Wisconsin Legislature v. Palm

State: Wisconsin

Filed: April 29, 2020

Court: Wisconsin Supreme Court

Overview: National and state disability and aging groups filed an amicus brief explaining the heightened risks to people with disabilities and older adults during the COVID-19 pandemic in a case challenging Wisconsin’s stay-at-home order. The brief argued that should the order be enjoined, more Wisconsinites will inevitably contract the virus and people with disabilities and older adults will experience life-threatening consequences at a far higher rate than the rest of the population. This will, in turn, overwhelm an already overburdened healthcare system (dealing with limited supplies of crucial equipment), which will disproportionately harm people with disabilities and older adults who face an exponentially higher risk of contracting the virus in a life-threatening capacity that requires hospitalization.

Excerpt: “The spread of COVID-19 is especially dangerous to people with disabilities and older adults for several reasons. First, for health-related reasons, people with disabilities and older adults are at greater risk of serious complications and death if exposed to the virus. Second, they are more likely than other adults to live in congregate settings, such as group homes or nursing homes where COVID-19 rates of infection and fatality have been disproportionately high and will only worsen if the Order is enjoined. Third, people with disabilities and older adults, whether living in congregate or community-based settings, often require assistance from a workforce that cannot maintain social distance while supporting them in their daily lives. The nationwide shortage of personal protective equipment (“PPE”) puts both staff and those they are supporting at higher risk of contracting the virus, which will only be exacerbated if the Order is enjoined. Fourth, people with disabilities and older adults are at greater risk of being denied life-saving medical treatment if an uncontrolled outbreak forces rationing of medical care, due to the likelihood of discrimination. Finally, people with disabilities and older adults are more likely to live in poverty and experience homelessness, which is an additional risk factor for contracting COVID-19. For all these reasons, risks to the lives of persons with disabilities and older adults would only be heightened if this Court were to enjoin the State’s efforts to reduce the spread of COVID-19.”

Case Documents

Amicus Brief

Related Media

Press Release: Over 30 Groups File Amicus Brief in Wisconsin Regarding Heightened COVID-19 Risks to People with Disabilities & Older Adults

Milwaukee Journal Sentinal:
Wisconsin Supreme Court strikes down Wisconsin’s stay-at-home order that closed businesses to limit spread of coronavirus

New York Times: Wisconsin Supreme Court Strikes Down Stay-at-Home Order

Staying Connected During COVID-19: Tech Resources for Providing Support at a Distance

In this panel-led webinar, learn about different solutions available to chapters who look to connect and provide supports remotely to the individuals they serve. The 70-minute webinar includes information on technology platforms, best practices in virtual supports, and other vital insights.

 

Presenters

Abe Rafi, Rafi@TheArc.org
Senior Director, Technology Strategy & Programs, The Arc

Topics: Free and low-cost technology | Online Coaching Services

View The Arc’s Online Coaching Service document here.

 

Doug Meeker, doug.meeker@3rbehavioralsolutions.com

CEO, LifeSherpa

Topic: Overview of the LifeSherpa app, which uses video calling, notifications, reminders, and step by step routines that provide effective, secure solutions to managing remote teams and supporting people clients virtually

View LifeSherpa’s presentation here.

 

Maulik Trivedi, MD, maulik.trivedi@stationmd.com

Chief Strategy Officer, StationMD

Topic: Leveraging telehealth technologies to connect remotely to individuals in need of in-home medical care

View StationMD’s presentation here.

 

Byran Dai, hello@daivergent.com

Co-Founder & CEO, Daivergent, Inc.

Topic: Using remote technology to engage people, tap into remote work interfaces, hosting training and delivering curriculum for people during stay at home orders

View Daivergent’s presentation here.

 

If you have questions about these programs, please contact Stephane Leblois at Leblois@TheArc.org.

 

Alternative Day Programs During the COVID-19 Pandemic

Hear from five chapters of The Arc as they describe their steps for redesigning their in-person day programs to virtual learning platforms. This 90-minute webinar includes information on technology platforms, curriculum, staffing, and funding.

Interested in having your own copy of the presentation and documents it mentions? You can download it here.

 

Presenters

Tyler Frazee, tfrazee@stonebelt.org, Lifelong Learning Coordinator
Stone Belt Arc, Indiana
Topic: Facebook Live events

Gabrielle Szarek, gszarek@slarc.org, Director of Transition Services St.
Louis Arc, Missouri
Topic: Inspiring, Engaging and Motivating Virtually

Amber Nelson, anelson@arcofthecapitalarea.org, Director of Art and Education
The Arc of the Capital Area, Texas
Topic: Virtual Education during COVID-19

Joshua Weidenhamer, jweidenhamer@minutemanarc.org, Director of Day Habilitation
Minute Man Arc, Massachusetts
Topic: Who’s Zooming Who? Providing Remote Services Which Keep People Active and Engaged

Susannah Eaton-Ryan, Seaton-ryan@thearcofdelaware.org, Director of Employment and Outreach
The Arc of Delaware, Delaware
Topic: Supported Employment in the Time of Coronavirus

If you have questions about this program, please contact Karen Wolf-Branigin at  wolf-branigin@thearc.org

Jessica P. v. Department of Child Safety

State: Arizona

Filed: March 23, 2020

Court: Arizona Court of Appeals

Overview: The brief supports the appeal of a parental rights termination order by a mother with intellectual disability (ID) who did not receive reasonable accommodations from the child welfare agency. The brief focuses on social science research discussing the ability of people with ID to parent and explains that (1) people with ID have a wide range of abilities and challenges and their needs must be assessed individually and holistically in parental termination cases; (2) people with ID have long faced discrimination and other obstacles to having and parenting children; (3) people with ID can and do parent successfully.

Excerpt: “Each day, parents with intellectual disability contend with prejudicial child welfare practices based on the presumption that they are unfit to parent. While some persons with intellectual disability may be unable to parent safely, all parents with intellectual disability deserve the opportunity to establish that they can parent, and access to the services and supports that they need to do so, if they can. Persons with intellectual disability are a heterogeneous group, with a wide range of strengths and needs, and they, like all parents, must be assessed and treated as individuals. Far too often, they are not. Although current social science establishes that parents with intellectual disability are not inherently unable to parent and that they can learn and apply new parenting skills, as well as telling us what services and supports work best for these parents, parents with intellectual disability remain subject to longstanding, prejudicial assumptions about their inability to parent. If we are to give parents with intellectual disability and their children a full and equal opportunity to preserve their families, we must dispel these assumptions.”

Case Documents

Jessica P. Amicus Brief

Talk About Sexual Violence: Survivor Perspectives

Two survivors of sexual violence discuss their experiences and journey of healing.

HHS-OCR Complaints Re COVID-19 Medical Discrimination

States: Washington, Alabama, Tennessee, Utah, Oklahoma, Connecticut, North Carolina, Oregon, Nebraska, Arizona, DC, Texas

Date Filed: 2020

Agency: U.S. Department of Health and Human Services, Office for Civil Rights

Overview: These complaints concern illegal disability discrimination in medical care that is putting the lives of people with disabilities at imminent risk during the COVID-19 pandemic. The complaints challenge discriminatory crisis standard of care plans, no-visitor policies, and inaccessible testing that violate federal disability rights laws, including the Americans with Disabilities Act (ADA), Section 504 of the Rehabilitation Act (Section 504), and Section 1557 of the Affordable Care Act (ACA).

Crisis Standard of Care Complaints

Washington

Alabama

Tennessee

Utah

Oklahoma

North Carolina

Oregon

Arizona

North Texas

No-Visitor Complaints

Connecticut

MedStar Health (D.C.)

Texas

MHHS Texas

Other Complaints

Inaccessible Testing: Nebraska

HHS-OCR Documents

HHS-OCR Bulletin: Civil Rights, HIPAA, and COVID-19

HHS-OCR Resolution: Alabama

HHS-OCR Resolution: Connecticut

HHS-OCR Resolution: Tennessee

HHS-OCR Resolution: Utah

HHS-OCR Resolution: Texas and North Carolina

HHS-OCR Resolution: Medstar Health

HHS-OCR Resolution: Arizona

FAQs for Healthcare Providers during the COVID-19 Public Health Emergency: Federal Civil Rights Protections for Individuals with Disabilities under Section 504 and Section 1557

Additional Resources

Webinar: Disability Discrimination in the Rationing of Life Saving COVID Treatment: Who Gets Left Behind?

Applying HHS’s Guidance for States and Health Care Providers on Avoiding Disability-Based Discrimination in Treatment Rationing

Evaluation Framework for Crisis Standard of Care Plans 

Evaluation Framework for Hospital Visitor Policies

AADMD Statement on People with IDD and the Allocation of Ventilators During the COVID-19 Pandemic

50 State Crisis Standard of Care Plan Overview

Examining How Crisis Standards of Care May Lead to Intersectional Medical Discrimination Against COVID-19 Patients

Press Releases

Federal Civil Rights Resolution Makes Clear Hospital Visitor Policies Nationwide Must Accommodate Patients with Disabilities During COVID-19 Pandemic

State and National Groups File Federal Complaint Against Nebraska for Inaccessibility of COVID-19 Testing Program

Resolution of Federal Civil Rights Complaint Raises the Bar in Prohibiting Medical Discrimination Against People With Disabilities During COVID-19 Pandemic

COVID-19 Hotspots Arizona and Texas Crisis Standard of Care Plans Challenged by State and National Groups in Federal Complaints

Resolution of Federal Complaint Amidst Nationwide COVID-19 Surge Raises Bar in Prohibiting Blanket DNRs, Medical Discrimination Against People With Disabilities

Amidst Nationwide COVID-19 Surge, Health & Civil Rights Groups Secure Federal Approval of Revised Crisis Standards of Care Guidelines in Texas

NC Increases COVID-19 Medical Rationing Protections for Disabled Patients

Coalition of Civil Rights Groups and Legal Scholars Release Report on Intersectional Medical Discrimination During COVID-19

MedStar Health Agrees to End Discriminatory Treatment of Patients with Disabilities in Federal Resolution

Civil Rights Groups Secure Federal Approval of Revised Crisis Standards of Care in Arizona

Related Media

New York Times: Will Disabled People Be at a Disadvantage for Scarce Coronavirus Treatment?

U.S. News: Rights Groups: Coronavirus Treatment Plan Discriminates

Bloomberg Law: Virus Stokes Discrimination Concerns From Disability Groups (2)

NPR: Disability Groups File Federal Complaint About COVID-19 Care Rationing Plans

NPR: People With Disabilities Say Rationing Care Policies Violate Civil Rights

Seattle Times: People with disabilities would suffer if coronavirus care is rationed, advocates say in civil-rights complaint 

The Appeal: The Coronavirus Pandemic Has Brought Out Society’s Alarming Disregard for People With Disabilities

Bloomberg Law: Alabama’s Virus Ventilator Plan Latest to Draw Ire of Disabled

MyNorthwest: Advocacy group says people with disabilities could get denied COVID-19 treatment

AL.com: Alabama limit on ventilators discriminates against intellectually disabled, advocates claim

ProPublica: People With Intellectual Disabilities May Be Denied Lifesaving Care Under These Plans as Coronavirus Spreads

The Hill: Trump officials say people with disabilities must not be denied lifesaving coronavirus care

NPR: HHS Warns States Not To Put People With Disabilities At The Back Of The Line For Care

NBC News: Ventilators limited for the disabled? Rationing plans are slammed amid coronavirus crisis

New York Times: U.S. Civil Rights Office Rejects Rationing Medical Care Based on Disability, Age

WTVC-TV NewsChannel 9 News: TN disability rights advocates: State regulations discriminate by rationing critical care

New York Times: At the Top of the Covid-19 Curve, How Do Hospitals Decide Who Gets Treatment?

The Atlantic: Americans With Disabilities Are Terrified

Vox: “We’re being punished again”: How people with intellectual disabilities are experiencing the pandemic

Washington Post: Who gets a shot at life if hospitals run short of ventilators?

ABC: People with disabilities call for assurances of COVID-19 care

Daily Beast: In These States, the Disabled Could Go to the Back of the Ventilator Line

The Center for Public Integrity: State Policies May Send People With Disabilities to the Back of the Line for Ventilators

cheddar: Alabama Cuts Policy That Made it Harder for Disabled Coronavirus Patients to Get Ventilators

AL.com: Alabama disavows plan to limit ventilators for disabled during shortages

Alabama Political Reporter: Feds resolve complaint over “discriminatory” Alabama emergency ventilator policy

Bloomberg Law: Alabama Takes Down Allegedly Discriminatory Ventilator Guidance (1)

The Hill: Alabama removes controversial ventilator guidelines that denied coronavirus care to disabled

Nashville Post: Group files complaint against state triage guidance to HHS

Forbes: The Disability Community Fights Deadly Discrimination Amid The COVID-19 Pandemic

NPR: People With Disabilities Fear Pandemic Will Worsen Medical Biases

BMJ: US ventilator crisis brings patients and doctors face-to-face with life-or-death choices

CT News Junkie: Disability Rights Groups File Complaint With Office of Civil Rights

New York Times: Coronavirus Crisis Exacts Toll on People With Disabilities

Eyewitness News 3: Formal discrimination complaint filed on behalf of people with disabilities

Disability Scoop: Hospital No-Visitor Policies Endanger People With Disabilities, Advocates Say

CNN: How hospitals make tough ethical calls about which lives to save during a pandemic

Hartford Courant: Advocates want parents of people with intellectual disabilities to be excused from Connecticut’s no-visit rule at hospitals during the coronavirus crisis

NPR: Federal Government Asked To Tell Hospitals Modify Visit Bans

The CT Mirror: Hospital visitor bans fail disabled patients, complaint says

U.S. News: Hospitals Ordered to Allow Support for Disabled Patients

CT News Junkie: Connecticut Settles Disability Complaint Over Hospital Visitation

Hartford Business Journal: CT, Hartford HealthCare resolve civil rights complaint over visitor restrictions

Bloomberg Law: Disabled Allowed Support Visitors in Connecticut Hospitals (1)

Hartford Courant: State issues order allowing people with disabilities companions in hospital settings, settling civil rights complaint

New York Times: Connecticut Hospitals Ordered to Allow Visitors for Patients With Disabilities

Disability Scoop: Hospitals Told To Allow Visitors For Individuals With Disabilities

U.S. News: Coronavirus Crisis Exacts Toll on People With Disabilities

Lincoln Journal Star: Disability Rights Nebraska files complaint over Test Nebraska access

Bloomberg Law: Tennessee Updates Virus Plan After Disability Groups Protest

New York Times: Who Gets Lifesaving Care? Tennessee Changes Rules After Federal Complaint

AZ Central: Disability rights groups file federal complaint about ‘medical rationing’ in Arizona

KJZZ: Disability And Civil Rights Groups File Formal Complaint Vs. Arizona Over Crisis Standards Of Care Plan

Forbes: Disabled Discriminated Against By Crisis Health Plans, Groups Charge In Federal Complaints

NBC DFW: Pandemic Triage Guidelines Violate Federal Law, Discriminate: Complaint

New York Times: Should Youth Come First in Coronavirus Care?

Politico: Trump administration steps in as advocacy groups warn of Covid ‘death panels

AP News: Utah sets pandemic safeguards for people with disabilities

Salt Lake Tribune: Utah revises emergency plans to protect people with disabilities

The Hill: How an unexpected collaboration led Utah to amend its discriminatory triage plan

Open Minds: COVID, Rationing, & Consumers With Disabilities: Where Are We?

NPR: As Hospitals Fear Being Overwhelmed By COVID-19, Do The Disabled Get The Same Access?

CBS DFW: Revised Pandemic Rationing Plan Protects Disabled Texans From Being Sent To Back Of Line For Ventilators

The Federalist: Elderly And Disabled People Should Not Be Put At The Back Of The Line For COVID Care

Texas Standard: Revised Health Care Guidelines Protect Texans With Disabilities From Discrimination, If Rationing Occurs

NPR: HHS Civil Rights Office Tackles Health Care Discrimination Of People With Disabilities

CNN: Many doctors have negative perceptions of patients with disabilities — and that impacts quality of care, study finds

NPR: MedStar Health Changes COVID-19 Protocols Following Discrimination Complaint

Bloomberg Law: Arizona Amends Virus Care Standards to Protect Disabled Patients

AZ Central: Arizona revises its standards on pandemic ‘medical rationing’ after federal complaint

Associated Press: Arizona revises health standards around ‘medical rationing’

The Center for Public Integrity: Once Again, Some States are Choosing who Gets COVID-19 Care

Washington Post: MedStar Agrees to Deal in Federal Discrimination Case

Haga Que Su Comunidad Sea Contada: Una Guía Para Organizaciones

Las organizaciones tendrán que estar preparadas para apoyar a sus comunidades en que sean contadas. Aprenda los conceptos básicos del censo, por qué es importante para las personas con discapacidades, y cómo puede participar.

El documento también es disponible en formato Word (descarga directa).

Tu Cuentas! Se Contado.

Un documento de lenguaje claro para ayudar a entender lo que es el censo, por qué es importante para las personas con discapacidades, y cómo completarlo.

El documento también es disponible en formato Word (descarga directa).

Get Your Community Counted: A Guide for Organizations

Organizations need to be prepared to support the communities they serve to get counted! Learn the basics about the census, why it matters to people with disabilities, and how to get involved.

Also available as a word document (direct download).

You Count! Be Counted.

A plain language document to help individuals understand what the census is, why its important for people with disabilities, and how to complete it.

Also available in Microsoft Word (direct download).