Picture of Meredith Sadoulet standing in front of a projection screen that says "Disability Policy Seminar 2025"

Meet Meredith Sadoulet, The Arc’s National Board President

If you’ve been following The Arc’s work this year, you’ve already felt Meredith Sadoulet’s steady influence. She stepped into the role of Board President in January, and while she’s not new to the job anymore, many in our community may still be getting to know her. Meredith is thoughtful, values-driven, and deeply committed to creating a future where disability doesn’t limit opportunity. She’s a member of the disability community herself, a family member to people with disabilities, and a professional with years of experience leading workforce strategy and inclusion at Fortune 100 companies.

Before she officially took the helm, Meredith shared a powerful message at our National Convention—part reflection, part vision-setting, and a reminder of why The Arc exists in the first place. We’re sharing her message here with you. If you haven’t met Meredith yet, now’s your chance to get to know her.

“Having assumed the role of National Board President for the 2025-2026 term, I am deeply honored by the privilege and responsibility to serve an organization with a rich history of advocacy and a steadfast commitment to protecting and advancing the rights of people with intellectual and developmental disabilities. For 75 years, The Arc has been a driving force for inclusion, and I am in awe of the collective impact of our nearly 600 chapters, their leaders and staff, and the communities we serve every day.”

“I imagine that each of us on this journey of advocacy with The Arc has a personal story about when our advocacy began. I can pinpoint the moment when the advocacy flame was lit inside of me. I recall being presented with a diagnosis and a fact sheet from the World Health Organization that accompanied it. The facts remain nearly the same as the ones I read over a decade ago: people with disabilities have poorer health outcomes, experience stigma, discrimination, poverty, and exclusion from education and employment, and more. This information being presented to me as fact—as a certain future—was the moment that lit my fire. Not just as an advocate for one, but as an advocate for all. I became someone who wanted to dedicate as much of my energy and skills as possible toward changing these outcomes.”

“As a person with disabilities (OCD and anxiety disorder), I’m a proud member of the disability community, and I’m grateful that my journey brought me to The Arc.

I’d like to imagine a new set of facts for the disability community.

What if a new fact sheet said:
‘Welcome to your community. You are part of one of the most powerful, connected communities on the planet. Your future is bright. Why? Because people with disabilities are likely to experience inclusive education, employment with robust pay and benefits, personal growth, security, and joy. Oh, and not just that. You’re more likely to help solve big, gnarly problems because this world wasn’t designed with you in mind, and yet you know how to navigate it. You’re more likely to spark innovation with products, services, and spaces—not just for yourself, but for everyone—because YOU bring value and insight to this world. Because you’re a person with a disability, you’re more likely to be a changemaker, both through the work you do and through the insight you bring to others.’

This is the world I wake up to every day trying to help build. And I’m honored to be on the journey with all of you.

So, how will we get there?

I’ve chosen three guiding values for my term as President:

  1. Leadership by People with Disabilities
    We must ensure more people with disabilities, including those with intellectual and developmental disabilities (IDD), are in positions of leadership and influence at a local, state, national, and global level. People with disabilities should not only have a seat at the table, but at the head of it, making decisions, influencing outcomes, and leading. We need systems shaped by lived experience, and we must commit to moving self-determination from theory to practice.
  2. Strategic Focus to Make Meaningful Change
    From my time in large Fortune 100 companies, I’ve seen how easily priorities competing for attention can pile up and momentum gets lost. I hope we don’t try to tackle 50 things over the next 2 years. I hope we stay focused where we can make meaningful change, so that 2 years from now, we can point to real, permanent change we made together on a nationwide level. With one voice, one consistent and memorable introduction of who we are and what we do, one aligned strategy and focused set of priorities, I know we can make impact together.
  3. Many Chapters & Constituents of The Arc, Yet One Community
    Across nearly 600 chapters, The Arc represents diverse communities, geographies, beliefs, and needs. We will honor those differences, yet try to seek commonality, knowing that we are stronger as one community. The Arc is strongest when we advocate as one voice for and with people with IDD.

Thank you for the chance to share my story, and my vision for our shared work. I’d love to hear your advocacy story, too. You can connect with me on LinkedIn. Together, let’s keep building a world where people with disabilities live with dignity, respect, and opportunity—and where the facts finally reflect that.

A diverse classroom with a teacher sitting on the floor next to two students, who are looking at a workbook.

The Ultimate Back-To-School Guide for Families of Children With Disabilities

The excitement of a new school year is in the air! For parents of children with disabilities, this time brings unique challenges and opportunities. Proper preparation can make all the difference in your child’s growth and success. Here are some practical tips to help you and your child start the school year off right and carry that momentum throughout the year.

  1. Have an open chat with your child about the upcoming year. What are they excited about? What’s making them nervous? Use this conversation to set clear expectations. You can even create a visual calendar together, marking important dates and milestones.
  2. Gradually ease back into the routine. Establish a consistent before and after-school routine that supports your child’s needs, like a calm morning routine, a dedicated homework space, or bedtime wind-down ritual. Keep your weekend plans light early in the school year to give your child time to relax.
  3. Give your child’s individualized education program (IEP) a thorough review. Are there any changes your child has experienced over the summer or since the last IEP? Any assistive technologies that could help? Don’t hesitate to request an IEP meeting before school starts if needed. Keep a journal or digital record of your child’s progress, challenges, and successes throughout the year. It could be invaluable for future IEP meetings and for tracking growth over time.
  4. Connect with your child’s teachers and service providers before school starts. Share your child’s strengths, interests, and hopes for the year. Collaborate on a communication plan that works for everyone. If your child is transitioning to a new school, start planning early. Work with the current and future schools to ensure a smooth transition and take your child on a school tour to familiarize them with their new environment. If your child is attending a before or after care program, establish a relationship with those staff, as well.
  5. Help your child develop self-advocacy. Teach them developmentally appropriate ways to express their needs and preferences at school, such as asking for a break when overwhelmed or requesting clarification on instructions.
  6. The first few weeks might be bumpy as everyone settles in. Give your child (and their educators) time to find their rhythm. Keep a close eye on how things are progressing. If you notice issues, don’t hesitate to speak up. Open and respectful communication can help address challenges early and bigger problems later.
  7. Recognize and celebrate your child’s efforts and achievements. This positive reinforcement can boost confidence and motivation throughout the school year.
  8. Build a support network. Social connections and the sharing of experiences, tips, and resources can be incredibly valuable for your family. Your state’s DD Council, local chapter of The Arc, and inclusive extracurricular activities can help open doors to other families of children with disabilities.
  9. Feeling unsure about your child’s services or supports? The Arc@School is your go-to resource for understanding your rights and finding help when you need it. Knowledge is power—empower yourself to ensure your child gets the education they deserve.

Remember, your well-being matters too. Taking time for yourself, whether it’s a quiet moment with a book or a chat with a friend, can help you stay energized and focused as you support your child’s educational journey.

You’re not alone in this—we’re here to help every step of the way. Let’s make this school year a great one!

A picture of a young man in a wheelchair with two adults by his side on a baseball field

How One Day at the Ballpark Meant the World to Families With Disabilities

What does a perfect day look like for a family that’s often navigating a world that excludes them? On July 9, families connected to The Arc of Ohio found out, thanks to our national partnership with Lids and the Lids Foundation.

It was a day full of joy, connection, and the kind of belonging that too often feels out of reach. And it all happened because a company chose to step up and demonstrate their commitment to valuing people with disabilities.

The day began at the Lids store in Kenwood Towne Center, where each family was paired with a Lids team member. Together, they picked out hats and shirts, added personal touches with custom stitching, and got to know one another. Lids gave each child a $250 gift card to shop, and it quickly became more than just a shopping trip. It was a chance for kids to feel seen, valued, and empowered.

Then came the main event.

At Great American Ball Park, families got VIP treatment from the moment they arrived. They watched batting practice from the field, met Cincinnati Reds pitcher Brent Suter, and felt welcomed by every staff member they encountered. Before the first pitch, families received gift cards to buy food, thanks to the Reds Community Fund. That small act made it even easier to just enjoy the moment. Then everyone settled into an accessible seating area and watched the Reds take home a win against the Marlins.

It was an evening full of energy and unforgettable moments:

  • A picture of a young man in a wheelchair with two adults by his side on a baseball fieldLogan, who has autism and is non-verbal, lit up as he explored the stadium with his parents and sister
  • Noah, who has cerebral palsy and is non-verbal, beamed as his aide cheered alongside him
  • Coralie, who has Williams syndrome, wore her new Reds cap proudly while enjoying stadium snacks with her mom and brother
  • Daniel and Evie, siblings with autism and Down syndrome, chanted in the stands with their parents
  • And Lids staff laughed, danced, and even went down the giant slide—because the kids asked them to

Jen Powers Alge, a mom and staff member at The Arc of Ohio, shared:
“The families were thrilled to have such an exciting experience. The employees at the Lids store were so warm and fun to shop with. Batting practice had the kids smiling from ear to ear, and the moms and dads were in awe of such a cool, inclusive experience. The Lids Foundation thought of everything to make the day safe, fun, inspiring, and engaging. We are so grateful for the ‘best day ever,’ as one of the kids exclaimed.”

Ted Harton, Senior District Sales Manager at Lids who joined the outing, reflected:
“This experience reminded me what really matters. Spending the day with these families, seeing their love, joy, and strength, was truly inspiring. It was a chance to step outside of the everyday and just be present with people who show us what community and family should look like.”

And while this was a single day, it reflects something bigger. Lids continues to grow its partnership with The Arc, from supporting The Arc@School program to launching an in-store campaign that brings our mission to life in more than 1,000 stores.

Katy Neas, CEO of The Arc of the United States, said:
“At a time when too many companies are quietly stepping back from diversity and inclusion, Lids is stepping up and making a real impact. Their support is reaching families nationwide, fueling vital programs, raising awareness, and creating moments of true connection. But this partnership is so meaningful to The Arc and the millions of people with disabilities and their families with whom we advocate. It deepens Lids’ ties to the communities they serve, energizes their employees, and shows their customers what authentic commitment to our shared values looks like. We need more partners who lead with such purpose. Lids is helping to build a more inclusive future for people with disabilities, and we’re proud to move forward together.”

Starting this August, Lids will once again feature The Arc in stores across the country. Shoppers will be invited to round up their purchase to donate to The Arc and customize their gear with The Arc’s logo—another chance to stand with people with disabilities in a meaningful way. See what’s coming this August.

To every family who joined us, and to every Lids employee who made the day so special: thank you. This is what inclusion feels like. And this is what’s possible when we build it together.

An up close photo of a woman with Down syndrome crying in response to the R-word

The Truth About the R-Word, From the People It Hurts Most

The R-word is everywhere again. It’s showing up on social media, in schools, in entertainment, in the media, and in everyday conversations.

People throw it out casually as a joke or a way to tear someone down. But for people with intellectual and developmental disabilities (IDD), it has never been “just a word.” It’s a slur—a word used to devalue their worth and humanity.

The disability community has fought for decades to end the use of this word. While we’ve made real progress, its resurgence today is a warning: progress is fragile. Every time this word is spoken, it reinforces outdated and harmful ideas about who belongs, who matters, and who is worthy of respect.

This isn’t a minor slip in language. It’s a sign that empathy, dignity, and basic decency are being lost—and that impacts all of us. Choosing not to say the R-word is a start, but it’s not enough. We need more people to understand why the R-word is offensive, why it’s still harmful, and why it must stop.

Listen to people with IDD who have lived with the weight of this word their entire lives.

Why The R-Word Is Harmful: In Their Own Words

“I am one of those people who was called the R-word simply because I was different my whole life. I tried to tell people how hurtful that was, and that my name was Jill, but no one listened. It made me feel so little and useless. Like many people with IDD, I struggled with not fitting in at school and being fired from jobs after high school because of the wrong fit—all while being called the R-word. I wanted to have friends like everyone else, but instead I was made fun of and ignored. I was so lonely and unhappy in those days. But I learned that having an IDD is nothing to be ashamed of. I’m a caring, loving person trying to find her place in this big world.”
Jill Egle, Louisiana
An up close photo of Shawn, a Black man with a disability
“I have been called the R-word and that makes me feel less than human. It invalidates my experience as a person, and every time I hear that word, it makes me feel like we’re going back to the old days—when they used to use that word to justify putting us in institutions. The R-word Is a dangerous word because it demonizes those who have the disabilities and suggests that we’re not human. I’m scared that they might try to use that word again as a medical term. We cannot let them do that.”
Shawn Aleong, Pennsylvania
An up close photo of Veronica, a Hispanic woman with a disability
“If you use the R-word, it tells me you don’t care about me or people like me. If you use the R-word, it tells me you don’t really respect me or people like me. If you use the R-word, it tells me you don’t know who I really am or what I can do—but it also tells me all I need to know about you.”
Veronica Ayala, Texas
An up close photo of Nicole, a White woman with IDD
“Every time I hear the R-word, I want to run, hide, and curl up into a ball. I was bullied and called the R-word from elementary school to early adulthood. I often wished I was normal. My only friends at school were the teachers on the playground. I also grew up with a brother saying the R-word when he would get pissed off, and it took years to get him and others to understand how harmful it is. We need to stop the R-word now more than ever. It’s just as harmful even if it’s not being said to someone’s face. It’s time to demand a world where people with disabilities—visible or invisible—are respected and accepted for who they are!”
Nicole LeBlanc, Maryland

“The R-word hurts me. I was called the R-word by my school psychologist when I was in kindergarten. They told my parents I would not amount to anything—that I’d always be dependent on someone. Considering where I am today, I would say she was very, very wrong. I am not the only one who has been called this harmful word. Many of us with disabilities still face this same type of ignorance and discrimination.”
Taylor Crisp, Washington State
An up close photo of Ricky, a Black man with IDD
“Back in the day, people referred to people like me as the R-word. We are not that word. We may all communicate differently and have different needs—that is normal. We also have strengths and values. We fought for many years not just to change the use of the R-word, but also the negative thinking about people with IDD. Using this word goes backwards. The younger generation should go forward. I want to see them have an easier time than I had. It is time to finally bury the R-word.”
Ricky Broussard, Texas
An up close photo of Charlotte, a White woman with Down syndrome
“As someone born with a disability, it is heartbreaking that the R-word is still being used. People with disabilities have been trying for a very long time to have their inherent worth and value acknowledged by society, and have campaigned for the R-word to be removed from use. It is disgraceful that we still have to ask for basic respect. The R-word is derogatory and dehumanizing. I wish that people would look beyond themselves and see people with disabilities for who we are and the abilities we have, not just our disability diagnoses. We want to be treated with dignity and respect, just like everyone else.”
Charlotte Woodward, Virginia
An up close photo of Zoe, a Black woman with IDD, with her hands covering her mouth
“The R-word really hurts, even if someone says it as a joke. I’m a person, not a label. I matter, we matter, and everyone deserves to be treated with respect and kindness.”
Zoe-Rebekah Bostic, Georgia

“I was called the R-word for many years in school, especially on the bus. It meant I was dumb or stupid, and I buried my head in books to deal with it. To hear people use that word is demeaning. There’s no real excuse for it. It’s sad that in our schools, this kind of thing isn’t taught. Before you use it again, you should find out what the word means because you have offended me and hundreds of thousands of people by using it.”
Chad Widing, Connecticut
An up close photo of Barb, a White woman with IDD
“In high school, I was called the R-word all the time. It made me shrink away—it felt terrible. I can’t believe it’s coming back. I feel very hurt, especially after we fought to get rid of that word. No one should be called it, even if they “don’t mean it.” We are people, just like everyone else.”
Barbara Coppens, New Jersey
An up close photo of Ray, a White man with IDD
“Back in the 1970s, I was called every name in the book. They called me the R-word, crazy, and other hateful stuff. People told me I didn’t belong in the neighborhood or I didn’t belong at work. That is bullying! It lowered my self-esteem. People who use that word must not have any idea what it’s like to be labeled the R-word. I wish they could walk in my shoes to see how it feels. We need to stop labeling people. We are all somebody. I should be able to freely go into the community without this stigma.”
Ray Schuholz, Michigan
An up close photo of Sarvesh, a Middle Eastern man with IDD
“The R-word makes me feel sad. I feel that I should speak up and ask people to stop using the R-word. The word is ableist and derogatory. It stereotypes people, promotes institutionalization, and encourages eugenics.”
Sarvesh Chandran, Arizona


If reading this made you uncomfortable—good. That means you care.

But not saying the R-word isn’t enough.

Some of the people you’ve heard from here—like Jill, Nicole, and Ricky—have helped lead efforts in their states to remove the R-word from laws and policies. Changing laws is an important step, but changing hearts, language, and culture takes all of us.

We need you to say something when others use the R-word.
We need you to share this blog widely.
We need you to be part of the reason this word finally fades from our culture.

The R-word still hurts. But together, we can make sure it has no place in our future.

Note: Throughout this piece, we’ve chosen to refer to the slur in question as “the R-word,” and we’ve capitalized the R to recognize the serious harm the word represents. Naming it this way centers its weight and impact, without unnecessarily repeating a word that has caused so much pain.

Jonathan Gardner pictured with his dad and Patient Cookie

6 Powerful Father’s Day Stories From People With Disabilities

What makes a great dad or father figure?

For some, it’s a quiet kind of support that needs no spotlight. For others, it’s encouragement, guidance, a sense of safety, or someone who listens without judgment.

Sometimes that person is a biological father. Other times, it’s a stepdad, grandfather, mentor, teacher, or chosen family member. What matters isn’t the label—it’s how they show up and what they make possible. It’s not about being a perfect dad. It’s about being present, flexible, and fiercely in your corner.

This Father’s Day, we asked people with disabilities: How has your dad—or a father figure—shaped your life?

Here are six real stories about strength, support, and showing up.

Jonathan Gardner pictured with his dad and Patient Cookie

Jonathan and his dad

“When I was 18, I was diagnosed with Ewing’s sarcoma, a rare and aggressive cancer. I also have autism, so I experience sensory things like touch and routine differently. When I found out I needed a port placed in my chest for chemotherapy, I was overwhelmed and scared. But my dad knew exactly what I needed. He gave me a Cookie Monster plush, one of my favorite characters, that had a real chemotherapy port sewn into his chest—just like mine. My dad made sure it looked exactly the way I would look, with tape and bandages too. Being able to feel the port on Cookie Monster helped me understand what was going to happen to my own body. That Cookie Monster, who we named Patient Cookie, came with me to every single appointment. It was like having a piece of my dad with me, especially on the days he couldn’t be there because of work. I am now 3 years Cancer Free and use Patient Cookie to teach medical students through Operation House Call with The Arc of Massachusetts. I use him to show future doctors and nurses that caring for someone with a disability means more than just treating their illness, it means taking the time to understand the whole person. My dad is the perfect example of that. He gave me comfort, safety, and a way to face something scary. He turned my fear into understanding, and that’s just one of the many reasons why my Dad is so important to me, and why I love him so much.”
Jonathan Gardner lives in Massachusetts and has autism

Veronica Ayala pictured sitting next to her stepdad Charlie

Veronica and her stepdad

“My stepdad, Charlie, never tried to replace my father—he wanted to be my friend. I don’t call him Dad, but he’s been more of one than anyone else. He is very reserved but shows his love by being in my corner constantly and occasionally in my apartment with a wrench or a screwdriver. I often hear about how proud he is or how amazing he thinks I am from others. He doesn’t define me by the things I don’t have or can’t do because I have disability. He always just waited for me to tell him what I needed rather than assuming anything about what I couldn’t do. It feels great to know that someone as strong as he thinks that you are just as strong but in a different way. I recently lost my purse with my phone and ID in it before boarding a plane. I was able to contact my sister to let her know I might be stuck at the airport overnight. My mother went into a panic and wanted to jump in the car and bring me back home. Not Charlie. He calmly tells my mom not to worry. “She is a smart girl, she’s going to get herself on the plane and get herself home.” He was right. I talked to the right people, I explained my situation, I got through an extended TSA security check, and I made it on to my flight home. What did Charlie say? “I told you she would do it.” Thank you, Charlie, for always being there and believing in me.”
Veronica Ayala lives in Texas and has cerebral palsy

Marina Agerter sitting at a table with her dad

Marina and her dad

“My dad helped me through my traumatic brain injury [following a car accident]. I was in inpatient therapy and my dad would help me read the Harry Potter books. I lost my ability to read, but it was through practice and hard work and love that I was able to regain my reading ability. When I was discharged to outpatient therapy, he took me home and [my mom and dad] took turns driving me to therapy every day of the week.”
Marina Agerter lives in Virginia and has a traumatic brain injury and aphasia

Ray Simpson's grandma and grandpa sitting next to each other

Ray’s grandparents

“I was adopted and raised by my grandparents when I was very young. I called them mom and dad growing up. My dad, George, was and always will be my best friend. He taught me how to play piano, and we would sit on the bench together and play our favorite tunes. My dad was a priest for the episcopalian church most of his life. Although his faith was strong in his religion, he never judged anyone’s beliefs or culture. He welcomed discussions about life and the world. My dad taught me how to be responsible and independent with finances and to always be prepared. When he passed away in my early twenties, it left a hole in my heart. Each year on Father’s Day, I light a candle and tell him how much he meant to me.”
Ray Simpson lives in Minnesota and has anxiety, sensory processing disorder, chronic nerve damage, and complex regional pain syndrome

Taylor Crisp pictured with her dad

Taylor and her dad

“My dad has been my constant rock throughout my life. He continues to show unconditional love regardless of how old I get. He has been my number one coach and cheerleader—but also the one who teaches me to be tough in times of hardship. My autism and different support needs have never stopped him or prevented him from being the best father he can be. He is the dad that will help me face my fear and insert my dignity of risk because he believes in me and believes I deserve happiness and success. He has gone above and beyond for me, showing me what tough love and unconditional love is like. I also want to recognize my stepdad. From day one, he has been supportive and there for me. I am not only lucky to have one dad, but to have two dads to celebrate.”
Taylor Crisp lives in Washington state and has autism

Mark Dixon reading with his father

Mark and his dad

“My father served as an advocate by attending IEP meetings, reading books about the special education regulations, and making sure I had the right services to receive a free and appropriate education. He also served on a lot of boards to help people with disabilities. When I graduated from high school, my father made sure services were available so I could live in the community as independently as possible. Having watched my Dad advocate for me through the years gave me the desire to advocate for others.”
Mark Dixon lives in Virginia and has cerebral palsy


These Father’s Day stories from the disability community show how deep an impact dads and father figures can have.

To the fathers and father figures: thank you for listening, encouraging, adapting, and advocating. Your impact is lasting.

To the people who shared their stories with us: thank you for your honesty and vulnerability.

And to anyone for whom Father’s Day brings up mixed emotions—whether because of loss, distance, or difficult experiences: you’re not alone. We honor all the ways love and support can take shape.

A white man in a wheelchair on the sidewalk smiling while facing the camera

Why and How to Celebrate Disability Pride Month

Disability Pride Month is a time to recognize the history, achievements, experiences, and struggles of people with disabilities. It affirms that disability is a natural and valuable part of human diversity—not a deficit or condition to be fixed.

More than 1 in 4 adults in the United States—over 70 million people—have a disability. This month calls on everyone to promote inclusion and ensure people with disabilities are accepted exactly as they are, without conditions.

What Is Disability Pride Month?

Disability Pride Month is an annual observance in July that celebrates people with disabilities, commemorates the signing of the Americans with Disabilities Act (ADA), and promotes disability culture and visibility.

Observed every July, Disability Pride Month recognizes the importance of the ADA, which was signed into law on July 26, 1990. It highlights disability culture, history, and community pride. This month challenges the harmful idea that people with disabilities need to conform to norms to live meaningful lives. Their lives are just as full, valuable, and worthy of respect—no more, no less.

The first Disability Pride celebration was a Disability Pride Day that took place in Boston in 1990. Chicago hosted the first Disability Pride Parade in 2004. Now there are events nationwide empowering people with disabilities to take pride in who they are.

Here’s more about the history of Disability Pride Month and the story behind the flag.

2025 Theme: “We Belong Here, and We’re Here to Stay”

The Arc’s National Council of Self-Advocates selected the 2025 Disability Pride Month theme: We Belong Here, and We’re Here to Stay. It delivers a powerful message—people with disabilities are a vital part of every community. Not someday. Not conditionally. Now.

As disability rights face growing threats in education, employment, health care, and public life, this year’s theme is a clear call to action. It pushes back against ableism—discrimination and bias against people with disabilities—and exclusion. It reminds us that people with disabilities will not be erased, ignored, or pushed aside.

Why Celebrate Disability Pride Month?

Many people with disabilities still face barriers to being fully included and valued. Ableism is often ignored, but its effects are real. It limits access to education, jobs, health care, and respect.

Disability Pride Month challenges that. At its core, Disability Pride is about being accepted on our own terms. It says disability is not something to hide or fix—it’s part of who we are. Everyone deserves inclusion, rights, and respect, without having to earn them.

How to Celebrate Disability Pride Month

  • Ways to Connect With People With Disabilities: Spend time learning from people with disabilities in real life and online.
  • How to Learn Disability History and Culture: Understand the roots and richness of Disability Pride by diving into disability history, rights movements, and cultural contributions.
    • Learn about key moments in the disability rights movement from UC Berkley’s archive and The Arc’s history.
    • Learn from people with disabilities through media like Crip Camp, CODA, Demystifying Disability, and Disability Visibility.
    • Follow disabled activists on social media and listen to what they share—not just during Disability Pride Month, but year-round.
  • How to Advocate for Disability Rights and Inclusion: Disability rights are under attack—from cuts to Medicaid and Social Security, to threats against IDEA, Section 504, and a resurgence of the R-word. Here’s how you can show up and make a difference:

Share Your Disability Story

What are you proud of? What do you want other people to know? Share your videos, pictures, or written answers on your favorite social media platform using hashtags #DisabilityPride and #DisabilityPrideMonth. We want as many people to join the conversation as possible! See what The Arc’s community has to say by finding us on Instagram, LinkedIn, Facebook, and X/Twitter. All content shared by The Arc includes alt text and accessible captions. This reinforces our commitment to accessibility—we hope you will do it, too!

Attend a Disability Pride Month Event in Your Area (updated for 2025!)

Meet and show your support for the local disability community by attending one of these events. This is the largest database for Disability Pride Month events there is!

If this page helped you learn more, share it to keep the conversation going.

If you have questions or events/resources we should add to this page, please email Jackie Dilworth at dilworth[at]thearc.org!

Ashley Glears, a person with cerebral palsy, pictured with her mom

People With Disabilities Reflect on Their Moms This Mother’s Day

Moms—or the people who love us like moms—are often the ones who just get us. They keep life moving. They see potential where others see limits. And for people with disabilities, that love can take many forms: hands-on care, fierce advocacy, deep listening, and unshakable belief.

Some moms manage feeding tubes, therapy schedules, and school meetings—while also working, caregiving for others, and managing their own health. Others cheer their adult children on as they build careers, push for justice, and live life on their own terms.

There’s no one path. No single story. But what many moms share is the everyday power of showing up.

This Mother’s Day, we asked people with disabilities: What impact has your mom—or a mother figure—had on your life?

Here are six reflections on love, strength, and support.

Ashley Glears pictured with her Mom

Ashley and her mom

“When I was born with cerebral palsy, my mother didn’t panic. She prepared. She understood the meetings that would come. The assumptions. The coded language. The way people talk about disabled children in lowered tones, as if to soften the blow of a life they’ve already decided won’t go far. She didn’t wait for the world to believe in me. She built the foundation herself. She became a speech-language pathologist—not just to help me speak, but to ensure I would never be spoken for. She pulled together a support system—therapists, educators, and friends who worked with me after hours, without compensation, because we didn’t have time to wait for permission. She created access where there was none. She raised me to speak, to move, to lead—regardless of whether the system was ready for me. She is still doing the work. Still mentoring. Still reshaping how public schools serve children with disabilities. Still protecting futures—because she understands what’s at stake.”
Ashley Glears lives in Maryland and has cerebral palsy with right hemiplegia

Chloe Rothschild pictured with her mom

Chloe and her mom

“My mom is always there for me. Over the years, she has taken me to hundreds—probably thousands—of appointments. She has helped advocate for the services and supports I’ve needed to succeed. She has attended numerous conferences, advocacy trips for board meetings, and other events with me over the past 10 years because she knows how important it is to me to participate in these events. My mom has helped encourage self-advocacy skills in me starting at a young age as she made sure that I was involved in my IEP meetings in some capacity starting at a young age. Even during the harder moments, my mom has always been there by my side. My mom is one of my biggest advocates and supporters.”
Chloe Rothschild lives in Ohio and has autism

Russell Lehmann pictured with his mom

Russell and his mom

“I cannot overstate the impact my mom has had on my life. She has always taken the time to enter my world and meet me where I am, something society rarely does. Autistic individuals are often pressured to fit in so they don’t stand out, to avoid bullying, social rejection, and exclusion. But in doing so, we risk losing ourselves. My mom never let that happen to me. She loved me when it felt like no one else did. She held me, and still holds me, through meltdowns. She sits beside me when I feel lost in a world that doesn’t make sense. Most of all, she truly sees me. She validates my struggles and recognizes the immense effort I put in every day just to achieve what others take for granted. Because of her, I am who I am today. She nurtured within me the belief I so desperately needed as a child; the belief that led me to create my own career. Thank you, Mom. I love you so much.”
Russell Lehmann lives in California and has autism, OCD, depression, and anxiety

Johanne Mayer pictured with her mom

Johanne and her mom

“My mom is my best friend and I couldn’t imagine my life without her. I wouldn’t be who I am and where I am now if it wasn’t for her influence. She always encourages me to go after things I want and her expectations for me have never been lower than my sisters’. She has always made me feel like I’m capable of more than I know. I always try to reach for the stars because of her belief in me. She is the best light in my life.”
Johanne Mayer lives in New Jersey and has Down syndrome

Sydney Badeau pictured with her mom

Sydney and her mom

“My mom has helped me grow over the years. Growing up, we spent a lot of time together, and she would frequently visit my schools if classes weren’t going well. She also attended all of my IEPs from kindergarten to senior year of high school. She made sure that I saw her advocating for me so that one day I could advocate for myself! She always puts others first and makes sure that everyone has everything they need to succeed.”
Sydney Badeau lives in Wisconsin and has dyspraxia, a nonverbal learning disorder, and a sensory processing disorder

Sarvesh Chandran pictured with his mom

Sarvesh and his mom

“My mom is my biggest supporter. She believes in me and she gives me the confidence to believe in myself. My mom loves me unselfishly and she does her best every day to help me to live a happy and worry-free life. She encourages me to be brave and try new things. My mom advocates for me everywhere. I am very thankful for her. I feel safe and comfortable because of my mom.”
Sarvesh Chandran lives in Arizona and has autism and severe apraxia


These stories remind us: the best relationships are built on respect—for each other’s journeys, struggles, growth, and dreams.

To the moms of people with disabilities: Thank you. For your tireless hearts, unwavering belief, and all the ways—loud and quiet—you lift up your children.

To the people who shared their stories: Your lives and leadership light the way, whether guided by a mom or forged on your own.

And to anyone for whom “mom” means something different: We honor your story, too. Not everyone has a mom—or a safe relationship with their mom. This day can be complicated. If that’s true for you, we see you. Love doesn’t always follow one path. Whether your “mom” is a friend, a relative, a caregiver, or chosen family—or whether you’re still figuring it out—we honor the people who show up, stand by you, and believe in your worth.

The image is in black and white. There are four adults standing against a white background. They're smiling and looking at each other.

Autism Acceptance Month: Celebrate Differences

April is Autism Acceptance Month—a time to recognize the talents, contributions, and diversity within the autism community. At The Arc, autistic people and their loved ones are a part of our staff, volunteer leaders, and the driving force behind our work. Their lived experiences shape our advocacy at a time when an estimated 1 in 36 children in the U.S. are autistic—yet too many remain underserved.

The big picture: Autistic people deserve full inclusion and respect. Yet, they continue to face misunderstanding, discrimination, and barriers in education, employment, healthcare, and community life. True inclusion means more than awareness—it requires action to remove these obstacles so autistic people can thrive as their authentic selves.

From awareness to acceptance: Autism Acceptance Month builds on decades of advocacy. It began in 1970 as Autism Awareness Month and, in 1988, gained national recognition through a presidential proclamation. In 2021, the shift to acceptance reflected what autistic people have long called for—not just recognition, but real inclusion. Words matter, but action matters more. True progress comes from creating a society where autistic people are fully valued and supported.

Language and identity: Many autistic people prefer identity-first language (“autistic person”) over person-first language (“person with autism”), viewing autism as an integral part of who they are. Respecting individual preferences is a key part of inclusion—when in doubt, ask.

Autistic leadership in action: Autistic people are leading the charge for change, and The Arc is committed to elevating their perspectives. Meet two powerful leaders on our national Board of Directors:

Get Involved:

🧡 Donate to support The Arc’s advocacy and programs for autistic people.
⭐ Volunteer with your local chapter to advance inclusion.
📣 Engage with autistic perspectives—follow #ActuallyAutistic and use #AutismAcceptanceMonth to join the conversation.

“True inclusion means ensuring autistic people have every opportunity to live life to the fullest. When we listen deeply and create truly welcoming spaces, that’s when everyone shines.” – Katy Neas, CEO of The Arc

A diverse group of young adults with disabilities stand together in a circle with their heads close, smiling. The view point is looking up at them from inside the circle.

Developmental Disabilities Awareness Month: Shattering Stigmas & Obstacles

Every March, we celebrate something powerful: Developmental Disabilities Awareness Month. It’s an opportunity to honor the diverse talents, dreams, and achievements of people with developmental disabilities. Whether it’s autism, cerebral palsy, Down syndrome, or learning disorders, these disabilities are part of the human experience – and the people living with them have stories that need to be heard.

The big picture: Here’s what drives us at The Arc: the fundamental belief that everyone deserves to write their own life story. That means real access to education, meaningful employment, quality healthcare, and genuine community connections. Right now, too many barriers stand in the way of these basic rights. This month, we’re turning up the volume on voices calling for change.

History: The roots of Developmental Disabilities Awareness Month can be traced back to 1987 when President Reagan first declared March as a month to raise awareness and “according to our fellow citizens with such disabilities, both encouragement and the opportunities they need to lead productive lives and to achieve their full potential.”

This year’s theme from the National Association of Councils on Developmental Disabilities is We’re Here All Year, emphasizing that community, accessibility, and opportunities for people with developmental disabilities should be recognized and championed every day.

What we’re doing: Change happens when people come together – and that’s exactly what The Arc’s nationwide network is doing. Want to meet some of the incredible individuals leading the way?

There’s Marcus, whose job search shows how talented, dedicated workers face discrimination. Lawrence, who’s showing the world what’s possible for athletes with disabilities. Ashley, who’s revolutionizing how we think about diversity and inclusion. Steve, who shows us that people with disabilities thrive when they can live independently in their communities, not institutions. Carlos, who persevered through immigration, bullying, and discrimination to graduate college and build his accounting career. And Mitch, whose voice on our board helps shape how we support people with disabilities.

Ready to be part of this movement? Here are three powerful ways you can help create change:

🧡 Donate to The Arc to support our advocacy and services, making inclusion possible.
⭐ Volunteer with your local chapter of The Arc to empower people with developmental disabilities.
📣 Share stories uplifting diverse perspectives using #DDawareness and #DDawareness2025.

“Segregation and discrimination still cast an ugly shadow over the lives of millions of people with disabilities. This month, we must amplify the voices calling for true inclusion—in our schools, workplaces, and communities. When we listen to self-advocates and remove unfair barriers, incredible contributions shine through.” – Katy Neas, CEO of The Arc

We’re Family Caregivers of People With Disabilities & Here’s What We Want You to Know

They’re cheerleaders and crisis managers, nurses and advocates, therapists and service coordinators. They’re not just family members—they’re lifelines. Family caregivers are the backbone of care for people with intellectual and developmental disabilities (IDD), and their stories often go untold.

This November, for National Family Caregivers Month, we’re spotlighting seven individuals caring for their loved ones with IDD. Their insights challenge how our society views disability, family, and community.

The Arc’s 2023 Family and Individual Needs for Disability Supports (FINDS) survey highlights the need for better support systems for caregivers and their loved ones:

  • Over 50% report very high or extreme stress levels
  • 90% have seen their careers impacted
  • More than 4 in 5 have had to provide increased support

But numbers only tell part of the story. In this blog, family caregivers of people with IDD invite us into their worlds—where challenges and triumphs coexist and where love drives everything.

The Rewards & Challenges of Caregiving

Caregivers open up about the unexpected joys and daily hurdles they face.

Debbi Harris posing with her son Josh.

Debbi and Josh

Debbi Harris, mother to Josh (31) with complex medical needs: “It’s captivating to watch how Joshua navigates the complex world around him with what we consider to be so many limitations. But he has learned to use what he has in the best way he can to communicate, to gather information, to relate pain or contentment or frustration—and he’s proud of it. He has been through more medically than most people will ever experience—yet he comes back undiminished. The challenging aspect of being a parent or caregiver of a person with IDD is how the rest of the world perceives Josh. They limit his humanity and do not invest the time it takes to get to know him as the unique human that he is.”

A mother holds her young son and they are both smiling. The background is pure white with bouquets of flowers.

Dena and Eli

Dena Drabek, mother to Eli (6) with a congenital heart defect: “Eli has undergone three open-heart surgeries, seven cardiac catheterization procedures, and one round of ECMO life support. Watching your child endure so much from the very beginning takes a major emotional toll as a parent. On the flip side, we have a bond unlike most because of what we have been through together. This path has also encouraged us to celebrate all of life’s little moments and be grateful for every opportunity along the way.”

Ray Hemachandra, father to Nicholas (24) with autism and intellectual disability: “Being a caregiver for someone with intellectual and developmental disabilities is no different from being a caregiver for anyone else. You work to meet the individual’s needs; honor their strengths, their uniqueness, and their beauty; and appreciate every day and every moment spent together. You ask for help when you need it, too. A challenge is asking for help in a society and culture that see lesser value in disability and in disabled lives. A challenge is navigating and overcoming a scarcity-based public support system that constantly, relentlessly requires your loved one’s deficits be documented and emphasized.”

 

What Caregivers Want You to Know

Caregivers share candid truths about their lives and the support they need.

An older woman sits next to her sister, who has disabilities. They are looking at each other and smiling.

Patricia and Barbara

Barbara Davis, sister to Patricia (70) with intellectual and physical disabilities: “Better funding is needed but is a low priority in state and federal budgets. Families caring for someone with IDD are just like other families — they want each member of their family to be safe and healthy and to have the opportunity to reach their fullest potential.”

Em Braman, mother to Eden (17) with Down Syndrome & OCD: “The needs of the person you are caring for always come first so you may cancel or ask to reschedule get-togethers frequently,” she shares. “This is not due to not wanting to get together with the other person, it is because my loved one comes first. Our lives just look different and just because it looks different does not mean it is bad or less meaningful. My family enjoys life and enjoys living life together.”

Two women posing together for a selfie, smiling.

Jamie and Sam

Jamie Mistretta, sister to Sam (32) with intellectual disability and autism: “When a support service is unavailable, this limits my sister just as much as it limits me and my family. Her support services are what give her access to her everyday life. When a sibling or other family caregiver is sick or otherwise unavailable, our loved one still needs and deserves support.”

Mariela Azarpira, mother to Samir (22) with intellectual disability, hydrocephalus, and apraxia: “I want to tell people that it is important to fight for them, advocate for them, speak for them, include them, don’t let them give up on them, and don’t let them label them,” she asserts. “People with disabilities are perfect the way they are, so don’t outcast them and don’t allow anyone to do it. They matter too.”

Debbi Harris: “Many of our loved ones require attention 24/7 and staffing that care is a national crisis at this time. It can be exhausting. Caregivers experience chronic illnesses related to stress much more widely than others. I have chronic migraines and other stress-related health conditions. I try to write, or play the flute, or read, but I cannot focus long, and I am needed all of the time. I often feel lonely and isolated. I have my immediate family around me but find myself craving relationships I see others experiencing on social media. Even if I had the opportunity, though, I am usually exhausted and overwhelmed. I don’t have the capacity to participate socially in a normal way, and I don’t fit in. People are afraid I will talk about my son. They think their problems will seem too small or superficial, so they avoid me because they still do need to vent, as we all do. And, the aspects of caregiving I need to talk about, there is no one to listen.”

How Caregiving Shifts Worldviews

Caregivers reveal how their experiences have reshaped their outlook on life.

A woman and her daughter stand together outside, smiling.

Eden and Em

Em Braman: “As my child gets older, I see accessibility as a much larger issue than when she was younger. It frustrates me that while she can physically access places, there are minimal accommodations to assist her in accessing the understanding needed in those locations. For example, a museum without plain language guides for the displays or a listening session where materials are not sent out ahead of time for her to read and reread for understanding or when a medical office will not let her come in ahead of time for a preview of the office to calm her anxiety.”

A mom and her son with disabilities standing together in a swimming pool, smiling.

Mariela and Samir

Mariela Azarpira: “I am a mama bear 24/7. I am in contact with his program and aide every day asking questions like, ‘How was his day? What else do we need to do for him?’ It’s important to have clear communication with each person he is involved with daily. I want him to thrive and make sure everyone is on the same page regarding my son.”

Ray Hemachandra: “For parents of children with disabilities, the responsibility for two lives carries across the lifespan—not just caring about that person’s life, but full responsibility for the care of that life. For example, the normal fear around losing your job, getting ill, or dying is much more about what happens to your child, including your adult child, if and when that happens. Who is going to care for your child? Who is going to love your child? I wouldn’t trade my son for anything or anyone in the world. But I carry all that with me every day.”

What People Get Wrong

Caregivers set the record straight on common misunderstandings about their lives and loved ones.

Dena Drabek: “I often sense that others feel pity for our situation. The commitment I have to my son is not about what I have to give up. It’s about investing in him, nurturing his potential, and helping him discover his own unique gifts so that he can share them with the rest of the world.”

A dad and his son stand together in front of hay bales. They are holding hands and wearing t-shirts that say, "Disabality Rights are Human Rights."

Nicholas and Ray

Barbara Davis: “There sometimes is the assumption that acting as my sibling’s caregiver is only a burden. It can be difficult, but I love my sibling. Being involved in her care is extremely rewarding.”

Ray Hemachandra: “My son isn’t a burden. He’s a blessing. When he is supported appropriately for his needs, he can contribute just as much to his family, to his community, and to our world as anyone else. He wants to know you and be your friend.”

Jamie Mistretta: “I am often asked, ‘Do you think your life would be different if your sister didn’t have a disability?’ I cannot even imagine a life where my sister doesn’t have a disability. My sister’s disability is a large part of who she is; it is a large part of her character. Disability or not, my sister will still be my maid of honor at my wedding someday. I love her for everything she is and everything she is not.”

This National Family Caregivers Month, let’s do more than recognize these hidden heroes. Let’s listen to them, support them, and work towards a world that values their essential role. Their stories show us what unconditional love and true family mean.