Still in the Shadows with Their Future Uncertain: A Report on Family and Individual Needs for Disability Supports (FINDS), 2011

Despite gains in many areas, overall the results from the FINDS survey show that our efforts as a nation have fallen short of the vision of an America where people with intellectual and developmental disabilities are accepted and have the supports they need to live to their full potential in the community.

The Family and Individual Needs for Disability Supports (FINDS) survey was conducted online from July 22, 2010 to October 31, 2010. The survey was widely disseminated through a variety of groups, including: the Association of University Centers on Disabilities, the American Association on Intellectual and Developmental Disabilities, the American Network of Community Options and Resources, the National Association of Councils on Developmental Disabilities, Self-Advocates Becoming Empowered, the National Council on Independent Living, Best Buddies, Easter Seals, the Autism Society of America and state and local chapters of The Arc. Families from all 50 states and DC completed surveys. Nearly 5,000 caregivers responded (4,962). The vast majority of caregiver respondents were family members (95%) who are living with their family member with disabilities (75%), and who are female (89%), Caucasian (90%) and married (75%). The results are representative of the people who heard about the survey and responded and may not be representative of all people with disabilities and their families. Data analysis was performed by Lynda Anderson, Sheryl A. Larson, Allise Wuorio and K. Charlie Lakin of the Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota.