Drew Ann Long and her daughter Caroline, who has Rett Syndrome, in a specially designed cart for people with disabilities

The Arc Partners With Caroline’s Cart to Promote Inclusion in Retail Spaces

New partnership places The Arc’s logo and QR code on Caroline’s Carts nationwide, advancing accessibility and inclusion in everyday shopping.

Caroline’s Cart, the first patented special needs grocery cart designed for older children and adults with disabilities, is proud to announce a new partnership with The Arc, the nation’s leading advocacy organization for individuals with intellectual and developmental disabilities (IDD). Beginning this October, every Caroline’s Cart will feature a sticker displaying The Arc’s logo along with a QR code for families and caregivers to request the cart locally—an initiative that underscores a shared commitment to inclusion and accessibility in retail environments.

Caroline’s Carts are in stores across all 50 states and eight countries. Families, caregivers, senior adults, and retailers rely on them to shop with dignity and inclusion. Founder & inventor, Drew Ann Long’s journey from stay-at-home mom to nationally recognized innovator has been celebrated by The Today Show, CNN, Inside Edition, CBS News, and praised by Michelle Obama and advocacy groups across the U.S.

By prominently displaying The Arc’s logo on Caroline’s Carts nationwide, the collaboration aims to expand awareness while making everyday shopping more inclusive for families, caregivers, and individuals with disabilities. The Arc’s mission is to promote and protect the human rights of people with IDD and actively support their full inclusion and participation in the community throughout their lifetimes.

This new chapter builds on the vision of Drew Ann Long, founder and inventor of Caroline’s Cart, inspired by her daughter Caroline, who was born in 2000 with Rett Syndrome, a neurological disorder that disrupts brain development. As Caroline outgrew traditional shopping carts, shopping became an activity that required extreme effort and planning for her family. Drew Ann first sketched the design for a cart Caroline could fit in on a napkin, later bringing the patented cart to life. Without prior experience in engineering or manufacturing, she successfully navigated product development, patents, and brand building—even personally funding the first 100 carts. She ultimately created a movement that is changing the way retailers view accessibility.

“This partnership with The Arc is a powerful step toward creating retail spaces that are truly inclusive,” said Drew Ann Long, Founder of Caroline’s Cart. “By displaying their logo on our carts, we are not only enhancing the shopping experience for families but also sending a clear message that inclusion matters.”

“When a store offers Caroline’s Carts, it sends a powerful message: families that include people with disabilities belong here,” said Katy Neas, CEO of The Arc of the United States. “For decades, The Arc has pushed for inclusion not just in policy, but in the everyday places where life happens. By joining forces with Caroline’s Cart, we’re making sure that a simple trip to the store becomes one more place where families feel dignity, connection, and welcome.”

In addition to this partnership, Drew Ann Long will serve as one of the closing speakers at The Arc’s annual convention in North Carolina, where she will share her story of innovation, perseverance, and the impact of creating products that empower families and communities.

Since its inception, Caroline’s Cart has been a game-changer for families, making shopping possible, safer, and inclusive. With this new collaboration, Drew Ann Long continues her mission to make everyday experiences more accessible for all. She urges all retailers who have not yet adopted Caroline’s Cart to consider offering this essential resource, ensuring greater accessibility for customers and families with disabilities.

To request a cart locally, please visit: https://idrpp.usu.edu/uatp/files/carolines-cart-request-form-us.pdf

About Caroline’s Cart:
Caroline’s Cart is the first patented special needs grocery cart designed for older children and adults with disabilities. Invented by Drew Ann Long and inspired by her daughter Caroline, the cart has become a global solution for families, caregivers, and retailers committed to inclusion. Today, it is found in major stores across all 50 states and eight countries.

About The Arc of the United States:
The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who knew their disabled children deserved more, The Arc is now the largest grassroots organization for people with IDD with nearly 600 chapters in 48 states and Washington, DC. Together, we are promoting and protecting the rights of people with disabilities and supporting their inclusion throughout their lives—from education to employment to community living. There are approximately 7.4 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more.

A white woman on a city street holding a cardboard protest sign that says "Education for All"

Department of Education Condemned for Ending Support for Students With Disabilities

Broad Coalition of Disability, Civil Rights, and Education Organizations Call for Reversal of Layoffs at Department of Education

A broad coalition of national, state, and local disability, civil rights, and education organizations is sounding the alarm over sweeping layoffs at the U.S. Department of Education. These cuts have gutted key offices—including the Office of Special Education Programs (OSEP), the Rehabilitation Services Administration (RSA), the Office for Civil Rights (OCR), and the Office of Elementary and Secondary Education (OESE)—threatening decades of progress in protecting students with disabilities.

These wholesale terminations place fundamental education laws in peril and place millions of children with disabilities at risk who receive services under the Individuals with Disabilities Education Act (IDEA), Section 504 of the Rehabilitation Act, and Title IV of the Workforce Innovation and Opportunity Act. These layoffs circumvent the will of Congress and dismantle 50 years of precedent upholding rights for students with disabilities. Without personnel to oversee these laws, the Department cannot provide essential leadership, oversight, guidance, or support to states and schools—jeopardizing students’ access to a free, appropriate public education and hampering the ability of states and localities to serve all students. In addition, the terminations also threaten the vocational rehabilitation system that helps youth and adults with disabilities become employed.

This year marks the 50th anniversary of IDEA, a law that has enjoyed strong bipartisan support for five decades. Rather than celebrating progress, we face a crisis: the dismantling of the very infrastructure Congress created to ensure children with disabilities could reach their full potential, potentially catapulting them back to a time of segregation and refusal to provide educational opportunities.

The undersigned organizations urge the Administration and Congress to reverse course immediately and restore staffing and transparency at the U.S. Department of Education. Strong federal leadership is not optional, it’s a moral and legal obligation for our nation’s children with disabilities.

National Organizations:
AACTE: American Association of Colleges for Teacher Education
Access Ready Inc.
Accessible College LLC
ACVREP
AFT, AFL-CIO
All4Ed
Allies for Independence
American Association of People with Disabilities
American Association of University Women (AAUW)
American Association on Intellectual and Developmental Disabilities
American Atheists
American Civil Liberties Union (ACLU)
American Council of Blind Families
American Council of the Blind Next Generation
American Council of the Blind
American Therapeutic Recreation Association
Angelman Syndrome Foundation
Association for Education and Rehabilitation of the Blind and Visually Impaired
Association of Assistive Technology Act Programs
Association of People Supporting Employment First (APSE)
Association of Programs for Rural Independent Living (APRIL)
Association of School Business Officials International (ASBO)
Association of University Centers on Disabilities
Association on Higher Education And Disability (AHEAD)
Autism Science Foundation
Autism Society of America
Autism Speaks
Autistic Self Advocacy Network
Bazelon Center for Mental Health Law
Black Down Syndrome Association
Caring Across Generations
CEC Division on Visual Impairment and DeafBlindness
Center for Law and Social Policy (CLASP)
Center for Public Representation
Children and Adults with Attention-Deficit/Hyperactivity Disorder
Christopher & Dana Reeve Foundation
Coalition on Human Needs
Common Coalition
CommunicationFIRST
Complex and Chronic Conditions, The Division for Physical, Health and Multiple Disabilities of the Council for Exceptional Children (CCC-DPHMD)
Council for Exceptional Children
Council for Learning Disabilities
Council of Administrators of Special Education
Council of Parent Attorneys and Advocates (COPAA)
Council of State Administrators of Vocational Rehabilitation (CSAVR)
Cure SMA
Dan Marino Foundation
DCDT
Disability Belongs
Disability Rights Education and Defense Fund
Diverse Charter Schools Coalition
Division for Communication, Language and D/HH
Division for Culturally and Linguistically Diverse Exceptional Learners (DDEL)
Division for Early Childhood
Division for Emotional and Behavioral Health (DEBH)
Division for Learning Disabilities of the Council for Exceptional Children (CEC)
Division for Research, Council for Exceptional Children
Division of International Special Education and Services
Division of Leaders and Legacy
Division on Autism and Developmental Disabilities
Division on Career Development and Transition
Down Syndrome Affiliates In Action
Down Syndrome Association of Atlanta
Easterseals, Inc.
EDGE Partners
EdTrust
Educating All Learners Alliance
Education Law Center
Educators for Excellence
First Focus on Children
Foundation for Angelman Syndrome Therapeutics
GLSEN
Griffin-Hammis Associates
Inclusive Development Partners (IDP)
Innovations in Special Education Technology (ISET) Division of Council for Exceptional Children (CEC)
International Council on Development and Learning
Low Vision Technology
MomsRising
Muscular Dystrophy Association
NAACP
National Association of Councils on Developmental Disabilities
National Association of County Behavioral Health and Developmental Disability Directors (NACBHDD)
National Association of Private Special Education Centers (NAPSEC)
National Association of School Psychologists
National Black Child Development Institute (NBCDI)
National Center for Learning Disabilities
National Consortium for Physical Education for Individuals with Disabilities (NCPEID)
National Council on Independent Living
National DeafBlind Coalition
National Disability Action
National Disability Institute
National Disability Rights Network (NDRN)
National Down Syndrome Congress
National Down Syndrome Society
National Education Association
National Family Association for DeafBlind
National Federation of the Blind
National Health Law Program
National Rural Education Association
National Women’s Law Center
Orientation and Mobility Specialist Association
Parents for Public Schools
PreK-12 Programs, New America
Prevent Blindness
School Social Work Association of America
SchoolHouse Connection
SELF – Special Education Leader Fellowship
Southeast Asia Resource Action Center (SEARAC)
SPAN Parent Advocacy Network, Inc.
Success Beyond Sight
TDIforAccess
Teacher Education Division of the Council for Exceptional Children
The Advocacy Institute
The Arc of the United States
The Association for the Gifted – Council for Exceptional Children
The Carroll Center for the Blind
The Center for Learner Equity
The Division of Evaluation and Assessment for Learning (DEAL)
The Hussman Institute for Autism
The National Association for Down Syndrome
The National Association of Federally Impacted Schools (NAFIS)
The Partnership for Inclusive Disaster Strategies
The Sibling Leadership Network (SLN)
TSC Alliance
United Spinal Association
United States International Council on Disabilities
VisionServe Alliance
ZERO TO THREE

State and Local Organizations:
ABLE New Hampshire
Advance Illinois
AHRC NYC
Alabama Disabilities Advocacy Program
Alaska School Psychologists Association
All Blind Children of Texas
Alliance of and for Visually Impaired Texans
American Council of the Blind of Indiana
American Council of the Blind of Ohio
Arc Mid-Hudson
Arc of Onondaga
ARC of Rockland
Arizona Council for Exceptional Children (AZCEC)
Arkansas Advocates for Children and Families
Arts Education in Maryland Schools (AEMS)
Arts Every Day, Inc.
ASAH
Association for Vision Rehabilitation and Employment, Inc.
Association of School Psychologists of Pennsylvania (ASPP)
Autism Kids
Autistic Women’s Alliance
Beaver County Association for the Blind
Black Educator Advocates Network
Braille Revival League of Texas
California Alliance of Child and Family Services
California Association of O&M Specialists-CAOMS
California Association of School Psychologists
California Council for Exceptional Children
California Down Syndrome Advocacy Coalition
Center of Vision Enhancement
Chautauqua County Chapter, NYSARC, Inc. dba The Resource Center
Choices For Community Living, Inc.
Clinton ARC
Club 21 Learning and Resource Center
Coalition for Adequate Funding for Special Education
Coastal Alabama Down Syndrome Society
Collaborative for Exceptional Education
CompassIL
Connections Day School
DBMAT – Deafblind Multihandicapped Association of Texas
DeafBlind Community of Texas
Delaware Association of School Psychologists
Delaware Developmental Disabilities Council
Delaware Governor’s Advisory Council for Exceptional Citizens (GACEC)
Designer Genes of North Dakota
DGCKids
Disability Law Center
Disability Law Center of Utah
Disability Law Center of Virginia
Disability Rights Arizona
Disability Rights Arkansas
Disability Rights California
Disability Rights Center – New Hampshire
Disability Rights Center of Kansas
Disability Rights Connecticut
Disability Rights Delaware of Community Legal Aid Society, Inc.
Disability Rights Florida
Disability Rights Iowa
Disability Rights Louisiana
Disability Rights Maine
Disability Rights Maryland
Disability Rights Mississippi
Disability Rights Montana
Disability Rights Nebraska
Disability Rights New Jersey
Disability Rights New Mexico
Disability Rights New York
Disability Rights North Carolina
Disability Rights Ohio
Disability Rights Oregon
Disability Rights South Carolina
Disability Rights Vermont
Disability Rights Washington
Disability Rights Wisconsin
Down Syndrome Advocates in Action Nebraska
Down Syndrome Alabama
Down Syndrome Alliance of the Midlands
Down Syndrome Association for Families
Down Syndrome Association of Maryland
Down Syndrome Association of Central Florida
Down Syndrome Association of Central Oklahoma
Down Syndrome Association of Central Texas
Down Syndrome Association of Delaware
Down Syndrome Association of Greater St. Louis
Down Syndrome Association of Houston
Down Syndrome Association of Middle Tennessee
Down Syndrome Association of Minnesota
Down Syndrome Association of Northeast Indiana
Down Syndrome Association of Northeast Ohio
Down Syndrome Association of Orange County
Down Syndrome Association of Southern Maryland
Down Syndrome Association of Wisconsin
Down Syndrome Connection of the Bay Area
Down Syndrome Foundation of Florida
Down Syndrome Foundation of Orange County
Down Syndrome Foundation of Tallahassee
Down Syndrome Guild of Dallas
Down Syndrome Network of Montgomery County, MD
Down Syndrome Network of Onslow and Carteret Counties (DSNOCC)
Down Syndrome Network of West Virginia
Down Syndrome of Louisville
Down to Defend, Michigan
ElevateDD
Engage New Hampshire
Families for Strong Public Schools
Families In Schools
Family Voices NJ
FIRSTwnc
Georgia Association of School Psychologists
Georgia Council of Exceptional Children
Golden Triangle Council of the Blind
Greater Louisville Council of the Blind
Hawai`i Association of School Psychologists
Hawaii Disability Rights Center
Honesty for Ohio Education
Idaho Council for Exceptional Children
Illinois Alliance of Administrators of Special Education
Illinois Families for Public Schools
IN-SIGHT
Incompass Human Services, Inc.
InControl Wisconsin
Indiana Coalition for Public Education
Indiana Council for Exceptional Children
Indiana Disability Rights
Inland Valley Down Syndrome Association
Kansas Association for the Blind and Visually Impaired, Inc.
Kentucky Council for Exceptional Children
Kentucky Protection and Advocacy
Kern Down Syndrome Network
Kids First Chicago
Learn In My Shoes
Lifeworks, Inc.
Manatee County Council of the Blind
Maryland Center for Developmental Disabilities at Kennedy Krieger Institute
Maryland Citizens for the Arts
Maryland Dance Education Association
Maryland Down Syndrome Advocacy Coalition
Maryland Education Coalition (MEC)
Maryland School Psychologists’ Association
Maryland Theater Education Association
Massachusetts Down Syndrome Congress
Mercer County Association of the Blind
Michigan Council for Exceptional Children
Mississippi Coalition for Citizens with Disabilities
Mississippi Down Syndrome Advocacy Coalition
Missouri Council for Exceptional Children
Montgomery County Association for the Blind
Native American Disability Law Center
Nebraska School Psychologists Association
Nevada Council of the Blind
Nevada Disability Advocacy & Law Center
New Hampshire Assoc of Special Education Administrators
New Hampshire Council on Developmental Disabilities
New York State Council for Administrators of Special Education
New York State Council For Exceptional Children
NH Universal Changing Stations Alliance
NJ Community Schools Coalition
NYSARC Inc., Liberty ARC
NYSARC Inc., Warren, Washington and Albany Counties Chapter
Office of Protection and Advocacy for Persons with Disabilities in Puerto Rico (PR P&A)
Ohio School Psychologists Association
Oklahoma Disability Law Center
Our Children Our Schools New Jersey
PACER Center
Parent Information Center of Delaware
Parent to Parent of Georgia Inc
Parents Helping Parents Together, Inc
Parents of Children with Down Syndrome (PODS) of Prince George’s Co. MD
Partnership for Extraordinary Minds (xMinds)
Pennsylvania Association for the Blind
Pennsylvania Council Of The Blind
Pennsylvania Down Syndrome Advocacy Coalition
People’s Arc of Suffolk
Pine Belt Down Syndrome Outreach
Protection & Advocacy System, Inc, Wyoming
Rocky Mountain Down Syndrome Association
Rural Schools Association of New York
Save Our Schools Arizona
Save Our Schools NJ
SC Partnership of Disability Organizations
Sights for Hope
South Carolina Association of School Psychologists
St. Louis Arc
State Council for Persons with Disabilities
Statewide Organizing for Community eMpowement (SOCM)
Strategies for Disability Equity
Streamwood Behavioral Health Systems Innovations Academy
Strong Schools Maryland
Survival Coalition of Wisconsin Disability Organizations
Tennessee Council for Exceptional Children
Texas Association for Education and Rehabilitation of the Blind and Visually Impaired (TAER)
Texas Association of School Psychologists
The Arc Alliance, Pennsylvania
The Arc Arapahoe, Douglas & Elbert Counties
The Arc Chemung Schuyler
The Arc Erie County, PA
The Arc Greater Hudson Valley
The Arc Maryland
The Arc Michigan
The Arc Montgomery County
The Arc New York
The Arc of Alabama
The Arc of Arizona
The Arc of Aurora
The Arc of California
The Arc of Dane County
The Arc of Delaware
The Arc of Delaware County (NYS)
The Arc of East Central Iowa
The Arc of Greater Beaumont
The Arc of Greater Pittsburgh
The Arc of Illinois
The Arc of Iowa
The Arc of King County
The Arc of Macomb County, Inc.
The Arc of Monroe
The Arc of NC
The Arc of Ohio
The Arc of Philadelphia
The Arc of Rensselaer County
The Arc of Snohomish County
The Arc of South Carolina
The Arc of the Piedmont
The Arc of Washington State
The Arc Ontario
The Arc Otsego
The Arc Rockland
The Arc Westchester
The Austin Council of the Blind
The Disability Law Center of Alaska
The Down Syndrome Association of Connecticut
The San Diego Center for the Blind
The South Carolina Human Services Providers Association
Utah Council for Exceptional Children
Venango County Association for the Blind
Vermont Association for the Blind and Visually Impaired
Vermont Association of School Psychologist
Vermont Council for Exceptional Children
VIA (Visually Impaired Advancement)
VIPS (Vision Interventions and Parental Support)
Virginia Academy of School Psychologists (VASP)
Virginia Council for Exceptional Children
Virginia Down Syndrome Association
Vision Forward Association
VisionCorps
Washington State Association of School Psychologists (WSASP)
Wisconsin Alliance for Excellent Schools
Wisconsin Board for People with Developmental Disabilities
Wisconsin Public Education Action
Wisconsin School Psychologists Association

Picture of the U.S. Department of Education building in Washington, DC

Federal Special Education Offices Hollowed Out, Putting Students’ Rights at Risk

Disability advocates are warning that sweeping staff reductions inside the U.S. Department of Education have effectively dismantled the federal offices responsible for protecting the rights of students with disabilities. The Office of Special Education and Rehabilitative Services (OSERS) has lost most of its personnel, leaving only a small team to oversee the nation’s special education and rehabilitation systems.

Tell your lawmakers to protect OSERS now.

“Behind every one of these jobs was a lifeline for children and families,” said Katy Neas, CEO of The Arc of the United States. “These offices exist because, not so long ago, millions of children with disabilities were shut out of school. They represent our nation’s promise that every child deserves an education and a future. With these offices gutted, families will have nowhere to turn when schools fail to meet their obligations under federal law.”

OSERS plays a vital role in ensuring states comply with the Individuals with Disabilities Education Act (IDEA) and in managing billions of dollars in federal grants that fund special education and vocational rehabilitation. The offices also provide legal and technical guidance to schools, fund research on effective teaching strategies, support training and retention of special educators, and coordinate transition services that help youth with disabilities move from school to employment and community life.

The Department’s capacity to enforce civil rights is severely weakened. Its Office for Civil Rights (OCR), which investigates discrimination in schools, lost about half its attorneys earlier this year. Families filed a record 22,687 discrimination complaints last year, nearly 40% involving disability. Even before these layoffs, families often waited years for answers. Now, thousands more may never see their cases resolved.

“The Department of Education is the keeper of IDEA’s promise,” said Neas. “Without these offices, students with disabilities have fewer protections to get an education when they face harassment, exclusion, discriminatory discipline, and barriers to access and inclusion that can shape the rest of their lives. They will be denied the chance to learn, grow, and belong in their communities.”

Next month marks the 50th anniversary of IDEA, the landmark law that guaranteed students with disabilities the right to a public education. Before federal oversight existed, many children with disabilities were turned away from schools altogether or placed in institutions with no opportunity to learn. The creation of the modern Department of Education changed that reality.

Now, that progress is at risk of unraveling. Without functioning federal oversight, states may begin interpreting the law differently, eroding the consistency and accountability that Congress intended.

“Children with disabilities will be left behind, not because they cannot learn, but because the systems that help them succeed are being taken away,” said Neas.

The Arc, which helped drive the advocacy that led to IDEA, warns that the law’s foundation is in jeopardy. In 1971, The Arc brought PARC v. Pennsylvania, the first case to establish the right to education for children with intellectual disabilities. That ruling laid the groundwork for IDEA and for the Department of Education as we know it today.

“Our nation’s commitment to education for all is being tested,” said Neas. “The Arc was there when students with disabilities first won the right to learn, and we will do everything in our power to defend it.”

The Arc’s national office is closely monitoring developments at the Department of Education and coordinating with coalition partners to advocate for immediate transparency on how IDEA oversight, guidance, and funding will continue.

Media Contact:
Jackie Dilworth, dilworth@thearc.org

A picture of prison bars up close with a brick floor

Disability Advocates Warn: Supreme Court Case Could Open Door to Executing People With Intellectual Disability

WASHINGTON, DC – The U.S. Supreme Court will soon hear Hamm v. Smith, a case that will determine how courts apply the death penalty to people with intellectual disability. At issue is whether judges must continue to follow established clinical standards or whether states can rely on a narrow focus on IQ scores.

Today, The Arc of the United States, joined by the American Association on Intellectual and Developmental Disabilities (AAIDD), the Bazelon Center for Mental Health Law, and the National Disability Rights Network, filed an amicus brief urging the Court to uphold existing precedent and ensure that people with intellectual disability remain meaningfully protected from execution. Oral arguments are scheduled for November 2025.

In Atkins v. Virginia (2002), the Court recognized what Americans overwhelmingly believe: executing people with intellectual disability is cruel, unconstitutional, and serves no purpose. That protection was later reinforced in Hall v. Florida and Moore v. Texas, which directed courts to follow clinical science rather than stereotypes in diagnosing intellectual disability in death penalty cases.

Now, in Hamm v. Smith, those safeguards are at risk.

Shira Wakschlag, Senior Executive Officer of Legal Advocacy and General Counsel for The Arc of the United States:
“It is settled law that executing people with intellectual disability is unconstitutional. People with intellectual disability have a specific condition, not a rote IQ number. Alabama is asking the court to erase that precedent and focus exclusively on IQ scores in evaluating whether a person has an intellectual disability. The state’s request would upend decades of precedent, ignore science, and put people with intellectual disability at risk of unlawful execution. An intellectual disability diagnosis requires a holistic and comprehensive evaluation conducted by qualified individuals. Lives are on the line.”

Why Hamm v. Smith should matter to everyone:

  • It’s about fairness. People with intellectual disability are more likely to be targeted, arrested, and wrongfully convicted. Without meaningful and science-based implementation of these protections, innocent lives could be lost.
  • It’s about science, not stereotypes. The clinical definition of intellectual disability has been developed over decades and includes a robust framework that must be used in the diagnostic process. Experts agree that diagnosis requires more than a single IQ score. Failing to ensure that courts follow clinical judgment would ignore science in favor of dangerous stereotypes.

This case is not about excusing violent crime. People with intellectual disability can and should be held accountable under the law. But intellectual disability is a lifelong, complex condition, and the Supreme Court has made clear that the Constitution draws a clear line: execution is off the table.

The Arc has fought for this safeguard for decades, including playing a critical role in Atkins. The organization and its partners will continue to fight to ensure that courts properly follow clinical judgment in defining intellectual disability in death penalty cases and that no person with intellectual disability is ever put to death in violation of the Constitution.

Media Contact:
Jackie Dilworth, The Arc of the United States, dilworth@thearc.org

###

About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who knew their disabled children deserved more, The Arc is now the largest grassroots organization for people with IDD with nearly 600 chapters in 48 states and Washington, DC. Together, we are promoting and protecting the rights of people with disabilities and supporting their inclusion throughout their lives—from education to employment to community living. There are approximately 7.4 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

A bunch of letters scattered with AUTISM spelled out in the middle

Autism Research Must Be Grounded in Science, Not Stigma

When public officials talk about autism, their words carry weight. Too often, those words have painted the diagnosis of autism as a tragedy, erasing the dignity and humanity of autistic people.

Research into the causes of autism and the support needs of people with autism must be grounded in credible science, transparent data, and the lived experiences of autistic people. Public health only advances when clinicians, researchers, and impacted communities come together and follow peer-reviewed evidence. Anything less spreads confusion, deepens stigma, and diverts attention from what individuals and their families truly need.

We agree that there are too many unanswered questions about autism. That’s why more research is essential to achieve more effective interventions and appropriate supports. But research efforts must respect the inherent dignity of autistic people for who they are and reflect the diversity of their lives. Reducing autism only to a problem that must be solved, or presenting unproven claims as fact, fails both autistic people and the families who love them.

The facts are clear.

  • Vaccines do not cause autism. Decades of rigorous, global research involving millions of children and adults have confirmed no link between vaccines and autism.
  • The largest study on acetaminophen use during pregnancy found no evidence supporting an increased chance of autism.
  • Current research shows that autism has no single cause. Instead, it likely results from a combination of genetic, biological, and environmental influences.
  • The rise in autism diagnoses reflects both broader diagnostic criteria and better awareness and screening, not an epidemic.
  • Autistic people are here to stay.

We remember the days when autism was cruelly blamed on so-called “refrigerator mothers.” We cannot allow stigma, stereotypes, and fear drive our public health priorities. Families deserve research and policies that strengthen futures and ensure access to Medicaid, special education, Social Security, and SNAP. At a time when these lifelines are being chipped away, families need assurance that the supports keeping them afloat will be protected.

The Arc will continue to call for policies grounded in science and humanity, and to work alongside autistic people and their families to demand respect, inclusion, and the supports needed to live full lives in every community.

A picture of the White House at night

National Disability Groups Condemn Executive Order Taking Away Civil Liberties

Washington, DC — The Bazelon Center for Mental Health Law, the National Disability Rights Network, the Center for Public Representation, the National Health Law Program, the Disability Rights Education and Defense Fund, and The Arc of the United States condemn the issuance of an Executive Order on “Ending Crime and Disorder on America’s Streets.” The Order directs the Attorney General to seek “the reversal of Federal or State judicial precedents and the termination of consent decrees that impede the United States’ policy of encouraging civil commitment of individuals with mental illness who pose risks to themselves or the public or are living on the streets and cannot care for themselves in appropriate facilities for appropriate periods of time.”

“This Executive Order appears aimed at upending decades of established Supreme Court precedent and eliminating basic protections that prevent the arbitrary confinement of people based on a disability. We cannot go back to the times when people’s liberty could be taken away with no rhyme or reason, or for reasons like revenge or punishment,” said Jennifer Mathis, Deputy Director of the Bazelon Center for Mental Health Law. “The executive branch has an obligation to abide by Supreme Court decisions rather than seeking to overturn them.”

“What unhoused people with disabilities need is not more policing or confinement, but permanent affordable housing, access to mental health services, and the support to live with dignity in their communities,” said NDRN Executive Director Marlene Sallo. “This executive order diverts resources away from the real solutions we know work and instead embraces coercion over care.”

This is a broader disability rights issue – up to 40% of people with intellectual and developmental disabilities (IDD), such as Down syndrome, autism, cerebral palsy, and more, also have co-occurring mental health conditions. Currently, only 1 in 10 children and adolescents with IDD and mental health disorders receive specialized services. The solution is sufficient funding for community-based services and appropriate housing, not this Executive Order. Further, at a time when the federal government is making historic cuts to Medicaid, warehousing people in costly institutions is an absurd solution.

The Supreme Court has issued decisions ensuring that Americans have due process protections before the government can take away their liberty and confine them in a psychiatric hospital. Those decisions are the law of the land for good reason. Before the Court clarified these protections, people were too often confined for extended periods of time in psychiatric hospitals with little or no reason—and in some cases, for wholly inappropriate reasons. Many spent years or decades neglected on the back wards of overcrowded state psychiatric hospitals housing thousands of people. These practices destroyed lives and overwhelmed state budgets. Protections against inappropriate commitment are critical, as these practices still occur. Disability Rights Montana documented this problem in a 2022 report, while Disability Rights California found in 2024 that persons with mental health disabilities languish in a county jail without being charged with a crime costing millions of dollars a month. Promoting “maximally flexible” commitment standards will set treatment of citizens with disabilities back by decades.

Kenneth Donaldson was locked up against his will in a Florida state hospital for fifteen years with scant basis when he brought a lawsuit challenging that confinement. The Supreme Court held that the hospital had violated Donaldson’s constitutional rights, noting that “the mere presence of mental illness does not disqualify a person from preferring his home to the comforts of an institution” and that “a State cannot constitutionally confine, without more, a nondangerous individual who is capable of surviving safely in freedom by himself or with the help of willing and responsible family members or friends.” The Court has reaffirmed these legal principles on multiple occasions. The government must uphold them.

By using federal guidance, grants, or other means to promote “maximally flexible” commitment standards, the Executive Order also interjects the federal executive branch into an area long recognized as the states’ responsibility subject to critical Constitutional protections.

We call on the Administration to uphold the law and support the humane care and treatment of people with mental health disabilities.

# # #

Since 1972, the Judge David L. Bazelon Center for Mental Health Law has advocated for the civil rights, full inclusion and equality of adults and children with mental health disabilities. The Bazelon Center accomplishes its goals through a unique combination of litigation, public policy advocacy, coalition building and leadership, public education, media outreach and technical assistance—a comprehensive approach that ensures we achieve the greatest impact.

The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and the Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the Network is the largest provider of legally based advocacy services to people with disabilities in the United States.

The Center for Public Representation is a national advocacy organization dedicated to enforcing and expanding the rights of people with disabilities and others who are in segregated settings. CPR provides technical assistance and support to a network of federally-funded Protection and Advocacy programs in each of the United States and U.S. territories.

The National Health Law Program (NHeLP) is a public interest law firm that protects and improves access to health care for low-income and underserved people and works to advance health equity. We believe that everyone should have access to high quality, equitable health care and be able to achieve their own highest attainable standard of health. We enforce health care and civil rights laws; advocate for better federal and state laws and policies; train, support and partner with national, state and local health and civil rights advocates; and use strategic communications to achieve these goals.

Founded in 1979, the Disability Rights Education & Defense Fund (DREDF) is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. Our mission is to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.

The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more.

A young man with autism standing in front of trees wearing an orange shirt that says "Disability Rights Are Human Rights"

The ADA at 35: A Legacy Worth Celebrating and Defending

Statement from Katy Neas, CEO of The Arc of the United States on the 35th Anniversary of the Americans with Disabilities Act:

The Americans with Disabilities Act reshaped this country for the better. For the first time, people with disabilities had legal protections against discrimination and exclusion. It created a framework for access and sent a clear message: disabled people belong in every part of community life.

I was a young Senate staffer in 1990 and had the opportunity to work on the ADA. I’ve spent the last 35 years working to uphold its promise. And I’ve never seen a more urgent moment than this one.

In the same month we mark this milestone, the federal government passed a budget that cuts nearly $1 trillion from Medicaid, a program that is the very foundation for inclusion. It helps people live at home, go to school, get basic health care, and contribute to their communities. At the same time, the Department of Education is being dismantled, leading to fewer staff enforcing special education laws. The Department of Energy is eliminating a longstanding rule that ensures new federally funded buildings are physically accessible. And slurs like the R-word are back in mainstream conversation, a huge step backward in basic decency and respect.

These are not isolated developments. Together, they show a national, coordinated pattern of erosion. Protections are being stripped. Services are being cut. And people with disabilities are being pushed back out.

This is exactly what the ADA was meant to prevent. When Congress passed the law in 1990, it found that “discrimination against individuals with disabilities persists in critical areas.” The ADA’s purpose was clear: to provide “a clear and comprehensive national mandate for the elimination of discrimination.” It also set a vision, one that is still relevant today: “equality of opportunity, full participation, independent living, and economic self-sufficiency.”

Yet 35 years later, those goals remain out of reach for far too many. And the very systems meant to protect them are being weakened. It’s no coincidence that disabled people are still fighting for access to education, employment, health care, and opportunity. This world wasn’t built with them in mind—so they’ve had to lead, build, and demand what others take for granted.

So we must ask: Who are we designing our society for? Who do we include, and who do we keep leaving behind? And what are we all missing because of it?

When people with disabilities are not at the table, we lose out on leadership, insight, and solutions. Inclusion is how we build stronger schools, smarter policy, more responsive workplaces, and communities that work for everyone.

The ADA was never the finish line; it was the floor. And right now, that foundation is being weakened by budget cuts, deregulation, stigma, and silence. It’s our job to bring it to life in ways that include everyone.

The Arc and our nearly 600 chapters nationwide are working every day to defend the ADA and build the future it promised. We are fighting for civil rights, community services, inclusive schools, access to health care, and respect. We were there when the ADA was written, advocating side-by-side with self-advocates and families to demand equal rights. And we’ve been there every step of the way since, holding the line, advancing progress, and insisting that the law’s promise becomes real in people’s lives.

Disability is a natural and valuable part of human diversity. It is also the one group any of us can join at any time. That means this fight is not just about disabled people, it is about all of us.

We cannot afford to turn away from these threats. A society that excludes people with disabilities will eventually exclude many more. Inclusion is one of the clearest ways we show who matters in our society. Let’s make sure our actions match our values.

Picture of a rally in front of the U.S. Capitol with someone holding a "Protect Medicaid" sign

“A Dark Day”: Disability Advocates Respond to House Passage of Budget Bill

Today, the U.S. House passed the Senate’s version of the Budget Reconciliation Bill. The legislation now heads to the President’s desk. If signed into law, this bill will result in deep and harmful cuts to the programs that millions of people with disabilities rely on to live, learn, and thrive in their communities.

At a high level, the legislation includes:

  • Nearly $1 trillion in Medicaid cuts, slashing almost 20% of the federal program and jeopardizing coverage for nearly 17 million people
  • Nearly $200 billion in cuts to SNAP food assistance
  • A new private school voucher program that diverts public education funds without guaranteeing protections for students with disabilities

While the bill includes a new option for states to create a new home and community-based services (HCBS) waiver, that provision is far from enough to offset the devastating consequences of these cuts.

For more context on what’s really in this legislation, read our joint piece with the Center for American Progress: “The Truth About the One ‘Big, Beautiful’ Bill Act’s Cuts to Medicaid and Medicare”

Below is a statement from Katy Neas, CEO of The Arc of the United States:

“Today is a dark day for people with disabilities and their families. This bill puts essential support at risk for millions. Health care, food assistance, and special education services that people rely on every day are now in jeopardy. It will force states to make impossible choices that could strip people of the services they need to live with dignity, safety, and independence. The harm will be real. Families will feel it in their homes, their schools, and their communities. But we are not giving up. The disability community has fought for generations to be seen, to be valued, and to live freely in our communities. That fight does not end today. The Arc and our nationwide network of advocates will keep going. We will never stop advocating for the policies that people with disabilities deserve.”

A white man in a wheelchair on the sidewalk smiling while facing the camera

Journalist Resource: How to Cover Disability Pride Month 2025 (Reporting Guide)

What Is Disability Pride Month?

Every July, Disability Pride Month offers newsrooms an opportunity to report on one of the largest, and too often overlooked, communities in the country: people with disabilities.

Disability Pride Month commemorates the signing of the Americans with Disabilities Act (ADA) on July 26, 1990. Today, more than 1 in 4 U.S. adults identify as having a disability. But despite its size, the disability community remains underrepresented and often misrepresented in media coverage. Disability Pride Month offers a chance to tell more accurate, nuanced, and inclusive stories about disability identity, civil rights, and the barriers many still face.

Why Cover Disability Pride Month in 2025?

The 2025 Disability Pride Month theme – We Belong Here, and We’re Here to Stay – was chosen by a national group of people with disabilities. The theme reflects both the community’s resilience and growing concerns about threats to disability rights and services. While people with disabilities are part of every community, many are made to feel like outsiders.

Several policy and cultural issues are driving new urgency:

  • Medicaid: Proposed cuts and work requirements threaten essential care and independence. (learn more)
  • Special Education: Federal cuts and nationwide staffing crises are widening equity gaps in schools. (learn more)
  • Social Security: Delays, office closures, and policy rollbacks are limiting access to benefits. (learn more)
  • DEI Rollbacks: As corporate commitments to diversity decline, disability inclusion is caught in the middle—impacting jobs, visibility, and representation.
  • Language: Slurs like the R-word are re-entering public discourse, fueling stigma and exclusion. (learn more)

These national issues have deeply local consequences—offering timely, community-centered story opportunities for journalists across the country.

What Does Disability Pride Mean?

Disability Pride affirms that disability is a natural part of the human experience, not something to hide or fix.

For some, pride means celebrating identity. For others, it’s about rejecting shame and fighting for the right to exist fully and freely. Pride can be personal, complex, and sometimes quiet—but at its core, it’s about dignity and belonging.

While distinct from LGBTQ+ Pride Month in June, Disability Pride Month in July similarly emerged from civil rights struggles and a refusal to be erased.

Reporting Tips: Ethical, Inclusive Coverage of Disability Pride Month

  • Talk to people with disabilities in your community about what Disability Pride means to them, and what’s at stake. Their lived experiences bring depth and urgency to many of today’s issues. Avoid only interviewing caregivers or parents unless necessary for context. Some individuals may use communication supports. Those tools should be accommodated and not viewed as barriers. Steer clear of oversimplified or patronizing narratives. Respect disabled people’s expertise and full humanity.
  • Localize national policy stories. Explore how federal threats and cuts to Medicaid, SNAP, special education, and Social Security are affecting people with disabilities and families in your coverage area. These are national crises with local consequences and they’re newsworthy.
  • Cover Disability Pride events—but also go deeper. Disability Pride events offer entry points, but deeper stories lie in ongoing struggles for equity, representation, and access. Ask what the community wants covered and how they want to be seen.
  • Cover disability all year. Disability Pride Month is a vital moment to connect, but the need for inclusive, accurate disability coverage continues year-round.

Finding Local Stories & People

Local chapters of The Arc, disability organizations, advocacy groups, and self-advocate networks are often willing to connect reporters with people with disabilities, families, and professionals eager to share their experiences. Many have long histories of working with media and can help ensure authentic, respectful sourcing.

Helpful Resources for Journalists Covering Disability Pride Month

Explainer: What Is Disability Pride Month? (The Arc)
History of the Disability Pride Flag (Columbia University)
Disability Language Style Guide (National Center on Disability & Journalism)

Contact

Jackie Dilworth
The Arc of the United States
dilworth[at]thearc.org

A picture of Civitan International's logo (a cog with a C and a sphere inside)

Civitan International & The Arc Announce New Partnership to Advance Opportunities for People With Disabilities

BIRMINGHAM, AL & WASHINGTON, DC – May 27, 2025 – Civitan International and The Arc announced today a strategic partnership to increase awareness and understanding of the challenges faced by people with intellectual and developmental disabilities (IDD) and their families, and to connect those families to volunteer activities and resources.

Civitan International, a global network of service clubs dedicated to supporting people with disabilities, and The Arc, the largest national organization advocating for and serving people with IDD, are joining forces to expand community support, inclusion, and opportunity for people with disabilities. This new partnership will focus on three core areas:

  • Volunteer Engagement: Civitan members will connect with local chapters of The Arc to build meaningful relationships and volunteer in programs that directly support people with disabilities and their families.
  • Shared Resources and Best Practices: The two organizations will collaborate to strengthen their programs by sharing tools, knowledge, and strategies that promote inclusion and empower people with disabilities.
  • Community Collaboration: Local Civitan clubs and chapters of The Arc will work together on projects and events that bring people together and create more inclusive communities.

Katy Neas, CEO of The Arc of the United States shared: “Too often, people with intellectual and developmental disabilities are left out—of community, of opportunity, of conversations about the future. This partnership is about changing that. When Civitan members show up in local communities and stand alongside people with disabilities, it sends a powerful message: you matter, and we’re in this together. The Arc is proud to join forces with an organization that’s not just talking about inclusion—they’ve been doing the work for generations.”

Mark Eisinger, Executive Vice President of Civitan International, added: “Civitan’s mission to serve is made even stronger through this partnership with The Arc. By combining our efforts, we can promote more inclusive communities where individuals with disabilities are not just accepted but celebrated for their unique contributions. We look forward to collaborating on initiatives that will benefit the millions of people with IDD and their families across the nation and beyond.”

To arrange an interview, please contact:
Civitan International – Public Relations Department
Phone: 205-591-8910
Email: pr@civitan.org

The Arc – Communications Department
Phone: 202-617-3271
Email: dilworth@thearc.org

# # #

About Civitan International: Founded in 1917, Civitan International is an organization of volunteer clubs dedicated to serving individual and community needs with an emphasis on helping people with intellectual and developmental disabilities. Civitan’s mission is to build good citizenship by providing a volunteer organization dedicated to serving individual and community needs with an emphasis on helping people with developmental and intellectual disabilities. To learn more, visit www.civitan.org.

About The Arc: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who knew their disabled children deserved more, The Arc is now the largest grassroots organization for people with IDD with nearly 600 chapters in 47 states and Washington, DC. Together, we are promoting and protecting the rights of people with disabilities and supporting their inclusion throughout their lives—from education to employment to community living. There are approximately 7.4 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.