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Marty Ford Honored with AAIDD Public Policy Award

This past month, Marty Ford, our Senior Executive Officer of Public Policy, was awarded the first-ever AAIDD Public Policy Award. Our Director of Public Policy Nicole Jorwic shared a few words about the immeasurable impact Marty has had on our organization and the disability sector as a whole:

“For Marty’s entire professional career, she has worked for The Arc and fought to create policy and protect programs that make the lives of individuals with I/DD and their families lives better. Marty has relationships on the Hill and in the field that are based on trust and respect. Marty is tactful and brilliant as a lobbyist and policy guru which is why The Arc is so often the first phone call from Hill staffers, from both sides of the aisle. Because of Marty’s reputation, anyone calling knows that they will get the most accurate information, with all the nuances and discretion if it is required.

Marty is everyone’s go to person because nobody understands how all of the different programs work together, and the technical and historical perspective better than Marty. Marty can cite the specific part of the Social Security Act you may need, and explain the negotiation process of every major piece of legislation for the past several decades since she was there, but what is even more special is her passion for the work. Marty is also a sibling. Marty has worked hard to support the policy work, legal advocacy efforts and advocacy of The Arc for decades driven by clear and unshakeable values and pure integrity. There is nothing as forceful as a fired up Marty Ford and as we have faced the policy challenges of the last 18 months, her passion has driven all of us. We never forget what we are fighting for on the policy team with Marty as our fearless leader.” – Nicole Jorwic, Director of Public Policy

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The Search is On for Steering Committee Members!

The National Conference of Executives (NCE) of The Arc is seeking talented, motivated leaders who wish to share their skills and knowledge with the greater NCE membership and play a role in shaping the professional development of our network of leaders. With a diverse leadership network of nearly 650 chapters, we are looking for YOU and a perspective that will be invaluable to the Steering Committee! The Arc’s leadership needs are outlined in the 2018 NCE Prospectus. You can submit your nomination by filling out the application for the Steering Committee.

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Talent Search for The Arc’s New Alumnae Council

Every year there are dozens, perhaps hundreds, of people that leave The Arc — retiring board members and executive directors, staff moving on to other jobs or leaving the workforce. Wouldn’t it be great if we could keep them involved in our cause? Over the past year, we’ve had a group of alumnae of The Arc that have come up with plans for how to stem the loss of talent and keep some of our most passionate advocates engaged. We’re launching The Arc Alumnae Council to do just that, but we need your help to identify alumnae.

Please take a look at the description of the new Alumnae Council and send it to anyone who has left your chapter whose energy and passion can still benefit The Arc. Or use this form to give us contact information for potential Council members and we will reach out to them directly. Questions? Contact Peter Berns at berns@thearc.org.

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Chapter Benefit Spotlight

Are you a local or state chapter leader interested in receiving an orientation to The Arc? Karen Wolf-Branigin, Senior Executive Officer, Chapter Growth and Affiliate Relations is available to provide an overview of The Arc’s history, mission and services as well as benefits, services and discounts available to your chapter. Contact Karen at 202-534-3711 or wolf-branigin@thearc.org to schedule a meeting.

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Striving to Improve Health

Becoming healthy can be difficult. Thanks to the Anthem Foundation’s support, 8 chapters of The Arc in Kentucky, Wisconsin and Texas have been able to help individuals with I/DD become healthier through the Health and Fitness for All program. Results show that 223 participants lost a total of 316 pounds. One participant from The Arc of Kentucky, Nyketa, lost an astonishing 30 pounds throughout the 12-week program! The Arc of Kentucky said field trips to the grocery store helped Nyketa and other participants learn to read nutrition labels and plan healthier meals and snacks, which contributed to their weight loss success. 

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Legal Advocacy Roundup

  • Brown v. D.C.: The Arc and The Arc DC recently joined an amicus brief before the D.C. Circuit Court of Appeals in support of a class of plaintiffs with physical disabilities seeking transition services from institutional to community living. 
  • Texas v. United States: The Arc submitted a declaration (the linked document is large and may load slowly) in support of a Motion to Intervene in this case (challenging the constitutionality of the Affordable Care Act) filed by California Attorney General Xavier Becerra and joined by 16 other attorneys general. These states seek to enter the lawsuit filed by Texas and others in order to defend the ACA. In its declaration, The Arc noted that it views the ACA “as critical for people with I/DD and their families in providing benefits, supports, and civil rights protections that help make community living possible.”
  • Moore v. Texas: The Arc recently issued a statement on the Texas Court of Criminal Appeals’ decision finding that Bobby Moore did not have intellectual disability and could therefore be executed. The 5-3 decision ignored the wishes of prosecutors, and the dissent—citing The Arc’s amicus brief—rebuked the majority for going against the Supreme Court. 
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It’s Time for Suggestions for 2019-20 Public Policy Agenda

The Arc and its partner organizations have begun the process to revise the Public Policy Agenda (sometimes referred to as “legislative goals”) to prepare for 2019-2020 as we look toward a new Congress (116th) convening in January. Chapters of The Arc are welcome to submit comments regarding additions, modifications, or revisions based on the current document (available here on the web). Please send comments to Marty Ford (ford@thearc.org) by July 27, with the subject line “Comments on 2019-2020 Public Policy Agenda”. Please note that bill names or numbers will not appear in the document; enacted legislation is referred to by name, while pending legislation or proposals are described in concept. More details will be forthcoming to State Presidents and Executives. 

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Take this Short Self-determination Survey!

If you are 18 years and older, experience any disabilities (learning, physical, intellectual), and are curious about your self-determination status, take this short survey from the Kansas University Center on Developmental Disabilities! It only takes about 10 minutes to complete, and every participant who completes the survey will receive a $5 gift card for their time.

Take the survey at surveymonkey.com/r/a_report. 

If you are interested or have questions, contact Mayumi Hagiwara at mayuhagi@ku.edu. 

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Chapter Benefits Spotlight: Are your Fundraising Costs Reasonable?

According to The Standards for Excellence Institute, a nonprofit’s fundraising costs should be reasonable over time. On average, over a five-year period, a nonprofit should realize revenues from fundraising that are at least three times the amount spent on conducting them. Organizations whose fundraising ratio is less than 3:1 should demonstrate that they are making steady progress toward achieving this goal, or should be able to justify why a 3:1 ratio is not appropriate for their organization. Contact Karen Wolf-Branigin for a copy of the Institute’s Fundraising Costs Educational Packet.

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We’re Hiring!

Major Gifts Officer, Washington, DC – https://thearc.recruiterbox.com/jobs/fk01fl8/

The Major Gifts Officer is responsible for facilitating gifts of $10,000+ to further The Arc’s important mission of promoting and protecting the human rights of people with intellectual and developmental disabilities. 

The Major Gifts Officer will be a key member of the Individual Philanthropy team working closely with other members of this and the corporate/foundation team, program staff from The Arc’s national office, chapter leaders, The Arc leadership, the Board of Directors, and volunteer leaders as well as major donors. The focus of this position is to develop long-term relationships with major donors built on a firm understanding of donor interests and values and to engage donors more deeply in the work of The Arc. This is a newly created position at The Arc, and the Major Gifts Officer will be expected to lead The Arc in growing its philanthropic opportunities.

Director, The Arc Rhode Island Family Action Network (part-time)https://thearc.recruiterbox.com/jobs/fk01q8a/ 

The Director of The Arc Rhode Island Family Advocacy Network (FAN), a new part-time position, will build and lead a vibrant grassroots and online movement of Self-Advocates and family members to advocate for, and support implementation of, public policies that promote the full inclusion of people with Intellectual/Developmental Disabilities (I/DD) in their communities.  A member of the national staff of The Arc of the United States, the Director will, at least initially, be the sole in-state employee leading the development of The Arc Rhode Island Family Advocacy Network.  The Director will monitor relevant public policy developments in the executive, legislative and judicial branches of Rhode Island government and will educate and mobilize people with I/DD and their families in support of favorable policy outcomes.  Additional staffing support will be provided by personnel in The Arc’s national headquarters in Washington DC.  Support, expertise and resources will also be provided by leaders in the Rhode Island disability community, including local chapters of The Arc and organization members of the Community Provider Network of Rhode Island.