The Arc logo

The Arc Responds to Trump Administration’s Latest Assault on the Affordable Care Act

Yesterday, the Trump Administration announced funding cuts to programs that assist people enrolling in health insurance. It would result in severe cuts to the Navigator program totaling more than $25 million. Specifically, the funding cuts would decrease the program budget from $36.8 million this year to $10 million in 2019.

Health Care Navigators provide in person assistance to individuals as they enroll in health insurance plans. Programs like this provide essential support to individuals with intellectual and developmental disabilities (I/DD) and others who are seeking support as they enroll in health insurance plans.

“The Navigator program provides important support to individuals with intellectual and developmental disabilities who are dealing with the complexities of finding the right health insurance program to fit their unique needs. Slashing the program creates additional barriers to enrollment in health insurance. This funding cut highlights intent of the Administration to undermine access to health insurance for millions of people with disabilities.

“We remain steadfast in our commitment to protect the Affordable Care Act and the benefits it provides for people with disabilities. Our hope is that Members of Congress will realize the dire impact that funding cuts to this program will have in their states and remedy the situation,” said Marty Ford, Senior Executive Officer of Public Policy, The Arc.

The Arc logo

IDD Provider Survey on Self-Directed Services and Supports

As services for people with intellectual and developmental disabilities become more individualized and self-directed, provider agencies are making the switch to more community-based, person-centered supports. While many providers have successfully transitioned to self-directed services, many others still face internal and system-wide barriers limiting their capacity to change.

The Spark! Initiative, an Optum supported initiative, is conducting a nationwide survey of professionals who work with adults with intellectual and developmental disabilities to better understand how to support service agencies that are navigating the shift to self-directed services.

If you work for an agency that directly provides services and supports to people with IDD: please follow the link below to fill out the survey. Please also forward this email to others in your organization who may be interested in responding. Optum would like to hear the perspectives of all provider agency employees.

If you do not work for an agency that directly provides services and supports to people with IDD: please consider forwarding this link to providers who may be interested in responding.

Please click on the Link below for more information and to participate in the survey!

Survey Link: Self Directed Services and Supports

This survey will take about 30 minutes to complete. After completing the survey, you can enter in a drawing to receive free registration to attend a national conference for service providers. Any personally identifying information that is asked in this survey or used to contact you (such as email and agency name) will be kept confidential. The information being collected in this survey will not be used to evaluate the performance of your agency. Your individual responses will remain private while adding to the overall understanding of supports and barriers that agencies face.

This research is funded by Optum, developed by the research team at the National Leadership Consortium on Developmental Disabilities, and directed by the Spark! Initiative. The Spark! Initiative is comprised of representatives of more than 25 organizations focused on developing a variety of resources for the general public to support and empower adults with intellectual and developmental disabilities (IDD) to live a self-directed life. Optum developed the Spark! Initiative to bring together leaders in government, nonprofits, and private sectors to discuss solutions to better support people with intellectual and developmental disabilities. 

Any questions, comments or concerns? Please email NationalProviderSurvey@udel.edu.

The Arc logo

Chapter Benefits Spotlight: Bylaws

Is your local chapter implementing your duties and responsibilities as per The Arc’s Bylaws? Local chapters, consistent with available personnel and resources, should at a minimum:

  • Engage in advocacy on behalf of people with I/DD and their families;
  • Assist people with I/DD, family members, the media, public officials, and members of the public to access information about the needs, issues and concerns of people with I/DD and their families;
  • Support and mobilize constituents in support of public policy initiatives at the state and national level

Contact Karen at wolf-branigin@thearc.org if you’d like a copy of Bylaws of The Arc or ideas on how your chapter can meet the letter and spirit of our bylaws.

The Arc logo

National Disability Voter Registration Week Next Week!

July 16-20, 2018 is National Disability Voter Registration Week (NDVRW), organized by AAPD through the REV UP Campaign. The purpose of the week is to get people with disabilities and their families and friends, registered to vote, and educated about the upcoming election. Across the country, many chapters of The Arc in partnership with REV UP are coordinating events in their communities for NDVRW.

Check out the sample social media posts and graphics below from REV UP to help spread the word online:

Sample Posts:

It’s National Disability Voter Registration Week 2018 – get registered! vote.gov #REVUP

[Your chapter’s name] is participating in National Disability Voter Registration Week this week! Visit [link to your website with event information] to learn more about our upcoming voter registration events! #REVUP

Looking for information on voting? Check out SABE’s GoVoter project to learn more about voting as a person with a disability sabeusa.org/govoter

Sample Graphics:

NDVRW Week Graphic  – Facebook

NDVRW Week Graphics – Twitter   

Map Animation

 

The Arc logo

Scholarship Opportunity: National Convention

This year, The Arc is excited to provide a limited number of Disability Advocate Scholarships to people with intellectual and/or developmental disabilities to attend our National Convention in November!

Disability Advocate Scholars must

  • Be people with intellectual/developmental disabilities
  • Apply and be selected to receive a scholarship (scholarships pay for your registration and hotel)
  • Attend convention sessions
  • Work with The Arc to share about the event and what they learned
  • Be willing to be in photos and engage in social media

People who are interested must apply by August 15, 2018.

We will inform selected scholars by September 15.

Learn more and apply at convention.thearc.org/scholarship/. Please contact Sladen@thearc.org if you have any questions.

The Arc logo

The Arc Join Amicus Brief in Support of the Right of Children with Diabetes to Access the Army’s Childcare Programs

This month, The Arc joined an amicus brief in the Ninth Circuit Court of Appeals in support of the plaintiffs in the case M.W. v. Army. The brief supported children with diabetes and the American Diabetes Association who alleged that the Army’s childcare program discriminates against children who need insulin treatment for diabetes, thereby effectively excluding children with diabetes from its childcare programs. The brief focused on the right of the American Diabetes Association to bring the lawsuit on behalf of its members, emphasizing that a broad view of standing is essential in civil rights cases and that the robust rights conferred by the Americans with Disabilities Act rely heavily on private enforcement.

The Arc logo

Marty Ford Honored with AAIDD Public Policy Award

This past month, Marty Ford, our Senior Executive Officer of Public Policy, was awarded the first-ever AAIDD Public Policy Award. Our Director of Public Policy Nicole Jorwic shared a few words about the immeasurable impact Marty has had on our organization and the disability sector as a whole:

“For Marty’s entire professional career, she has worked for The Arc and fought to create policy and protect programs that make the lives of individuals with I/DD and their families lives better. Marty has relationships on the Hill and in the field that are based on trust and respect. Marty is tactful and brilliant as a lobbyist and policy guru which is why The Arc is so often the first phone call from Hill staffers, from both sides of the aisle. Because of Marty’s reputation, anyone calling knows that they will get the most accurate information, with all the nuances and discretion if it is required.

Marty is everyone’s go to person because nobody understands how all of the different programs work together, and the technical and historical perspective better than Marty. Marty can cite the specific part of the Social Security Act you may need, and explain the negotiation process of every major piece of legislation for the past several decades since she was there, but what is even more special is her passion for the work. Marty is also a sibling. Marty has worked hard to support the policy work, legal advocacy efforts and advocacy of The Arc for decades driven by clear and unshakeable values and pure integrity. There is nothing as forceful as a fired up Marty Ford and as we have faced the policy challenges of the last 18 months, her passion has driven all of us. We never forget what we are fighting for on the policy team with Marty as our fearless leader.” – Nicole Jorwic, Director of Public Policy

The Arc logo

The Search is On for Steering Committee Members!

The National Conference of Executives (NCE) of The Arc is seeking talented, motivated leaders who wish to share their skills and knowledge with the greater NCE membership and play a role in shaping the professional development of our network of leaders. With a diverse leadership network of nearly 650 chapters, we are looking for YOU and a perspective that will be invaluable to the Steering Committee! The Arc’s leadership needs are outlined in the 2018 NCE Prospectus. You can submit your nomination by filling out the application for the Steering Committee.

The Arc logo

Talent Search for The Arc’s New Alumnae Council

Every year there are dozens, perhaps hundreds, of people that leave The Arc — retiring board members and executive directors, staff moving on to other jobs or leaving the workforce. Wouldn’t it be great if we could keep them involved in our cause? Over the past year, we’ve had a group of alumnae of The Arc that have come up with plans for how to stem the loss of talent and keep some of our most passionate advocates engaged. We’re launching The Arc Alumnae Council to do just that, but we need your help to identify alumnae.

Please take a look at the description of the new Alumnae Council and send it to anyone who has left your chapter whose energy and passion can still benefit The Arc. Or use this form to give us contact information for potential Council members and we will reach out to them directly. Questions? Contact Peter Berns at berns@thearc.org.

The Arc logo

Executive Spotlight: Christiano Sosa, The Arc of Colorado

Christiano Sosa, Executive Director of The Arc Colorado, smiles for a photograph wearing a blue polo. In fall of 2017, The Arc of Colorado welcomed Christiano Sosa as its new Executive Director. With a strong background in cause-driven work, Christiano has spent his first few months at the helm achieving big policy victories in employment, housing, DSP wages, and more.

Welcome to The Arc Family! Can you tell us a little bit about your background, and what drove you to become involved with the disability sector?

I have worked in social justice the entirety of my career, and I can’t imagine not being involved in social justice. I can’t think of a better organization that aligns with my values more than The Arc. The last 12 years I have worked in philanthropy providing resources to great non-profits that took on the work of addressing systems issues. While I loved my work in philanthropy, I came to understand that money alone cannot solve the problems unless system changes are effectively implemented. This came to be my calling.

What are some of the top priorities for your chapter right now, and how are you addressing them?

We certainly have our eye on reducing the waitlist so people get the right services at the right time. We will be looking at the settings rule and how that is implemented in Colorado. We will be working with our partners to ensure all of the rules and the promulgation of those rules are informed by the collective experience of the 14 chapters across the state. Inclusion and equity, in all of its forms, needs to be top of mind when we think about any systems or policy change. It will be a central focus of the Arc of Colorado moving forward.

Your chapter has worked heavily – and effectively – on a variety of legislative advocacy at both the state and national levels. Tell us about some of your biggest wins over the past few months.

We had tremendous wins in this Session. All five of our prioritized bills went on to the Governor. We had a priority in ensuring that people with intellectual or developmental disabilities have clear paths to employment, and through our work with our partners at the Department of Health Care Policy and Financing (HCPF), the Disabilities Council, the Arc of Larimer County and countless others, we ensured that people understand best practices under discovery and intake. People with I/DD in the state now have landlord tenant rights, which they were previously excluded from. We were able to increase Direct Service Providers’ wages 6.5 per cent. We whittled down the waiting list for the Comprehensive Waiver to close to three thousand. We were able to reauthorize the Child Mental Health Treatment Act and make that permanent. Finally, we were able to move the Children’s Habilitation Residential Program Waiver (CHRP) over to HCPF from the Department of Human Services, and eliminate the previous waiver requirement that parents give up their custodial rights if their child has mental health needs and requires residential treatment. I am happy to share our journey with others at csosa@thearcofco.org.

What are some of the greatest challenges and opportunities you see on the horizon for The Arc of Colorado?

I am fortunate to come into an organization that is widely known and respected at the Capitol for our bipartisan work. This is difficult, complex work. It takes whole communities to rally together. The measurement of success for me will be when I see individuals with I/DD getting the right supports at the right time, throughout their lifetime and are part of society in ways they haven’t necessarily been in the past.

What advice do you have for other chapters working to ramp up their advocacy efforts?

It is incredibly important that we work on a bipartisan level. Fundamentally, I believe policy issues around individuals with intellectual or developmental disabilities are bipartisan. Our job is two-fold, one is about education and the other is to work with our elected officials so the voices of people with I/DD are heard. Beyond this, we must always be sure that inclusion and equity are the top values that we adhere to, if inclusion and equity come first, good policy can follow.

Tell us one fun fact about yourself.

I am a certified cake decorator in buttercreams, fondant, gum paste and a variety of other techniques. I find the work relaxing and there is the bonus of sampling the creations!

We want to hear about the amazing work your executives are doing in chapters across the country! If you’re interested in being spotlighted, please email Pam Katz at katz@thearc.org.