A white woman on a city street holding a cardboard protest sign that says "Education for All"

Why Public Education Matters for Students With Disabilities and for Us All

/in /by The Arc

Public education is one of our country’s most important promises: a commitment that every child, no matter their abilities or background, deserves the opportunity to learn, grow, and participate fully. For the 95% of students with disabilities who attend public schools, that promise is both vital and vulnerable.

Today, that promise is under strain. Funding shortfalls, teacher shortages, and policies that divert resources away from public schools threaten the foundation of inclusive education. For families of students with disabilities, those challenges are deeply personal.

Stories of families like Amanda’s, Christina’s, Kristen’s, and Susannah’s remind us why public schools and special education services must be protected and strengthened, not dismantled or defunded.

Reaching Her Potential: Kristen’s Journey to Graduation

A person with long curly hair and glasses stands smiling in front of a framed painting of a colorful heart. They wear a red sweater, black pants, and a red headband against a neutral wall.

As a former special education student, Kristen knows firsthand how a strong public education can shape a person’s future. Kristen credits her Individualized Education Program (IEP) team and family for helping her meet her goals and graduate high school, something that might not have been possible without that support.

Now an adult, Kristen advocates for reinvesting in public education so that every student, with or without disabilities, has the same opportunity to succeed.

“This is not the time to take money from public schools but rather to put more money into public schools and services so all students have the opportunity to achieve their goals and reach their full potential, like I was given.”

Building Confidence and Hope: Amanda’s Family Finds Support

When Amanda’s son was diagnosed with ADHD, her family worried about how he would manage in school. But public education gave them more than academic success; it gave them hope.

“Thanks to dedicated special education teachers and an individualized support plan, [my son] received the guidance and attention he needed. The school helped him build confidence, develop important skills, and feel supported every step of the way. These services didn’t just help him do better in class; they gave our whole family hope and relief.”

The Only Door That Opens: Susannah’s Fight for Inclusion

A young child sits on a yellow scooter board in a gym, gripping a green hula hoop. The child smiles with an open mouth. A red exercise ball rests on the floor behind them.

For Susannah, the promise of public education isn’t theoretical—it’s the only thing standing between her child and exclusion. Her 12-year-old son has a rare genetic disorder, Turnpenny-Fry syndrome, and requires significant support to learn safely and effectively.

Private schools turned him away, even with tuition assistance through a voucher. Public school was the only place willing and equipped to meet his needs, with specialized staff, accommodations, and a commitment to serve every child.

“More vouchers for private schools would directly harm my child,” Susannah said. “Federal funding is vital to ensure his constitutional right and access to a free, appropriate education.”

Starting Early: Christina’s Story of Hope and Early Intervention

For Christina’s son, the public education system’s support began before preschool. Through the North Carolina Infant-Toddler Program, he receives critical early intervention services, made possible through federal law under the Individuals with Disabilities Education Act (IDEA).

“It was clear early on that [my son] had global delays. He wasn’t making eye contact and was having a hard time lifting his head during tummy time. After a medically complex diagnosis, it was important to get interventions and therapies in place. By 6 months old, [my son] already had an individualized family service plan put in place under IDEA. With these plans, a team is able to assist in ensuring that he gets the interventions he needs through physical therapy, occupational therapy, vision therapy and speech. This plan will help him has he enters the school system at the age of 3 and beyond.”

Early intervention can change the course of a child’s life. These programs not only prepare children for school but help families understand how to support their development from the very beginning.

Protecting a Promise and Strengthening a System We All Depend On

These stories remind us that public education and special education are not optional extras. They are essential civil rights and the foundation of an inclusive society.

The current public school system isn’t perfect. It needs more funding, more staff, and more understanding. The answer isn’t to pull resources away or funnel them into systems that exclude the very students who need support most.

We must strengthen public schools by investing in teachers, therapists, and aides; expanding early intervention; and honoring our collective promise that every child deserves a chance to learn.

Public education is not just a service. It’s a commitment to fairness and inclusion. It’s how we, as a society, say to every child: You belong here, you matter, and we will help you succeed.

Take Action Today: Tell Congress to Protect this Promise for All Students.

Bipartisan Resolution Recognizes The Arc’s 75 Years of Leadership in Disability Rights

/in /by Jackie Dilworth

Today, Congressman Brian Fitzpatrick (PA-1) and Congresswoman Debbie Dingell (MI-6), Co-Chairs of the Bipartisan Disabilities Caucus, introduced a bipartisan resolution honoring the 75th anniversary of The Arc of the United States, one of the nation’s most influential organizations advocating for the civil and human rights of people with intellectual and developmental disabilities.

Founded in 1950 by parents determined to keep their children out of institutions and fought instead for their children’s place in family and community life, The Arc has grown into a network of nearly 600 state and local chapters across 47 states. For three-quarters of a century, it has shaped federal policy, expanded opportunity, and strengthened a core American principle: that every individual deserves the chance to live a full, self-directed life.

From its pivotal role in PARC v. Pennsylvania, which helped lay the foundation for the Individuals with Disabilities Education Act (IDEA), to its leadership in securing the Americans with Disabilities Act, expanding Medicaid home- and community-based services, and advancing essential civil rights protections, The Arc’s history reflects and helped define the evolution of our nation’s commitment to equality, independence, and inclusion.

“For 75 years, The Arc has been a steady compass for this nation—challenging us to rise to our ideals and expanding the circle of belonging,” said Fitzpatrick. “Their leadership has changed laws, expectations, and lives. As Co-Chair of the Bipartisan Disabilities Caucus, their partnership strengthens our mission every single day. This resolution is not merely recognition—it is a call to action and a reaffirmation of our shared responsibility to continue working to ensure that dignity, independence, and equal opportunity are not aspirations, but guarantees for every single American.”

“For 75 years, The Arc has been an unrelenting force for the rights, dignity, and respect of Americans with disabilities. It is because of their work that we have seen so much progress, including the passage of the Americans with Disabilities Act, the Individuals with Disabilities Education Act, and other foundational protections we have today. I’m proud to recognize The Arc for their 75 years of fighting for accessibility and equality for individuals with disabilities and will continue to be a partner in that work,” said Dingell.

Katy Neas, CEO of The Arc of the United States, shared: “Seventy-five years ago, a group of parents refused to accept that their children with disabilities should be sent to live all their days in institutions. They built The Arc so their children could grow up at home with their families, just like everyone else. I think of those families every time I see a student learning with non-disabled classmates, an employee with a disability earning a paycheck, or a family getting support that keeps them stable and together. Because The Arc fought for it, people live at home and in the community instead of in institutions. Students with disabilities have the right to a public education rather than being shut out or separated. Medicaid and SSI help people shape meaningful lives with the support they need. And the ADA made civil rights real in daily life, from curb cuts to captions that many of us use. Disability is in every family, every community, every political party. In a year when disabled Americans are looking for steady leadership on their rights and services, I’m grateful to Representative Brian Fitzpatrick for recognizing this legacy and affirming that inclusion is a shared value. We will keep working with lawmakers on both sides of the aisle, as we always have, honoring the millions who came before us and pushing disability rights forward for millions more.”

Read the full resolution here.

Background

The Arc of the United States was founded in 1950 by parents who refused to accept that their children with intellectual disabilities should be separated from family and community. Their advocacy paved the way for some of the most consequential civil rights and education advances in modern American history, including:

  • PARC v. Pennsylvania (1971): Established the right to free public education for students with intellectual disabilities, setting the stage for the Individuals with Disabilities Education Act (IDEA).
  • The Americans with Disabilities Act (1990): A landmark civil rights law prohibiting discrimination and guaranteeing equal access in employment, transportation, and public life.
  • Expansion of Medicaid and home- and community-based services (HCBS): Provided millions of individuals with disabilities the ability to live and participate in their communities rather than institutions.

Today, Arc continues to advocate for independence, economic opportunity, and full inclusion for individuals with intellectual and developmental disabilities across their lifespan.

Fruit lined up on shelves at a grocery store

What You Need to Know About SNAP and WIC During the Government Shutdown

/in /by Jackie Dilworth

Updated Nov. 13, 2025, 5:44 p.m. ET

The government shutdown ended on November 12. The USDA and state governments will now work to distribute November SNAP benefits. Expect different states to issue SNAP benefits at different times this month.

During the federal government shutdown, lawmakers did not taken action to fund critical food assistance programs. As a result, many people who rely on SNAP and WIC have had their benefits delayed starting November 1, 2025.

SNAP is the Supplemental Nutrition Assistance Program, also known as food stamps. It provides food benefits to low-income families to supplement their grocery budget so they can afford the nutritious food essential to health and well-being. WIC is the Special Supplemental Nutrition Program for Women, Infants, and Children. It’s a short-term program that safeguards the health of low-income women, infants, and children up to age 5 by providing food, nutrition education, and healthcare referrals.

For families already stretched thin, this lapse in benefits meant impossible choices between food, rent, medicine, utilities, and more. People with disabilities already face higher rates of poverty and food insecurity, putting them more at risk.

Food is not optional. Every person deserves food security, not fear.

What is The Arc doing to protect SNAP and WIC benefits? The Arc called on state and federal policymakers to protect people with disabilities and low-income families from losing access to food. Here’s what’s happening, what you can do, and what policymakers must do now.

How is the Government Shutdown Impacting SNAP and WIC Benefits in November?

  • Will I get SNAP benefits in November? We do not yet know when you will receive your full SNAP benefits for November. The amount and timing of your November SNAP benefits will depend on your state, even though the shutdown ended on November 12.
    • We understand that this uncertainty is incredibly stressful. Food resources are below if you need them.
    • Federal funding for your full monthly SNAP benefits was delayed because of the government shutdown. November SNAP benefit amounts will be different from state to state because some states used emergency funds to help cover benefits.
  • Isn’t there a lawsuit about restoring federal SNAP funding? What does it mean for SNAP beneficiaries? Yes, on October 31st, two federal courts ruled that the Administration must use contingency funds to provide at least partial SNAP benefits for November. What happens next will depend on the actions of the Administration and your state government. Even if the Administration releases the funds to states immediately, it will take at least a couple days for states to send out the partial benefit payments.
  • Will WIC benefits still be available in November? Some states may run out of WIC funding in early November. How long benefits last will depend on your state’s remaining funds.
  • What do beneficiaries need to know about new SNAP work requirements? Millions of people applying for or renewing SNAP will face new work requirements, known as “time limits,” starting in November.
  • Can food banks replace lost SNAP benefits? Food banks and local charities are already stretched thin and cannot replace SNAP, especially as demand for food assistance increases around the holidays. For every meal a food bank provides, SNAP provides nine.

What Can Policymakers Do to Protect SNAP and WIC During the Shutdown?

  • What actions should the Administration take right now?
    • Use available resources to pay SNAP and WIC benefits in November. If full benefits cannot be funded, issue partial benefits.
    • Immediately release SNAP’s contingency funds (about $6 billion) to help states pay benefits.
    • Use any available legal authority to provide SNAP and WIC funding.
    • Give states clear guidance to continue processing applications and the technical assistance they need to send out benefits as soon as funding is available.
  • What steps should Congress take to prevent food benefit cuts?
    • Fully fund SNAP benefits and reverse harmful cuts to SNAP made by the reconciliation bill.
    • Roll back expanded work requirements passed in the reconciliation bill that threaten people with disabilities, older adults, and parents.
    • Restore funding for other programs that help feed communities, including the Emergency Food Assistance Program, the Local Food Purchase Assistance Program, and the Local Food for Schools Program.
  • What can states do to help SNAP and WIC beneficiaries?
    • Use state emergency funds to cover temporary SNAP or WIC gaps.
      • Example: New Mexico will distribute $30 million in state-funded food benefits onto current SNAP beneficiaries’ EBT cards.
      • Example: Virginia established a new program called the Virginia Emergency Nutrition Assistance (VENA) initiative, which will distribute up to $150 million in state funds to replace SNAP benefits through November. Starting on November 3rd, VENA will send Virginians weekly payments covering 25% of their monthly SNAP benefit. This means that if a family usually receives $200 a month in SNAP benefits, the VENA system will provide $50 weekly.
    • Send clear, accessible notices to all beneficiaries about the status of their benefits, and what to expect going forward.
    • Continue processing applications and protect residents from utility shutoffs and evictions.

What Should SNAP and WIC Recipients Do As the Government Shutdown Continues?

  • Are my October SNAP benefits safe? Yes, October SNAP benefits have been funded and loaded to EBT cards. You can keep using remaining benefits on your card as usual.
  • What will happen to my November SNAP benefits? As the shutdown continues, new benefits will come later than usual. Once the government reopens, missed payments will be reimbursed.
    • You will not lose benefits permanently due to the shutdown. A delay is not the same as being cut off. Keep your contact information up to date so you receive notices.
  • Can I apply or renew SNAP or WIC during the shutdown? If you’re applying, you should submit your application as soon as possible. Even if processing is delayed, applying now ensures your case moves forward quickly when the shutdown ends.
    • If you applied for or were approved for SNAP benefits in October, you might experience delays receiving retroactive benefits for October 2025. This will vary depending on the state you live in.
  • How can people with disabilities qualify for exemptions from SNAP work rules? Keep an eye out for a notice from your state’s SNAP office about new work requirements. If you have a disability, you may qualify for an exemption from the work requirement. Contact your SNAP caseworker or state office with any questions.
  • What can I do to make sure I receive my delayed SNAP or WIC benefits as soon as possible? Visit your local SNAP office website and sign up for updates. Make sure your state’s SNAP program has your correct mailing address, phone number, and email. You can find your state’s SNAP office here: https://www.fns.usda.gov/snap/state-directory

Where Can I Find Food Assistance or Local Resources Near Me?

  • FindHelp: Locate food banks, housing, financial assistance, and more.
  • FoodFinder: Find food pantries near you.
  • USDA National Hunger Hotline: Call 1-866-3-HUNGRY or 1-877-8-HAMBRE (7 a.m. – 10 p.m. ET) or text FOOD to 914-342-7744.
  • FullCart: Sign up for free food delivered to your home (please note that there’s a waitlist for this service).
  • 211: Call 211 or visit 211.org for local help with food, housing, utilities, and more.

Why Do SNAP and WIC Delays Matter for People with Disabilities and Families?

SNAP feeds about 42 million people (one in eight Americans), including 16 million children, 8 million older adults, and more than 4 million people with disabilities. WIC supports nearly 7 million pregnant and postpartum women, infants, and young children. Even short disruptions can harm child nutrition and development.

November is always a critical month for families preparing for colder weather and the holidays. Losing food assistance now could push millions deeper into poverty.

Food is not optional. It is dignity, stability, and survival.

Take Action: Tell Congress to Fund SNAP Now

Millions of people, including millions with disabilities, have lost access to food assistance during this shutdown. Policymakers have the power to fix this, but they need to hear from you. Your voice matters. Urge your elected officials to take all possible measures to fund SNAP and prevent hunger for people with disabilities and low-income families.

Send your message now

Quick Answers About SNAP and WIC During the Government Shutdown

  • Are SNAP benefits delayed? Yes, starting November 1. Depending on your state, emergency state-funded benefit payments or other food assistance may be available.
  • Are WIC benefits safe? Some states may run out of funding in early November.
  • Will benefits be reimbursed later? Yes, once the shutdown ends.
  • Who is most affected? Low-income families, people with disabilities, and older adults.
  • What should I do? Apply or renew now, stay informed through your state SNAP office, and seek local food resources if needed.

Written by: Darcy Milburn, Director of Social Security & Healthcare Policy at The Arc of the United States

A picture of the top of the U.S. Capitol building in Washington, DC with trees in front

Federal Government Shutdown: What People With Disabilities Should Know

/in /by Jackie Dilworth

Updated Oct. 28, 2025, 2:01 p.m. ET

At 12:01 a.m. Eastern on October 1, 2025, the federal government shut down because Congress did not approve funding for Fiscal Year 2026. Many federal agencies and programs that rely on annual funding are paused. Many people with disabilities and their families want to know how this affects benefits and services.

This federal government shutdown, in many ways, is unpredictable. We do not know how long it will last or how agencies will respond.

Bottom line today:

  • Social Security payments continue.
  • Medicaid and Medicare coverage stay in place. Some casework may slow.
  • SNAP and WIC benefits for October were funded. If the shutdown continues, new benefits may come later than usual.

Here is what we know:

  • Do Social Security payments continue during a federal shutdown? Yes, Social Security and Supplemental Security Income benefits will still be paid. Some services, like appeals or benefit verification letters, may take longer. Local offices may have reduced services.
  • Is Medicaid or Medicare affected by a government shutdown? Medicaid and Medicare coverage stays in place. Core operations at the Centers for Medicare & Medicaid Services are expected to continue. You should still be able to see your doctor and fill prescriptions. Some non-urgent casework or updates may take longer if the shutdown continues.
  • Will SNAP and WIC benefits be paid?
    • SNAP: October benefits were issued. If the shutdown continues, some people may not receive their November benefits on time. Once the government reopens, missed payments will be reimbursed.
    • WIC: Some states may run out of funding for WIC in early November. How long benefits last will depend on your state’s remaining funds.
  • Are school meals affected? School meals ran on carryover funds for September and October. If the shutdown lasts longer, reimbursements to schools may be delayed.
  • Is HealthCare.gov open? Yes, HealthCare.gov (the ACA Marketplace) continues to operate with eligibility and enrollment. Open enrollment runs Nov. 1–Jan. 15. Outreach, education, and engagement activities may slow or pause.
  • Which HHS services slow down during a shutdown? Some Department of Health and Human Services agencies are running with fewer staff. Guidance, oversight, research, and some enforcement may be slower. Head Start is already strained in some communities. Several programs are operating without federal funds, and many more could face a funding cliff by November 1 without action.
  • What is happening in education funding and services? Funding continues for the Individuals with Disabilities Education Act (IDEA) and Title I for now. Districts that rely on current-year funds may see delays in payments until Congress passes new funding. Vocational Rehabilitation programs are operating, but some services or hiring may slow.
  • Are disability civil rights still enforced during a shutdown? Yes, your rights remain in place. Some investigations or reviews may be delayed by reduced staffing. This is especially relevant at the Department of Education, where the Office of Special Education and Rehabilitative Services has faced severe staffing reductions during the lapse.

What you can do today:

  • Check your benefits portal for status updates: mySocialSecurity, your state’s SNAP/WIC site, or HealthCare.gov.
  • Keep records of any delays or problems (dates, who you spoke with, notices you received).
  • Ask about timing if you rely on SNAP or WIC in November. Your state may post specific dates for when funds will load.
  • Bring ID and recent mail to appointments, in case offices ask for extra proof while systems are backlogged.

Why this matters:

People with disabilities rely on programs like Social Security, SSI, Medicaid, Medicare, SNAP, WIC, school meals, housing, special education, and vocational rehabilitation for daily needs, health, and independence. A shutdown creates delays and confusion for families trying to keep benefits and services on track. If the lapse continues, more programs that depend on yearly funding may be disrupted.

We will keep tracking official updates and will share guidance as conditions change.

Written by: Jackie Dilworth, Communications Director
Reviewed by: Katy Neas, CEO, and Julie Ward, Senior Executive Officer of Public Policy

A diverse classroom with a teacher sitting on the floor next to two students, who are looking at a workbook.

The Ultimate Back-To-School Guide for Families of Children With Disabilities

/in /by The Arc

The excitement of a new school year is in the air! For parents of children with disabilities, this time brings unique challenges and opportunities. Proper preparation can make all the difference in your child’s growth and success. Here are some practical tips to help you and your child start the school year off right and carry that momentum throughout the year.

  1. Have an open chat with your child about the upcoming year. What are they excited about? What’s making them nervous? Use this conversation to set clear expectations. You can even create a visual calendar together, marking important dates and milestones.
  2. Gradually ease back into the routine. Establish a consistent before and after-school routine that supports your child’s needs, like a calm morning routine, a dedicated homework space, or bedtime wind-down ritual. Keep your weekend plans light early in the school year to give your child time to relax.
  3. Give your child’s individualized education program (IEP) a thorough review. Are there any changes your child has experienced over the summer or since the last IEP? Any assistive technologies that could help? Don’t hesitate to request an IEP meeting before school starts if needed. Keep a journal or digital record of your child’s progress, challenges, and successes throughout the year. It could be invaluable for future IEP meetings and for tracking growth over time.
  4. Connect with your child’s teachers and service providers before school starts. Share your child’s strengths, interests, and hopes for the year. Collaborate on a communication plan that works for everyone. If your child is transitioning to a new school, start planning early. Work with the current and future schools to ensure a smooth transition and take your child on a school tour to familiarize them with their new environment. If your child is attending a before or after care program, establish a relationship with those staff, as well.
  5. Help your child develop self-advocacy. Teach them developmentally appropriate ways to express their needs and preferences at school, such as asking for a break when overwhelmed or requesting clarification on instructions.
  6. The first few weeks might be bumpy as everyone settles in. Give your child (and their educators) time to find their rhythm. Keep a close eye on how things are progressing. If you notice issues, don’t hesitate to speak up. Open and respectful communication can help address challenges early and bigger problems later.
  7. Recognize and celebrate your child’s efforts and achievements. This positive reinforcement can boost confidence and motivation throughout the school year.
  8. Build a support network. Social connections and the sharing of experiences, tips, and resources can be incredibly valuable for your family. Your state’s DD Council, local chapter of The Arc, and inclusive extracurricular activities can help open doors to other families of children with disabilities.
  9. Feeling unsure about your child’s services or supports? The Arc@School is your go-to resource for understanding your rights and finding help when you need it. Knowledge is power—empower yourself to ensure your child gets the education they deserve.

Remember, your well-being matters too. Taking time for yourself, whether it’s a quiet moment with a book or a chat with a friend, can help you stay energized and focused as you support your child’s educational journey.

You’re not alone in this—we’re here to help every step of the way. Let’s make this school year a great one!

Written by: The Arc’s Communications Team
Reviewed by: Katy Neas, CEO, and Robyn Linscott, Director of Education Policy

A young man with autism standing in front of trees wearing an orange shirt that says "Disability Rights Are Human Rights"

The ADA at 35: A Legacy Worth Celebrating and Defending

/in , /by Jackie Dilworth

Statement from Katy Neas, CEO of The Arc of the United States on the 35th Anniversary of the Americans with Disabilities Act:

The Americans with Disabilities Act reshaped this country for the better. For the first time, people with disabilities had legal protections against discrimination and exclusion. It created a framework for access and sent a clear message: disabled people belong in every part of community life.

I was a young Senate staffer in 1990 and had the opportunity to work on the ADA. I’ve spent the last 35 years working to uphold its promise. And I’ve never seen a more urgent moment than this one.

In the same month we mark this milestone, the federal government passed a budget that cuts nearly $1 trillion from Medicaid, a program that is the very foundation for inclusion. It helps people live at home, go to school, get basic health care, and contribute to their communities. At the same time, the Department of Education is being dismantled, leading to fewer staff enforcing special education laws. The Department of Energy is eliminating a longstanding rule that ensures new federally funded buildings are physically accessible. And slurs like the R-word are back in mainstream conversation, a huge step backward in basic decency and respect.

These are not isolated developments. Together, they show a national, coordinated pattern of erosion. Protections are being stripped. Services are being cut. And people with disabilities are being pushed back out.

This is exactly what the ADA was meant to prevent. When Congress passed the law in 1990, it found that “discrimination against individuals with disabilities persists in critical areas.” The ADA’s purpose was clear: to provide “a clear and comprehensive national mandate for the elimination of discrimination.” It also set a vision, one that is still relevant today: “equality of opportunity, full participation, independent living, and economic self-sufficiency.”

Yet 35 years later, those goals remain out of reach for far too many. And the very systems meant to protect them are being weakened. It’s no coincidence that disabled people are still fighting for access to education, employment, health care, and opportunity. This world wasn’t built with them in mind—so they’ve had to lead, build, and demand what others take for granted.

So we must ask: Who are we designing our society for? Who do we include, and who do we keep leaving behind? And what are we all missing because of it?

When people with disabilities are not at the table, we lose out on leadership, insight, and solutions. Inclusion is how we build stronger schools, smarter policy, more responsive workplaces, and communities that work for everyone.

The ADA was never the finish line; it was the floor. And right now, that foundation is being weakened by budget cuts, deregulation, stigma, and silence. It’s our job to bring it to life in ways that include everyone.

The Arc and our nearly 600 chapters nationwide are working every day to defend the ADA and build the future it promised. We are fighting for civil rights, community services, inclusive schools, access to health care, and respect. We were there when the ADA was written, advocating side-by-side with self-advocates and families to demand equal rights. And we’ve been there every step of the way since, holding the line, advancing progress, and insisting that the law’s promise becomes real in people’s lives.

Disability is a natural and valuable part of human diversity. It is also the one group any of us can join at any time. That means this fight is not just about disabled people, it is about all of us.

We cannot afford to turn away from these threats. A society that excludes people with disabilities will eventually exclude many more. Inclusion is one of the clearest ways we show who matters in our society. Let’s make sure our actions match our values.

A woman holding a sign that says "I am Medicaid. Don't cut me!" while standing in front of the U.S. Capitol in Washington, DC

An Important Update on the Medicaid Fight

/in /by Jackie Dilworth

The Senate just passed the budget bill, and it’s bad. The bill includes:

  • Nearly $1 trillion in Medicaid cuts. That’s about 20% of the federal Medicaid budget. It would cause nearly 17 million people to lose coverage.
  • Nearly $200 billion in cuts to SNAP. Less food assistance means more people will go hungry, including millions of kids.
  • A new private school voucher program that redirects public education funding to private schools. This will make it even harder for children with disabilities to access essential special education services.

Take action now to help us protect the very foundation of care and services!

What’s next? The Senate and the House must agree on a final bill to send to the President for his signature.

“This isn’t over yet, but this is serious, and we need your help,” said Katy Neas, CEO of The Arc of the United States. “With your calls, emails, and texts, we can still reach the hearts and minds of members of Congress on what these cuts will mean for people with disabilities and their families.”

We must stop these devastating cuts before it’s too late!

A picture of a mom and her son with IDD

Medicaid Expansion Saved Their Lives, Now Congress Wants to Cut It

/in /by Jackie Dilworth

For millions of people with disabilities and their families, Medicaid isn’t optional. It’s the glue holding everything together. It’s the health care and therapies that help children grow. The prescriptions that manage chronic conditions. The daily support that helps adults with disabilities get out of bed, work, and participate in their communities. The safety net that allows caregivers to keep going day after day.

But now, Medicaid expansion, a part of the Medicaid program that offers insurance coverage for certain people, including people with intellectual and developmental disabilities, is under threat. A federal budget bill moving through Congress proposes nearly $800 billion in Medicaid cuts, with Medicaid expansion directly in the crosshairs.

What Is Medicaid Expansion and Why Does It Matter?

Medicaid expansion, introduced under the Affordable Care Act (ACA), gave states the option to extend coverage to more low-income adults, including people with disabilities, chronic health conditions, and caregivers who had long fallen through the cracks. Many of these people have very low incomes but make just enough to be outside of the Medicaid income requirements. Others have developmental disabilities that do not meet Medicaid’s disability-specific requirements. In the 41 states (including Washington, DC) that adopted it, Medicaid expansion opened the door to health care for millions who had nowhere else to turn.

Who Benefits From Medicaid Expansion?

Some lawmakers claim Medicaid cuts won’t hurt people with disabilities. But these real people share how Medicaid expansion has impacted their lives.

Eri From Massachusetts
A mom and daughter with disabilities“My mother, an early childhood educator who worked with kids with developmental disabilities, died in 2012 because she couldn’t afford her asthma inhalers. By 2014, I was a teenager experiencing homelessness after losing my only caregiver. I had asthma, a severe mood disorder, and undiagnosed autism and ADHD, but I couldn’t afford health care or medication. Once Medicaid expansion happened, everything changed. I was finally able to receive care, go to college, and rebuild my life. Today, I’m employed, commercially insured, and still receive some Medicaid as a working adult with disabilities. I lost my mom before she could be helped, but expansion gave me a second chance. I’m living proof that it works.”

Monika From California
“I’ve never had a job that offered health insurance. And I never earned enough to pay for the high cost of insurance coverage or deductibles. Then Medicaid expansion came, and I finally got answers: my fatigue and severe joint pain were untreated lupus and rheumatoid arthritis. Now I get the care I need, and can keep caring for my dad, who has advanced Alzheimer’s and a brain tumor. My life and my family’s literally depend on Medicaid.”

What Happens If Congress Cuts Medicaid Expansion?

If Congress moves forward with these cuts, millions will lose access to care. Medicaid expansion has helped people:

  • Get diagnosed and treated
  • Access therapies that support their development
  • Learn, work, and contribute to their communities
  • Live safely at home instead of being institutionalized

Without it, we’ll see more uninsured people and more families pushed to the brink. And the people hit hardest? People with disabilities, caregivers, and low-income adults who are already navigating the most.

Is Medicaid Popular?

Yes, and public support is growing. New polling shows that 83% of Americans have a favorable view of Medicaid, up from 77% just months ago. That support only grows when people understand what’s at stake.

Medicaid Is Not a Handout. It’s a Lifeline.

When lawmakers say people with disabilities won’t be affected, they’re ignoring real people like Eri and Monika. People whose lives and futures depend on Medicaid expansion.

Their stories aren’t the exception. They’re reality.

We can’t afford to go backward—not now, not ever. Too much is on the line.

Read. Share. Take action before it’s too late. Urge Congress to protect Medicaid now.

A white man in a wheelchair on the sidewalk smiling while facing the camera

Why and How to Celebrate Disability Pride Month

/in /by The Arc

Disability Pride Month is a time to recognize the history, achievements, experiences, and struggles of people with disabilities. It affirms that disability is a natural and valuable part of human diversity—not a deficit or condition to be fixed.

More than 1 in 4 adults in the United States—over 70 million people—have a disability. This month calls on everyone to promote inclusion and ensure people with disabilities are accepted exactly as they are, without conditions.

What Is Disability Pride Month?

Disability Pride Month is an annual observance in July that celebrates people with disabilities, commemorates the signing of the Americans with Disabilities Act (ADA), and promotes disability culture and visibility.

Observed every July, Disability Pride Month recognizes the importance of the ADA, which was signed into law on July 26, 1990. It highlights disability culture, history, and community pride. This month challenges the harmful idea that people with disabilities need to conform to norms to live meaningful lives. Their lives are just as full, valuable, and worthy of respect—no more, no less.

The first Disability Pride celebration was a Disability Pride Day that took place in Boston in 1990. Chicago hosted the first Disability Pride Parade in 2004. Now there are events nationwide empowering people with disabilities to take pride in who they are.

Here’s more about the history of Disability Pride Month and the story behind the flag.

2025 Theme: “We Belong Here, and We’re Here to Stay”

The Arc’s National Council of Self-Advocates selected the 2025 Disability Pride Month theme: We Belong Here, and We’re Here to Stay. It delivers a powerful message—people with disabilities are a vital part of every community. Not someday. Not conditionally. Now.

As disability rights face growing threats in education, employment, health care, and public life, this year’s theme is a clear call to action. It pushes back against ableism—discrimination and bias against people with disabilities—and exclusion. It reminds us that people with disabilities will not be erased, ignored, or pushed aside.

Why Celebrate Disability Pride Month?

Many people with disabilities still face barriers to being fully included and valued. Ableism is often ignored, but its effects are real. It limits access to education, jobs, health care, and respect.

Disability Pride Month challenges that. At its core, Disability Pride is about being accepted on our own terms. It says disability is not something to hide or fix—it’s part of who we are. Everyone deserves inclusion, rights, and respect, without having to earn them.

How to Celebrate Disability Pride Month

  • Ways to Connect With People With Disabilities: Spend time learning from people with disabilities in real life and online.
  • How to Learn Disability History and Culture: Understand the roots and richness of Disability Pride by diving into disability history, rights movements, and cultural contributions.
    • Learn about key moments in the disability rights movement from UC Berkley’s archive and The Arc’s history.
    • Learn from people with disabilities through media like Crip Camp, CODA, Demystifying Disability, and Disability Visibility.
    • Follow disabled activists on social media and listen to what they share—not just during Disability Pride Month, but year-round.
  • How to Advocate for Disability Rights and Inclusion: Disability rights are under attack—from cuts to Medicaid and Social Security, to threats against IDEA, Section 504, and a resurgence of the R-word. Here’s how you can show up and make a difference:

Share Your Disability Story

What are you proud of? What do you want other people to know? Share your videos, pictures, or written answers on your favorite social media platform using hashtags #DisabilityPride and #DisabilityPrideMonth. We want as many people to join the conversation as possible! See what The Arc’s community has to say by finding us on Instagram, LinkedIn, Facebook, and X/Twitter. All content shared by The Arc includes alt text and accessible captions. This reinforces our commitment to accessibility—we hope you will do it, too!

Attend a Disability Pride Month Event in Your Area (updated for 2025!)

Meet and show your support for the local disability community by attending one of these events. This is the largest database for Disability Pride Month events there is!

If this page helped you learn more, share it to keep the conversation going.

If you have questions or events/resources we should add to this page, please email Jackie Dilworth at dilworth[at]thearc.org!

Three people stand on a grassy area in front of the U.S. Capitol holding bright orange signs that say “Protect Medicaid.”

The Truth About Medicaid Expansion and Disability Services

/in , /by The Arc

In recent debates over Medicaid’s future, some have suggested that extending coverage to low-income adults through Medicaid expansion has diverted resources away from people with intellectual and developmental disabilities (IDD) and undermined the program’s original purpose.

That claim is both misleading and dangerous. It risks turning vulnerable communities against one another and distracting from the real threats facing Medicaid that come from significant cuts.

Medicaid Expansion and HCBS Waiting Lists Are Not Connected

The argument that Medicaid expansion led to longer waiting lists for people with disabilities who need home and community-based services (HCBS) is often repeated but easily disproven.

There is no correlation between whether a state expanded Medicaid and whether its HCBS waiting list grew. 10 of the 11 states without HCBS waiting lists are expansion states, and the two states with the largest waiting lists—Texas and Florida—are non-expansion states. In fact, Texas’ waiting list alone represents nearly half of the nation’s total.

Because HCBS programs are optional services within Medicaid, states control their own waiver programs, including how many people are served and how much funding is allocated. Thanks to growing support for HCBS, Medicaid has made significant progress in shifting long-term care away from institutions and into the community. In 2022, 65% of long-term services and supports (LTSS) spending went to HCBS, compared to only 18% in 1995.

Blaming Medicaid expansion for state-level decisions about HCBS funding misrepresents how the program works and distracts from the need for stronger investments in these essential services.

Cutting Medicaid Funding Won’t Help People With Disabilities

Reducing or eliminating federal funding for the Medicaid expansion population would not free up money for people with IDD; it just means less funding overall for the entire program.

Medicaid is a vital part of our social safety net, which ensures that everyone who needs care can get it, whether they are managing a chronic condition, caring for a child with disabilities, or working a low-wage job without access to employer-provided coverage.

We should be fighting to expand services and reduce waiting lists, not blaming other groups of enrollees for long-standing systemic challenges.

A Medicaid Program That Works for Everyone Is the Goal

The truth is Medicaid expansion has strengthened the program overall by bringing in new resources to support people and expanding access to care for millions of people, including many with IDD and care workers. Many people with serious health conditions and disabilities do not meet the strict disability eligibility standards necessary to access Medicaid through the Supplemental Security Income program (SSI) or do not want to impoverish themselves to meet the SSI income and asset limits.

Medicaid expansion has helped many people with disabilities access critically needed health care. What endangers HCBS and other critical supports for people with disabilities are proposals to slash federal support for Medicaid under the pretext of targeting waste, fraud, and abuse within the program.

We should be investing in HCBS, increasing pay for caregivers, and expanding access to LTSS, not rolling back coverage or undermining Medicaid’s foundation.