Storytelling Toolkit for People With Disabilities and Advocates

Your life and experiences are powerful and valuable. Sharing your story can change people’s hearts and minds.

This toolkit will help you create and share your stories to raise awareness about an issue, encourage elected officials to change laws or policies, ask people to support changes you want to make in your life, and share about what your life is like.

Download the resources below to get started!

Intersections of Disability and Rurality: Elevating Family Voices

In this recorded webinar, you will hear from Jessica Curd about rural caregiving and disability. She talks about how poverty, living in rural areas, caregiving, and having a disability can overlap and create higher risks and vulnerability. She also talks about a study she did with Dr. John Keesler. They listened to families in rural areas with kids with autism and let them share their experiences. Jessica explains how they did the study and what they found. She also talks about ideas from the families for how to help more.

Download the presentation here.

Introduction to The Arc@School Advocacy Curriculum in Spanish

These recorded webinars provide a brief overview of the Spanish version of The Arc@School’s Special Education Advocacy Curriculum. The curriculum provides basic information that parents, educators, and non-attorney advocates need to support students and families in navigating the special education system. Watch the webinar to learn more about the content of the curriculum, how to sign up to receive an account, what to expect after signing up, and more.

IN ENGLISH:

IN SPANISH:

Talk About Sexual Violence: Phase Three Final Report

Transforming Health Care to Address and Prevent Sexual Violence of People With Intellectual and Developmental Disabilities: Final Report 

Health care providers hold vital positions in the growing national movement to address sexual assault. The overarching goals of the multi-year Talk About Sexual Violence (TASV) project were to raise the alarm about this silent epidemic, promote trauma-informed practices in health care, and compel action to prevent sexual trauma suffered in communities across the country.

This comprehensive summary report provides key findings, innovative solutions, and a call to action from survivors with disabilities, health care professionals, and other advocates.

This final report is provided both in a written format and as a video.

Shifting Our View: A Person-Centered Journey

In this webinar, Lori Ropa, Executive Director of The Arc of Jefferson, Clear Creek, and Gilpin Counties, discusses how she embarked on a journey with their advocacy team during COVID to “shift their views” and attempted to understand the thoughts and feelings of the people who came to support them. Lori’s team developed personas and mapped people’s journeys through The Arc through the lens of each persona. They then developed actionable items to make the advocacy experience even more positive for the people coming to their organization for support.

Download presentation here.

Restrained and Secluded: How a Change in Perspective for Students With Disabilities and Simple Science Can Change Everything

Students with disabilities are more likely to be restrained, secluded, suspended, expelled, and subjected to corporal punishment. In the name of behavior, children with disabilities, Black and brown children, and children with a trauma history are often misunderstood. Outdated behavioral management approaches are not working for the children who need our help the most. Being the parent or caregiver of a misunderstood child can be difficult. We are often blamed and shamed, but there is hope. A bit of neuroscience and a new lens on behavior can reduce and eliminate punitive practices and lead to endless potential.

Speaker Bio: Guy Stephens lives in Southern Maryland with his wife and two amazing children. He is the founder and Executive Director of the nonprofit Alliance Against Seclusion and Restraint (AASR). AASR is a community of over 25,000 parents, self-advocates, teachers, school administrators, paraprofessionals, attorneys, related service providers, and others working together to influence change in supporting children whose behaviors are often misunderstood. He has presented at conferences and events across North America and guest lectures for undergraduate and graduate courses as a national expert on the issue of restraint and seclusion.

Download presentation here.

Download transcript here.

For further questions, please email school@thearc.org.

2023 Talk About Sexual Violence Final Report: Transforming Health Care to Address Sexual Violence of People With IDD

In this video, Leigh Anne McKingsley, Senior Director of The Arc’s National Center on Criminal Justice and Disability, and Kecia Weller, Survivor Self-Advocate and Project Advisor, provide an overview of the key findings and recommendations of the Talk About Sexual Violence project over the past seven years.

FINDS Community Report 2023: Family & Individual Needs for Disability Supports

The Family and Individual Needs for Disability Supports (FINDS) survey provides insights and understanding of the experiences of families supporting a family member with intellectual and developmental disabilities (IDD). It is critical research to inform better policy development.

The FINDS survey was initially conducted by The Arc of the United States in 2010. It was updated in 2017 through a collaboration between the Research and Training Center on Community Living (RTC/CL) at the University of Minnesota and The Arc.

The 2023 report focused on:

  1. What are the challenges families face in meeting the support needs of their family members?
  2. What are the economic implications of caregiving?
  3. How does caregiving affect caregivers, and what supports do they need?

A better understanding of the experiences and needs of caregivers can help policymakers and others support caregivers in this critical role.

Cultivating a Strong Assistive Technology Program

In this webinar, The Arc of Ohio presented a summary of its popular Assistive Technology Program, including information about the program’s history and impact. Watch the video to learn more about the program and the opportunities it can create for people with intellectual and developmental disabilities in their local communities.

Speaker Bio: 

David Lewis is the Vice President for The Arc of Ohio in Columbus, Ohio. He received his Cisco CCNA Certification from Columbus State Community College and is Microsoft A+ Certified. David has over 25 years of experience in the technology field having spent 15 years as a network administrator and 10 years as a technology specialist for the digital industry. After a long and successful career in the technology field, David decided to follow his passion for helping others.

Emma Kincaid is the Director of the Assistive Technology Program at The Arc of Ohio. She has worked with The Arc since August 2019. Emma has three years of experience in assistive technology at The Arc of Ohio. Emma’s favorite part of her career with The Arc of Ohio is how the assistive technology program gives individuals throughout Ohio the equipment they need in their daily lives. Emma hopes to keep helping more people with disabilities live happy and independent lives.

Osseo Areas Schools v. A.J.T.

Filed: April 21, 2023

Court: U.S. Court of Appeals for the 8th Circuit

Overview: Amicus brief to safeguard parental involvement in the IEP process and ensure children have access to a full school day as part of a free and appropriate education.

Excerpt: “…when a school district designs a program and placement without considering the student’s actual needs and parental input, it violates IDEA…Courts have recognized that shortening school days for IDEA-eligible children based on administrative convenience rather than individual student needs can cause substantive harm…IDEA’s procedural safeguards, especially the right to meaningful parental participation, exist to ensure the delivery of meaningful educational benefit to all children with disabilities. Because of Osseo’s undisputed failure to comply with IDEA’s procedural mandates, A.J.T. did not receive an appropriately ambitious program with challenging objectives.”

Case Documents

Amicus Brief