Supporting Families of Individuals With IDD: The National Community of Practice

The National Community of Practice for Supporting Families of Individuals of IDD originally began in 2012 as a project funded by the Administration for Intellectual and Developmental Disabilities. Participating states have changed the front door into the system, improved cultural considerations in supporting families, guided and influenced policymakers and helped shape waivers and other Medicaid authorities to focus on supporting families and individuals throughout the lifespan. The National Association of State Directors of Developmental Disabilities Services (NASDDDS), along with the University of Missouri Kansas City Institute for Human Development (UMKC IHD), partner to support states, work to impact national policies, develop products and tools, and provide technical assistance. One of the key resources developed is the LifeCoure framework, which promotes the idea that all people have the right to live, love, work, play, and pursue their life aspirations in the community.