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Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Island

This guide educates caregivers around how to become a health care advocate and support loved one’s through medical appointments and provide more information around screening, assessment, and diagnosis.

Alzheimer's Disease and Down Syndrome

This guide for families is a great resource overall around the signs of dementia for people with I/DD and how to conduct a screening and baseline assessment.

National Task Group on Intellectual Disabilities and Dementia Practices

The NTG's overall mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementia.

The National Task Group - Early Detection Screen for Dementia

This screening tool can be used to help detect changes in adults with intellectual disability who are suspected of or may be showing early signs of mild cognitive impairment or dementia.

National Alliance on Mental Illness (NAMI)

NAMI, the National Alliance on Mental Illness, is the nation’s largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness.