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Family Outcomes of Long Term Supports and Services for Family Members with Intellectual and Developmental Disabilities

This brief reviewed parents' self-reported experiences with long-term services and support for their family member with I/DD and found that caregiver health and level of support needs influenced satisfaction with supports.

Sibling Caregivers Experience Less Choice and Control

This brief reviewed the experience of sibling caregivers compared to other caregivers and found that sibling caregivers generally reported less choice and control around services and supports, as well as lower household incomes despite similar ages.

Research Brief: Caregiver Support Amounts

This databrief describes the kinds and amount of critical supports provided by families to individuals with I/DD living in their family home.

National Association of States United for Aging and Disabilities

NASUAD represents the nation’s state and territorial agencies on aging and disabilities and supports the advancement of state systems innovation and the articulation of national policies that support home and community-based services.

Seth v. District of Columbia

Complaint filed in the U.S. District Court for the District of Columbia challenging the indefinite incarceration of a young man with intellectual disability languishing in federal prison despite not having been convicted of a crime in violation of the ADA.