A dynamic, diverse, and determined Board of Directors is an enormous asset to a chapter. From expectations for board members including fiduciary responsibilities to succession planning for Board leadership, The Arc’s Standards for Excellence offers high quality resources to help you establish and maintain progressive leadership. Contact Karen Wolf-Branigin or the For Chapters section of The Arc’s website.
The President’s Committee for People with Intellectual Disabilities (PCPID) has released their 2017 report on the DSP workforce crisis.
The intended outcome of this Report is to ensure that the Administration is “fully aware of and understand the effects of the direct support workforce crisis and the opportunities to address it in ways that strengthen the ability of people with intellectual disability to both participate in and contribute to their communities and the American economy. Not only does the crisis facing this workforce threaten people with intellectual disability and their families; it also undermines the stability, efficiency and ability to grow much needed long-term services and supports and, therefore, undermines the overall U.S. economy.”
Our DSP Toolkit is highlighted in the report (page 34), as well as a quote from The Arc of New London County (page 31). The full report includes:
On March 1, the disability community will gather across the nation to remember people with disabilities murdered by their family members or caregivers. For the last six years, ASAN, ADAPT, Not Dead Yet, the National Council on Independent Living, the Disability Rights Education & Defense Fund, and other disability rights organizations have come together to mourn the lives lost to filicide, bring awareness to these tragedies, and demand justice and equal protection under the law for all people with disabilities. We encourage chapters of The Arc and your members to attend these vigils to mourn the lives of those lost and bring awareness to this horrific trend of violence against our community. Find a vigil site near you. ASAN also has an anti-filicide toolkit available.
Has your chapter created print or digital products utilizing The Arc’s brand that you’re proud of? We want to see them! Materials can include email headers, social media graphics, building signs, flyers, business cards, you name it! You can email any digital materials to Ashley DuPont, Senior Graphic Designer. Any print materials can be mailed to Ashley at 1825 K Street NW Suite 1200, Washington DC 20006. We can’t wait to see all your amazing work!
The National Disability Rights Network (NDRN) is conducting a study for the National Council on Disability about the enforcement of federal disability rights laws and needs the viewpoint of people with disabilities. NDRN will conduct four focus discussion groups, two in February and two in March, for up to 12 – 14 participants. To find out more about the focus groups, and to see if you, or someone you know, would be a good fit to participate, please go to the following link: NDRN Focus Groups.
Members of Congress will be back home this week for the President’s Day recess – and they need to hear from you! This recess, please urge Congress to support community living funding through the Money Follows the Person (MFP) program. This vital program has provided federal funds to states to transition individuals with disabilities and the aging population out of institutional settings and back into their communities. The program expired in late 2016 and the programs are being dismantled across the country, we must act now to extend this program!
Below are tools and resources to support your advocacy:
Please tell us about your recess advocacy by filling out this short form. Thank you for your advocacy!
The Arc recently participated in an amicus brief before the Eighth Circuit Court of Appeals in the case Postawko v. Missouri Department of Corrections. Here, the plaintiffs filed a federal class action lawsuit in 2016 on behalf of Missouri prisoners seeking life-saving medical treatment while in prison, alleging that the Missouri Department of Corrections refuses to treat thousands of inmates with Hepatitis C in defiance of medical standards and in violation of the Americans with Disabilities Act. Class certification was granted in 2017 and defendants appealed. The Arc participated in a brief supporting class certification for plaintiffs and asserting the importance of class action lawsuits as an important tool for civil rights enforcement.
Washington, DC – Today, the House of Representatives passed HR 620, the Americans with Disabilities (ADA) Education and Reform Act, a bill that would create additional requirements for filing lawsuits under the ADA. The Arc released the following statement in response to the passage of the bill:
“Individuals with disabilities have faced decades of discrimination, abuse, segregation, and neglect which the ADA was designed to help counter. This sham of a bill weakens the civil rights protections people with disabilities rely on and undermines the opportunities for inclusion made possible by the ADA. The disregard that the authors and supporters of this bill have shown for people with disabilities is an assault on civil rights and an attack on citizens with disabilities.
“Our nation leads the world in respecting and valuing the lives of people with disabilities, fighting tirelessly to promote their rights through landmark legislation like the ADA. This bill is the first step in a dangerous direction and it is unknown where it may lead us. To erase decades of progress is a shameful betrayal of our nation’s values. While there is not a Senate version of this bill yet, we call on our Senators to do the right thing and oppose any attempts to roll back the protections of the ADA. They are our last line of defense against this attack on the civil rights of individuals with disabilities in America,” said Peter Berns, CEO of The Arc.
If HR 620 becomes law, a person with a disability who is denied access to a business would have to send a letter notifying the business that it is inaccessible and out of compliance with the ADA. The business would then have 60 days to respond and 120 days to make “substantial progress” toward fixing the problem. Only if the business failed to acknowledge the notification or make substantial progress in fixing the violation, could the business be sued. This shift in responsibility for a law that has been on the books for more than 27 years is unacceptable. Complicating and lengthening the notification requirement, thereby restricting the rights of all people with disabilities to have the ADA enforced, further delays their access to and participation in their communities.
HR 620 was drafted in response to concerns about a small number of individuals who have filed ADA lawsuits for financial gain. It is important to note, however, that no monetary damages are available under the ADA; rather, damages are provided under state laws. Thus, HR 620 simply does not solve the problem it is intended to address. It’s only real impact is to dissuade and delay people with disabilities from enforcing their right to be free from discrimination. Excessive lawsuits filed for attorney fees should be addressed through other means aimed at the unscrupulous attorneys involved, not by diminishing the rights of people with disabilities.
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The Arc advocates for and serves people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.
Have volunteer activities gotten stale? Donating and shelving canned goods at food pantries or making and delivering meals are fun and meaningful activities that work so well that we seldom think outside the (donation) box. However, the time is always right to put a twist on these old favorites and create a new instant classic, as The Arc of South Carolina did this past MLK Day.
The Arc of South Carolina was awarded a 2017 MLK Day of Service* grant to provide food to members of the local community in need. The chapter decided to focus its activities in Lexington and Richland Counties, which continue to suffer from a lack of access to food and high levels of poverty since a flood in 2015.
On the 2017 MLK Day of Service, The Arc of South Carolina and The University of South Carolina’s Best Buddies Program teamed up for a one-of-a-kind event: a peanut butter and jelly sandwich-making competition.
Volunteers had a great time making sandwiches and competing with one another. Volunteers who could make the fast PB&J sandwich or make the most sandwiches in 1- to 5-minute intervals won event t-shirts.
But just like the two flavors of peanut butter and jelly come together to make one great taste, the best part of this event was the result. After the competition ended, volunteers worked together to distribute sandwiches to homeless people in the area and to families who frequent a local food pantry that was closed for the day. Because MLK Day is a federal holiday, many local food pantries and soup kitchens are closed; so, these sandwiches helped feed people who may have otherwise gone hungry.
The whole day was a smashing success, proving that creativity and community service go together like PB&J. For more on inclusive volunteering and how disability organizations can build partnerships that serve community needs and strengthen The Arc’s presence in the community, visit https://www.thearc.org/inclusive-volunteering.
*In 2015, The Arc was selected by the Corporation for National and Community Service (CNCS), the federal agency that leads the Martin Luther King, Jr. Day of Service, to plan and execute volunteer projects that unite Americans in service for the MLK Day of Service and throughout the year. To date, 16 chapters of The Arc around the country have organized inclusive volunteer service projects where people with intellectual and developmental disabilities (I/DD) volunteer alongside people without disabilities to provide food to people in their communities who are in need. In total, these projects have brought together over 1,000 volunteers to serve more than 14,000 people in need.
WASHINGTON, DC – Earlier this week, the Trump Administration released a budget proposal entitled “An American Budget”. The Arc released the following statement in response to the proposal:
“Yet again, the administration has laid out a plan that shows a complete disregard for people with intellectual and developmental disabilities and their families. This Budget confirms our worst fears about the Administration’s strategy of using drastic program cuts for people with disabilities to help to pay for the tax cuts for the wealthiest individuals and largest corporations, which were enacted through the Tax Cuts and Jobs Act last year.
“The President’s Budget would have a devastating impact on people with disabilities and their families with unprecedented cuts to Medicaid, Social Security, and many other programs that make community living possible for many people with disabilities.
“We spent the better part of last year fighting proposed cuts that could have dismantled decades of progress for people with disabilities in our nation. We remain vehemently opposed to proposals, like these from President Trump, that attack the systems of support that enable individuals with disabilities to live, work, and thrive in the community. The disability rights community will continue to rally our advocates to put a face on these issues. Last year we showed the force of our network and we will remain unified against future threats,” said Marty Ford, Senior Executive Officer, Public Policy, The Arc.
The Arc advocates for and serves people with intellectual and developmental disabilities (I/DD), including Down syndrome, autism, Fetal Alcohol Spectrum Disorders, cerebral palsy and other diagnoses. The Arc has a network of over 650 chapters across the country promoting and protecting the human rights of people with I/DD and actively supporting their full inclusion and participation in the community throughout their lifetimes and without regard to diagnosis.
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