Despite gains in many areas, overall the results from the FINDS survey show that our efforts as a nation have fallen short of the vision of an America where people with intellectual and developmental disabilities are accepted and have the supports they need to live to their full potential in the community.

Over half (52.6%) of non-elderly adults with IDD about whom caregivers reported in the FINDS survey received Supplemental Security Income (SSI). This data brief describes the characteristics and circumstances of these adult SSI recipients with IDD and the families who care for them.

Despite recent progress in employment legislation and local-level employment initiatives, finding and securing meaningful and community-based employment opportunities continues to be a major challenge for people with intellectual and developmental disabilities (IDD).

One of the great challenges facing today’s caregivers for people with intellectual and developmental disabilities is balancing the responsibility of meeting their loved one’s present needs with establishing a plan to ensure their continued care and supports in the future.

The Family & Individual Needs for Disability Supports (FINDS) survey assessed the state of caregivers of individuals with intellectual and developmental disabilities (IDD) in the United States. The resulting report sheds light on the experiences of families who provide supports to a family member with IDD.