The Arc Submits Letter of Support for the Stop Institutional Child Abuse Act

Dear Member of Congress,

The Arc of the United States writes in strong support of the Stop Institutional Child Abuse Act (SICAA) H.R.2955 & S.1351.

The Arc of the United States has nearly 600 state and local chapters across the United States. These chapters provide a wide range of services for people with intellectual and developmental disabilities (IDD), including individual and systems advocacy, public education, family support, systems navigation, support coordination services, employment, housing, support groups, and recreation. The Arc chapters are committed to improving the lives of people with IDD and their families, including the youth with disabilities who experience disproportionate harm at youth residential programs.

An estimated 120,000-200,000 of our nation’s most vulnerable youth are pipelined into youth residential programs each year by state child welfare and juvenile justice systems, mental health providers, federal agencies, school districts’ individualized education programs, and by parents. These facilities, including but not limited to boot camps, wilderness programs, therapeutic boarding schools, residential treatment facilities, or group homes, cause harm at a higher rate to youth who are Black Indigenous People of Color (BIPOC) and youth with disabilities.

These programs receive an estimated $23 billion dollars of public funds annually to purportedly “treat” the behavioral and psychological needs of vulnerable youth yet there are systemic reports of youth experiencing physical, emotional and sexual abuse including but not limited to prolonged solitary confinement, physical, chemical, and mechanical restraints, food and sleep deprivation, lack of access to the restroom or personal hygiene, “attack therapy,” forced labor, medical neglect, and being denied a free and appropriate public education (FAPE). Public records and news reports have documented more than 350 preventable child deaths in these programs.

The Stop Institutional Child Abuse Act aims to lift the curtains on this opaque industry by enhancing national data collection and reporting and facilitating information sharing among every agency who interact with these programs. Transparency and accountability are critical in our mission to ensure the safety and well-being of youth in institutional care settings.

The Stop Institutional Child Abuse Act will establish:

A Federal Work Group on Youth Residential Programs to improve the dissemination and implementation of data and best practices regarding the health and safety, care, treatment, and appropriate placement of youth in youth residential programs.
A complementary study by the National Academies of Sciences, Engineering, and Medicine to examine the state of youth in youth residential programs and make recommendations for the coordination by Federal and State agencies of data on youth in youth residential programs; and the improvement of oversight of youth residential programs receiving Federal funding.

If you have any questions about the Stop Institutional Child Abuse Act or would like further information, please email Rebecca Mellinger, Paris Hilton’s Head of Impact, at impact@1111media.co.

Respectfully,

Robyn Linscott

Director of Education and Family Policy

The Arc of the United States

Ball v. Kasich

State: Ohio

Filed: 2017

Court: United States District Court for the Southern District of Ohio

Overview: The brief supported plaintiffs in Ohio seeking appropriate services in the most integrated setting in the community challenging the state’s practice of providing immediate placement in institutions for those seeking state-funded services, but taking 13 years or more to provide community-based services. The brief argued for certification of the class and outlined research demonstrating that states have successfully shifted from institutional placements to person-centered, community-based services even for those with the most significant disabilities and complex medical needs.

Excerpt: “Similar to other states that have successfully shifted their funding scheme to favor community-based options rather than institutional placements, the changes sought to Ohio’s system for the provision of community-based services and supports to individuals with IDD are both readily achievable and critically important. Such structural and systemic changes, however, simply cannot be achieved through individual lawsuits. As Plaintiffs note, Ohio’s institutional footprint is one of the largest in the United States. In 2013, more than 22,000 Ohioans with immediate needs were on waiting lists for community-based services at the time, with a median wait time of over 13 years. These numbers are unacceptably high and reflect a systemic problem that cannot adequately be addressed through individual litigation. Systemic relief is needed to ensure that proposed class members have sufficient access to a process that will allow informed choices…and lead to integrated, community-based residential, employment, and other services for those seeking such options. Without a class, such relief will not be achievable.”

Case Documents

Amicus Brief

S.D. Ohio Opinion

Related Media

Disability Rights Ohio Press Release: “The Arc of Ohio, The Arc of the United States and the Bazelon Center for Mental Health Law Support Community Integration Class Action Suit”