The Association for Successful Parenting (TASP)

TASP provides consultant information, runs a peer navigation program in Washington, DC, and partners with other programs supporting parents with disabilities around the country.

National Research Center for Parents With Disabilities

The National Research Center for Parents with Disabilities develops research, training, and resources to support parents with disabilities, as well as information about working with parents with disabilities for social workers and legal professionals. This Center is housed at Brandeis University and The Heller School for Social Policy and Management.

State Overviews

Because programs and eligibility for Medicaid-funded services and supports are different in each state, this site gives you state-level details about each state’s Medicaid program. This site is maintained by the US Centers for Medicare and Medicaid Services.

Medicare Eligibility and Premium Calculator

This tool helps you determine when you qualify for Medicare, how to obtain benefits, and what your premium would cost. This tool is maintained by the US Centers for Medicare and Medicaid Services.

ABLE National Resource Center

The ABLE National Resource Center provides information and education around ABLE accounts, including a state by state list of ABLE programs that people can consider. Many programs allow enrollment nationwide, regardless of where you live. So, it is important for you to view and compare programs. The ABLE National Resource Center is managed by the National Disability Institute.

Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Island

This guide educates caregivers around how to become a health care advocate and support loved one’s through medical appointments and provide more information around screening, assessment, and diagnosis. This guide also provides general information around how to work with health care providers and tips around providing care if a diagnosis occurs. While some information is specific to Rhode Island, many strategies and resources are generalizable to all families.

Talking About Dementia

This guide provides practical tips and strategies for families to use to consider how and when to start talking about dementia. This helps families think about what to say during an initial conversation, how and when this conversation should happen, and how to keep the conversation going.

What is Dementia?

Down Syndrome Scotland created plain language resources for people with I/DD about what dementia is, what dementia is like when you or other people have it, how you can help people who have dementia, and how to ask for help from supporters. This resource was created by adults with I/DD for adults with I/DD.