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What is Dementia?

Down Syndrome Scotland created plain language resources for people with I/DD about what dementia is, what dementia is like when you or other people have it, how you can help people who have dementia, and how to ask for help from supporters.

Talking About Dementia

This guide provides practical tips and strategies for families to use to consider how and when to start talking about dementia.

Intellectual Disability and Dementia: A Caregiver’s Resource Guide for Rhode Island

This guide educates caregivers around how to become a health care advocate and support loved one’s through medical appointments and provide more information around screening, assessment, and diagnosis.

Alzheimer's Disease and Down Syndrome

This guide for families is a great resource overall around the signs of dementia for people with I/DD and how to conduct a screening and baseline assessment.

National Task Group on Intellectual Disabilities and Dementia Practices

The NTG's overall mission is to advocate for services and supports for people with intellectual disability and their families who are affected by Alzheimer's disease and dementia.