This guide educates caregivers around how to become a health care advocate and support loved one’s through medical appointments and provide more information around screening, assessment, and diagnosis. This guide also provides general information around how to work with health care providers and tips around providing care if a diagnosis occurs. While some information is specific to Rhode Island, many strategies and resources are generalizable to all families.

Down Syndrome Scotland created plain language resources for people with IDD about what dementia is, what dementia is like when you or other people have it, how you can help people who have dementia, and how to ask for help from supporters. This resource was created by adults with IDD for adults with IDD.

This guide helps supporters think of ways that they can help adults with IDD and dementia deal with common challenges that they may face because of dementia, including eating, using the bathroom, walking, and going to bed. This guide was created by Down Syndrome Scotland.