivers compared to other caregivers and found that sibling caregivers generally reported less choice and control around services and supports, as well as lower household incomes despite similar ages. This brief was produced by the Family Support Research and Training Center (FSRTC).
The 2010 Family and Individual Needs for Disability Supports Survey (FINDS) conducted by The Arc (2011), shows that family caregivers play a critical role in providing supports to individuals with intellectual and developmental disabilities (IDD). Caregivers provided an average of nine different kinds of support and more than half of all caregivers reported providing these supports more than 40 hours per week. More than half of caregivers in this survey reported being aged 50 or older, highlighting the critical need to start planning for a future when aging caregivers are no longer able to continue providing significant amounts of support for their family members
This brief reviews research gaps that caregivers of adolescents with disabilities experience, including service design and delivery, impact on siblings, diversity, family support interventions, and the positive impacts of caregiving. This brief was produced on behalf of the Family Support Research and Training Center.
This brief reviews research gaps that caregivers of older adults with disabilities experience, including experiences of diverse caregivers, a need for more diverse research methodologies, and a need for systemic support of a whole family. This brief was produced on behalf of the Family Support Research and Training Center.
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