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The Arc’s Annual Business Meeting – Data Submission Reminder

As part of the Standard Terms and Conditions for Affiliation, chapters are required to submit, no less than once per year, a list of the names and contact information of officers, board members, and key management staff as well as a list of individual Members of the Chapter.  

Pursuant to the Bylaws, a Local Chapter may receive one additional vote for every 100 individuals it has enrolled as of June 30th of the membership year or as of 60 days in advance of the date the voting will take place, whichever is earlier.  

Login to the Membership Portal and update your membership lists before June 30th to secure your membership votes. Questions? Contact Solomon Lissanu at Lissanu@thearc.org.

The Arc’s Annual Business Meeting is scheduled to take place in conjunction with the National Convention Friday, November 9th from at the Gaylord Opryland Resort and Convention Center. If you have any questions regarding the meeting, please contact us at credential@thearc.org. 

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Empower is Going Online!

If you receive Empower (The Arc’s national newsletter), the Spring issue is on its way to your doorstep right now! If you have not received Empower in the past, we are excited to announce that Empower is moving to an online platform. You can learn more at thearc.org/Empower. If you visit this site and sign up to receive an e-copy of Empower instead of a paper copy, you’ll be entered to win a free registration to The Arc’s 2018 National Convention in Nashville, TN! Take a moment to update your subscription today. If you’re having trouble accessing the page, please contact Solomon Lissanu atLissanu@thearc.org for account access. For questions and more information related to Empower, contact Kristen McKiernan at mckiernan@thearc.org.

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New Resources on Family Support: See our final reports on gaps in support across the lifespan

The Arc recently partnered with the Family Support Research and Training Center (FSRTC) at the University of Illinois at Chicago (UIC). Through this partnership, The Arc investigated and reported on gaps in support for families that include an individual with I/DD. Family support for diverse families was found to be a substantial area of weakness. See our reports for more information:

You can use this information to learn more about common gaps families experience, improve supports to families, and present information to potential funders. Questions? Contact Jenny Sladen at Sladen@thearc.org.

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Chapter Benefits Spotlight: Transitioning from Pediatric to Adult Health Care

One important benefit for chapters is the opportunity to advance research that supports people with I/DD. Our partners at Got Transition worked with The Arc to create a quiz to better understand the experiences of young adults in their transition from pediatric to adult health care. The short, 6-question Health Care Transition Quiz is ready to distribute to young adults. Thanks for sharing this quiz link with young adults in your community. Got Transition’s Social Media toolkit includes messages for your use.

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The Arc Submits Declaration in Support of Constitutionality of the Affordable Care Act in Federal District Court

Last month, The Arc submitted a declaration in support of a Motion to Intervene in Texas v. United States filed by California Attorney General Xavier Becerra and joined by 16 other attorneys general. The State of Texas filed the lawsuit in federal district court in Texas in February 2018, alleging that the Affordable Care Act is no longer constitutional following the passage of the Tax Cuts and Jobs Act of 2017. The State of California and 16 other states seek to enter the lawsuit to defend the ACA. In its declaration, The Arc noted that it views the ACA “as critical for people with I/DD and their families in providing benefits, supports, and civil rights protections that help make community living possible.”

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New Documentary Film Portrays Lives of People With IDD, Focuses on IQ Testing

A new documentary, Intelligent Lives, has been released and will be screened at venues around the country in the coming months. The Arc’s national staff got a sneak peak, and the film beautifully portrays the stories of Micah, Naomie, and Naieer as they enter young adulthood, and navigate college, employment, and other opportunities that lie ahead for a life in the community.

We had the opportunity to be a national outreach partner on the film, but we declined because of the film’s approach to the validity of the IQ test. As you know, the IQ test has been misused over the years, and it can be irrelevant to a person’s potential over a lifetime. But it is a part of the diagnostic tool used to set in motion what medical, educational, and community supports an individual may need.

While we recognize that service systems far too often use the IQ number incorrectly and inappropriately to pigeon-hole people with ID and lower expectations, we understand that an IQ score – and its subscores – can provide some useful information. For instance, in our education advocacy, we are focused on ensuring that schools properly focus on the whole of the student, not just the IQ score, and to individually assess and meet the student’s needs as required under federal law.

The Arc, along with a few other organizations, is also a leader in filing amicus briefs in cases where someone with ID is on death row. Despite the Supreme Court’s decisions that it is unconstitutional to execute people with ID, we keep finding ourselves in the position of trying to stop unconstitutional executions of people with ID, and IQ is a key element in our arguments.

For these reasons, The Arc’s national office decided not to be a national outreach partner on this film. We wanted to make you aware of this film, and why we chose to not publicly partner with the film. Questions? Contact Kristen McKiernan (mckiernan@thearc.org), Senior Executive Officer, Communications and Marketing.

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Food Assistance Protected for Millions With Disabilities: The Arc on the House Voting Down the Farm Bill

The Arc released the following statement after news that the Agriculture and Nutrition Act of 2018, also known as the “Farm Bill”, failed to pass the United States House of Representatives. The Farm Bill reauthorizes farm programs and policy as well as the Supplemental Nutrition Assistance Program (SNAP).

“The current version of the Farm Bill was just the latest attack on programs that people with intellectual and developmental disabilities rely on. If enacted as is, the Farm Bill voted down by the House today would have cut basic food assistance for children, adults, and seniors who are struggling to put food on the table. We are grateful to Members of Congress who recognized what this legislation would have meant for their constituents and voted no.

“We fundamentally disagree with the notion embedded throughout the proposed bill that some people are more “deserving” of basic food assistance than others. Approximately 11 million people with disabilities across the United States rely on SNAP to help them eat. Cutting off SNAP – including through new and harsher work and reporting requirements – would only make it harder for people with disabilities and their families to access the food they need to work and to survive. If policymakers want to increase employment, Congress needs to make major new investments in job training and supports and services for job-seekers with disabilities and their families – not cut off their basic food assistance.

“We are relieved that the current version of this legislation was not passed, but recognize there is still work to do. The Farm Bill has a long history of bipartisan collaboration and support. Our hope is that Congressional leaders will work together to develop a bipartisan proposal for reauthorizing the Farm Bill that strengthens and protects SNAP,” said Marty Ford, Senior Executive Officer of Public Policy, The Arc.

On net, the bill voted on by the House today proposes deep cuts to food assistance under SNAP. As taken up by the full House, an estimated 2 million people would lose their SNAP food assistance or see their benefits reduced under the bill.

  • The bill would significantly expand SNAP’s existing work requirements, forcing SNAP beneficiaries age 18 to 59 to engage in work or job training activities for at least 20 hours per week. The bill’s exceptions for people raising very young children or supporting a family member who is “incapacitated” (as stated in the bill) are likely to prove woefully inadequate and extremely difficult for people with disabilities to navigate. Ultimately, these new requirements would cause many people to lose their food assistance, making it harder for them to work, based on experience with existing work requirements in SNAP and other programs.
  • While the bill calls for greater access to job training programs, new federal investments would be funded largely by cuts to SNAP food benefits, and analysis by the Center on Budget and Policy Priorities indicates that funding levels for job training would be highly insufficient.
  • The bill also includes extensive new reporting requirements with harsh consequences if a person misses a deadline.
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Chapter Spotlight: The Arc of Essex County

The Arc of Essex County recently held their 20th annual “Building Tomorrows” 5k run, raising more than $60,000 to support the agency’s programs and services. More than 700 participated in the 5K Run, Family Fundraising Walk, and Fun Fest. The Building Tomorrows event is part of The Arc of New Jersey’s annual Step Up for The Arc statewide initiative of walkathons held locally by every county chapter.

The event included beautiful design elements that showcased the chapter’s dedication to their fundraising efforts, and had their brand and logo front and center!

In addition to the USATF-sanctioned 5K Run, members of the community gathered to participate in a fundraising walk. More than 30 teams and 500 individuals participated, including the Essex County College Public Safety Academy Police Class BPCO 18-1 whose 78 members raised more than $3,000 and volunteered throughout the day.

See photos from the day here.

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Catalyst Award Nominations Closing Soon!

Across the country, there are individuals, businesses, and organizations doing remarkable things and setting an example for a society that is truly inclusive for those with I/DD.

That’s why we created the Catalyst Awards—to recognize those that are catalysts for achievement in the lives of people with disabilities in a variety of sectors. Do you know someone setting an example of what civil rights for people I/DD should be? Nominations are only open for one more week!

Categories include advocacy, education, employment, media/entertainment, and philanthropy. We need your help to recognize those helping push us forward toward a more inclusive society! Know a person or business whose work deserves acknowledgment? Nominate them today!

The deadline for nominations is Friday, June 8.

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Deadline Extended: Nominate Your Colleague for an NCE Award!

Great news: If you are still working on submitting a nomination to recognize your colleague doing amazing work advancing The Arc’s mission (or you haven’t started yet), there’s still time.

Don’t miss your chance to shine a spotlight on a colleague who is excelling in their work!

The NCE Distinguished Professional Achievement Awards celebrate those who strive for excellence, put our clients first, and deliver great results. Since 1980, the awards have honored the professional excellence and achievement of NCE members as well as those persons outside the membership who make significant contributions on behalf of our constituency daily. Awards will be presented at The Arc’s NCE Awards Luncheon during The Arc’s 2018 Convention in Nashville, TN in November. Nominate someone you want to honor! Extended deadline: June 15.