The LOI communicates the family and person’s intentions. Remember to review the letter of intent every year to check if anything needs to be changed. As the person with IDD ages, support needs may change. Developments in the lives of other family members and friends may require that support roles be modified.
Everybody should make a plan for the future. Planning helps you do the things you want to do.
A future plan tells the people in your life what you want to do. It tells them how they can help you do those things.
Planning for the future may require specialized legal assistance.
This tip sheet offers items for siblings to consider when starting the difficult conversation to plan for how their sibling will live in the future.
This plain language document shares questions a person may want to consider in a future home and gives tips on how you can get started thinking about a future home.
This plain language document provides an overview of public benefits that a person with IDD may want to consider and includes steps to take to see if you can get public benefits.
This plain language document provides an overview of how special needs trusts and ABLE accounts can help people pay for things they need and want.
State: New York
Filed: 2018
Court: New York Court of Appeals
Overview: The brief supported a mother with intellectual disability who had her child removed from her care without receiving appropriate accommodations from the state’s child welfare agency that would have allowed her an equal chance to parent effectively. The brief argued that the court must recognize the important role that the family and appellate courts have in enforcing the rights of parents with intellectual disability to receive the supports and accommodations they need to preserve and reunify their families. The brief also provided background on the meaning of an intellectual disability diagnosis, the long history of discrimination against parents with intellectual disability, and the social science and personal stories that show how people with intellectual disability can flourish as parents when provided the supports and services they need to thrive.
Excerpt: “Individuals with intellectual disability can learn how to parent, improve their parenting skills, and parent successfully with appropriate support. Robust enforcement of the reasonable accommodations requirement of the ADA is essential to guaranteeing that they have an equal opportunity to do so.”
Status: In 2018, the Court found that the child welfare agency had met the reasonable efforts requirement and provided all accommodations required. However, on the broader issue of the applicability of the ADA to the proceedings, the Court did state: “An agency, like ACS, that is subject to Title II of the ADA must make ‘reasonable accommodations’ to allow ‘meaningful access’ to government services…To be sure, ACS must comply with the ADA.”
Amicus Brief: In the Matter of Lacee L.
State: Connecticut
Filed: 2016
Court: Connecticut Supreme Court
Overview: The brief supported a mother with intellectual disability and schizophrenia whose parental rights were terminated by the state’s child welfare agency, despite the agency failing to provide necessary accommodations to the mother throughout the process. The brief argued that termination of parental rights and neglect proceedings are “programs, services, and activities” that must comply with Title II of the ADA.
Excerpt: “Parents with intellectual and psychiatric disabilities face profound challenges when their government accuses them of unfitness. Though nine decades have passed since Justice Holmes upheld the forced sterilization of “mental defectives”…we are not so far removed from Holmes’ bias: Ten states still permit the involuntary sterilization of persons with disabilities; some in language that echoes Holmes’ disdain for its subjects. In Connecticut, parents with intellectual and psychiatric disabilities confront more than just a legacy of discrimination: They also contend with a know-it-when-you-see-it reunification standard and case law that forbids consideration of the ADA. Holding that compliance with the ADA is mandatory in termination and neglect proceedings will remove these two barriers to fair and accurate assessment of the parental fitness of persons with intellectual and psychiatric disabilities.”
Status: In 2017, the Court held that the mother was unable to benefit from reunification efforts. The Court further held that “it is the law of this state that child welfare proceedings are subject to the provisions of the ADA insofar as they involve the services, programs, or activities of any stage agency…the department’s failure to make reasonable modifications to its services, programs or activities to accommodate a parent’s disability would likely preclude a finding…that the department’s reunification efforts were reasonable under the circumstances…We therefore continue to encourage trial courts to look to the ADA for guidance in fashioning appropriate services for parents with disabilities.”
Amicus Brief: In Re Elijah C.
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