I/DD and Mental Health: What We Are Learning about Challenges and Needs

People with I/DD and mental health needs and their families often struggle to get the help they need. Our first project wanted to learn what could be done to help young adults with I/DD and mental health needs to get better mental health care. This project brought together young adults with I/DD and their families, service providers, and researchers to develop priorities for practice and research. This project was funded by the Patient Centered Outcome Research Institute (PCORI). The second project hosted focus groups to learn more about the challenges that people with I/DD and mental health needs and their families have and what we can be doing to better help families. This project was funded by the Family Support Research and Training Center (FSRTC). Presenters from The Arc, Boston University, and The Intellectual Developmental Disability Mental Health (IDD-MH) Research Partnership discuss their projects, results, and next steps.