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Time to Check Your Health Insurance

/in /by The Arc

2019 Open Enrollment:

November 1, 2018
Open enrollment begins

December 15, 2018
Open enrollment ends

January 1, 2019
Coverage begins

If you’re uninsured or looking for more affordable health insurance, the “open enrollment” period is the time to visit healthcare.gov or your state’s marketplace or health insurance exchange. During “open enrollment”, private health insurance options can be reviewed and coverage can be purchased. People with low and moderate incomes may be able to get financial help to pay for health insurance coverage. Assistance to pay for premiums and other cost-sharing may be available for individuals and families, depending on which plan is purchased and the families’ income level. If you get health insurance through your employer, Medicaid or Medicare, you are not eligible for this assistance.

You can also sign up for insurance outside of the open enrollment period, if you lose your job, get married, divorced or have a baby. You may enroll in Medicaid or the Children’s Health Insurance Program (CHIP) at any time.

Do all states have the same open enrollment dates?

No. Some states have longer enrollment periods. States with different ones are listed below:

California: Oct. 15, 2018 – Jan. 15, 2019

Colorado: Nov. 1, 2018 – Jan. 15, 2019

DC: Nov. 1, 2018 — Jan. 31, 2019

Massachusetts: Nov. 1, 2018 – Jan. 23, 2019

Minnesota: Nov. 1, 2018 – Jan. 13, 2019

Rhode Island: Nov. 1, 2018 – Dec. 31, 2018

If you have a disability or a health condition, be sure to ask before you select a plan:

  • Are a broad range of health care providers included in the health plan’s provider network?
  • Are there enough medical specialists in the network to meet your needs?
  • Are the medications you need included in the plan’s list of covered drugs? Has the cost sharing changed? Are there other requirements like prior authorization?
  • Is there adequate access to non-clinical, disability-specific services and supports?
  • Does the plan have service limits, such as caps or limits on the number of office visits for therapy services?
  • Are mental health services covered to the same extent that other “physical” health benefits are covered?

I already have health insurance through the Marketplace. Do I need to do something?

It is important to update your income and household information in the Marketplace to make sure you get the assistance that is available to you. 

  • This is also a good time to check your health insurance coverage and see if it still meets your healthcare needs.
  • If a new plan does not cover your providers or services, seek more information about transitioning from your current provider to a new one.
  • You should carefully read all health insurance notices and updates.
  • If your income has increased, updating your information with the Marketplace will help avoid paying penalties.

I and/or my family members are uninsured, can we sign up?

Uninsured individuals can go online, enter information and review insurance options. Information on monthly premiums, deductible costs, doctors, hospitals and which drugs are covered by a plan should be available. Enrollment is limited to individuals who live in the United States, are U.S. citizens, nationals, or non-citizens who are lawfully present, and not currently incarcerated. If you have not signed up for an insurance plan, it is important to note that you may be subject to a fee for not having health care coverage.

Most individuals will be able to get health insurance coverage regardless of pre-existing health conditions or prior denial of coverage. However, due to recent federal changes, the marketplace may sell policies that do not include the protections from the Affordable Care Act (ACA). These ACA protections include covering essential health benefits such as rehabilitation or behavioral health and ensuring that plans do not charge people with preexisting conditions more for coverage. It is more important than ever to thoroughly review what benefits a plan offers and what it costs.

Where can I go to get help?

Purchasing health insurance can be complicated. If you or your family member needs assistance with understanding the options, healthcare.gov can help. Each state has health insurance “navigators” to assist individuals with enrollment in health insurance plans. Individual health plan information should be available in late October 2018 on the website. If you would like more information on specific topics, the National Disability Navigator Resource Collaborative has a comprehensive set of materials available on disability issues and the Affordable Care Act.

Website: www.healthcare.gov
Phone: 1-800-318-2596 (Available 24/7 with access to 150 languages)
TTY: 1-855-889-4325
In-Person Assistance Resources: localhelp.healthcare.gov

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Our Hearts Are Heavy: A Statement on the Tree of Life Synagogue Shooting

/in , , /by The Arc

A statement from The Arc of Greater Pittsburgh, known as ACHIEVA, on the shooting at Tree of Life Synagogue this weekend. Two of their clients, Cecil and David Rosenthal were victims of the attack.

On behalf of the Board of Directors and Staff of The Arc, we offer our most heartfelt sympathy to the entire ACHIEVA family on the tragic loss of Cecil and David Rosenthal.

The ACHIEVA family is devastated at the loss of two well-respected members of our community. Two extraordinary men, brothers Cecil and David Rosenthal, were victims of the tragedy at the Tree of Life Synagogue.

Cecil and David had a love for life and for those around them. As long-standing recipients of ACHIEVA’s residential and employment services, they were as much a part of the ACHIEVA family as they were their beloved neighborhood of Squirrel Hill.

They loved life. They loved their community. They spent a lot of time at the Tree of Life, never missing a Saturday. “If they were here they would tell you that is where they were supposed to be,” said Chris Schopf, Vice President, Residential Supports, ACHIEVA.

Chris added, “Cecil’s laugh was infectious. David was so kind and had such a gentle spirit. Together, they looked out for one another. They were inseparable. Most of all, they were kind, good people with a strong faith and respect for everyone around.”

Our collective hearts are heavy with sympathy to the Rosenthal family, and to all who were affected by the tragedy at Tree of Life.

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Impact of the Public Charge Rule Change on People With Disabilities

/in /by The Arc

Written in partnership with:

What is the Public Charge rule?

On October 10, the Department of Homeland Security announced the “public charge” rule. This rule allows the U.S. to keep out people who may become a “public charge.” Someone is called a “public charge” if the government thinks you might depend on government benefits to meet your needs. Someone who is called a “public charge” will be discriminated against if they try to enter the U.S. (get a visa) or get a green card (become a permanent resident).

The proposed rule is unfair, dangerous, and blatantly discriminatory. The rule would exclude people from this country simply because they have a disability.

The U.S. has already had a public charge rule for a long time. The new rule will make things much worse. Under the old rule, someone was only considered a public charge if they used cash benefits, like social security or TANF, or if they lived in an institution. The new rule uses a much bigger list of programs and benefits, and it also looks at other things like someone’s health and income.

The Rule Discourages the Use of Important Programs and Benefits

The new rule will discourage families from using important services for fear of harming their immigration status. People with disabilities and our families often need to use government benefits in order to stay fed, housed, and healthy. Under the new rule, using–or even just applying for–these benefits will count against us. Some of the programs and benefits that will count against us under this new rule are:

  • Medicaid
  • Food stamps, or SNAP
  • Medicare Part D assistance
  • Section 8 housing assistance
  • Children’s Health Insurance Program, or CHIP (they are still deciding whether to include this program)

In addition, the rule will also look at someone’s income. If someone or their family is lowincome, that will count against them.

The Rule is An Attack on Medicaid

The public charge rule is another attack on the basic services people with disabilities receive through Medicaid. The new rule includes the Medicaid-funded services that help people with disabilities stay in our homes, work, go to school, and live in our communities. These services are sometimes called waiver services, personal care services, nursing services, respite, intensive mental health services, and employment supports.

This creates an unfair choice for people with disabilities and our families. Medicaid is the only source for community living supports for people with disabilities. Community services simply aren’t available under private insurance. This rule will force immigrant families to choose between surviving without needed community services or being denied entry into this country just because their family member has a disability and might need services.

The Rule Discriminates Against People with Disabilities

The proposed rule directly discriminates against people with disabilities and chronic health conditions. In addition to benefits, the rule looks at a person’s health to decide if they will become a public charge. If someone has certain medical conditions, that counts against them. If someone doesn’t have a medical condition or a disability, the rule says that is a “positive factor.” This is unfair and discriminatory to people with disabilities and chronic health conditions.

The rule specially calls out people with the “most expensive health conditions,” including:

  • Heart disease
  • Cancer
  • Trauma
  • Mental health conditions

The rule also looks at whether or not a person can obtain private health insurance to pay for the medical costs the government thinks they will have because of their chronic health condition or disability. If someone doesn’t have health insurance, that counts against them. But because many important community services are only available through Medicaid and are not covered by private insurance, many people with disabilities won’t pass this test.

In other words, the proposed rule would exclude people with disabilities simply because they have a disability.

The Rule Isn’t Final Yet

If the new rule is put into practice, it will hurt many immigrants and immigrant families, including people with disabilities. But there is still time. For the next 60 days, the Department of Homeland Security is taking comments on the rule. Anyone can comment on the rule, and the government is required to read and respond to the comments. It is critical that the disability community sends in as many comments as possible explaining why this rule is dangerous and discriminatory and why it should not be put into practice. If we all speak up, we can keep this rule from being implemented.

For more information, please visit https://medicaid.publicrep.org/feature/public-charge/ and https://protectingimmigrantfamilies.org/. These websites include information and resources on how to comment.

For more information on this and other topics, visit

  • www.thearc.org
  • ASAN: autisticadvocacy.org
  • CPR: centerforpublicrep.org
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Tommy Hilfiger, Levy Restaurant Group, Amy & The Orphans and More: The Arc Announces Winners of 2018 Catalyst Awards

/in /by The Arc

On November 9, The Arc will present the prestigious Catalyst Awards to six honorees, all of whom have made extraordinary contributions in the lives of people with intellectual and developmental disabilities (IDD). This year’s winners hail from a wide swath of our society, including one of the most admired fashion brands in the world, the lead cast and writer behind a hit off-Broadway show, a nationally recognized self-advocate, a non-profit that is paving the way for inclusion of disability in the fashion industry, and one of the nation’s premier special education lawyers, all of whom are changing how society perceives and treats people with disabilities.
“The Catalyst Awards honor those who are not traditionally recognized within the disability community for their diverse and meaningful contributions to our movement. These award winners are unique in their accomplishments, but unified by their tireless pursuit of inclusion. Their work has helped further The Arc’s mission to promote and protect the human rights of people with intellectual and developmental disabilities, and we are thrilled to bring them together to receive this well-earned honor. Our hope is that by shining a spotlight on these change agents we will inspire and educate others,” said Peter Berns, Chief Executive Officer of The Arc.

During the fourth year of this signature event, awards will be presented in six categories. A full list of the accomplishments being honored can be found on The Arc’s Catalyst Awards website.

  • Corporate Advocate of the Year – Tommy Hilfiger revolutionized the fashion industry by launching the Tommy Adaptive Collection in 2017, a line of clothing tailored to the needs of people with disabilities. More than just being the first mainstream fashion brand to design a clothing line specifically for people with disabilities, Tommy Hilfiger has relied upon the advice and feedback from the community to create each design. Modifications such as one-handed zippers, side-seam openings, bungee cord closure systems and magnetic buttons, were incorporated into the design of each piece to maximize comfort and ease of use for people with disabilities. Through its Adaptive Collection, Tommy Hilfiger has become a leader in making the fashion industry more inclusive.
  • Self-Advocate of the Year – James Meadours has been a tireless advocate for individuals with IDD for decades. Throughout his career, Meadours has used his personal experience to highlight challenges facing individuals with IDD in our nation. As a survivor of sexual assault, he has been a powerful activist in the #MeToo movement and he has made it his mission to help victims of sexual violence across the nation become survivors. He is a trail blazer, leader, and staunch defender of people with IDD.
  • Entertainment Industry Excellence – Amy and The Orphans is a critically acclaimed show that is the first and only known Broadway or off-Broadway production to feature actors with IDD in leading roles. Written by critically-acclaimed playwright Lindsey Ferrentino and Directed by Tony nominee Scott Ellis, Amy and the Orphans, tells a humorous yet truthful story of three siblings – one of whom, Amy, has IDD – who come together in the wake of their father’s funeral for a road trip. Jamie Brewer (known for her roles in FX’s hit series American Horror Story) and Edward Barbanell, both actors with disabilities, will be honored with the award along with Ferrentino.
  • Legal Advocate of the Year – Jack D. Robinson is receiving the Legal Advocate of the Year Award in recognition of his illustrious career in special education law and his dedication to protecting the legal right to a free appropriate public education (FAPE) for students with disabilities on the state and national levels. Most recently, Robinson represented Endrew F. before the U.S. Supreme Court in the IDEA case, Endrew F. v. Douglas County School District. The Endrew F.decision has been hailed as a landmark decision that transforms the educational rights of students with disabilities and empowers parents fighting for the civil rights of their children with disabilities.
  • Employer of the Year – Levy Restaurant Group has made hiring people with IDD a priority and has made disability inclusion a key hiring initiative at new locations. One of their most successful job training and placement programs has been at the Barclays Center in Brooklyn, New York, where they have successfully placed over 100 people with IDD in jobs at their food service locations at the venue. The Levy Restaurant Group has replicated their successful model at several other locations in New York with plans to expand to more locations around the country in the near future.
  • Marketing Influencer of the Year – Runway of Dreams Foundation (RODF) is a non-profit organization that develops, delivers and supports charitable initiatives to broaden the reach of adaptive clothing and promote the differently-abled community in the fashion industry. RODF uses a multifaceted approach in their work, which includes processing adaptive clothing donations, creating employment opportunities with fashion brands, leading adaptive design workshops and providing scholarships to aspiring designers.

Comcast NBCUniversal is The Arc’s National Media Sponsor and lead sponsor of the Catalyst Awards.

“Each of these awards speak to the power of inclusivity, and that’s why we are so grateful to partner with The Arc and recognize these honorees for giving a voice to, and advocating for, people of all abilities,” said Fred Maahs, Senior Director of Strategic Partnerships at Comcast.

All nominations were reviewed by a formal selection committee comprised of members of The Arc’s National Staff, members of The Arc’s Board of Directors, prior Catalyst Award Winners, National Conference of Executives of The Arc members, and Peter Berns, Chief Executive Officer of The Arc, serves as the Chair of the Catalyst Awards Selection Committee. Criteria for selection can be found on The Catalyst Awards Website.

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The Arc Responds to Appointment of Judge Kavanaugh to the US Supreme Court

/in , , , /by The Arc

Today, The Arc responded to Judge Brett Kavanaugh’s appointment to the United States Supreme Court. In August, The Arc came out in opposition to Judge Kavanaugh’s appointment to the highest court based on his decisions on cases involving self-determination of individuals with intellectual and developmental disabilities (IDD), education, employment, and his stances on the Affordable Care Act and school choice.

The Arc has not publicly opposed a nominee to the Supreme Court in 30 years, since 1987 when Judge Robert Bork was nominated by President Ronald Reagan. When Judge Gorsuch was nominated to the highest court, The Arc did a thorough analysis of his record and decided to not oppose his appointment. The Arc solely takes positions based on the core values, mission statement, position statements, and public policy agenda for the organization.

“The Arc is disappointed in the Senate’s confirmation of Judge Kavanaugh, this is a devastating blow to disability and civil rights in our country. After a thorough analysis of Judge Kavanaugh’s record we chose to oppose his appointment and activate our grassroots network. Our organization was founded to promote and protect the human rights of people with intellectual and developmental disabilities. We couldn’t sit by idly knowing that Judge Kavanaugh has demonstrated a disregard for the impact of his judicial philosophy on the lives of people with disabilities and their families time and time again.

“Particularly concerning is his opinion in Doe. V. Tarlow, a case where women with intellectual disability who resided in the District of Columbia’s Forest Haven institution brought a class action lawsuit against the District for violating their due process rights. The District, through its developmental disabilities agency, consented to subject them to non-emergency surgical procedures, including abortions and eye surgeries, without even talking to them and their family members. Judge Kavanaugh’s ruling is disturbing in his apparent lack of appreciation for the humanity of individuals with intellectual disability, their basic human rights, and their ability and right to participate in important life decisions even when found legally unable to make decisions by themselves.

“We believe Judge Kavanaugh’s appointment poses a threat to the civil rights of millions of individuals with intellectual and developmental disabilities and their families. It is shocking that so many Senators ignored the gaps in Judge Kavanaugh’s knowledge and understanding of the value and perspectives of people with intellectual disability. Even more disheartening is those Senators who ignored the pleas of their constituents with disabilities who called on them to oppose Judge Kavanaugh’s appointment. We appreciate those who stood up for their constituents, their support did not go unnoticed. We remain united with our colleagues across the disability and civil rights communities and will continue our advocacy to support the values we hold dear as an organization,” said Peter Berns, CEO of The Arc.

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The Arc of Loudoun Gets in the Halloween Spirit

/in /by The Arc

Actors from The Arc of Loudoun County haunted house pose together in their costumes. The Arc of Loudoun and its Executive Director Lisa Kimball sure do know how to get in the Halloween spirit.

SHOCKTOBER, Northern Virginia’s only REAL haunted house experience, has been a destination event for almost a decade. The signature fundraising event has become so successful that last year, it accounted for almost 50% of the chapter’s fundraising budget. SHOCKTOBER is recognized as one of the best haunted houses in the DC/MD/VA area, and has provided an opportunity to build strong community partnerships, give back to the community, and more.

Fundraising is essential for any chapter of The Arc. Can you tell us a little about your chapter’s fundraising success? Do you find more success with individual giving in your region, or signature events like the Shocktober fundraiser?

As is the case for any nonprofit, fundraising is essential to our success, enabling us to fulfill our mission to empower, embrace, and engage adults and children with disabilities and their families. Our signature fundraisers include traditional fare. Our hallmark fundraising event, however, is very much off-the-beaten-path. We have a haunted house on our campus – not just the usual run-of-the-mill haunted house, but a 150-year old historical mansion that’s transformed into a thoroughly professional, PG-13-level haunt that requires guests to sign waivers before beginning their tours!

From a first-year gross revenue of about $40k (which absolutely thrilled us), we’ve grown to 2017’s 12,000 guests and more than $400k in gross revenue – which equated to almost 50% of our fundraising budget for last year. The exponential growth can be attributed to the expertise and detail that goes into each year’s haunt. SHOCKTOBER is recognized as one of the best haunted houses in the D-M-V, and we welcome haunt aficionados from all over the country and, occasionally, from other countries as well.

Can you give us a little history of the success of this event and other fundraising endeavors for your chapter?

SHOCKTOBER, Northern Virginia’s only REAL haunted house experience, has been a destination event for almost a decade.

SHOCKTOBER has matured into a destination event that includes a carnival atmosphere complete with t-shirts, fun merchandise, line entertainment, food and drinks all available on site (“liquid courage” can be found in the beer and wine tent!). New this year, in conjunction with our beloved community partners – 16 of them our ‘top-tier’ supporters – we’ve launched the “Trail of Terror”, a 3-day guide through Loudoun County to experience breweries, wineries, restaurants, and places to stay, all with a haunted twist.

How are you using this fundraiser/other events like it to build awareness and partnerships within your community?

All of this is made successful through our partnerships with multiple state and local tourism-centered organizations. Visit Loudoun, Loudoun County Tourism, and the Commonwealth of Virginia are all committed to supporting The Arc of Loudoun’s mission by granting advertising dollars to support SHOCKTOBER marketing efforts, spreading the word during meetings around the County to increase awareness of The Arc of Loudoun’s service offerings, and by “walking the talk” of embracing our community’s IDD members. Each year the Town of Leesburg and the Loudoun County government eagerly participate in SHOCKTOBER; the Mayor of Leesburg looks forward each season to kicking off the event with an official ribbon ‘slashing’.

How does this particular event highlight the mission of The Arc of Loudoun and involve leaders throughout your network, including people with IDD?

SHOCKTOBER is not just an exceptional fundraising extravaganza; it’s also an opportunity for The Arc of Loudoun to give back to our community. We award five $1k grants to fellow Loudoun County nonprofits whose missions include support for people with IDD through our annual “We Scare Because We Care” campaign. Additionally, just as our supporters bring their money, time and talent to The Arc, The Arc gives back to our volunteers by providing outstanding educational and social opportunities for area high school students, most of whom return year after year to volunteer. Several of our volunteers (actors as well as those in concession and ticket sales positions) are people with intellectual, developmental and/or physical disabilities, and the five weeks of SHOCKTOBER at The Arc of Loudoun offer a unique experience where everyone is accepted and embraced for exactly who they are and honored for what they bring to the event.

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MediSked and The Arc Release 2018 Disability Data Digest

/in /by The Arc

Building on the joint 2015 IDD Data Digest, MediSked and The Arc of the United States are proud to announce the release of the 2018 Disability Data Digest, a compilation of the latest statistics from the disability field, displayed in an easy to read infographic format.

In the age of information, it can be difficult to discern what data is reliable, relevant, timely, and accurate. This resource provides a snapshot of today’s disability community and highlights the areas in which progress has been made toward achieving parity in access to opportunity and basic human rights, while also delineating the many challenges that still face individuals with IDD in striving for inclusion and equality.

The report includes detailed statistics about the following topic areas:

  • Population and Demographics
  • Socio-Economic Profile
  • Employment
  • Health
  • Housing
  • Independence and Decision-Making
  • Living in the Community
  • Long Term Supports and Services
  • Direct Support Professional Crisis
  • Family Caregiving and Natural Supports
  • Disability and the Justice System

We’ve included a fillable State & Local Advocacy Data Toolkit that is linked to resources and databases which contain state-specific data to support local-level advocacy campaigns. Additionally, we have made each of the individual infographics from the Data Digest available for use, with proper citations. You can utilize these resources to identify vital statistics in your state and community to fuel advocacy efforts.

Click here to download the 2018 Disability Data Digest.