Picture of the front of the U.S. Supreme Court building in Washington, DC

Can You Still Choose Your Own Doctor on Medicaid? The Supreme Court Just Made It Harder

If you’re on Medicaid, you’re supposed to be able to choose your own doctor. That right still technically exists, but now you can’t go to court to enforce it if states take that choice away. The U.S. Supreme Court made that decision in Medina v. Planned Parenthood South Atlantic, ruling that Medicaid beneficiaries no longer have an enforceable right in court if they are denied the provider of their choice. This is a big deal, especially for people with disabilities who rely on doctors they trust to understand their complex needs. Here’s what the case was about, what the Court decided, and what it means moving forward.

What does the Medina v. Planned Parenthood Case Address?

This case asked a simple question: can people on Medicaid sue in court if they’re not allowed to choose their doctor or clinic? Under the Medicaid Act’s “free choice of provider” provision, Medicaid recipients are supposed to be able to go to any qualified and Medicaid-approved provider they choose. But if the ability to bring a lawsuit when their choice of provider is denied is taken away, they can no longer ask a court to step in for a remedy or solution.

What Are the Facts of the Case?

Julie Edwards is a Medicaid recipient with Type 1 diabetes. After being advised by her doctors that pregnancy would pose serious health risks, she sought contraceptive care at a Planned Parenthood clinic in South Carolina. There, she received the care she needed and follow-up treatment for her high blood pressure. She had such a positive experience at the clinic that she wanted to receive all her gynecological and reproductive care there if Medicaid would cover it.

Planned Parenthood South Atlantic serves both Medicaid and non-Medicaid patients and provides a broad range of services including contraception, cancer screenings, physical exams, and more. The clinics are known for offering more accessible, timely care—short wait times, same-day appointments, and extended hours—which is especially important for low-income patients, many of whom rely on Medicaid.

But in July 2018, South Carolina’s Governor issued an executive order instructing the state’s Department of Health and Human Services (DHHS) to stop making Medicaid payments to Planned Parenthood South Atlantic. The reason was to prevent the state from “subsidizing” abortion care, even though Medicaid already restricts funding for that service. Two weeks later, Julie and Planned Parenthood South Atlantic sued the Director of DHHS in federal district court, arguing that South Carolina had violated the federal Medicaid Act by ignoring the “free choice of provider” provision.

Both the U.S. District Court and the U.S. Court of Appeals for the Fourth Circuit agreed with the plaintiffs: Medicaid’s “free choice of provider” provision gives patients the legal right to choose any qualified provider, and that right can be enforced in federal court. South Carolina then asked the U.S. Supreme Court to overturn that interpretation.

What Did the Supreme Court Decide?

In a 6-3 ruling, the U.S. Supreme Court ruled that Medicaid’s “free choice of provider” provision doesn’t clearly give patients the right to sue if a state blocks their doctor choice. Instead, the Court explained that only the federal government can step in if states don’t follow Medicaid rules, not individual patients. This means if your state tells you that you can’t see a certain doctor using Medicaid, you can’t challenge it in federal court anymore.

Justice Ketanji Brown Jackson dissented, joined by Justices Sotomayor and Kagan. She warned that this decision would cause “tangible harm to real people. At a minimum, it will deprive Medicaid recipients in South Carolina of their only meaningful way of enforcing a right that Congress has expressly granted to them. And, more concretely, it will strip…countless other Medicaid recipients around the country of a deeply personal freedom: the ‘ability to decide who treats us at our most vulnerable.'”

The Arc’s Position

The Arc, along with the National Health Law Program and other partners, filed an amicus brief in this case. In it, we explained that, “allowing patients to choose a doctor who they trust and with whom they feel comfortable… is a critical component of patient autonomy, satisfaction, and even health outcomes… freedom of access to qualified providers compliments Medicaid’s primary goal of increasing access to health care for all.” Many people with disabilities need providers who understand their communication style, respect their autonomy, and can provide appropriate accommodations. When states remove that choice, it risks eroding access to quality care.

The Arc’s position statement on Human and Civil Rights states that the rights within federal laws like Medicaid must be protected and enforced by all levels of society. People with disabilities must be able to sue to enforce their rights when a state denies them. In our position statement on Health we add: “All people, including people with IDD, should have timely access to high quality, comprehensive, accessible, affordable, appropriate health care that meets their individual needs.”

How Does This Impact People with Disabilities?

This decision is a serious setback for the disability community and Medicaid beneficiaries nationwide. Many people with disabilities depend on Medicaid for health care, many of whom are unable to obtain coverage elsewhere. Disabled patients often face discrimination in health care settings and need doctors who understand their unique needs and communication styles. Being forced to see unfamiliar providers or providers who lack the training to accommodate disability-related needs can lead to worse care or no care at all. Now, under Medina, if states decide to force people with disabilities who are on Medicaid to use specific providers, patients wouldn’t be able to challenge that in court. The Court’s ruling overturns decades of precedent that protected this right in most lower federal courts.

Bottom line: You’re still allowed to choose your doctor on Medicaid. But if your state takes that choice away, it’s now impossible to fight back in court. People with disabilities deserve more control over their health care, not less.

Further Reading:

Medical equipment hanging on a wall in a medical office

What LabCorp v. Davis Means for Disability Rights and Class Action Lawsuits

The U.S. Supreme Court declined to issue a ruling in a case that could have had a major impact on how people with disabilities fight discrimination through class action lawsuits. The case, LabCorp v. Davis, involves blind patients who sued LabCorp over self-check-in kiosks that were inaccessible to them. While the Supreme Court ultimately didn’t weigh in on the central legal issue, the case still carries important implications. And the fight for accessible health care and public accommodations and a justice system that works for everyone is far from over.

What is the LabCorp v. Davis Case About?

This case is a class action lawsuit brought on behalf of blind people who cannot access LabCorp’s self-check-in kiosks at their medical offices. While the question before the U.S. Supreme Court was procedural, it went to the heart of how people with disabilities come together to challenge systemic discrimination, and whether class actions will remain a viable tool for enforcing the Americans with Disabilities Act (ADA). The ADA requires that health care facilities and any place open to the public must be accessible to people with disabilities.

What Are the Facts of the Case?

LabCorp is a company that provides laboratory services like blood work. Most of their locations now use self-service kiosks for check-in. However, these kiosks are inaccessible to blind and visually impaired patients. A group (or “class”) of blind patients sued LabCorp in a U.S. District Court in California, arguing that the company failed to provide an accessible check-in option for them and therefore violated the ADA. The ADA requires LabCorp’s services to be usable by people with disabilities. LabCorp argued that it did not discriminate because blind plaintiffs could check-in at the front desk instead.

The plaintiffs asked the court to let them bring the case as a class action, representing not just themselves, but all blind people who tried to use a LabCorp location with a kiosk and faced the same barrier. The District Court allowed the class action to proceed. LabCorp appealed, arguing that the class was too broad and included people who weren’t harmed by the inaccessibility of the kiosks, such as blind people who preferred speaking to a front desk attendant. The plaintiffs responded that the harm wasn‘t about personal preference but not having equal access to the same service offered to others.

Before the Court of Appeals could issue a decision, the District Court changed the class definition twice to include only blind people who couldn’t use the kiosks due to their disability. LabCorp didn’t appeal those changes, just the original definition. The Ninth Circuit then sided with the plaintiffs, affirming the original class definition and that the lawsuit could proceed as a class action. LabCorp then took the case to the U.S. Supreme Court.

What Did the U.S. Supreme Court Decide?

In an 8-1 decision, the Supreme Court dismissed the case without ruling on the core issue. That means that the Justices declined to say whether the class action was valid. Why? Because the lower court had already changed the class definition twice and the version LabCorp was challenging was no longer in play. The Supreme Court said it couldn’t make a ruling based on facts that had shifted.

The Arc’s Position

The Arc’s position statement on Human and Civil Rights stresses that the rights of people with disabilities under laws such as the ADA must be protected and enforced. Health care facilities and any place open to the public must be accessible to people with disabilities, including newer technology like the kiosks provided by LabCorp. Class action lawsuits are one of the most powerful ways people with disabilities can challenge discrimination on a systemic basis. If people are denied accessible services, they should be able to seek justice—not just for themselves, but for others facing the same barriers.

How Does This Case Impact People With Disabilities?

Although the Supreme Court did not rule on the key question, the outcome leaves the door open for future disability-related class actions in lower courts. This case highlights the urgent need for accessibility in health care, and how technology can create new barriers if inclusion isn’t built in from the start. Whether it’s checking in for an appointment, applying for a job, or accessing public services, people with disabilities deserve equal access. And when that access is denied, the legal system must be a place where systemic change is still possible.

Picture of the front of the U.S. Supreme Court building in Washington, DC

A Major Supreme Court Win: Discrimination Protections for Students With Disabilities

On June 12, 2025, the U.S. Supreme Court released its decision in A.J.T. v. Osseo Area Schools, a case that could’ve shook the very foundation of disability civil rights. The Court ruled that students with disabilities have the right to seek justice for discrimination in schools without facing legal barriers that don’t exist in workplaces, housing, or other areas of public life. Here’s why this case matters and what you need to know.

What is the A.J.T. v. Osseo Area Schools Case About?

This case is about whether federal disability rights laws require children with disabilities to meet a strict “bad faith or gross misjudgment” standard when suing because they experienced discrimination in K-12 public schools. This standard means that families would have to prove that school districts and/or administrators acted with a level of intent beyond negligence or indifference, requiring evidence of dishonesty, ill will, or a conscious disregard for the student’s rights This high standard is not required to prove disability discrimination in any other context, including in the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act, which only require showing that the defendant acted with “deliberate indifference.”

What Laws Protect Students With Disabilities?

The Individuals with Disabilities Education Act (IDEA) guarantees a free, appropriate public education for eligible students who have disabilities and need specialized instruction and related services. These services are established in an individualized education plan (IEP) that is created by the child’s parents and the school.

Section 504 of the Rehabilitation Act of 1973 prohibits discrimination in places that receive federal funding. Most, if not all, public schools receive federal funding. Section 504 requires schools to provide reasonable accommodations for students with disabilities. Reasonable accommodations can include allowing a child with diabetes to eat whenever necessary and not be limited to snack of lunch time.

The Americans with Disabilities Act bars discrimination in services provided by state and local governments. Public schools are operated by state or local governments. Like Section 504, the ADA requires schools to provide reasonable accommodations to students with disabilities.

What Are the Facts of the Case?

Ava is a student with epilepsy who needed evening instruction due to her seizures, which are so severe in the morning that she can’t go to school until noon. Due to this delayed start, she receives half the educational time as her peers do. Her parents asked for evening instruction to make up for these lost learning opportunities, but the school district denied their requests. Ava’s parents then sued, alleging violations of Section 504 of the Rehabilitation Act (Section 504) and the ADA.

Both the District Court and the Court of Appeals decided that a school district’s failure to provide reasonable accommodations is not enough to establish a violation of Section 504 and the ADA. Instead, the lower courts look to see if the school acted with “bad faith or gross misjudgment.” This is a hard standard to meet, and is only applied in certain jurisdictions. It is not applied to other ADA or Section 504 claims outside of school settings. After losing at the District Court and the Court of Appeals, Ava appealed to the U.S. Supreme Court.

What Did the U.S. Supreme Court Decide?

In a unanimous decision, the U.S. Supreme Court held that students should not have to show that a school acted in bad faith or with gross misjudgment in order to bring a Section 504 or ADA claim. The Court held that “ADA and Rehabilitation claims based on educational services should be subject to the same standards that apply in other disability discrimination contexts.”

The Court explained that the text of Section 504 and the ADA indicate that courts should not apply a higher standard for discrimination in the K-12 education context than they would in any other disability discrimination case. The ADA and Section 504 plainly applies to “qualified individuals with disabilities” without any reference to where the disabled person obtains a covered service. The U.S. Supreme Court acknowledged that students with disabilities “face daunting challenges. . . those challenges do not include having to satisfy a more stringent standard of proof than other plaintiffs to establish discrimination under” the ADA and Section 504.

The Court also refused to consider a sweeping argument seeking to gut federal disability rights laws by requiring people with disabilities to prove intent in every case of discrimination. That position is flatly inconsistent with the law and would have stripped millions of people with disabilities of the protections Congress put in place to prevent systemic discrimination. The very foundation of disability civil rights was on the line.

The Court made clear that schools cannot be held to a lower standard of accountability than other public institutions. Students with disabilities should not have to fight an uphill battle just to hold their schools accountable for unlawful discrimination.

The Arc’s Position

The Arc of the United States has a storied history with federal education laws. In 1971, before federal protections for people with disabilities existed, states were free to exclude children with disabilities from their public schools—and many did. Millions of children were denied an education, not because they couldn’t learn, but because our society didn’t believe they were worth educating. That changed because of federal action. Parents, led by The Arc, fought in court and won. Their victory laid the foundation for the IDEA, which secured the right to a free, appropriate public education for students with disabilities, regardless of the nature or severity of their disability

The Arc’s position statement on education states that all students ought to receive the education to which they are legally entitled; that is a free appropriate public education that includes fair evaluation, the right to progress, individualized supports and services, high quality instruction, and access to the general education curriculum in age-appropriate inclusive settings. All those involved in the education of students with disabilities must ensure that their individualized needs are taken into consideration, that they are challenged and have ambitious goals, and that their families have meaningful participation in the design and monitoring of their Individualized Education Programs (IEPs).

The Arc, alongside other disability rights organizations, submitted an amicus brief in support of the disabled student Plaintiff in A.J.T. The brief gave several case examples where a higher standard of proof enabled schools to freely discriminate against students with disabilities.

How Does This Case Impact People With Disabilities?

This case is important to both students and parents of students with disabilities. The ADA and Section 504 provide relief from education-related discrimination, but many courts applied the gross misjudgment standard. This standard made it harder for students to seek relief in federal court. By overturning that standard, the U.S. Supreme Court’s common-sense decision in A.J.T. v. Osseo Area Schools will allow more disabled people to vindicate their rights in a court of law. The Court restored the full protection of federal disability nondiscrimination law to millions of disabled students. This case was a victory for students with disabilities and their families.

Where Can I Learn More?

AJT v. Osseo Area Schools Case Page

A picture of a brown gavel against a white background

Challenging Segregation of Children With Disabilities in Foster Care

In May 2025, The Arc and other disability rights organizations filed an amicus brief in support of the Plaintiffs-Appellants in the case Jonathan R. v. Morrisey. The case is about children with disabilities challenging disability discrimination in a state foster care system, and the ability of the district court to grant them relief.

What Are the Facts About Jonathan R. v. Morrisey?

The plaintiffs are children with disabilities in West Virginia’s foster care system. The plaintiffs filed this class action lawsuit claiming that state officials discriminated against them by failing to provide foster care services in integrated settings.

By law, people with disabilities should receive services in the setting that allows them to interact with non-disabled people to the fullest extent possible. This is required by Title II of the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act, and reinforced by the U.S. Supreme Court’s decision in Olmstead v. L.C. ex rel. Ziming.

The plaintiffs alleged that West Virginia is placing children with disabilities in segregated settings, in violation of the ADA and Section 504. The plaintiffs asked that the court declare the actions of the West Virginia Department of Human Services (DHS) to be unconstitutional and that the court grant relief that will reform DHS and ensure that it follows federal disability law. Specifically, the plaintiffs seek what is called systemic injunctive relief, which aims to change the child welfare system as a whole. Systemic injunctive relief focuses on remedying larger issues with a service system, instead of narrow/individual violations of the law.

The district court dismissed the case on the grounds that it did not have the power to grant relief because doing so would put the court in the position of policy maker. The court also held that the West Virginia foster children did not have standing to pursue their claims. The plaintiffs appealed to the U.S. Court of Appeals for the Fourth Circuit.

Why Does This Case Matter for People With Disabilities?

Children with disabilities in the child welfare system are entitled to be served in the most integrated setting appropriate to their needs, but this is often not the reality. Federal courts have the power to protect the rights of people with disabilities through systemic relief. If the appeals court upholds the district court’s decision, it will make it significantly more difficult for people with disabilities to seek systemic injunctive relief for violations of the ADA and Section 504.

What Is The Arc’s Position?

In our amicus brief, The Arc its and partners explain that children with disabilities in West Virginia’s foster care system are being unlawfully segregated in residential institutions and other types of facilities, instead of receiving services in community-based settings. The plaintiffs have the right to sue under those laws to challenge that segregation in federal court. Because discrimination against people with disabilities often occurs across a system of government services, courts regularly offer systemic relief to end a systemic violation of federal disability rights.

The Arc joined this amicus brief because of our position statement on early childhood services, which states that “substantial research and successful experience have established that early childhood services should be delivered in natural settings and, to the maximum extent possible, with same-aged peers who do not have disabilities.” Additionally, The Arc’s position statement on Human and Civil Rights states that “all people with IDD have the right to accommodations, assistance, and supports they need to exercise and ensure their human and civil rights.” Human and civil rights include the right to justice, equality, well-being, and equality of opportunity.

Courts have the power to grant appropriate systemic injunctive relief when it is necessary to remedy discrimination against people with disabilities.

Where Can I Find More Reading?

Jonathan R. v. Morrisey Case Page

Picture of the front of the U.S. Supreme Court building in Washington, DC

Why This Supreme Court Case Matters for Students With Disabilities

Oklahoma Statewide Charter School Board v. Drummond/St. Isadore of Seville Catholic Virtual School v. Drummond

In May 2025, the U.S. Supreme Court couldn’t agree on a big case about whether a religious school in Oklahoma should get public money. Because the justices were split 4 to 4, the lower court’s decision stayed in place. That means the school won’t get state funding.

This case matters for students with disabilities. When public money goes to private or religious schools, those schools don’t always have to follow the same laws that protect students with disabilities. That can take away important rights and supports kids need to learn.

Here’s what you need to know.

What Is This Case About?

The U.S. Supreme Court was asked to weigh in on whether states can use taxpayer money to fund religious charter schools. Under the U.S. Constitution’s First Amendment, there are limits on government involvement with religion—including funding.

What Are the Facts of the Case?

In this case, Oklahoma approved a charter for St. Isidore of Seville Catholic Virtual School, a religious school funded with public dollars. Private charter schools are outside of a traditional public school system, as a public school district contracts with a private entity to create the school. However, many charter schools are funded by public tax dollars, just like a traditional public school. Thus, these public charter schools are public schools under Oklahoma law and must follow federal civil rights laws. They also must not promote any one religion. So, the state of Oklahoma sued to cancel its contract with the school. The Oklahoma Supreme Court agreed and ruled that the religious charter school was unconstitutional. St. Isidore appealed to the U.S. Supreme Court.

What Did the Supreme Court Decide?

In May 2025, the U.S. Supreme Court issued a 4-4 split decision. Because Justice Amy Coney Barrett recused herself and the remaining justices were evenly divided, the lower court’s ruling stood. That means that the Oklahoma Supreme Court’s decision remains in effect: that the religious charter school was unconstitutional and public money cannot be used to fund this religious charter school.

The Arc’s Position

The Arc’s position statement on education states that every student deserves a quality education—and the law is clear that students with disabilities have the right to:

  • A free and appropriate public education
  • Individualized supports and services
  • Inclusion in general education classrooms
  • Equal access to academics, extracurriculars, and more

When schools receive public funding—whether traditional, charter, or when a private school enrolls a student with a disability who is publicly placed in that private school—The Arc maintains that they are required to follow federal civil rights laws like the Individuals with Disabilities Education Act (IDEA), Section 504 of the Rehabilitation Act, and the Americans with Disabilities Act (ADA).

Traditional private and religious schools that do not receive public funds are largely not required to follow these laws. As explained in an amicus brief on behalf of the National Center for Learning Disabilities, religious charter schools receiving public funding would be required to serve students with disabilities to the same extent as other public schools but would likely be unable to meet their full range of needs The impact would be compounded by the overall inexperience of religious schools in accommodating the needs of students with disabilities. Religious schools may also seek First Amendment exemptions from these requirements.

Because traditional public schools must be open to all, requiring them to share funding with religious charter schools while still educating the majority of students with disabilities would further strain their resources and jeopardize the quality of the education they can provide.

That’s why The Arc strongly opposes the use of public money for schools that may be more likely to deny students with disabilities their rights.

How Does This Case Affect Students With Disabilities?

This decision protects students in Oklahoma—but it also sends a national message. Letting public dollars flow to religious private charter schools without ensuring full civil rights protections and adequate funding would harm students with disabilities.

Families should never have to give up their child’s legal rights just to find a school that works for them. But that’s what can happen when private charter programs don’t guarantee equal access. Money is taken from public schools—where federal protections apply—and given to schools where they often don’t or offer more limited protections. That can mean no individualized education plan, no supports, no recourse.

This case helps stop that from happening in Oklahoma. And it’s a win for the rights of students with disabilities.

Further Reading

Red, white, and blue stickers that say "I Voted."

Federal Court Rules Texas S.B. 1 Violates Rights of Voters with Disabilities Under the ADA and Section 504

WASHINGTON, DC – In a major victory for disability rights, a federal court has ruled that Texas Senate Bill 1 (S.B. 1) violates the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act by imposing significant barriers to voting for people with disabilities. The ruling, issued by Judge Xavier Rodriguez of the U.S. District Court for the Western District of Texas, declares that several provisions of S.B. 1 disenfranchise disabled voters, reinforcing that the state’s “know-nothing-do-nothing” approach to ADA compliance in elections is unlawful.

“This decision sends a clear message: systemic barriers that prevent people with disabilities from fully participating in the electoral process are illegal,” said Shira Wakschlag, Senior Director of Legal Advocacy and General Counsel for The Arc of the United States. “The court carefully considered the experiences of The Arc’s members—voters with disabilities and their assistors—and found that S.B. 1 subjected them to barriers that blocked their voices on issues that directly impact their daily lives, stripping them of their fundamental right to participate in our democracy. Even when voters with disabilities managed to cast a ballot, they endured significant burdens that are themselves violations of federal law. This ruling affirms that the right to vote must be more than theoretical—it must be meaningful, accessible, and free from unnecessary hardship. The Arc celebrates this decision and will continue fighting nationwide to protect the rights of voters with disabilities.”

This ruling makes it clear that “Texas voters with disabilities deserve better,” the court concluded. “And the ADA and Section 504 demand more.”

The court found that, contrary to the state’s argument, voters with disabilities should not have to fight through unnecessary obstacles just to exercise their fundamental right to vote. Public entities have an affirmative obligation under the ADA and Section 504 to proactively ensure accessibility, rather than waiting for voters with disabilities to request accommodations. The ruling also emphasized the real harm caused by criminalizing voter assistance—an issue exacerbated by the ongoing crisis in the direct care workforce—and creating barriers to voting by mail.

“This decision not only validates the inequitable barriers faced by Texans with disabilities when voting—it puts a stake in the ground that nothing short of true, meaningful voting accessibility is acceptable under the law,” said Jennifer Martinez, CEO of The Arc of Texas. “This ruling recognizes the powerful testimony from our members who bravely shared their experiences in court. Their voices changed history.”

S.B. 1, enacted in 2021 under the guise of election integrity, imposed a maze of restrictions that disproportionately harmed voters with disabilities. Among its most damaging provisions, the law:

  • Criminalized certain forms of voter assistance, deterring family members, caregivers, and others from helping voters with disabilities navigate the voting process;
  • Created burdensome ID requirements for mail-in ballots, leaving many voters—especially those who lack access to reliable transportation—unsure whether their ballot would be accepted;
  • Forced voters with disabilities to navigate an intimidating system that threatened their privacy and put their assistors—many of whom are immigrants and people of color—at risk of criminalization, while preventing election officials from taking proactive steps to ensure accessibility.

The Arc of the United States and The Arc of Texas, alongside civil rights groups including the Legal Defense Fund (LDF), Delta Sigma Theta Sorority, Inc., and the Houston Area Urban League, and the law firms Arent Fox Schiff and Reed Smith, have been fighting this law in court since it was enacted. This latest ruling builds on a previous decision from October 2024, in which the court found that sections of S.B. 1 violated the Voting Rights Act by limiting the right of voters with disabilities to receive assistance from the person of their choice. This new decision goes even further by addressing vote-by-mail restrictions and voter assistance criminalization—key issues that disproportionately impact voters with disabilities.

“This ruling is a significant triumph for the three million voters with disabilities across Texas and the ongoing fight for an inclusive democracy,” said Jennifer A. Holmes, Deputy Director of Litigation at the Legal Defense Fund. “The Court’s decision strikes down barriers that unfairly burdened and excluded voters with disabilities, ensuring they can exercise their fundamental right to participate in the franchise. The right to vote is illusory if election procedures are not accessible to all voters. This ruling strengthens the fairness of our electoral system by ensuring equal access to the ballot box.”

“At trial, the Court heard testimony regarding the significant barriers disabled voters face in any election and that S.B. 1 exponentially compounded issues people with disabilities faced,” said J. Michael Showalter, partner at ArentFox Schiff. “We were proud to stand with our clients Delta Sigma Theta Sorority and The Arc of Texas in removing barriers that limited Texans’ with disabilities rights to cast their votes.”

The court’s permanent injunction prohibits Texas state and county election officials from enforcing the challenged provisions of S.B. 1, though the ruling is stayed until after the May 2025 election under the Purcell principle.

The Arc remains committed to ensuring that every person with a disability has equal access to the ballot and will continue to fight voter suppression laws that undermine this fundamental right.

###

About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who knew their disabled children deserved more, The Arc is now the largest grassroots organization for people with IDD with nearly 600 chapters in 48 states and Washington, DC. Together, we are promoting and protecting the rights of people with disabilities and supporting their inclusion throughout their lives—from education to employment to community living. There are approximately 7.4 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

About The Arc of Texas: The Arc of Texas is a statewide advocacy organization that promotes, protects, and advocates for the human rights and self-determination of Texans with intellectual and developmental disabilities (IDD). We envision a world where Texans with intellectual and developmental disabilities are included in their communities with quality support and services that meet their needs and choices. The Arc of Texas focuses on four policy pillars impacting Texans with IDD: 1) quality of life (community supports and services), 2) inclusive education, 3) integrated employment, and 4) civil rights and justice.

A view of a young girl from behind swinging outside

National Disability Rights Organizations Urge U.S. Supreme Court to Protect Rights of Youth With Disabilities in Key Education Case

WASHINGTON, DC – A coalition of national disability rights organizations is urging the U.S. Supreme Court to protect the civil rights of students with disabilities in AJT v. Osseo Area Schools, a landmark case that could determine how disability discrimination claims are handled in schools. In an amicus brief filed this week, these organizations, including The Arc, argue that students with disabilities should not face a higher legal standard when seeking justice for discrimination in schools—one that does not exist in other settings covered by the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act (Section 504).

“This case is about whether students with disabilities should have to clear a higher legal hurdle to seek justice for discrimination in school—one that doesn’t exist in workplaces, housing, or other settings,” said Shira Wakschlag, Senior Director of Legal Advocacy & General Counsel at The Arc of the United States. “No child should have to fight an uphill battle just to hold their school accountable for discrimination. Schools must be held to the same standards as every other public entity—plain and simple.”

At the heart of the case is a legal standard applied in some courts that makes it much harder for students with disabilities to prove discrimination in school compared to other settings. Under this stricter rule, students must prove that their school acted with “bad faith” or “gross misjudgment”—a standard that does not apply in workplace, housing, or other discrimination claims under the ADA and Section 504.

Decades ago, the Eighth Circuit Court created this higher standard for students in school settings, and since then, several other courts have followed. As a result, countless students with disabilities have had their claims rejected simply because they couldn’t meet this excessive burden of proof. Disability rights advocates argue that this rule contradicts federal disability laws and makes it much harder for students to hold schools accountable when they face discrimination.

“It is imperative that we protect student civil rights under Section 504 and the ADA, for students who have suffered compensable harms from disability discrimination,” said Selene Almazan, Legal Director at the Council of Parent Attorneys and Advocates (COPAA). “The legal rule whose demise is sought in this case—the bad-faith-or-gross-misjudgment standard—cannot be squared with the text or purposes of Section 504 and the ADA which undergird protections for millions of children with disabilities attending K-12 schools.”

Families already struggle to secure the support and services their children need to thrive—this additional legal barrier only makes it harder for them to fight back when their rights are violated.

The Supreme Court will hear oral arguments on April 28, 2025.

Amici curiae include: Council of Parent Attorneys and Advocates, The Arc of the United States, Bazelon Center for Mental Health Law, Children’s Law Center, Disability Rights Education & Defense Fund, Education Law Center, Learning Rights Law Center, Minnesota Disability Law Center, part of Mid-Minnesota Legal Aid, National Center for Youth Law, National Disability Rights Network, National Health Law Project, and the Washington Lawyers Committee for Civil Rights and Urban Affairs.

###

About The Arc of the United States: The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who knew their disabled children deserved more, The Arc is now the largest grassroots organization for people with IDD with nearly 600 chapters in 48 states and Washington, DC. Together, we are promoting and protecting the rights of people with disabilities and supporting their inclusion throughout their lives—from education to employment to community living. There are approximately 7.4 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

A row of parked school buses

Parents & Students With Disabilities Can Continue Their Fight for Safe & Reliable Transportation

WASHINGTON, DC – For countless families in the District of Columbia, the daily trip to school is fraught with anxiety due to unsafe and unreliable transportation services for students with disabilities. Today, a federal judge signaled hope for change and cleared the way for parents and guardians of children with disabilities and The Arc of the United States (The Arc) to pursue their case against the District of Columbia (DC) for failing to provide them with safe, reliable, and effective transportation to school. According to the decision by Judge Paul L. Friedman of the District Court of DC, students with disabilities have the right under federal disability rights laws to seek “structural relief that serves all children with disabilities.” The decision affirms that there is a remedy when children with disabilities are denied equal access to education.

The complaint, filed in March 2024, alleges that DC’s Office of the State Superintendent for Education (OSSE) denies students equal access to their education in violation of federal and local disability and civil rights laws by failing to provide students with transportation to and from school. Unsafe or unreliable transportation often means missed school days, interrupted learning, and barriers to building essential relationships and skills. According to the complaint, buses routinely arrive very late to pick students up from their homes, or do not arrive at all; students are left stranded at school without guaranteed transportation back home; students spend excessive time on buses, and students do not get the accommodations they need to ride safely. The plaintiffs are represented by The Arc, Washington Lawyers’ Committee for Civil Rights, Children’s Law Center, and McDermott Will & Emery.

By allowing The Arc to proceed as a plaintiff on behalf of its members, the decision reinforces the important principle that advocacy groups can and should bring litigation to secure the rights of its members under the IDEA and ADA. The decision, relying in part on the Department of Justice’s Statement of Interest filed in this case, also rejects the notion that students with disabilities need to meet a heightened standard in order to bring education discrimination claims.

“The buses meant to help children with disabilities build their education and futures are instead perpetuating their exclusion. This is not just a matter of tardiness or inconvenience—it’s stealing children’s opportunities to learn, grow, and connect with their peers,” said Shira Wakschlag, Senior Director of Legal Advocacy & General Counsel for The Arc of the United States. “Fighting for this change is about ensuring that our school systems work for and include all students. Today’s ruling affirms the right of students with disabilities to access their education without barriers. While there is still work ahead, this is an important step forward for systemic change.”

“The decision today will allow parents to keep seeking changes to a transportation system that so far has failed to deliver,” said Kaitlin Banner, Deputy Legal Director for the Washington Lawyers’ Committee for Civil Rights and Urban Affairs. “Our clients are ready to press forward and ensure that they will not endure another school year without access to their education.”

“I’m excited that the case is moving forward,” shared plaintiff Ms. Joann McCray and mother to 12-year-old boy who has faced ongoing bus transportation issues. “I hope that this can be the beginning of some real systemic change for my son and others.”

“With Judge Friedman’s reasoned decision, it is full speed ahead to obtain the District’s documents and testimony in advance of trial,” said Eugene Goldman, Senior Counsel at McDermott Will & Emery.

Click Here To Read the Opinion

###

About The Arc of the United States
The Arc advocates for and serves people with intellectual and developmental disabilities (IDD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy, and other diagnoses. Founded in 1950 by parents who believed their children with IDD deserved more, The Arc is now a network of nearly 600 chapters across the country promoting and protecting the human rights of people with IDD and actively supporting their full inclusion and participation in the community throughout their lifetimes. Through the decades, The Arc has been at the forefront of advances in disability rights and supports. There are over 7 million people with IDD in the United States, which encompasses over 100 different diagnoses. Visit www.thearc.org or follow us @TheArcUS to learn more. Editor’s Note: The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

About Children’s Law Center
Children’s Law Center believes every child should grow up with a strong foundation of family, health and education and live in a world free from poverty, trauma, racism and other forms of oppression. Our more than 100 staff – together with DC children and families, community partners and pro bono attorneys – use the law to solve children’s urgent problems today and improve the systems that will affect their lives tomorrow. Since our founding in 1996, we have reached more than 50,000 children and families directly and multiplied our impact by advocating for city-wide solutions that benefit hundreds of thousands more. For more information, please visit www.childrenslawcenter.org.

About the Washington Lawyers’ Committee for Civil Rights and Urban Affairs
The Washington Lawyers’ Committee for Civil Rights and Urban Affairs partners with community members and organizations on scores of cases to combat discrimination in housing, employment, education, immigration, criminal justice reform, public accommodations, based on race, gender, disability, family size, history of criminal conviction, and more. The Washington Lawyers’ Committee has secured a relentless stream of civil rights victories over the past five decades in an effort to achieve justice for all. For more information, please visit www.washlaw.org.

About McDermott Will & Emery
McDermott Will & Emery partners with leaders around the world to fuel missions, knock down barriers and shape markets. Our team works seamlessly across practices and industries to deliver highly effective solutions that propel success. More than 1,400 lawyers strong, we bring our personal passion and legal prowess to bear in every matter for our clients and the people they serve. For more information, please visit www.mwe.com.

A picture of a fence against a green background

The Arc Joins Other Stakeholders to Call on Biden to Commute Federal Death Sentences

The Arc of the United States joined hundreds of stakeholders from across the political and faith spectrums to call on President Biden to commute federal death sentences before he leaves office. Several men on death row have intellectual disabilities, despite U.S. Supreme Court rulings that prohibit their execution.

Below is our full letter that was sent to President Biden on December 2, 2024.


Dear President Biden,

The Arc of the United States, founded in 1950, is the largest organization of and for people with intellectual and developmental disabilities in the country. Together with nearly 600 statewide and local chapters, The Arc promotes and protects the human and civil rights of people with intellectual and developmental disabilities, supporting their full inclusion and participation in the community throughout their lifetimes.

President Biden, we address you with urgency regarding the decision you must make about exercising your power to review the records of and grant sentence commutation to any individual on federal death row who has demonstrated a diagnosis of intellectual disability. Based on what we know about the federal death penalty as it affects people with intellectual disability, we urge you to show mercy and, consistent with the platform on which you ran for President, act to spare the lives of those with intellectual disability currently on federal death row.

The Arc has long advocated for capital defendants with intellectual disability. We were encouraged when the Supreme Court, in Atkins v. Virginia, recognized their vulnerability to wrongful conviction and excessive punishment and held that the Constitution prohibits executing people with intellectual disability. We were optimistic when, in subsequent decisions like Hall v. Florida and Moore v. Texas, the Court rejected reliance on arbitrary IQ cutoffs and stereotypes for diagnosis and when it held that determinations of intellectual disability must be made in accordance with the best medical science and well-established clinical standards.

However, we have seen first-hand that these safeguards often fail. In both state and federal courts, people with intellectual disability are repeatedly tried, convicted, sentenced to death, and – tragically – executed, notwithstanding the constitutional bar. In 2020 and 2021, The Arc was dismayed to see the federal government execute Corey Johnson and Alfred Bourgeois, who had both been diagnosed with intellectual disability by highly regarded experts in the field; men whose disabilities were entirely overlooked or inadequately investigated by their trial counsel.

These men’s deaths – these executions by our federal government – were breaches of constitutional safeguards. And unless you act, President Biden, we are poised to see deaths like these again, because similar problems exist on federal death row today.

For example, Chadrick Fulks, who is currently on federal death row, has structural brain damage stemming from prenatal alcohol exposure and has suffered from significant cognitive and adaptive deficits since birth. At the time his initial § 2255 motion was filed, six mental health experts had concluded that Mr. Fulks had significant impairments, but that his IQ was just above the then-imposed cutoff score for a formal diagnosis of intellectual disability to be made under the diagnostic standards in place at that time. As a result of advancements in the fields of IQ testing and intellectual disability, diagnostic standards have since rejected hard IQ-score cutoffs in the diagnosis of intellectual disability. Additionally, current diagnostic standards now require that these scores be corrected for the inflation that occurs as IQ tests age. Under these current standards, Mr. Fulks’s IQ score falls squarely within the range for intellectual disability, he meets all other criteria for the diagnosis, and multiple experts have diagnosed him as a person with intellectual disability. However, because the courts have refused to hear Mr. Fulks’s intellectual disability claim on procedural grounds, he will be eligible for execution should executions resume even though he is a person with intellectual disability and his execution should be prohibited under Atkins.

Several other men currently under federal death sentence have been diagnosed with intellectual disability by developmental disability experts. Others have amassed strong evidence of cognitive deficits that point to such a diagnosis, but the posture of their case precludes review of their claim. Although the Supreme Court has rejected scientifically unreliable diagnostic standards, federal prosecutors nevertheless stand by findings that were based on such methods, as in the example above, and consistently oppose any court review on procedural grounds or rely on those same antiquated standards to rebut the claim. Even when judges would like to grant relief, or just a hearing, they find that their hands are tied and they cannot provide the relief the constitution requires.
At this time, then, there are men on federal death row with well-established diagnoses of intellectual disability and others with strong but unreviewed claims of intellectual disability. You would not subject any of these men to execution, but they will die if you do not act. It happened when Corey Johnson and Alfred Bourgeois were executed. Morally, ethically, and legally, we believe this calls for the mercy that is your executive prerogative.

We know that the men on federal death row caused terrible, irreparable harm. The Arc has deep sympathy for the victims of these crimes and for their families and friends. The Arc supports, without reservation, the appropriate prosecution and punishment of all responsible parties. The Arc does not seek to eliminate punishment of people with disabilities but, rather, to ensure that justice is served and the rights of all are protected, so that any punishment is consistent with the constitutional restrictions of the Eighth Amendment.

Because of our work and expertise in this area, we are aware that a person’s disability is sometimes not discovered until a later stage of their case, and that it can be misunderstood or overlooked by the judges and juries who are making decisions about their lives – and sometimes even by their own lawyers. We are concerned that this creates a great risk that a capital defendant will not have their ID properly identified and acknowledged in time for the courts to intervene.

We write to express our concern with this risk, as well as our hope that whatever actions you choose to take regarding the federal death row are done with respect for the spirit of the Atkins decision.

President Biden, you can ensure that those with intellectual disability are removed from the risk of wrongful execution. This would be a significant step toward addressing the systemic flaws that have allowed the execution of people with intellectual disability, contrary to the Constitution and federal law. It would be a proud legacy for you and for the American people.
We are grateful for your consideration and for your service as our President.

Respectfully,

Katy Neas
Chief Executive Officer
The Arc of the United States

The Arc logo

Ensuring People With Disabilities Have Opportunities for Meaningful Relief Under Disability Civil Rights Laws

This fall, The Arc of the United States and other disability rights organizations filed an amicus brief in a case before the U.S. Court of Appeals for the Ninth Circuit called Payan v. Los Angeles Community College District. The case is about what kind of damages Plaintiffs can receive when they file lawsuits under the Americans with Disabilities Act (ADA). Here’s what you need to know about this case and how we’re working to ensure people with disabilities continue to have multiple avenues for relief under federal disability rights laws.

Background on the Case

When you file a lawsuit under the ADA, two types of remedies are available:

  1. Injunctive relief stops future violations of the ADA. For example, a court may order a defendant to change its policies around reasonable accommodations so that it will not deny accommodations to disabled people in the future.
  2. Money damages pay plaintiffs for the past harm of discrimination. Damages may be measured in many different ways, including lost work hours, lost opportunity to participate in a service, or emotional distress.

In 2017, two blind students and two organizational plaintiffs sued the Los Angeles Community College District (LACCD), alleging that LACCD failed to reasonably accommodate the blind students’ disabilities by refusing to provide educational materials in an accessible format. The Plaintiffs won at trial and were awarded $50,000 in damages. LACCD appealed to the Ninth Circuit in 2021, which overturned the district court’s judgment and sent the case back to the district court for a new trial.

At the conclusion of the second trial, the jury again found that LACCD had intentionally violated the ADA in fourteen ways. The jury awarded $242,500 in damages to the Plaintiffs, replacing the prior jury award. However, the district court reduced the financial compensation to a paltry $1,650. Its reasoning was that following the U.S. Supreme Court’s decision in a case called Cummings v. Premier Rehab Keller, emotional distress damages are unavailable under the ADA. The district court also entered a narrow permanent injunction against LACCD that only addressed certain violations of the ADA, such as inaccessible library materials and an inaccessible website. The injunction did not address many of the fourteen violations that the jury had found. The Plaintiffs appealed to the Ninth Circuit again, arguing that the district court had improperly reduced the damages and had ignored the jury’s findings in issuing a narrow injunction.

Why We Filed an Amicus Brief

In November 2024, The Arc and its partners filed an amicus brief in support of the Plaintiffs in Payan. The amicus brief makes these arguments:

  • The district court’s injunction failed to remedy all fourteen violations of the ADA found by the jury. It ignored violations around inaccessible course materials, ineffective accommodations policies, and lack of training for LACCD disability personnel.
  • The district court should not have relied on Cummings in reducing the Plaintiffs’ financial compensation. Cummings is not about the ADA and only concerns remedies available under Section 504 of the Rehabilitation Act. Cummings should not be extended to cover the remedies available under the ADA.
  • Even if Cummings does apply, it does not reach the damages at issue in this case. The jury awarded the Plaintiffs damages for lost educational opportunity, not emotional distress. Damages for lost educational opportunity are still available post-Cummings, and the district court was wrong to reduce the damages award here.

Why This Case Matters for People With Disabilities

Disability rights statutes like the ADA are meant to root out discrimination in all areas of society, including employment, government services, and private businesses. Courts must issue broad injunctive and monetary relief when a jury has found proven violations of the ADA. This serves to deter future violations of the ADA, and also puts other potential defendants on notice that this type of discrimination will not be tolerated.

The Arc’s Position

The Arc participated in this amicus brief because we believe that people with disabilities should have the same human rights as all people and are entitled to the same benefits and legal protection of their civil rights. In our position statement on Human and Civil Rights, we share that people with disabilities:

…are entitled to exercise their rights and to have their human rights and civil rights respected. When their rights are violated, people with [disabilities] are entitled to protection, rights restoration, and compensation for losses.  All people with [disabilities] have the right to accommodations, assistance, and supports they need to exercise and ensure their human and civil rights. Local, state, federal, and international governments must strongly enforce all human and civil rights.

The Arc has been involved with the fight to pass, implement, and defend the ADA since the law’s inception in 1990. We have filed numerous amicus briefs and rely on the ADA in our own litigation efforts every day. We will not rest until every person with intellectual and developmental disabilities can protect their rights to the fullest extent of the law.

What’s Next

The Arc will continue to watch this case as it is argued before the Ninth Circuit. We will continue to fight for an expansive view of the ADA and its protections in courts across the country.