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Building Vocational Success at The Arc of Carroll County

April is Autism Acceptance Month, and in honor of the launch of The Arc’s new initiative TalentScout, we at The Arc of Carroll County wanted to highlight some of the programs we are implementing to improve the lives of people with intellectual and developmental disabilities (IDD) in the workforce.

Preparing for Success

The Arc of Carroll CountyFor the past 16 years, The Arc of Carroll County has had several educational partnerships to provide support to high school students and students in the Post-Secondary Program. One of these is VOICE, which teaches how to work with others, understanding the role of a job coach, and employer expectations. Another, TCP, focuses on the school-to-work transition and consists of locating job leads, filling out applications, interviewing, and being independent on the job.

Over the summer, we offer the Summer Youth Employment program for eligible high school and post-secondary participants. Through the program, participants have the opportunity to work in community businesses over the summer with the support of a job coach. This is paid employment, and plans are person-centered to identify unique supports for each person served.

A service we offer specifically for adults on the spectrum is Job Hunters. Coursework covers developing job skills, cover letter and resume writing, dressing for success, and other abilities. While the class itself is 10 weeks, it doesn’t end there! After the course is done, we continue to work with you until you become successfully employed. Last year, we successfully helped a student named Conner develop his skills and secure a job at the Westminster Home Goods for the holiday season. Now, Conner has made huge strides (all the way across the world!) and is residing in Japan looking for work teaching English to Japanese students.

Continued Support

The services don’t stop once someone has found employment. If specialized skills are required, we provide customized training to meet individualized employer needs. Program Coordinators and Employment specialists continue to work with individuals to liaise between the employee and employer to optimize vocational success.

Our Vocational Program, which follows a Place-Train-Maintain model, provides support, instruction, training, and supervision if necessary to maximize independence in the workplace. Some of the ways we do this are through job sampling, shadowing, and enclaves. One of the most unique parts of this program is Supported Enterprise, which assists individuals who are interested in starting their own small business through developing business plans and identifying funding sources. Our hope is that these participants may one day end up at Entrepreneur Alley during The Arc’s National Convention.

We believe that everyone has a right to meaningful and gainful employment, and that community services through The Arc’s chapters are a paramount tool in achieving this.

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When We Move Forward Together, Anything Can Happen

This is a guest blog post by Mardra Sikora.

A few years ago, my son and I sat backstage during the Broadway Across America national tour performance of Mary Poppins. The cast sang, “Anything Can Happen, if You Let it,” and danced across the stage exuberantly pursuing their point. I believed them, because Marcus would soon be on stage singing right alongside them. This was in 2011 and the opportunity came from an auctioned event. Since then, his ambition to write his own musical and perform on stage has continued to grow. In fact after telling one actor at a community theater that he wanted to play the leading role, that actor reminded Marcus of the quote, “The greatest of journeys starts with a single step.”

The Next Step

MarcusMarcus keeps taking steps. His latest endeavors have netted a short play which is being produced this month at a local public high school. The show is called “Cassie Through the Closet Door.” The role of Cassie was inspired by an actress who Marcus worked with while participating in a project called the Art of Imagination. A program developed by our local chapter of The Arc, the Ollie Webb Center. Marcus has taken beginning acting classes through this program and hopes to move on to advance acting and then classes within the community next. These classes teach craft and understanding theater, but his innate talent is as a storyteller. Coming up next is the release of his children’s book entitled Black Day: The monster rock band, with a read along animated short to follow on DVD this fall.

Dreams Take a Village

There are still some who can’t believe what Marcus can achieve, but frankly Marcus doesn’t care what they think. That is perhaps one key to his continued ambition and potential for success. But it’s more than that, it’s also a community, a team effort. Ask any Olympian if they did it alone. There’s a reason award acceptance speeches are so long, the list of “Thank You’s” include many supporters within their community. Many people have to come together to teach, support, encourage, and enable anyone to reach their dreams.

Menschen cardMarcus also has some great role models breaking the social barriers. Connor Long, is one example of a young adult self-advocate who is following his acting aspirations. He’s already received accolades and awards for his role in the live action short Menschen. Which The Arc is sponsoring shows in cities across the country. The most recent list is at the end of this review, check back for updates. (Be sure to talk to your local arc to bring the show to your town.) Connor is busy with local theater at events and is also in production of his next film project, Learning to Drive, another example of a writer-director with a personal story to tell.

These two young men are just the tip of the iceberg, there are so many self-advocates taking steps to achieve their dreams. With their actions they are teaching communities, and because our communities are growing more inclusive, they continue to move forward. Let us all keep moving forward together, sharing, teaching, and learning that together, “Anything Can Happen, if You Let it!”

Bio: Mardra Sikora believes in the power of words and uses both fiction and non-fiction to advocate for and with her adult son Marcus. You can find her and Marcus on the blog Grown Ups and Downs, Facebook and Twitter as well as on various blog networks including The Huffington Post.

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“Unreal” – My Trip to Washington for the President’s State of the Union Address

An interview with Sara Wolff, board member of National Down Syndrome Society, Board Member of The Arc of Pennsylvania, and her local chapter, The Arc Northeastern Pennsylvania as their Secretary.

Sara Wolff, 31, is a leading advocate for the Achieving a Better Life Experience (ABLE) Act for 8 years and continuing speaking and advocating for people with intellectual and developmental disabilities (IDD), Down syndrome and other disabilities. Sara spoke to The Arc’s staff by phone on her way back home to Pennsylvania after attending the President’s State of the Union address as a guest of her U.S. Senator, Bob Casey. Members of Congress are given only one ticket for a guest at the annual speech before Congress. Sara and Senator Casey worked together on the ABLE Act, which President Obama signed into law in December of 2014.

What did you do before attending the speech?

I had dinner with Senator Casey and his wife, we had a great time. We also did some television interviews – it was awesome. We did four interviews together and we talked about the ABLE Act and many other issues.

What did you think about the speech?

I was very interested in many of President Obama’s points – I liked what he said about education and the middle class.

What did you think about being in the chamber?

Unreal. I felt like I was right there, with the President. Where I was seated he was right in the center. What an experience that I will never forget.

How was your seat?

It was crowded and I sat with a lot of people. I met a lot of people and I had a good time. I did have a good view of the President speaking.

What did you do after the speech?

I just hung out with my sister and Senator Casey’s staff. Went back to his office for a little while. It was a really cool night. I’m looking forward to getting home and doing more with the National Down Syndrome Society, The Arc of Northeastern Pennsylvania, and continuing to working at O’Malley & Langan Law Office in Scranton.

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60th Anniversary Marks Milestone for The Arc of New Mexico

How Diversity Is Strength at The Arc of New Mexico

There were many reasons to celebrate at The Arc of New Mexico State Annual Conference in June. Balloons and a bedecked cake displaying “60 years” were visible reminders of how far they’ve come.

Randy Costales, Executive Director of The Arc of New Mexico, says that in a state with a variety of cultures, languages, and backgrounds, it can be difficult to meet the needs of each community. Although New Mexico has only one local chapter The Arc of New Mexico has established Statewide Advocacy Network that includes the local chapter, a southern office and several home offices throughout the state. Over time he has found that opening several home offices throughout the state helps cut costs and provide better services.

“We have to be able to respond to the needs of all the citizens of New Mexico that have IDD regardless of their age, ethnicity, or background,” said Costales.

The Southern New Mexico office was established 15 years ago to provide services to Dona Ana County, one of the poorest counties in New Mexico. A majority of the population is Hispanic and all staff are bilingual. A key to the success of this office is having employees from the area who can understand the needs of that region. Other offices have been established in Santa Fe, Silver City and soon in Roswell.

In another region of the state The Arc of New Mexico provides funding to The Arc of San Juan County, near the Navajo Nation, to provide advocacy. Advocate Dolores Harden, an employee of the local chapter, is known for her ability to relate with the people she serves on a personal level. Harden, who has two sons with intellectual and developmental disabilities (IDD), visits and serves individuals and families at their homes and is also involved in a self-determination program for people with Down syndrome. Costales says that her work has been integral to The Arc’s success in New Mexico.

“She is a quiet, unassuming woman who is one of the most effective advocates I’ve ever seen,” said Costales. “Because of her, we have reached more people.”

Thanks to the Isabel Gonzales Trust established in 2010, The Arc of New Mexico is able to provide special services and support for individuals with Down syndrome and their families. The Arc of New Mexico has used funds to provide person centered planning for people with Down syndrome and their families as well as stipends to attend national and state conferences.

“We’re very appreciative of the partnership with the national office,” said Costales of this joint venture of The Arc of New Mexico and The Arc’s national office.

There are many areas of the country with diverse populations and thanks to a grant from the MetLife Foundation, The Arc is launching a new diversity initiative to make programs and services more accessible to those diverse communities. The Arc’s national staff looks forward to learning from chapters with rich diversity like The Arc of Mexico, and hopes other chapters will find inspiration from all this state chapter has accomplished.

With 60 years of experience, the organization looks to the future of service for individuals with IDD in New Mexico. Lessons from the past will ensure many future successes and growth for this powerful chapter of The Arc.

“What I love about my job is the diversity of the people we serve,” said Costales. “Each county and community is different.”

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Reflecting on Wings for Autism

By Sylvia Fuerstenberg, Executive Director of The Arc of King County

Wings for Autism took flight at SeaTac Airport, and it was a great success. I am so grateful for all of the families who took part in our launch, as well as the many volunteers who made the event a success. The commitment of The Port of Seattle and Alaska Airline is phenomenal. They are single minded in making travel inclusive for everyone. The TSA even made going through security a positive experience. When that is true, you know that everyone was committed! Although I could say a lot more about the event, I would rather let some of the parents and event partners tell you about their experience.

From Lisa Okada Visitacion, Mom:

“Phenomenal event. Increasing awareness and understanding. Building confidence and skills. Giving families hope. These are just a few thoughts I had about the Wings for Autism event yesterday. Kelli (and all the other participants) did such an amazing job. Many, many thanks to all the volunteers (there were many!) and staff at The Arc of King County, Alaska Airlines, TSA and the Port of Seattle. We will remember this experience forever and will most likely be flying Alaska Airlines when we travel by air. (I wonder if we can we take along a few of the volunteers, too?!?!)”

From Jacki Jones Chase, Mom:

 “We got in the plane and they taxied it all over the airport runways. Then they stopped and let the kids, and adults, go check out the cockpit and bathrooms – they really put on an awesome event for kids with Autism!”

From Jennifer Wade, Mom:

 “From the moment my family arrived at the airport, there was a friendly, smiling person with a Wings of Autism T-shirt on, guiding us along our way. Every step of the process we were assured, explained the process and every attempt was made to ensure we were comfortable, our questions answered and made to feel at ease in what is potentially a stressful situation for any parent /caregiver, taking a child on a flight. A special thanks to our pilot Mark who walked thru the entire waiting area talking to each family, meeting the kids, shaking hands and relaying his own personal story and why the event was so important to him. Having a child with special needs I’ve learned that it’s the support of family, friends, specialist and complete strangers willing to share their own insight and compassion that keeps our momentum going onwards on the path of progress and potential.”

Ray Prentice, Partner at Alaska Airlines:

“I didn’t realize until this event that a little bit of additional training and guidance, combined with our great caring employees, could totally change people’s lives. Speaking on behalf of Alaska Airlines’ volunteers I can openly share that we had a blast. We felt a close connection with everyone at the event.”

From Sue Hanson Smith, Partner at The Port of Seattle who traveled to Boston to learn about the event and inspired us to bring it to Seattle:

“Thank you for all for pulling off a spectacular, in some cases, a life-changing event. I am so proud to be part of such a well-organized, energetic, and fun-loving team of professionals! The Arc of King County rocks! Without you we would not have had the families and the special kids to learn from.

Without Alaska Airlines we wouldn’t have been able to provide the “life-changing” experience. Thank you so much for your flexibility and your generosity in providing the airplane experience and memories to these selected families and their children. The t-shirts were the best!

And…TSA was outstanding in their ability to provide an easy, pleasant experience to the families and their children. From all the comments I heard, the first Wings for Autism at Seattle-Tacoma International Airport was a great success and it’s because of all of you.”

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A Chapter of The Arc Promoting Health and Nutrition in Schenectady County, New York

Know Grow Eat participants A few years ago, Schenectady County Public Health Services and Schenectady Arc formed a unique partnership to address the high rates of chronic disease and obesity among people with IDD in Schenectady County through the Strategic Alliance for Health. Schenectady Arc a  provider of residential, vocational, clinical, and adult day services in New York State’s Capital Region, recognized that among its 1,480 participants, nearly 10 percent were diagnosed with cardiovascular disease, obesity, or diabetes and wanted to do something to address the needs of those they served.

While nationally-based research showed individuals with IDD were more prone to incidence of chronic disease, Schenectady Arc had confidence that they could help their participants by improving their diet and educating them about healthy eating habits. Further research found that children who participated in a “seed to table” nutrition education program tended to increase their consumption of fruits and vegetables. Through this program, children participated in a variety of regularly scheduled activities such as vegetable taste-testing, hands-on gardening, and recipe preparation. Based on these studies, Schenectady Arc created Know, Grow and Eat Your Vegetables, a garden-based nutrition education program for people with IDD. The agency’s horticulture coordinator oversaw the new program which was located at Schenectady Arc’s commercial-sized greenhouse in Rotterdam, NY. The coordinator assessed awareness of and preference for 15 vegetable types and, worked alongside 70 participants to plant and cultivate seedlings.

Know Grow Eat participantsWhile the vegetables were being grown, nutrition educators from Cornell Cooperative Extension of Schenectady County (CCESC) conducted a six-week program adapted to the specific needs of individuals with IDD. This training provided participants and staff with strategies regarding healthy meal preparation practices and how to incorporate vegetables into daily meals and snacks.

This remarkable program continues to flourish and provide nutrition and education for individuals with IDD in Schenectady County. Since the program began, participants have harvested approximately 1,000 vegetables. Vegetable packets, along with recipes, were distributed for consumption in group home or family home settings. Last year, this program was named by The National Association of County and City Health Officials (NACCHO) as a model practice and an implementation guide can be found on the U.S. Centers for Disease Control and Prevention website! Also, during The Arc’s National Convention, Schenectady Arc and NACCHO presented together, giving chapters of The Arc the opportunity to learn from the success of this program.

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The Arc Maryland Responds to Governor’s Executive Order to Establish Commission

Governor O’Malley Forms New Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities

ANNAPOLIS, Md. — The Arc Maryland responds to Governor O’Malley’s Executive Order to establish the Maryland Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities. The Executive Order was created as a response to the tragic death of Frederick County resident Ethan Saylor, who had Down syndrome, in an effort to improve the training of law enforcement, paramedics and other first responders to better respond to people with intellectual and/or developmental disabilities.

In a press statement issued on February 21, The Arc Maryland responded to the tragic death of Robert Ethan Saylor: “Sadly, this tragedy could have been prevented…with proper training these officers would have realized there was a better way to work with Robert, as opposed to simply using force – an extreme and unnecessary reaction. This is a moment for us not only to mourn, but we must also learn from this tragedy and encourage proper training in our police departments,” said Kate Fialkowski, Executive Director, The Arc Maryland.

Individuals with intellectual and/or developmental disabilities (includes children, youth and adults with disabilities such as autism, cerebral palsy and Down syndrome) represent 3% of the population living in our communities as valuable contributing citizens. Individuals with intellectual and/or developmental disabilities (IDD) are disproportionately victimized and disproportionately suspected of criminal activity—7 times more likely to come in contact with law enforcement than the general population. Individuals with IDD often have co-occurring medical conditions such as neurological, cardiac, or respiratory conditions that make them more vulnerable in stress situations. The use of prone restraints – which is associated with increased risk of asphyxia and aspiration – can result in fatality. (National Review of Restraint Related Deaths of Children and Adults with Disabilities: The Lethal Consequences of Restraint, 2011).

Carol Fried, President of The Arc Maryland said: “It’s our collective responsibility as a community to understand the unique gifts of our fellow community members, but also to ensure that our protective service systems are savvy in ensuring safe treatment of a vulnerable population.”

A comprehensive approach is necessary and The Arc Maryland applauds Governor O’Malley for establishing this Commission. It is critical that our state develops policies and practices for law enforcement and first responders, that there should be a coordinated and comprehensive strategy for response, and all first responders should have appropriate training to effectively respond to individuals with IDD in a variety of public safety situations.

In its continuing efforts to build awareness and improve community inclusion, The Arc Maryland is scheduled to conduct an introductory training entitled “Law Enforcement Response to Developmental Disabilities” at the Governor’s Fall Criminal Justice Conference on October 10, 2013. In an “Ask Me” format, individuals with developmental disabilities will lead this training. “The Arc has a long history of criminal justice and first responder training on a national level. We’re happy to contribute our extensive experience in any way that can benefit the state and individuals with intellectual and developmental disabilities and their families,” said Ms. Fialkowski.

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Brazilian Educators Visit The Arc Baton Rouge Children’s Services

By Barry Meyer, Executive Director of The Arc Baton Rouge

Earlier this month, we were thrilled to welcome five visiting educators from Brazil to The Arc Baton Rouge Children’s Services. The visitors came to Louisiana through a program of the U.S. Department of State. The guests joined us from five states across Brazil and included four Secretaries of their state’s Department of Education and one Deputy Secretary.

We were selected because our programs help create inclusive preschool, child care and educational opportunities for children with disabilities. One of the State Department’s specific objectives was to “Expose participants to the ways in which private sector entities are engaging with public sector partners in support of educational programs.”

Between Heidi Shapiro, Children’s Services Social Worker, two interpreters, and me, we presented four programs of The Arc Baton Rouge Children’s Services:

  • Early Childhood Inclusive Program
  • The Preschool and Child Care Training and Technical Assistance Project
  • Parent Supports and
  • School Age Supports

Using a multi-platform approach including PowerPoint presentations, multilingual handouts, informal discussion, and a Q and A session, the guests learned how The Arc Children’s Services staff works with public school administrators, principals, and teachers to help them restructure programs. Additionally, they learned how our staff serves as mentors and coaches to support teachers to include children with disabilities in regular classes. They also saw how a similar training and on-going mentor/coaching approach worked in preschool and child care settings.

In the end, the participants understood that training parents and care givers to be their child’s strongest advocate was critical to ensuring success in transitioning to public school systems. They also left with the knowledge that an organization that is not a direct stakeholder, such as The Arc, can provide that training to individual parents, combine it with mentor/coaching of teachers and create opportunities for individual children as well as real systems change.

I feel that The Arc Baton Rouge was very fortunate to have this opportunity to demonstrate to our Brazilian guests how we at the grass roots advocacy and service level incorporate our core values in a very real world way!

The five education officials concluded their visit with a brief tour and overview of The Arc Early Head Start program. The visiting Brazilian educators were:

Ms. Hortencia Maria Pereira ARAUJO, Deputy State Secretary of Education, State of Sergipe

Ms. Maria Izolda Cela De Arruda COELHO, Secretary of Education, State of Ceará

Ms. Maria Nilene Badeca Da COSTA, Secretary of Education, State of Mato Grosso do Sul

Mr. Claudio Cavalcanti RIBEIRO, Secretary of Education, State of Pará

Dr. Herman Jacobus Cornelis VOORWALD, Secretary of Education, São Paulo State

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Highlighting the Talent of Self-Advocates in Evansville, Indiana

By Denise Seibert, Director of Development, Evansville Arc

Last month, Evansville Arc was proud to partner with The Arts Council of Southwestern Indiana to host our first ever art show in The Arts Council’s Bower-Suhrheinrich Foundation Gallery located in downtown Evansville, Indiana. The show opened on May 10 and runs through June 12. The show features fabric mosaics that have been completed by individuals served by our chapter, along with volunteers and staff of Evansville Arc.

The project began in 2009 as a one-time project to engage community volunteers with the clients served in our Adult Day Services program. However, the project was such a success that we have continued work on the mosaics thanks to the help of local vendors, such as fabric stores and interior design professionals, who generously donate wall paper samples, fabric samples, scrap materials and other items.

I believe our President, Deidra R. Conner, described the project best when she said “This project truly demonstrates that the love of art is universal and that everyone – regardless of physical or cognitive abilities – has talents or gifts that should be shared with others.”

Description of pieces

“Freedom of Religion.”

This mosaic represents the right for all people to practice their religion or beliefs. Seclusion of individuals with disabilities in the past and societal attitudes impeded their ability to express and practice their religion or beliefs. Many individuals with intellectual and/or developmental disabilities indicate that being able to participate in worship services of their choosing greatly enhances their lives.

Beverly attended church with her sister before her sister passed away. With supports, Beverly is now able to attend religious services. ““I’m happy to go to church. I haven’t been since my sister died. I really miss the music & want to sing.” – Beverly W.


“Freedom of Expression.”

This mosaic represents the right to speak openly and fully without fear of undue criticism or punishment. Too often, persons with disabilities have not been given the opportunity to speak for themselves. Due to social and cultural attitudes, their opinions were not always given the same value as those without disabilities and their efforts to speak up were stifled. Individuals with disabilities have much to say and are encouraged to speak up about issues that impact their lives and their community.

“I am able to speak my mind and follow what’s in my heart”- Matt B


“Right to Access”

This mosaic represents the right of freedom of movement in the community. Freedom of movement is two-fold: being allowed to be a part of one’s community and being able to access it. In the past, persons with intellectual and/or developmental disabilities were encouraged to be placed in institutions and hidden from the rest of society. They were not able to attend public schools and take part in the daily activities such as employment, shopping, using recreational facilities, etc. Prior to the Americans with Disabilities Act (ADA) even if they were allowed to participate, many individuals with disabilities were limited due to physical or other barriers. Today we are seeing more and more individuals with disabilities contributing to their communities as employees, volunteers and taxpayers as they are given opportunities and reasonable accommodations.

“The best thing about getting my job is that I’m earning my own money and I now have responsibilities. Having responsibilities is the important thing, like showing up for work and being on time.” – Nathan B.

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Dancing Knows No Disability

By Shannon Quinn, Guest Blogger

Shannon Quinn is a dancer and teacher at Dance Place, a nonprofit arts campus in Washington, DC. In April, her company, ReVision dance company will perform “Just Be” in honor of her father; the late Timothy J. Quinn. The April 27 performance includes a VIP reception with proceeds benefiting The Arc. Tim Quinn was Executive Director of The Arc of the Northern Chesapeake Region from 1990 to 2010. Tim was a visionary leader and advocate for people with disabilities, respected nationwide for his efforts. During his time with The Arc, his chapter was recognized for the quality of its services and commitment to personal empowerment and inclusion. And, Tim personally received the National Conference of Executives of The Arc 2009 Executive Excellence Award.

Growing up with my father, Tim Quinn, I was inspired from an early age to work with individuals with intellectual and developmental disabilities. I would travel every summer with my dad to The Arc conventions, and tag along when I could in his office at The Arc Northern Chesapeake Region. I was inspired by his kind heart and genuine interest in every person he came into contact with.

Teaching has always been a passion of mine, and since my father’s passing, I became more involved in teaching dance to children and adults with IDD. I walk away from each class uplifted and focused on how individuals no matter what their abilities are, can be impacted by dance.

As my work with individuals with IDD increased over the past two years, I had some serious thoughts about inclusion and how the word inclusion shouldn’t really even exist. Every human being has the right to live a fulfilled engaging life, no matter what their ability, and that should be a given. As an artist, I began to form these thoughts into movements and from there, the piece “Just Be” was born.

In the work, I explore subjects like support and “people first language.” What does it mean to support individuals with IDD and then in return, how does that support translate into those individuals supporting themselves? The piece also focuses on people first, rather than labeling by an individual’s disability. I want my message to be positive and uplifting to every individual. Dance is universal and has no limits. This project has reinforced my belief the dance can bring people together, no matter their age, background, ability, experience, profession or skill level.

On Saturday, April 27, the ReVision dance company will perform “Just Be” and host a VIP reception organized in partnership with The Arc of the United States with a portion of the proceeds benefiting The Arc. The performance features children with disabilities from the Mamie D. Lee School who were taught by instructors from ReVision dance company. Also, the performance includes students from The Arc of the Northern Chesapeake Region shown on film. I hope you’ll be able to join us at Dance Place and help celebrate my father’s legacy to celebrate and love ALL people. Find out more about our dance company and this performance at www.danceplace.org.