Statement from our CEO Katy Neas on the tragic DC plane crash and claims that it could have been caused by the FAA’s DEI hiring practices, particularly of people with intellectual disabilities:

“This is a devastating tragedy, and our hearts go out to the victims and their families. There is no evidence that FAA hiring practices had anything to do with this accident, and suggesting otherwise is both misleading and harmful. People with disabilities—like all federal employees—are hired because of their qualifications, skills, and ability to do a job. In moments like this, we should be focused on facts and supporting those affected, not pointing fingers at an entire community.”

Journalists, Medicaid is under unprecedented threat, and the impact will be felt nationwide.

As newly elected officials take office, many are considering cuts to Medicaid to fund other priorities like tax cuts, deficit reductions, or shrinking the size of the federal government. While Medicaid has been widely covered—from its role in public health to challenges during the unwinding of pandemic protections—the disability angle is often overlooked.

This evolving story is about more than health care; it’s about the dignity, independence, and stability for millions of Americans.

Why This Story Matters

Medicaid is vital to the health and stability and the U.S. health care system and the 80 million Americans it covers, including people with disabilities, children, low-income adults, and seniors. Medicaid provides:

• Home and community-based services (HCBS) that help 4.5 million people with disabilities live, learn, work, and participate in their communities.
• Early intervention for young children, school-based therapies, and equipment and technologies often excluded by private insurance.
• Job skills training, placement, and coaching that enable people with disabilities to find meaningful, integrated employment opportunities.
• $1 of every $6 spent on health care in the U.S., making it the nation’s largest single source of health coverage.
• Support for schools, hospitals, and local economies.

Yet Medicaid is already stretched thin:

• 711,000 people are waiting for HCBS, 73% of which are people with intellectual and developmental disabilities.
• 40% turnover among care workers due to low reimbursement rates leaves families without critical support, which negative impacts their careers and finances.
• 25+ million Americans lost Medicaid coverage after pandemic protections ended, often due to paperwork issues—not ineligibility.

The Stakes for the Disability Community

Medicaid is the cornerstone of daily life for over 10 million children and adults with disabilities, funding 77% of essential services for people with intellectual and developmental disabilities. Without it:

• Many would lose their independence, forced into nursing homes or state-run institutions.
• States would face severe constraints on eligibility and funding, leaving families across the country without options for vital services.

Why Now

The 2025 federal budget debates will decide Medicaid’s future. Proposed cuts could deepen waiting lists, worsen the care workforce crisis, leave millions uninsured, and destabilize our health care system. Reducing federal funding for Medicaid could also cost states billions annually, leading to an unprecedented rise in uninsured rates and health inequities. Medicaid has overwhelming bipartisan public support—with 75% of Americans viewing the program favorably, so your audience must understand the real-world consequences for people with disabilities and their families.

This story isn’t just about policy—it’s about people like Dianne and her son Jonathan:

“My 31-year-old son Jonathan is a vibrant man who cherishes life. He enjoys nature photography, outdoor activities, music, and time with loved ones—much of which is made possible through Medicaid. At two weeks old, he fell ill with meningitis and is now quadriplegic, non-verbal, and requires round-the-clock care. Medicaid has been crucial for his entire life, from durable medical equipment to in-home support. Without adequate funding and person-centered policies, Jonathan risks losing the life he loves.”

Federal decisions will determine whether families like theirs can access the care they need. Your reporting can illuminate these stakes, drive accountability, and protect Medicaid before it’s too late.

Let’s Connect

For expert analysis or connections to families impacted by Medicaid, contact:

Jackie Dilworth
Director of Communications
The Arc of the United States
Dilworth@TheArc.org

Media Contacts:
The Arc, dilworth@thearc.org
LDF, media@naacpldf.org
Delta Sigma Theta Sorority, Inc., inquiries@deltasigmatheta.org
ArentFox Schiff, nathan.carlile@afslaw.com
Ray Shackelford, rshackelford@haul.org

The Arc of the United States, along with The Arc of Texas, The Legal Defense Fund (LDF), Delta Sigma Theta Sorority, the Houston Area Urban League, and ArentFox Schiff, today applauded a decision delivered late Friday, Oct. 11, that struck down certain provisions of S.B. 1, an egregious Texas law that sharply limits voting access.

In the decision from the United States District Court for the Western District of Texas, the judge ruled that several provisions of S.B. 1 that restrict and criminalize voting assistance violate the Voting Rights Act and therefore cannot be enforced.

“This ruling marks a historic victory for voters with disabilities,” said Shira Wakschlag, Senior Director of Legal Advocacy and General Counsel at The Arc of the United States. “The court’s decision demonstrates a deep understanding of S.B. 1’s harmful impact, forcing Texans with disabilities to choose between inadequate voting options or forfeiting their right to vote entirely. The judge’s ruling, influenced by powerful testimony from The Arc’s members, recognizes how S.B. 1 has erected barriers at every stage of the voting process for people with disabilities. Critically, the court understood the far-reaching consequences of S.B. 1, which not only puts care attendants at risk of prosecution but threatens the ability of voters with disabilities to live in the community. The Arc celebrates this landmark decision and remains committed to defending the voting rights of people with disabilities in Texas and nationwide.”

“This victory for voters with disabilities affirms, yet again, what a difference self-advocacy can make,” said Jennifer Martinez, Chief Executive Officer of The Arc of Texas. “I want to thank our members and allies who provided testimony. Without it, the outcome could have been very different, but your willingness to speak up about the unfair barriers you face changed history today.”

“This is a major victory for Texas voters, especially voters with disabilities, voters with low literacy, and voters with limited English proficiency,” said Jennifer A. Holmes, Deputy Director of Litigation at the Legal Defense Fund. “Many of these voters are in Black and Latino communities and face a myriad of obstacles to voting. We are thrilled the court affirmed their right to unfettered assistance to make casting a ballot possible without fear of prosecution of those who assist them.”

“Judge Xavier Rodriguez’s decision in our challenge to Texas Senate Bill 1 is a pivotal victory for democracy and voters who rely on assistance,” said Elsie Cooke-Holmes, National President of Delta Sigma Theta Sorority. “While we celebrate this important win, our work is far from over. We urgently need federal legislation, like the John Lewis Voting Rights Act and the Freedom to Vote Act, which enshrines the comprehensive voting rights reforms our democracy desperately needs following the evisceration of those protections in the 2013 Supreme Court decision in Shelby County v. Holder.”

“The burdens imposed by this law on marginalized communities – specifically voters who could have trouble reading or completing their ballots without assistance – are real and stark,” said J. Michael Showalter, partner at ArentFox Schiff. “The Court heard voluminous testimony as to how the state’s failures to think about how S.B. 1 would work in practice precluded Texans committed to exercise their fundamental right to vote from doing so. We are proud that the Court stepped in and made clear that no one should be criminally prosecuted for providing assistance to voters to allow them to cast their ballots.”

The provisions the Court struck down in Friday’s decision include burdensome disclosure requirements on anyone assisting voters and a ban on compensation for individuals who provide voting assistance. The Court also struck certain language from an oath that Texas law requires assistors to swear under penalty of perjury before they can help voters, a requirement that puts these assistors at risk of criminal prosecution and chills the ability of voters to receive the assistance they need to vote.

The Court ruled that because it is too close to the election to change forms and ballot envelopes, voting assistance disclosures in those materials can still be enforced during the election, but individuals cannot be investigated, prosecuted, or assessed civil penalties related to these requirements. The ruling requires the Secretary of State to stop using the forms after the 2024 election.

Shortly after Texas lawmakers passed S.B. 1 in 2021, the Legal Defense Fund, The Arc of the United States, Reed Smith, and, later, ArentFox Schiff, filed a lawsuit on behalf of Delta Sigma Theta Sorority, Inc., the Houston Area Urban League, The Arc of Texas, and an individual election judge, challenging multiple provisions of the suppressive law. In addition to the provisions restricting voter assistance, the lawsuit also challenged provisions that limited early voting hours, banned 24-hour voting, eliminated drive-thru voting centers, limited multiple drop-off locations for mail ballots, limited the distribution of mail-in ballot applications, imposed burdensome identification requirements on voting by mail, and expanded the authority of partisan poll watchers. Other disability rights and civil rights organizations also challenged the law in companion lawsuits.

Although the Court has yet to rule on all the challenged provisions, it issued prior orders striking down S.B.1’s identification requirements for voting by mail and restrictions on door-to-door canvassing. These rulings have been appealed.

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Founded in 1940, the Legal Defense Fund (LDF) is the nation’s first civil rights law organization. LDF’s Thurgood Marshall Institute is a multi-disciplinary and collaborative hub within LDF that launches targeted campaigns and undertakes innovative research to shape the civil rights narrative. In media attributions, please refer to us as the Legal Defense Fund or LDF. Please note that LDF has been completely separate from the National Association for the Advancement of Colored People (NAACP) since 1957—although LDF was originally founded by the NAACP and shares its commitment to equal rights.

The Arc of the United States advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

Delta Sigma Theta Sorority, Inc. was founded on January 13, 1913, by 22 collegiate women at Howard University to promote academic excellence; to provide scholarships; to provide support to the underserved; educate and stimulate participation in the establishment of positive public policy; and to highlight issues and provide solutions for problems in their communities. Since its founding, more than 350,000 women have joined the organization, making it one of the largest predominately Black women’s organizations in the country. Delta Sigma Theta Sorority, Incorporated has more than 1,050 chapters located throughout the United States and globally. The major programs of the Sorority are based upon its Five-Point Programmatic Thrust, which focuses on Economic Development, Educational Development, International Awareness and Involvement, Physical and Mental Health, and Political Awareness and Involvement. To learn more about Delta Sigma Theta Sorority, Incorporated, visit www.deltasigmatheta.org.

As a champion for underserved and marginalized communities, the Houston Area Urban League has a proud history of delivering impactful, lasting benefits to individuals across Greater Houston, regardless of age, gender, race, ability, or background. Our mission is to empower Black people and other marginalized groups to achieve economic self-reliance, equality, influence, and civil rights. We envision a community where these groups experience true equality in opportunities, justice, and prosperity. HAUL operates seven core programs focused on Education and Youth Development, Workforce and Economic Development, Workforce Training, Housing, Social Justice, Health and Wellness, and Entrepreneurship.

In a new amicus brief, The Arc, Disability Rights Texas, and AAIDD urge Texas court to follow science, not stereotypes

WASHINGTON, DC – In a critical death penalty case, The Arc of the United States, The Arc of Texas, Disability Rights Texas, and the American Association on Intellectual and Developmental Disabilities (AAIDD), along with law firm Fried, Frank, Harris, Shriver & Jacobson LLP, have filed a “friend-of-the-court” brief urging the Texas Court of Criminal Appeals to protect people with intellectual disability from unconstitutional executions.

The group is taking a stand in support of accurate identification of intellectual disability in the case of Blaine Milam, an inmate now on death row. Their message to the court is clear: when it comes to determining who has intellectual disability, courts must refer to clinical standards—not stereotypes.

Shira Wakschlag, Senior Director of Legal Advocacy and General Counsel with The Arc of the United States: “The Arc’s advocacy led to the U.S. Supreme Court’s ruling more than 20 years ago that bars the execution of defendants with intellectual disability. Yet too often, outdated stereotypes and misconceptions lead to unjust outcomes, particularly in capital cases. We’re fighting to ensure that courts rely on clinical standards to ensure people with intellectual disability are properly identified and protected from execution. The stakes couldn’t be higher.”

Jason Kanterman, an attorney from Fried, Frank, Harris, Shriver & Jacobson LLP representing The Arc in this matter, commends The Arc and its team for their efforts in this case: “The Arc, Disability Rights Texas, and AAIDD play a pivotal role in protecting the rights and interests of individuals with intellectual disability and Fried Frank is proud to support these organizations in those efforts.”

The amicus brief comes at a critical time. Despite a 2002 U.S. Supreme Court ruling banning the execution of people with intellectual disability, the practice continues. In Atkins v. Virginia (2002), the U.S. Supreme Court recognized the special risk of wrongful execution faced by people with intellectual disability and banned their execution as cruel and unusual punishment under the Eighth Amendment. In Hall v. Florida (2014), the Court rejected an arbitrary cutoff for IQ scores in making the intellectual disability determination and emphasized the importance of courts consulting clinical standards in their analysis. In Moore v. Texas (2017 and 2019), the Court strengthened this precedent by emphasizing the need to rely on well-established clinical standards—rather than stereotypes—in making intellectual disability determinations in death penalty cases. The Arc and AAIDD filed amicus briefs in Atkins, Hall, and Moore to educate the Court on the clinical diagnosis of intellectual disability and ensure that the important precedent set in Atkins continues to be strengthened and upheld in jurisdictions around the country.

Maggie Nygren, EdD, Executive Director & CEO of AAIDD: “Twenty-two years post Atkins, people with intellectual disability, particularly people of color, are still vulnerable to wrongful convictions and death sentences. That’s because some states continue to rely on stereotypes rather than clinical standards for determining and defining intellectual disability.”

The amici have deep sympathy for the family and friends of victims in this case and support appropriate punishment of all responsible parties. However, it is critical that courts utilize clinical standards and abide by the Constitution. In Mr. Milam’s case, the State’s expert did not rely on clinical standards for diagnosing intellectual disability. This was after the State’s previous expert used the proper standards, concluding that Mr. Milam is a person with intellectual disability and should not be put to death.

This case in Texas could have far-reaching implications by undermining vital U.S. Supreme Court precedent on cruel and unusual punishment for people with intellectual disability. Executions have become less common as society’s perspectives on the death penalty have shifted. A growing number of states have been responding to these rising concerns by banning or putting a hold on executions. The pressure is mounting on other states to ensure their practices are constitutional.

The Arc and its partners will continue their fight to protect the rights of people with intellectual disability in the criminal justice system, ensuring that the Constitution’s protections extend to all.

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About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC, and never ARC. The Arc should be considered as a title or a phrase.

About The Arc of Texas: The Arc of Texas promotes, protects, and advocates for the human rights and self-determination of Texans with intellectual and developmental disabilities. Follow The Arc of Texas on Twitter, Facebook, and Instagram, and learn more at thearcoftexas.org.

About Disability Rights Texas: Disability Rights Texas is the federally designated legal protection and advocacy agency (P&A) for people with disabilities in Texas established in 1977. Its mission is to help people with disabilities understand and exercise their rights under the law, ensuring their full and equal participation in society. To learn more, visit our website: www.drtx.org.

About the American Association on Intellectual and Developmental Disabilities (AAIDD): Established in 1876, AAIDD is the oldest and largest professional society in the U.S. concerned with intellectual and developmental disabilities. AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with IDD. AAIDD engages its members and the general public through its three highly regarded professional journals, catalog of well-respected books and assessment tools, quality educational programming, and partnerships with other leaders within the disability community to address issues that are important to people with disabilities and their families.  Learn more at www.aaidd.org.

About Fried Frank: Fried Frank’s more than 750 lawyers are located in the key financial and government centers of New York, Washington, DC, London, Frankfurt and Brussels. The firm provides highly commercial guidance on sophisticated transactions, advises some of the largest private equity and asset management firms in the world, and develops effective litigation strategies to address its clients’ most critical challenges. More information can be found at www.friedfrank.com.