Fruit lined up on shelves at a grocery store

What You Need to Know About SNAP and WIC if the Government Shutdown Continues

Updated Oct. 29, 2025, 12:38 p.m. ET

If the government shutdown continues, people who rely on SNAP and WIC may not receive their full food benefits starting November 1, 2025.

SNAP is the Supplemental Nutrition Assistance Program, also known as food stamps. It provides food benefits to low-income families to supplement their grocery budget so they can afford the nutritious food essential to health and well-being. WIC is the Special Supplemental Nutrition Program for Women, Infants, and Children. It’s a short-term program that safeguards the health of low-income women, infants, and children up to age 5 by providing food, nutrition education, and healthcare referrals.

For families already stretched thin, this lapse in benefits could mean impossible choices between food, rent, medicine, utilities, and more. People with disabilities already face higher rates of poverty and food insecurity, putting them more at risk.

Food is not optional. Every person deserves food security, not fear.

What is The Arc doing to protect SNAP and WIC benefits? The Arc is calling on state and federal policymakers to protect people with disabilities and low-income families from losing access to food. Here’s what’s happening, what you can do, and what policymakers must do now.

How Will the Government Shutdown Affect SNAP and WIC Benefits in November?

  • Will SNAP benefits be delayed during the government shutdown? Unless the shutdown ends soon, many people may not receive their full monthly SNAP benefits starting November 1st.
  • Will WIC benefits still be available in November? Some states may run out of WIC funding in early November. How long benefits last will depend on your state’s remaining funds.
  • What do beneficiaries need to know about new SNAP work requirements? Millions of people applying for or renewing SNAP will face new work requirements, known as “time limits,” starting in November.
  • Can food banks replace lost SNAP benefits? Food banks and local charities are already stretched thin and cannot replace SNAP, especially as demand for food assistance increases around the holidays. For every meal a food bank provides, SNAP provides nine.

What Can Policymakers Do to Protect SNAP and WIC During the Shutdown?

  • What actions should the Administration take right now?
    • Use available resources to pay SNAP and WIC benefits in November. If full benefits cannot be funded, issue partial benefits.
    • Immediately release SNAP’s contingency funds (about $6 billion) to help states pay benefits.
    • Use any available legal authority to increase SNAP and WIC funding.
    • Give states clear guidance to continue processing applications and keep benefits ready to go.
  • What steps should Congress take to prevent food benefit cuts?
    • Reverse harmful cuts to SNAP.
    • Roll back expanded work requirements passed in the reconciliation bill that threaten people with disabilities, older adults, and parents.
    • Restore funding for other programs that help feed communities, including the Emergency Food Assistance Program, the Local Food Purchase Assistance Program, and the Local Food for Schools Program.
  • How can states keep SNAP and WIC running?
    • Use state emergency funds to cover temporary SNAP or WIC gaps.
      • Example: Colorado approved $7.5 million to keep benefits flowing.
      • Example: Nevada tapped its disaster relief account to cover WIC payments.
    • Send clear, accessible notices to all beneficiaries about what to expect.
    • Continue processing applications and protect residents from utility shutoffs and evictions.

What Should SNAP and WIC Recipients Do if the Government Shutdown Continues?

  • Are my October SNAP benefits safe? Yes, October SNAP benefits have been funded and loaded to EBT cards. You can keep using your card as usual. These benefits will not expire at the end of the month.
  • What will happen to my SNAP benefits in November? If the shutdown continues, new benefits will come later than usual. Once the government reopens, missed payments will be reimbursed.
    • You will not lose benefits permanently due to the shutdown. A delay is not the same as being cut off. Keep your contact information up to date so you receive notices.
  • Can I apply or renew SNAP or WIC during the shutdown? If you’re applying or recertifying, you should submit your application as soon as possible. Even if processing is delayed, applying now ensures your case moves forward quickly when the shutdown ends.
    • If you applied for or were approved for SNAP benefits in October, you might experience delays receiving retroactive benefits for October 2025. This will vary depending on the state you live in.
  • How can people with disabilities qualify for exemptions from SNAP work rules? Keep an eye out for a notice from your state’s SNAP office about new work requirements. If you have a disability, you may qualify for an exemption from the work requirement. Contact your SNAP caseworker or state office with any questions.
  • How can I protect my SNAP or WIC benefits? Visit your local SNAP office website and sign up for updates. Make sure your state’s SNAP program has your correct mailing address, phone number, and email. You can find your state’s SNAP office here: https://www.fns.usda.gov/snap/state-directory

Where Can I Find Food Assistance or Local Resources Near Me?

  • FindHelp: Locate food banks, housing, financial assistance, and more.
  • FoodFinder: Find food pantries near you.
  • USDA National Hunger Hotline: Call 1-866-3-HUNGRY or 1-877-8-HAMBRE (7 a.m. – 10 p.m. ET) or text FOOD to 914-342-7744.
  • FullCart: Sign up for free food delivered to your home (please note that there’s a waitlist for this service).
  • 211: Call 211 or visit 211.org for local help with food, housing, utilities, and more.

Why Do SNAP and WIC Delays Matter for People with Disabilities and Families?

SNAP feeds about 42 million people (one in eight Americans), including 16 million children, 8 million older adults, and more than 4 million people with disabilities. WIC supports nearly 7 million pregnant and postpartum women, infants, and young children. Even short disruptions can harm child nutrition and development.

November is always a critical month for families preparing for colder weather and the holidays. Losing food assistance now could push millions deeper into poverty.

Food is not optional. It is dignity, stability, and survival.

Take Action: Tell Congress to Fund SNAP Now

Millions of people, including millions with disabilities, are at risk of losing access to food assistance during this shutdown. Policymakers have the power to fix this, but they need to hear from you. Your voice matters. Urge your elected officials to take all possible measures to fund SNAP and prevent hunger for people with disabilities and low-income families.

Send your message now

Quick Answers About SNAP and WIC During the Government Shutdown

  • Will SNAP benefits be delayed? Yes, starting November 1 if the shutdown continues.
  • Are WIC benefits safe? Some states may run out of funding in early November.
  • Will benefits be reimbursed later? Yes, once the shutdown ends.
  • Who is most affected? Low-income families, people with disabilities, and older adults.
  • What should I do? Apply or renew now, stay informed through your state SNAP office, and seek local food resources if needed.

Written by: Darcy Milburn, Director of Social Security & Healthcare Policy at The Arc of the United States

A picture of the top of the U.S. Capitol building in Washington, DC with trees in front

Federal Government Shutdown: What People With Disabilities Should Know

Updated Oct. 28, 2025, 2:01 p.m. ET

At 12:01 a.m. Eastern on October 1, 2025, the federal government shut down because Congress did not approve funding for Fiscal Year 2026. Many federal agencies and programs that rely on annual funding are paused. Many people with disabilities and their families want to know how this affects benefits and services.

This federal government shutdown, in many ways, is unpredictable. We do not know how long it will last or how agencies will respond.

Bottom line today:

  • Social Security payments continue.
  • Medicaid and Medicare coverage stay in place. Some casework may slow.
  • SNAP and WIC benefits for October were funded. If the shutdown continues, new benefits may come later than usual.

Here is what we know:

  • Do Social Security payments continue during a federal shutdown? Yes, Social Security and Supplemental Security Income benefits will still be paid. Some services, like appeals or benefit verification letters, may take longer. Local offices may have reduced services.
  • Is Medicaid or Medicare affected by a government shutdown? Medicaid and Medicare coverage stays in place. Core operations at the Centers for Medicare & Medicaid Services are expected to continue. You should still be able to see your doctor and fill prescriptions. Some non-urgent casework or updates may take longer if the shutdown continues.
  • Will SNAP and WIC benefits be paid?
    • SNAP: October benefits were issued. If the shutdown continues, some people may not receive their November benefits on time. Once the government reopens, missed payments will be reimbursed.
    • WIC: Some states may run out of funding for WIC in early November. How long benefits last will depend on your state’s remaining funds.
  • Are school meals affected? School meals ran on carryover funds for September and October. If the shutdown lasts longer, reimbursements to schools may be delayed.
  • Is HealthCare.gov open? Yes, HealthCare.gov (the ACA Marketplace) continues to operate with eligibility and enrollment. Open enrollment runs Nov. 1–Jan. 15. Outreach, education, and engagement activities may slow or pause.
  • Which HHS services slow down during a shutdown? Some Department of Health and Human Services agencies are running with fewer staff. Guidance, oversight, research, and some enforcement may be slower. Head Start is already strained in some communities. Several programs are operating without federal funds, and many more could face a funding cliff by November 1 without action.
  • What is happening in education funding and services? Funding continues for the Individuals with Disabilities Education Act (IDEA) and Title I for now. Districts that rely on current-year funds may see delays in payments until Congress passes new funding. Vocational Rehabilitation programs are operating, but some services or hiring may slow.
  • Are disability civil rights still enforced during a shutdown? Yes, your rights remain in place. Some investigations or reviews may be delayed by reduced staffing. This is especially relevant at the Department of Education, where the Office of Special Education and Rehabilitative Services has faced severe staffing reductions during the lapse.

What you can do today:

  • Check your benefits portal for status updates: mySocialSecurity, your state’s SNAP/WIC site, or HealthCare.gov.
  • Keep records of any delays or problems (dates, who you spoke with, notices you received).
  • Ask about timing if you rely on SNAP or WIC in November. Your state may post specific dates for when funds will load.
  • Bring ID and recent mail to appointments, in case offices ask for extra proof while systems are backlogged.

Why this matters:

People with disabilities rely on programs like Social Security, SSI, Medicaid, Medicare, SNAP, WIC, school meals, housing, special education, and vocational rehabilitation for daily needs, health, and independence. A shutdown creates delays and confusion for families trying to keep benefits and services on track. If the lapse continues, more programs that depend on yearly funding may be disrupted.

We will keep tracking official updates and will share guidance as conditions change.

Written by: Jackie Dilworth, Communications Director
Reviewed by: Katy Neas, CEO, and Julie Ward, Senior Executive Officer of Public Policy

A young man with autism standing in front of trees wearing an orange shirt that says "Disability Rights Are Human Rights"

The ADA at 35: A Legacy Worth Celebrating and Defending

Statement from Katy Neas, CEO of The Arc of the United States on the 35th Anniversary of the Americans with Disabilities Act:

The Americans with Disabilities Act reshaped this country for the better. For the first time, people with disabilities had legal protections against discrimination and exclusion. It created a framework for access and sent a clear message: disabled people belong in every part of community life.

I was a young Senate staffer in 1990 and had the opportunity to work on the ADA. I’ve spent the last 35 years working to uphold its promise. And I’ve never seen a more urgent moment than this one.

In the same month we mark this milestone, the federal government passed a budget that cuts nearly $1 trillion from Medicaid, a program that is the very foundation for inclusion. It helps people live at home, go to school, get basic health care, and contribute to their communities. At the same time, the Department of Education is being dismantled, leading to fewer staff enforcing special education laws. The Department of Energy is eliminating a longstanding rule that ensures new federally funded buildings are physically accessible. And slurs like the R-word are back in mainstream conversation, a huge step backward in basic decency and respect.

These are not isolated developments. Together, they show a national, coordinated pattern of erosion. Protections are being stripped. Services are being cut. And people with disabilities are being pushed back out.

This is exactly what the ADA was meant to prevent. When Congress passed the law in 1990, it found that “discrimination against individuals with disabilities persists in critical areas.” The ADA’s purpose was clear: to provide “a clear and comprehensive national mandate for the elimination of discrimination.” It also set a vision, one that is still relevant today: “equality of opportunity, full participation, independent living, and economic self-sufficiency.”

Yet 35 years later, those goals remain out of reach for far too many. And the very systems meant to protect them are being weakened. It’s no coincidence that disabled people are still fighting for access to education, employment, health care, and opportunity. This world wasn’t built with them in mind—so they’ve had to lead, build, and demand what others take for granted.

So we must ask: Who are we designing our society for? Who do we include, and who do we keep leaving behind? And what are we all missing because of it?

When people with disabilities are not at the table, we lose out on leadership, insight, and solutions. Inclusion is how we build stronger schools, smarter policy, more responsive workplaces, and communities that work for everyone.

The ADA was never the finish line; it was the floor. And right now, that foundation is being weakened by budget cuts, deregulation, stigma, and silence. It’s our job to bring it to life in ways that include everyone.

The Arc and our nearly 600 chapters nationwide are working every day to defend the ADA and build the future it promised. We are fighting for civil rights, community services, inclusive schools, access to health care, and respect. We were there when the ADA was written, advocating side-by-side with self-advocates and families to demand equal rights. And we’ve been there every step of the way since, holding the line, advancing progress, and insisting that the law’s promise becomes real in people’s lives.

Disability is a natural and valuable part of human diversity. It is also the one group any of us can join at any time. That means this fight is not just about disabled people, it is about all of us.

We cannot afford to turn away from these threats. A society that excludes people with disabilities will eventually exclude many more. Inclusion is one of the clearest ways we show who matters in our society. Let’s make sure our actions match our values.

A woman holding a sign that says "I am Medicaid. Don't cut me!" while standing in front of the U.S. Capitol in Washington, DC

An Important Update on the Medicaid Fight

The Senate just passed the budget bill, and it’s bad. The bill includes:

  • Nearly $1 trillion in Medicaid cuts. That’s about 20% of the federal Medicaid budget. It would cause nearly 17 million people to lose coverage.
  • Nearly $200 billion in cuts to SNAP. Less food assistance means more people will go hungry, including millions of kids.
  • A new private school voucher program that redirects public education funding to private schools. This will make it even harder for children with disabilities to access essential special education services.

Take action now to help us protect the very foundation of care and services!

What’s next? The Senate and the House must agree on a final bill to send to the President for his signature.

“This isn’t over yet, but this is serious, and we need your help,” said Katy Neas, CEO of The Arc of the United States. “With your calls, emails, and texts, we can still reach the hearts and minds of members of Congress on what these cuts will mean for people with disabilities and their families.”

We must stop these devastating cuts before it’s too late!

A picture of a mom and her son with IDD

Medicaid Expansion Saved Their Lives, Now Congress Wants to Cut It

For millions of people with disabilities and their families, Medicaid isn’t optional. It’s the glue holding everything together. It’s the health care and therapies that help children grow. The prescriptions that manage chronic conditions. The daily support that helps adults with disabilities get out of bed, work, and participate in their communities. The safety net that allows caregivers to keep going day after day.

But now, Medicaid expansion, a part of the Medicaid program that offers insurance coverage for certain people, including people with intellectual and developmental disabilities, is under threat. A federal budget bill moving through Congress proposes nearly $800 billion in Medicaid cuts, with Medicaid expansion directly in the crosshairs.

What Is Medicaid Expansion and Why Does It Matter?

Medicaid expansion, introduced under the Affordable Care Act (ACA), gave states the option to extend coverage to more low-income adults, including people with disabilities, chronic health conditions, and caregivers who had long fallen through the cracks. Many of these people have very low incomes but make just enough to be outside of the Medicaid income requirements. Others have developmental disabilities that do not meet Medicaid’s disability-specific requirements. In the 41 states (including Washington, DC) that adopted it, Medicaid expansion opened the door to health care for millions who had nowhere else to turn.

Who Benefits From Medicaid Expansion?

Some lawmakers claim Medicaid cuts won’t hurt people with disabilities. But these real people share how Medicaid expansion has impacted their lives.

Eri From Massachusetts
A mom and daughter with disabilities“My mother, an early childhood educator who worked with kids with developmental disabilities, died in 2012 because she couldn’t afford her asthma inhalers. By 2014, I was a teenager experiencing homelessness after losing my only caregiver. I had asthma, a severe mood disorder, and undiagnosed autism and ADHD, but I couldn’t afford health care or medication. Once Medicaid expansion happened, everything changed. I was finally able to receive care, go to college, and rebuild my life. Today, I’m employed, commercially insured, and still receive some Medicaid as a working adult with disabilities. I lost my mom before she could be helped, but expansion gave me a second chance. I’m living proof that it works.”

Monika From California
“I’ve never had a job that offered health insurance. And I never earned enough to pay for the high cost of insurance coverage or deductibles. Then Medicaid expansion came, and I finally got answers: my fatigue and severe joint pain were untreated lupus and rheumatoid arthritis. Now I get the care I need, and can keep caring for my dad, who has advanced Alzheimer’s and a brain tumor. My life and my family’s literally depend on Medicaid.”

What Happens If Congress Cuts Medicaid Expansion?

If Congress moves forward with these cuts, millions will lose access to care. Medicaid expansion has helped people:

  • Get diagnosed and treated
  • Access therapies that support their development
  • Learn, work, and contribute to their communities
  • Live safely at home instead of being institutionalized

Without it, we’ll see more uninsured people and more families pushed to the brink. And the people hit hardest? People with disabilities, caregivers, and low-income adults who are already navigating the most.

Is Medicaid Popular?

Yes, and public support is growing. New polling shows that 83% of Americans have a favorable view of Medicaid, up from 77% just months ago. That support only grows when people understand what’s at stake.

Medicaid Is Not a Handout. It’s a Lifeline.

When lawmakers say people with disabilities won’t be affected, they’re ignoring real people like Eri and Monika. People whose lives and futures depend on Medicaid expansion.

Their stories aren’t the exception. They’re reality.

We can’t afford to go backward—not now, not ever. Too much is on the line.

Read. Share. Take action before it’s too late. Urge Congress to protect Medicaid now.

A white man in a wheelchair on the sidewalk smiling while facing the camera

Why and How to Celebrate Disability Pride Month

Disability Pride Month is a time to recognize the history, achievements, experiences, and struggles of people with disabilities. It affirms that disability is a natural and valuable part of human diversity—not a deficit or condition to be fixed.

More than 1 in 4 adults in the United States—over 70 million people—have a disability. This month calls on everyone to promote inclusion and ensure people with disabilities are accepted exactly as they are, without conditions.

What Is Disability Pride Month?

Disability Pride Month is an annual observance in July that celebrates people with disabilities, commemorates the signing of the Americans with Disabilities Act (ADA), and promotes disability culture and visibility.

Observed every July, Disability Pride Month recognizes the importance of the ADA, which was signed into law on July 26, 1990. It highlights disability culture, history, and community pride. This month challenges the harmful idea that people with disabilities need to conform to norms to live meaningful lives. Their lives are just as full, valuable, and worthy of respect—no more, no less.

The first Disability Pride celebration was a Disability Pride Day that took place in Boston in 1990. Chicago hosted the first Disability Pride Parade in 2004. Now there are events nationwide empowering people with disabilities to take pride in who they are.

Here’s more about the history of Disability Pride Month and the story behind the flag.

2025 Theme: “We Belong Here, and We’re Here to Stay”

The Arc’s National Council of Self-Advocates selected the 2025 Disability Pride Month theme: We Belong Here, and We’re Here to Stay. It delivers a powerful message—people with disabilities are a vital part of every community. Not someday. Not conditionally. Now.

As disability rights face growing threats in education, employment, health care, and public life, this year’s theme is a clear call to action. It pushes back against ableism—discrimination and bias against people with disabilities—and exclusion. It reminds us that people with disabilities will not be erased, ignored, or pushed aside.

Why Celebrate Disability Pride Month?

Many people with disabilities still face barriers to being fully included and valued. Ableism is often ignored, but its effects are real. It limits access to education, jobs, health care, and respect.

Disability Pride Month challenges that. At its core, Disability Pride is about being accepted on our own terms. It says disability is not something to hide or fix—it’s part of who we are. Everyone deserves inclusion, rights, and respect, without having to earn them.

How to Celebrate Disability Pride Month

  • Ways to Connect With People With Disabilities: Spend time learning from people with disabilities in real life and online.
  • How to Learn Disability History and Culture: Understand the roots and richness of Disability Pride by diving into disability history, rights movements, and cultural contributions.
    • Learn about key moments in the disability rights movement from UC Berkley’s archive and The Arc’s history.
    • Learn from people with disabilities through media like Crip Camp, CODA, Demystifying Disability, and Disability Visibility.
    • Follow disabled activists on social media and listen to what they share—not just during Disability Pride Month, but year-round.
  • How to Advocate for Disability Rights and Inclusion: Disability rights are under attack—from cuts to Medicaid and Social Security, to threats against IDEA, Section 504, and a resurgence of the R-word. Here’s how you can show up and make a difference:

Share Your Disability Story

What are you proud of? What do you want other people to know? Share your videos, pictures, or written answers on your favorite social media platform using hashtags #DisabilityPride and #DisabilityPrideMonth. We want as many people to join the conversation as possible! See what The Arc’s community has to say by finding us on Instagram, LinkedIn, Facebook, and X/Twitter. All content shared by The Arc includes alt text and accessible captions. This reinforces our commitment to accessibility—we hope you will do it, too!

Attend a Disability Pride Month Event in Your Area (updated for 2025!)

Meet and show your support for the local disability community by attending one of these events. This is the largest database for Disability Pride Month events there is!

If this page helped you learn more, share it to keep the conversation going.

If you have questions or events/resources we should add to this page, please email Jackie Dilworth at dilworth[at]thearc.org!

A diverse group of young adults with disabilities stand together in a circle with their heads close, smiling. The view point is looking up at them from inside the circle.

Developmental Disabilities Awareness Month: Shattering Stigmas & Obstacles

Every March, we celebrate something near and dear to The Arc: Developmental Disabilities Awareness Month. It’s an opportunity to honor the diverse talents, dreams, and achievements of people with developmental disabilities. Whether it’s autism, cerebral palsy, Down syndrome, or learning disorders, these disabilities are part of the human experience, and the people living with them have stories that need to be heard.

The big picture: Here’s what drives us at The Arc: the fundamental belief that everyone deserves to write their own life story. That means real access to education, meaningful employment, quality healthcare, and genuine community connections. Right now, too many barriers stand in the way of these basic rights. This month, we’re turning up the volume on voices calling for change.

History: The roots of Developmental Disabilities Awareness Month can be traced back to 1987 when President Reagan first declared March as a month to raise awareness and “according to our fellow citizens with such disabilities, both encouragement and the opportunities they need to lead productive lives and to achieve their full potential.”

This year’s theme from the National Association of Councils on Developmental Disabilities is We’re Here All Year, emphasizing that community, accessibility, and opportunities for people with developmental disabilities should be recognized and championed every day.

What we’re doing: Change happens when people come together, and that’s exactly what The Arc’s nationwide network is doing. Want to meet some of the incredible individuals leading the way?

There’s Marcus, whose job search shows how talented, dedicated workers face discrimination. Lawrence, who’s showing the world what’s possible for athletes with disabilities. Ashley, who’s revolutionizing how we think about diversity and inclusion. Steve, who shows us that people with disabilities thrive when they can live independently in their communities, not institutions. Carlos, who persevered through immigration, bullying, and discrimination to graduate college and build his accounting career. And Mitch, whose voice on our board helps shape how we support people with disabilities.

Ready to be part of this movement? Here are three powerful ways you can help create change:

  • Donate to The Arc to support our advocacy and services, making inclusion possible.
  • Volunteer with your local chapter of The Arc to empower people with developmental disabilities.
  • Share stories uplifting diverse perspectives using #DDawareness and #DDawareness2025.

“Segregation and discrimination still cast an ugly shadow over the lives of millions of people with disabilities. This month, we must amplify the voices calling for true inclusion—in our schools, workplaces, and communities. When we listen to self-advocates and remove unfair barriers, incredible contributions shine through.” – Katy Neas, CEO of The Arc

The Arc logo

The Arc on Outcome of Election and Path Forward for People With Disabilities and Their Families

With the election of President Trump and a new Congress, The Arc of the United States will continue to partner with all elected officials, advocating and educating that disability is a part of our shared human experience—one that touches every family, every community, and every generation regardless of political party. When people with disabilities have the support they need to live, learn, work, and participate fully in their communities, all Americans benefit.

Yet, every day, people with disabilities and their families face remarkably challenging circumstances. Children with disabilities are being denied educational supports that will ensure they get a strong foundation for their lives ahead. The unemployment rate of adults with disabilities is 2 times higher than the rate of non-disabled people. Nearly 700,000 people are stuck on years-long waiting lists for home and community-based services, which allows them to live independently in their communities. Caregivers are stretched to the breaking point, balancing work, financial stability, and the fight to secure essential services. These aren’t abstract policy issues. They are daily realities that affect families in every neighborhood, town, and state across America.

We have work to do, and The Arc will never stop advocating for the policies that people with disabilities need to thrive.

The Arc has deep roots in communities nationwide. For 75 years, our strong network of self-advocates, families, and professionals has shared their expertise with elected officials to ensure policy decisions reflect the pressing, serious needs of everyday Americans. We’ve seen firsthand that the most enduring progress comes when all leaders recognize disability rights as human rights.

Orange graphic that says "The only r-word we know is respect."

The R-Word: Why Language Matters and How We Can Do Better

Have you ever caught yourself or someone else casually using the R-word? You know the one, that outdated term that’s somehow still in our vocabulary. It might seem harmless, but it’s far from it. The R-word is loaded with hurt, discrimination, and a painful history. Here’s why it’s time we ditched it for good.

A Word With a Painful Past

Let’s rewind to 1961. “Mental retardation” made its debut as a neutral medical term for people with intellectual disabilities. But it quickly became a cruel insult, carrying the weight of discrimination and prejudice.

The early to mid-1900s were a dark time for people with intellectual disabilities. They faced forced sterilization, institutionalization in inhumane conditions, and were often denied basic rights and dignity. Society viewed them as burdens to be hidden away, not as valuable members of our communities.

We’ve made some progress, like Rosa’s Law in 2010 replacing “mental retardation” in federal language with “intellectual disability.” It was a step in the right direction, but the R-word stubbornly lingers in our vocabulary and even in some state laws.

At The Arc, when people with disabilities speak up about language that hurts them, we listen and we change. Our name and terminology have evolved throughout our history because the very people we serve tell us what respect looks like. The Arc is not an acronym. The Arc stands for and with people with disabilities and their families, over the course of their lifetimes. And just as an arc is dynamic, so too is our commitment to adapting our language. When someone tells us a word hurts, we change. It’s that simple, and that important.

More Than Just a Word

Make no mistake: The R-word is hate speech. It’s a slur against people with intellectual disabilities. But somehow, it’s still sneaking its way into everyday conversation, social media posts, and even hit TV shows. It’s become so normalized that many people, especially younger folks, don’t even blink an eye when they hear it.

This is deeply troubling and harmful. When someone uses the R-word as an insult or joke, they’re equating intellectual disability with something negative or laughable. It’s offensive and dehumanizing. Terms like “idiot” and “moron” also have roots in demeaning people with disabilities. These words cause real pain and perpetuate harmful stereotypes. They’re not cool, not right, and definitely not funny.

The Ripple Effect

Words have power. They shape how we see the world and the people in it. When we casually use terms like the R-word, we’re not just being insensitive, we’re actively contributing to a culture that excludes and discriminates against people with intellectual disabilities.

Think about it. If you constantly heard a core part of your identity being used as shorthand for “stupid” or “worthless,” how would you feel? It’s dehumanizing. The R-word is a constant reminder of the discrimination and challenges people with disabilities face every day. From employment discrimination to healthcare disparities, its use reinforces a system that often fails to see the humanity in people with intellectual disabilities.

The Comeback Nobody Asked For

After years of progress, the R-word is making a comeback, especially online and in pop culture. It’s like watching history repeat itself in real-time. It undermines years of advocacy and reopens wounds for those who’ve fought hard for respect and inclusion.

People with disabilities have made it clear: this word is hurtful and unacceptable. It’s not “just a joke” or “no big deal.” The R-word serves as a stark reminder that despite progress, discrimination and mistreatment persist. That’s why we have urgent work to do to create a truly inclusive society.

The only r-word we know is respect.

So, What Can We Do About It?

  1. Check yourself: We all have biases and bad habits. Take a moment to really think about the words you use and what they might mean to others.
  2. Speak up (kindly): If you hear someone use the R-word, don’t just cringe silently. Speak up! But remember, the goal is education, not humiliation. A simple, “Hey, did you know that word can be really hurtful?” can go a long way.
  3. Spread the word to end the word: Share this blog post with friends and family. Sometimes, all it takes is one person to start a ripple effect of change.
  4. Celebrate diversity: Instead of focusing on limitations, let’s talk about the amazing contributions people with intellectual disabilities make to our communities every day.
  5. Keep learning: The conversation around disability and language is always evolving. Stay curious and open to learning more.

Remember, changing the way we talk isn’t about following trends. It’s about fostering a society where every person is treated with dignity and respect. It’s about recognizing the inherent worth of everyone. At The Arc, the only R-word we should know is respect. And that’s something worth talking about and acting on every single day.

The Arc logo

Medicaid Eligibility Renewals: A Message From CMS Office of Minority Health

Written by: Dr. Aditi Mallick, Former Acting Director of the CMS Office of Minority Health
Reviewed by: The Arc’s public policy experts

States are aggressively evaluating their Medicaid enrollments following the end of the public health emergency, and many are losing coverage. Here’s everything you need to know about the unwinding and what to do if you are a Medicaid beneficiary.

Health care coverage is a critical lifeline for everyone and especially for people with disabilities and people who may be underinsured. Millions of individuals and families rely on Medicaid and Children’s Health Insurance Program (CHIP) to receive access to vital care to support their physical and mental health and, as a result, are likely to be impacted as states conduct Medicaid and CHIP eligibility renewals following the end of the COVID-19 public health emergency. The Centers for Medicare & Medicaid Services (CMS)1 remains committed to ensuring that minority and underserved populations understand this process and how it may impact their enrollment, eligibility, and overall health care.

Medicaid Renewals 101

In March 2020, as part of COVID-19 relief, Congress authorized additional Medicaid funding for states on the condition that they satisfied a “continuous enrollment” condition, which generally prohibited states from terminating most Medicaid enrollees’ enrollment until the end of the COVID-19 public health emergency. This helped to ensure millions of people could remain enrolled in Medicaid coverage without interruption during the pandemic. The continuous enrollment condition ended on March 31, 2023, allowing states to begin to return to normal operations around eligibility and enrollment, including conducting Medicaid renewals, beginning on April 1, 2023.

Medicaid Renewals Impact on People With Disabilities

Medicaid and CHIP renewals are a multi-step process, and states must begin the process by attempting to complete renewal of coverage based on information available to them without contacting the individual. If that is not possible, agencies must send renewal notices and requests for information to enrollees.

These steps have challenges associated with reaching people with intellectual or developmental disabilities who lack sufficient supports to navigate Medicaid enrollment and eligibility. If an enrollee does not receive or reply to renewal notices from the state (for example, because they have moved addresses), their coverage could be interrupted or discontinued altogether. That could mean losing access to essential health care, medication, and services needed as part of ongoing services, supports, and care plans.

States have independent obligations under federal civil rights laws to ensure that individuals and families continue to have access to Medicaid and CHIP as states conduct renewals. For example, states are required to take reasonable steps to provide meaningful language access for individuals with limited English proficiency and ensure effective communication with individuals with disabilities. Ensuring access to information is vital and required. Losing Medicaid also means losing long-term services and support (LTSS) and home and community-based services (HCBS), such as care for people with disabilities who may need more support of age; physical, cognitive, developmental, or chronic health conditions; or other functional limitations that restrict their abilities to care for themselves.

The Road to Renewal

The first and most important step for ensuring continuation of coverage is consistent outreach and communications to those impacted to confirm that they are completing their renewal forms accurately and in a timely manner. Information on the Renew Your Medicaid or CHIP Coverage2 webpage is a great starting point for helping people better navigate renewals. The webpage outlines how to prepare for the renewal process, what to do if you no longer qualify for Medicaid or CHIP, and where to go for more help, including contacts for each state’s Medicaid office.

We Need Your Help!

CMS is also using multiple creative avenues—such as direct partner outreach, monthly stakeholder webinars, social media, and ad placements—to spread awareness about Medicaid and CHIP renewals and to reach those who may have been missed through traditional communication channels. We are also planning communications focused on families with younger children during back-to-school activities in the fall.

Encourage people who lost their coverage to visit HealthCare.gov to see if they are eligible to enroll in a low-cost, quality health plan. Find toolkits, drop-ins, creative assets, and translations on the Medicaid and CHIP Renewals Outreach and Educational Resources webpage and be sure to download the All Hands on Deck Toolkit to get started in your community. Keep the conversation going throughout Open Enrollment! Find your state here to learn more.

Once enrolled, Coverage to Care offers resources to provide anyone information on health care coverage options, understanding their rights, and how to use their benefits. Join CMS in helping people understand and use their health coverage by sharing these tools with your community.

  • The Coverage to Care (C2C)3 campaign helps underserved populations understand health care coverage and connects them to primary care and preventive services that is right for them.
  • The C2C Roadmap to Better Care4 explains what health coverage is and how to use it to get primary care and preventive services. This resource is available in multiple languages, including Spanish5, as well as a Tribal Version6.
  • Getting the Care You Need: A Guide for People With Disabilities is a resource available in multiple languages to explain a person’s rights, how to work with health care providers, and how to take an active role in your health care.
  • Partner resources7 help health care professionals and national and community organizations support consumers as they navigate their coverage. This resource is available in multiple languages, including Spanish8.
  • Braille and additional format resources are available, contact CoveragetoCare@cms.hhs.gov.

By working together, we can reach those most in need of health care coverage as Medicaid renewals continue. Let’s stay committed to our shared vision of finding ways to consistently and creatively reach those who need our support. Together, we can ensure that eligible individuals remain on Medicaid and get the health care they need – a critical step helping individuals with intellectual or developmental disabilities receive the highest quality of health care.


1. (n.d.). Centers for Medicare & Medicaid Services. CMS.gov. https://www.cms.gov/
2. Medicaid (n.d.). Renew Your Medicaid or CHIP Coverage. Medicaid.gov. https://www.medicaid.gov/resources-for-states/coronavirus-disease-2019-covid-19/unwinding-and-returning-regular-operations-after-covid-19/renew-your-medicaid-or-chip-coverage/index.html
3. CMS OMH (n.d.). Coverage to Care. https://www.cms.gov/about-cms/agency-information/omh/health-equity-programs/c2c
4. CMS OMH (n.d.). C2C Roadmap to Better Care. https://www.cms.gov/files/document/c2c-roadmap-better-care.pdf
5. CMS OMH (n.d.). Guía Para Una Mejor Atención. https://www.cms.gov/files/document/roadmap-better-care-spanish.pdf
6. CMS OMH (n.d.). Roadmap to Better Care Tribal Version. https://www.cms.gov/files/document/c2c-roadmap-booklet-tribal.pdf
7. CMS OMH (n.d.). Partner Toolkit Get Involved in Coverage to Care. https://www.cms.gov/files/document/c2c-partner-toolkitenglish.pdf
8. CMS OMH (n.d.). Herramientas para Socios Participe en Coverage to Care. https://www.cms.gov/files/document/c2c-partner-toolkitspanish.pdf